Ec cycle 2 day 7
morning maisies glad to see we are feeling bit chirpier today. Lols hope having OH home is a source of support.
Christy some ladies have said that pineapple the colder the better and ice lollies are good for sore mouth and non alcoholic mouthwash.
Apart from a stiff neck Im feeling much better today energy has come back and think will chance a walk out weather permitting.
hope everyone feeling ok
will text Lynsey in a bit and see if she is still in hospital
Roller coaster I am sure they will sort you for next time, ask for Emend when you see the onc, it is the best.
Christie, definitely one day at a time and although I feel a bit better today I still have strange things going on in my ears which is really annoying. Eating like a ruddy horse this morning though and still hungry...lol. I will be a hippo by round 2!! Already planning todays roast dinner.
Hope you managed a decent night's sleep, I did with my magic pills, still in bed now. Ju really hope you have a better day now Mart is home. Remember all who have had bad time this week, butlins something to look forward to. Spikey so glad you are feeling well and are having some days out and about.
The age average of the group is low, and I blame certain things for mine. However, despite having to poison ourselves to get well as least we found it and it can be treated.
Rollercoaster, don't worry about being as sick the second time. Your oncology team will adjust your supporting medications to stop this happening again.
Good morning Penn, you just made my mouth water with thoughts of cake!!
I cant believe we are back to the 2nd session for you guys, that 3 weeks has gone so quickly hasnt it. Lets hope it goes that quickly for all of us and we can be out of this xxx
Good Morning Maisies,
FEC#1 Day 19
Well done to Gilly, Rollercoaster for good sleep – hope everyone else managed restful night too? Any news on Lynsey?
It’s a cloudy and “dreich” here in the Highlands this morning. Fingers crossed that it will improve as I’m hoping to get out and take some photographs. I’m fine and well but PICC line is nipping a bit. I look to have minor infection around insertion site so will ask about it when I have pre-chemo bloods taken tomorrow. Daughter’s Lemon Drizzle cake was delicious for tea yesterday – there’s not much left (always a good sign).
I think that the age profile of this group will be primarily under fifty. Those I think to be in their fifties are Annie, Jacquie, Rollercoaster, Lucy58, Tylerrose and me, - (apologies if I have aged anyone prematurely) although there may be others. Part of this demographic shift will be down to better awareness and diagnosis - identifying the disease earlier.
Subject to positive blood results, those up to the bar this week should be a round dozen:
Tues 27th Julie66 (Chemo #1); Chrissie49 (Chemo#2)
Wed 28th JunieB (Chemo#1); Three Amigos #2 (Tasha, Whiterose and me)
Thu 29th Three Degrees +2 #2 (Annie, Bumpkin, Deb12, Breezy and Sakura1971)
Fri 30th Jo43 (Chemo#1)
Let me know if I have omitted anyone. Not sure where Shelley37 and Paula are in their chemo cycles? A special hug to those having chemo for the first time – it’s not nice, but it is doable. After the first session you know what to expect and that makes life easier.
Now, breakfast is calling…
Hoping everyone is feeling better today. Gilly glad to hear you are feeling more normal! today.
Lols hoping you are having lovely reunion with hubby and having him home is making things easier for you. I struggled for a week on Tax before starting to feel better hoping next one will be easier have heard that first one is normally the worst (here's hoping!)
Hair starting to depart this morning moulting more than the dog!!! May take the plunge later and shave it off.
Hope everyone has a lovely day sun is out here already off to take dogs for a walk.
What day are you on Rollercoaster and werent you quite sick at the beginning? I am on day 2 off the steroids and already feel much more human again. Yesterday I still felt very wobbly on my legs. I may wander out for a walk today if the rain stops at some point. It is nice to feel we are coming to the end of SE's hopefully for this cycle. Have a good day xxx
FEC #1 Day 6
Slept for a whole 6 hours last night woohoo!! So far this morning I am feeling like me, but I am not holding my breath. Lols, hope hubby is home and you are feeling a bit better today, lots of us have struggled this week.
