hi, i am due to start chemo on thurs 29th. was supposed to have a central line in as my veins are shot, but somehow this hasn't happened, so i don't know if it will go ahead or not! i had a mastectomy in june, with lnc in july. i also spent 4 days in hospital with a drain infection. this has been such a lovely summer once it got started, and i have spent all of it waiting, waiting, waiting. i have fibromyalgia, sjogrens and ibs, and all this isn't doing me any good. just hope i can get going on thurs
Sorry not been about but we were out yesterday and today I have been running about getting things for the strawberry tea tomorrow and then sorting everything out for it.
I think we should change teh group sname to the Weebles with all this wobbliness going on. Glad Spikey red is ok and Penn good to hear you got your Picc line sorted. Hope all these sore mouths sort themselves out soon.
Welcome to the new ladies, I was here early but not starting until September now!!
good luck to the ladies up tomorrow, i know one is you Julie66(fingers crossed) and someone is having a second dunking just can't remember who. (sorry)
Hello Gilly R - sorry you're having such a bad day - it's horrible feeling like that and I'm glad Maisies are such lovely supportive women. Thanks so much for welcoming me - it's given me a real boost. I thought I'd be fine as my family are really lovely, but you all really know what it feels like. Hope you feel better soon!
Pennycrow – thanks so much for welcoming me – it’s great to have joined the Maisies! Sorry to hear you’ve been in hospital and hope you can go ahead on Wed – you need to be through by Christmas! I started on Aug 9th. I’m having FEC but not Tax – can you explain what that is? I think I heard someone say that it’s a good thing not having it. I’m seem so much luckier than lots of other Maisies - lots of you really going through the mill. Look forward to getting to know you all better.
Christymay - energy is something that comes and goes during chemo. Week one I had to sleep for the rest of the morning having risen and showered. By week two I was managing a ten minute walk by end week three I have loads of energy for baking, cleaning, walking. Come next chemo session I will be back to being sleepy again.
Your energy levels will improve.
I had tears this morning when I realised I could only do a short walk with the dogs, then met a neighbour in full flow and had to explain I was having a bad moment. He was great and we chatted for a while. I am finding I am very short tempered more than anything, which isnt like me. But I guess we have to deal with the mood swings, which are drug induced after all. We will all get there and as always it is good to know we are not alone in how we feel. Love to you all and thank you for being there xxx
Thank you ladies,you always make me feel better,my poor OH & daughter don't quite know what to do or say,bless them.my saying is tears are healers!
Welcome Genevre, sorry we missed you with this new "improved" forum.
Christy I do a bit then am shattered, but each day I can do a bit more than the day before. Just listen to your body, it will tell you what it needs.
Daisymegan last posted on 24th.
I've just made a batch of scones. Destined for tea with homemade jam and cream. Diet? What diet?
Welcome to the August Maisies - I have added you to the group list. I must have missed your posting on the 24th, but your are now the 67th member of the group. In a group this large you will find plenty of chat, experience, support and lots of laughter too. Just so I'm right about this, you had FEC on Thursday 8th August? Are you going on to Tax as well?
Sore scalp can be a sign that you are loosing your hair in spite of the cold cap or just that the chemo has made your scalp sore. It seems to be a common side effect around day 17 for FEC patients.
Any questions, just ask as someone in the group will either know the answer or know someone who knows the answer!
Hello everyone, I’ve never wanted to go on any sort of forum before, but coming across so many brave upbeat women I realise it would be stupid not to! Diagnosed in May, surgery in June, finally started FEC 16 days ago. Only minor side effects this time – so far so good. I tried the cold cap which was horrible, blinding headache for duration, but hair is still firmly intact. Only thing is my scalp really hurts – is that significant? I’m not sure I want to go through cc any more – is that mad? I’d sort of come to terms with hair loss before I knew there was something that might help. Why am I obsessed with hair loss when I’m apparently calm about having BC. Makes no sense.
Good luck everyone!
Thanks Tasha for info re - profile ..........I give up with it TBH...... perphaps the techies of the site could give us all some guidence on this one too.
