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anyone starting chemo in August?

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Re: anyone starting chemo in August?

Katherine,

About the headaches:  make sure that you are drinking enough fluids and, more importantly, have a word with your oncology department or go and see GP.  Should tell them if you are getting side effects as they can often prescribe something to sort them out.  Don't suffer in silence.

Re: anyone starting chemo in August?

Jill, really sorry to hear about your cat, that's the one you were telling me about the other day isn't it?
Nicola, jealous you feel well enough to even consider sex! But I was also told it was necessary to use a barrier method.
Anyone else suffering with headaches? I'm sort of on week 3 and had stopped all the anti sickness drugs a while ago, but am now getting almost constant killer headaches which also make me nauseous. Was hoping to regain the 3lb I'd lost before next chemo, but have been unable to eat today. Any tips?
Gilly, like the idea of the fb page, will look when I feel strong enough to get to the pc as can't manage that on my phone.
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Re: anyone starting chemo in August?

Gilly - we won't be strangers for much longer!  As you will know from the FB page by now, yes, I'm in.

Penn

Re: anyone starting chemo in August?

Penn, Have you been accepted? I have just done 2 new ones, but I have no idea of peoples real names, its like a bunch of strangers so far..lol xx

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Re: anyone starting chemo in August?

Gilly,

I've sent you a friend request for the Maisies's FB page... at least I think I have.  Don't use a personal FB page so it's a learning process for me. FB has absolutely nothing on it!  I will have to put a picture on it.

 

Best wishes,

Penn x

 

(Ah, I've just managed to put a photograph on my FB page - success!)

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Re: anyone starting chemo in August?

Tolliebelle (Jill),

Very sorry to hear about your cat Daisymay.  It is the mark of how much impact our pets have upon our lives that we grieve for them when they are gone.

Re: anyone starting chemo in August?

Jill. Sending you a great big cyber (((hug))) after the sad loss of your cat. Bev xxx

Re: anyone starting chemo in August?

Good to have you back with us Daisymegan. We all need each other, as a song says, "some days are diamonds others are stones". Sorry you were feeling so bad, we must be on the up now until next treatment on 9th sept, lets do what we can ad not worry about what we cant, love and hugs to you and all xxx
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Re: anyone starting chemo in August?

Hello Daisymegan,

 

Glad you are feeling bright and positive.

I had a reaction to my bone stimulating injection.  After first daily lenograstim I had high colour, rash, tingling in hands and lips, cough.  Saw GP who contacted oncology and swapped me next day to the slow release 7 -day version (Pegfilgrastim) which I took after first taking piriton.  Also a reaction, but less so and controlled over next few days by anti-histamines.  Hoping 3rd version will be better or at least any reaction more controlled by pre-loading me with anti-histamines.  Don't worry, allergic reaction to these drugs very unusual according to the hospital pharmacist who I spoke with this morning.

 

Penn x

Re: anyone starting chemo in August?

Afternoon Ladies

Well have done my 3 hours in work! Got to say didn't really do very much but it puts going on to half pay back so will have to continue! Am in for rest of this week and then Mon next then get rest of that week off after dunking on Tues 3rd Sept.

Had to have my cat Daisymay  put to sleep this morning so very sad day! She was 14 but has had epilepsy since she was born and no one gave her longer than 6 months so she has done very well.

Hope every one has had a good morning and Gilly thanks for FB group see you on there!!!

 

Jill xxxxx

 

 

Re: anyone starting chemo in August?

Chezza I am having 6 x Tax or Docetaxol same thing and my hair has gone!!
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Re: anyone starting chemo in August?

Thanks Chezzap from an equally dull N.Wales for the tips. Also Rollercoaster and Pennycrow. This will all be very useful and I'm sure the Stars will appreciate the info too. Enjoy the picnic Chezzap? Good luck with the chemo Pennycrow. Love and hugs x

Re: anyone starting chemo in August?

Sorry Penny crossed post. Hope they sort something out for you. What was your allergic reaction?

Re: anyone starting chemo in August?

TCH cycle 1 Day 9

 

Hi Maisies,

 

Thanks for all your lovely replies the other day. It made me look at things differently. 

 

I have managed to read through the posts but have pretty much been exhausted and although the first few days after chemo were good, I have just felt worse - especially in the head. I expected chemo brain was just going to be feeling a bit fuddled but it's been more like really weird connections and disconnections with me plus feeling restless but unable to do anyhing. I can't work out if it's the chemo or the anti sickness tablets - Metoclopramide Hydrochloride.

 

I have also had real taste changes - nearly everything tastes of salt - even water. Worse is that I have gone off tea which has always been my answer to every crisis!

 

There's been a bit of a discussion about age - I am also 51 although I feel about 81 and have been walking about looking like a question mark.

 

Pendragon, it seems like good information you got. My nurses were just too embarrassed - mind you my husband was too when I started to ask questions! They also said for the whole of chemo to me. The only useful thing one of them said, was that you are more prone to infections so she suggested condoms or abstinence! It was like something out of Call the Midwife!

