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anyone else with Peutz Jehgers syndrome?

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Re: anyone else with Peutz Jehgers syndrome?

Hi lizred, 

 

I am sorry that you have not yet got a response and I am sure you will be receiving some support from users soon. 

 

Please do call our helpline on 0808 800 6000 in the meantime. They will be able to talk you through PJS and offer a friendly ear. The opening hours are below. 

 

Monday-Friday, 9am-5pm
Late opening Wednesday 9am-7pm
Saturday, 9am-1pm

 

Best wishes, 

 

Lizzy 

anyone else with Peutz Jehgers syndrome?

Hi I've recently been diagnosed with PJS (a syndrome which increases your risk of various cancers, including BC) - it would be really great to hear from anyone else who has the same diagnosis - as its quite rare I've not yet found anyone else who has even heard of it, let alone got it!

thanks, Liz