Love to Spikeyred, hope she is back with us soon. xxxx
I’m back from hospital – thank you all for thinking of me. They were very efficient. Cleaned PICC line entry wound, swabbed for culture and redressed with anti-biotic impregnated dressing (never knew there were such things). My lovely chemo nurse (Joan) seems to think they have caught infection in good time thanks to eagle-eye of GP practice nurse who took bloods this morning and told me to ring oncology ASAP. They will redress tomorrow when back to hospital for consultant appointment and also see if today’s bloods show any background infection. Definitely don’t want any delay to next chemo round, due Wednesday.
Deb – good to hear that your kidney stone is quiet today. Hopefully it will stay that way.
Rollercoaster – it must be a worry with your Mum. Thank goodness she is safe and well.
Bonski – welcome to our merry group. You are our 66th member. Here you will find plenty of chat, advice, experience but also lots of laughter. As you were up at the Bar (had chemo!) on the 22nd you were up with Kickit’sass and Tylerrose. Normally I produce nice little (? large) lists with info of who is having which chemo when, but since the change of the new forum format I have been unable to do so. Hope the forum techies are going to help me find a way around this soon. Smoothies for constipation? Any fruit but with addition of oats or muesli - tastes wonderful too
Gilly – thank you for the update about Spikeyred – bloods clots are nasty. Please let us know if you have any updates.
Just summoning the enthusiasm to do some work or possibly cook...
Bonski68 welcome to the maisies. I had real probs with constipation and no amount of veg and fruit seemed to work so had to resort to take senakot at night that did the trick and felt so much better.
Hope spikeyred is ok and they get her sorted asap sending a big hug hun.
X x x
Hi Maisies - Its a beautiful sunny warm day down here in the South - just going to sit in the garden for a bit.
I'm not up for second dunking until 11th September - quite a few of us close together. Thankfully the jitters have now worn off but I've got the sore mouth and ulcers now. Feeling a bit tired but not too bad.
Tylerrose, that is exactly how I am feeling....like a hangover without the fun. I lost my sense of taste a couple days ago...everything tastes like crap...maybe I should try eating liver and onions or brussel sprouts (Yuck!) 😉
Rollercoaster, sorry to hear about all your troubles and hoping you can relax for the rest of the day!
I'm following this thread on my iPad but having a hard time navigating it. I'm sure it's just this 'wappie' feeling.
I'd like to apologize in advance if I offend anyone with my word usage. I know that even though our language is the same, words may have different meanings (US vs UK)
Right, I have decided I am just a wimp. I dont drink and have never done drugs, so maybe I just have the hangover feeling and I laughed with the Thunderbirds puppet description because that is how I feel I am walking when I need to hold on!!! I am much better today and I think the 2 paracetamol this morning have helped. I have hoovered and my 4 dogs have taken me for a drag down the bridle way for a short time 🙂
Have had a text from Spkiey Red, she is in hospital with a suspected blood clot on the lung, she has had a ct scan and awaiting results, so fingers crossed that it is just a false alarm and it was too much excitement at the cricket yesterday!! The good news is that on day 12 her bloods are normal.
I am up for my second dunking on the 10th September all being well
What is the wappie feeling? Is it a sort of weak, wobbly, slightly queasy feeling? If so, I've had it off and on for days now...
Hi Jacquie08, no I cant see your profile info about yourself 😞 I have just managed to do mine , can you see it ??
Pendragon , shame not alcohol brought on hey!! 🙂
Morning maisies, gilly sorry to hear you are having a rough time with your ears. I can't say I suffered with mine but I am EC not FEC I just had a fuzzy head and abit of a distant feeling. Hope the rest of the maisies are doing ok today.
Same as you breezy cannot believe we are nearly at round 2 this week, but hey it us one step closer to the end hun.
Well update on kidney stone, not in agony now thank god but no sign of it either so god knows where it is now lol!
Penn I hope they sort your picc line infection cleared up asap hun sending a big hug.
I hope you all have a good bank holiday whatever your doing today try to enjoy.
Debs x x x
Morning Maisies I have just tried to do profile, not got a webpage funnily enough? Ended up putting http://notgotone which it did seem to accept? However still saying save or reset can anyone see my info or is it still not saved it? Grrr I know change isn't easy but surely if it worked before this improved site should be easier not harder? # hacked off!! Xx
morning maisies just brightening up here in beds, been very overcast. nurse just been to help me with my injections, still feeling sicky and bit achey, as everyone says a hangover with no drink lol.
hope you are all feeling ok ish on this lovely bank holiday monday, im making thos dollys today tried to change my pic to one not sure its worked will know when i post this.