Christie, welcome to our happy gang and I am glad you have found some comfort here with us. I am only 46 and most of us are around or under 50 I think. These girls have been a lifeline for me in the last month and have given me strength when I thought I had none. We will all get to the end of this rubbish and we will do it together.
Thinking of Lynsey and others who were at the bar on Friday and havent checked back in, hope they are ok.
Love to you all
Lols sorry didnt see your post.
Im not sure about that regime but with most its 2 to 3 weeks after. Have you googled it to see?
Is your scalp itchy and tingling?? It may just be cos you been feeling run down since Monday and you are on look out for it.
OH will be there any time soon to give you a massive hug chick
what time is he due back???
God I wish I was 21 again lol xx
Arrr Ju , sending you a big hug hun..... OH will be home soon to give you a real one. I bet he wont let go , as Im sure you have been on his mind 24/7
Lynsey is 32 think she is the youngest in the August maisies. Claire 1979 is only 34
There s quite a lot of us are in our thirties and forties in this thread which just completely refutes the theory that BC is rare in women under 50.
No matter everyones background though we are all in it together. We are a very mixed bunch some of us have grandchildren, others grown up children and some of us have babies ( myself included) some of us have step children and some of us dont have children which makes me very envious at the moment as my little one decides that 5.30 am is breakfast time!!
If you are interested there are some younger womens weekends across the country. Theres one coming up in Cardiff, London and Manchester. The Manchester one is end of Jan so Im going as Im hoping chemo will be finished by then. Accomodation and meals are free and its achance to meet others so am def up for it.
BTW Christy you might not know that we are planning a reunion next year when we have finisheed chemo at a Butlins so we can let our hopefully regrowing hair down and meet each other and basically have a damn good laugh
you used to be able to read peoples profiles Christy but all that info seems to have gone when they switched over
Hi There Christy and welcome, I see you have joined whilst I have been off line for a while .
you dont have to, but it is always lovely to get to know each other better.
Hi Maisies ..... I have been away from my laptop a few days and BOY!!! have I got some catching up to do lol
Oh dear , seems like lots of hair shaving and nasty se"s for many of you 😞 I sincerely hope they improve very quickly for you all.
Daisymegan I would just like to share this with you hun. I"m 43 with a 11yr old and a 14yr old and although we have spoken in lenght about BC and what it means to us as a family, my children are really quiet emotionally unaffected by my dx and treatment, which I find comfort in. They are too young to have the worries I have. Thier biggest disappointment was having to cancel our hoilday, which I totally get, as I too was gutted. I know that the best thing I can try and give my children right now is some sort of normality to our everyday lives and try and stay as happy as I possibly can in their presents (easier said than done sometimes , but I think I'm doing ok at it) because I know if they see me ok and happy, then they will be too.
So I guess what I'm trying to say to you hun, is please dont feel guilty about your mums treatment and what you did or didnt do. I think as a parents we shield our children from as much pain and upset as we possibly can. I'm sure you were less aware of what was happening with your mum for the very same reason as my own children are right now , which I think is a good thing. No loving parent wants this for themselves or their family and I;m sure your mum was no different. Dont be so hard on yourself!! much love xxx
Sam I'm so please your appointment has come through....YAY!!
To all other Maisies , Im still catching up on the post , but I havent forgotten about you all.
Take care you lovely lot . xxx
That's amazing ChristyMay, what a fabulous supportive family. My Oh won't need to shave his as is already bald. I am asking him to shave mine when we get to that point. Sure it will be emotional for us both. Hope everyones's SEs are getting less and you all manage to get a decent nights sleep.
love that A.A.Milne quote and the poem.
Hello everyone, I’ve never wanted to go on any sort of forum before, but coming across so many brave upbeat women I realise it would be stupid not to! Diagnosed in May, surgery in June, finally started FEC 16 days ago. Only minor side effects this time – so far so good. I tried the cold cap which was horrible, blinding headache for duration, but hair is still firmly intact. Only thing is my scalp really hurts – is that significant? I’m not sure I want to go through cc any more – is that mad? I’d sort of come to terms with hair loss before I knew there was something that might help. Why am I obsessed with hair loss when I’m apparently calm about having BC. Makes no sense.
Good luck everyone!