I will ask the technical team if they can help at all with your lists. It may be after the weekend when they can look at it.
The moderators should be helping you with this Penn, the site is nuts since they changed it, I hate it now, but we are a group so I wont leave.
Lets hope they are decent enough to send you some tips to help you
Tax 1 day 11 Feeling positively well!!!!
Pendragon You made me laugh re cling film over picc line! It is a nightmare isn't it. I tend to roll out a piece about a foot long and then wrap it as tight as I can then add a bit to the top if needed? (hope that makes sense!) To be honest it is not completely water tight but as long as your bandage doesn't get completely soaked it should be OK.
Chezza sorry you aren't feeling too good I have the same walking through porridge type of feeling must be the anti vomit tablets but I have driven and felt fine.
Lols again sorry to hear you are not having a good time either. Have you let your unit know???
Hope everyone who was up today is feeling ok so far
You're a star, Penn - thanks for all your attempts to get the list up.
Surely someone at HQ can help? Why on earth can't we insert formatted lists on this new site....?
Username Bar Group Regime Date 1st chemo Date 2nd chemo 1 Jacquie08 Octopussy 3xEC, 3xTax & 18xHerceptin 02/08/2013 23/08/2013 2 Lols Dixie Chicks 6xTAC and rads & tamoxifen 19/08/2013 3 Annie62 Three degrees +2 3xFEC and 3xTax & hormone tabs 08/08/2013 29/08/2013 4 Claire1979 Dixie Chicks - 19/08/2013 5 Chezzap Dixie Chicks 4xEC and 4xTax & Herceptin 29/07/2013 19/08/2013 6 GillyR Dynamic Duo 6xFEC & Herceptin, Tamoxifen 20/08/2013 7 PennyCrow Three amigos 3xFEC & 3xTax 07/08/2013 8 Maxie - -
Trying another format
No, that's worse.
Breezey, know how you feel - I've only got a sparse covering at the back and a big bald patch on top - will have to get OH to shave it tomorrow, I look so awful! Have been wearing a turban round the house as my head was feeling so cold....
On the plus side, my wig fits better now!
Not at all Angie - you tried to correct me before and I messed it up because I'd forgotten your weekly rather than every 3 weeks. Obviously my brain not in gear. I have altered the main list to show your Taxol dates - is that okay?
The table formatting is nightmare-ish unless the forum techies can help me come up with a solution? I'll have another play and then I'm giving up fo rthe night.
pennycrow sorry to mess up your table although i stayed an eagle i was cancelled a week cos of the dr not sending a note through for my picc line. so i started herceptin on 13th and taxol on 22nd my next oe hopefully being next thursday as im on weekly. sorry huni. xxx
Don't mind me - just trying to get the table to work
Username Date 1st chemo Date 2nd chemo 1 Jacquie08 02-Aug 23-Aug 2 Lols 19-Aug 3 Annie62 08-Aug 29-Aug 4 Claire1979 19-Aug
Lynsey, I hope they get you sorted really soon hunni, thinking of you xx
There must be loads we havent heard from yet, hope they are all ok xxx
Trying table again
Rats - formatting has gone again
Username Date 1st chemo Date 2nd chemo 1 Jacquie08 02-Aug 23-Aug 2 Lols 19-Aug 3 Annie62 08-Aug 29-Aug 4 Claire1979 19-Aug 5 Chezzap 29-Jul 19-Aug 6 GillyR 20-Aug 7 PennyCrow 07-Aug 8 Maxie - 9 Coco0896 - 10 Bumpkin 08-Aug 11 Tasha101 07-Aug 12 Samjs - 13 Tylerrose 02-Aug 22-Aug 14 Deb12 08-Aug 15 Lynnk 14-Aug 16 Whiterose 07-Aug 17 Venice25 23-Aug 18 Kaz1961 20-Aug 19 Lynsey44 23-Aug 20 Helin (her Mum) - 21 KarenH - 22 Daisymegan 19-Aug 23 ChrissyW - 24 JunieB - 25 Alison T - 26 QPR1111 - 27 SpikeyRed 15-Aug 28 Breezy41 08-Aug 29 Ivorymummy 02-Aug 23-Aug 30 Benedictus 31-Jul 20-Aug 31 Emn - 32 Pendragon 14-Aug 33 Shelley37 30-Jul 34 Maseo - 35 Ruthy1 12-Aug 36 Hudson126 - 37 ChristineVW/JustFab 12-Aug 38 Sakura1971 08-Aug 39 Bakeswhenstressed 12-Aug 40 Rainbowrosie 14-Aug 41 Avonlady - 42 TollieBelle 13-Aug 43 Jo43 30-Aug 44 Rollercoaster 19-Aug 45 hotkatz_ingoa 14-Aug 17-Sep 46 Malforda 13-Aug 47 Happycats2 14-Aug 48 Barbarella63 Now Sept 49 KiwiHelen 31-Jul 21-Aug 50 Kickit'sass 22-Aug 51 Paula 03-Aug 52 Chrissie49 06-Aug 53 hcmcleod - 54 Tabithacat 13-Aug 55 CarryF 21-Aug 56 Julie66 27-Aug 57 Jules06 23-Aug 58 Nichola6 23-Aug 59 Lucy58 13-Aug 60 JunieB 28-Aug 61 TLW 23-Aug 62 pas_the_boss - 63 pips64 23-Aug 64 Christymay 16-Aug
Well I'm glad it is not just me that has wig problems. Mine was trimmed before I left the salon, and my daughter, grandchildren and salon staff all thought it suited me. Guess I will get used to it eventually. Think I will do the same as Gilly, wait until my hair starts falling out, get my head shaved and wear the wig then
Sorry you are having problems, I have just tried the Headstrong demo and it did work for me. I have put a link to the page on the website where the demo is if you would like to try that
just heard from lynsey she is having gp come out to her as she keeps being sick. Gonna give her an injection for it so lets hope that does the trick for her.
hope everyone else ok we seem quite subdued tonight.
FEC 75 Day 1
Tooks ages had to have cold cap on 30 mins before and two hours after, they got my dose wrong in the pharmacy so had to redo it, they had real trouble finding a vein (3 attempts and a blown vein later finally they got in) and my veins are so tiny I had to have chemo delievered really slowly i.e 7 hours later and I'm home!!!! Head was covered in ice when the took cold cap off! Having a port fitted next time, spoke to another lady who had a port and it doesn't sound so bad and delivers chemo quicker. Feeling queasy and shaky on and off but drinking plenty of water and eating a bit seems to take the edge off it. Feeling high one minute and sad the next - think it's a combination of the steriods and the fact that it's 1 down 5 to go!
Hope everyone got on ok today.
Have a good evening with no/minimal se's.
Julie, glad I'm not the only one whose helpline doesn't get back to them....
Not good, is it? What about your blood tests? Won't you need those before you go in?
hi everyone, i decided against an nhs wig as we were asked to pay the full amount of nearly £70 i have bought a comicky one with a bob in black with grey topping and also an ebay one for £6, im not sure ill wear them but want to be prepared, got lots of bandanas and some scarves.
can anyone help re PICC lines tried the cling fim for a shower but didnt even make it into the shower with it on, ended up sitting in the bath with it on the side, but having trouble gettng dressed with it wre it is and woke up with OH lying on it, taking my anti sickness tabs religiously and so far so good, but im taking each hour as it comes, just feel hot but temp ok.
my friend and i were talking today and realised that for years weve worn our breast cancer badges upside down only by looking at the logo on here did we realise xx
tc everyone hope people ses arent bad over the bank holiday weekend xxxx
I agree about the wigs, Penn - they all seem so 'big' on top! Far fuller than my real hair would ever manage!
I'm hoping my wig won't look so like a pineapple when all my hair's gone and I can pull it down more...
I think it is just a step at a time with the chemo and associated meds. Be nice to yourself and "go with the flow". Hopefully tomorrow will be better.
ha ha cheers Lols and Gilly
The upside is Ive not been a quivering wreck yet this cycle ( please dont tempt fate just yet!!) think I havent the energy to even cry today!!
Dear Lucy and Gilly,
These wigs are problematic aren't they? I've been for my wig fitting this afternoon and although they trimmed it around my ears, it is still much fuller/longer on the top than my real hair. The Flintstones have nothing on me!
However, hairdresser demonstrated that with damping down and smoothing the wig dries flatter. Not sure how often I will wear "Hairy Maclary" (children's books have allot to answer for don't they?) or perhaps I just need to practice putting it on and styling? Didn't have to pay for wig (prescription) which is just as well as ticket price was £299!
On a good note, hairdresser was wonderful and made me feel very positive about the whole experience, even clipped my hair off to a 2mm stubble so no more waking up in the morning with a mouthful of hair or moulting around the house.
Ah, another step on the road.
May all your wig-worries be small ones.
Chezza that is exactly how I feel, maybe its our combination of drugs this time although I am on last day of half dose steroids today. Wading through concrete like I said yesterday and like you weigh 30 stone. I can just rest, hope you can too with the boys hunni xxx
good to hear news from some of our Octupussy ladies. Lynsey if you continue to be sick call the hotline and see what time you can take your next meds
Hi to Christymay
I have no energy today feel completely zombified. Dont know if its the anti sickness meds which can make you drowsy. Its a fatigue where you cant sleep but just feel weak and lethargic like even walking upstairs is a major hassle.
I just keep thinking got so far to go yet and dont know how am going to do it. No finishing post in sight yet.
Lucy I know what you mean about the wig looking great at the salon, I loved mine there and when I got it home I swear it wasnt the same one, even though I know it was. I have such thick hair though even though it is very short now and it is lifting up the wig so I will try it again once I am bald. I have also ordered one like Sams for £7 and that is a bob so will see what that is like when it arrives. I can see me bald or with turbans though xx
FEC-T cycle1, day 11.
Well back from my wig fitting. Only got one, as I am still not sure I am going to wear a wig. Even after trimming, all the short wigs are all a longer length than my short hair. Wig looked ok in salon, but when I put the wig on at home, it looked totally different Guess I need to practice, practice, practice before I start to lose my own hair in a few days., then I might get the wig on correctly, but hats, caps etc., at the ready just in case lol lol.
Hi Hotkatz, sorry to hear you're still being deluged! It's because you've subscribed to this thread. I'd recommend going into:
That should stop you receiving an email every time someone posts here.
I'd recommend 'Bookmarking' this thread instead. All you need to do is go to the top of the thread, click 'Thread options' at the top (next to the Reply to this thread button). You can then select 'Bookmark'. You can also manage these in your profile.
I hope this helps!
Hotkatz, go into your profile and go to preferences or on the email itself there is a link to click to turn it off. The moderator said they were going to do it but obviously havent xxx
Hi girls Ec cycle 2 day 1, 2nd dunking complete! They were very sympathetic that cold cap hadn't worked, on a plus note I was hours quicker than last time. They don't want me to halve dex dose as I asked cos I was so nauseous, but I have to take it at 7 am and 11 which should help me sleep? Hope all other Bond girls doing ok? I had canula again have to see how well veins hold up. Take care girls xx