 

Hope everyone is having a better day and that infections are clearing up.

 

Good luck to those starting this week. Will be thinking of you. x

 

 

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Re: anyone starting chemo in August?

Dear Maisies,

FEC#1 Day 21

Back from appointment with consultant at hospital and the good news is that I am fit enough to have my chemo tomorrow – hooray!  (Never thought I’d be cheering about the prospect of systemic poisoning, but the sooner it’s done, the sooner it’s over).  So relieved.

 

Consultant not so happy about my allergic reaction to bone marrow stimulating injections (tried one each of the daily lenograstim and one 7-day Pegfilgrastim) after last chemo.  Going to try a third form of injection, load me up with IV antihistamines (Cyclizine) prior to chemo, dose me with Piriton on days after.  They are re-testing bloods next week to see if I need to continue taking the bone marrow stimulating injection, or whether I can manage without.  Could be asleep most of the next few days!!

 

Consultant also prescribing anti-biotic for PICC line infection to a have on hand if infection is not resolved by anti-biotic dressings.  It is still nipping a bit, but should be on the mend.  Now if I could just stop the soles of my feet itching…

 

Venice25 – Good to hear from you.  You may not have further horrible side effects – we are all different.  I found that my energy levels were returning by week 2 and I’ve had boundless energy in week3.  Just take it a day at a time.

 

Bonski – it is lovely that you have had such good support, particularly as you are so far from home.  The Regimental Family is a wonderful thing.  Yes I work full time or did until my mastectomy 2 months ago.  I was then signed off for 3 months with the expectation that it will be another 3 months on top of that.  Fortunately I can do a bit of work on the computer at home and every now and again I pop into work to see how they are getting on without me (fine it would seem!).

 

Rollercoaster – don’t worry about losing the hair.  The thought is worse than the deed.  I had mine clip off to v. short stubble at wig fitting last week and haven’t worn wig since.  Quite happy with (almost) bald head.  Could be a bit chilly in the autumn though.

 

Gilly – Facebook page – well done on organising that.  I will have to create a Facebook account for myself and then join the group. 

 

Pas_the_boss – for chemo sessions, lots of water, frozen ice lollies and a good book.

 

Lynnk – itchy skin?  Try E45 or similar un-perfumed aqueous cream.  If that doesn’t smooth try aqueous calamine cream (like calamine lotion but in a cream form and doesn’t leave a white, chalky residue).

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Re: anyone starting chemo in August?

It is not known for sure whether or not there is a risk that chemotherapy drugs can be passed on through **bleep** or secretions from the vagina. But it has been suggested that chemotherapy can get into vaginal fluids. Because of this doctors advise people to use a barrier method of contraception, such as condoms, if you have intercourse while you are having chemotherapy treatment.

This advice is only for the time you are actually having the treatment and for about a week after your treatment. After this time any chemotherapy will have left your body. The advice is the same for oral sex and intimate kissing, where body fluids pass between people. This advice is the same whether it is the man or the woman being treated.
this is from a cancer website hope it helps x
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Re: anyone starting chemo in August?

Morning maisies, what a lovely sunny day I hope se's are minimal for everyone and the girls up today at the bar are doing okay.

 

Well got my lansoprazole today in prep for 2nd dunk on thurs so hopefully it will sort indegestion and heartburn out yipee. 

Have a good day maisies debs x x x

Re: anyone starting chemo in August?

Portsmouth is about an hour and a half from me. There do seem to be more in the north of the country for sure xx

Re: anyone starting chemo in August?

Morning all,

 

Woke up to a beautiful sunny day, so I've decided to go cycling on the canal after lunch.   I have an electric bicycle, so if I get tired on the way back, I can put the throttle on and put my feet up and enjoy the ride Smiley Very Happy  Hopefully I will be ok later and not regret it.

 

I have a FB account, but only go on there once in a blue moon, as I cannot really be bothered with FB at all.  I will think about joining (please don't take offence if I don't), but think at the moment I have enough coping with email, and the postings that I do make on here.  Good idea about making the group private.  Myself, I'm not bothered who knows about my condition (think as you get older these things don't bother us as much), but some only want close family etc., to know.  

 

Hope those with se's are starting to feel better.  I'm making the most of this week whilst I am able.....before my 2nd dunking next Tuesday.  

 

 

 

Re: anyone starting chemo in August?

Nicola, my OH has had the snip so I dont know re protection, but I know I have read that you need to protect them form the chemo for the first 4 or 5 days, so protection is best. To be fair sex was the last thing on my mind for the first few days anyway!! Only now on day 8 am I even starting to feel human again xx

Re: anyone starting chemo in August?

Thats not too far away - I'm near Portsmouth

Re: anyone starting chemo in August?

Morning ladies hope everyone is doing ok this morning, good luck to all those up today not sure who as i havent been on for a while due to been so dizzy and sickly, can anyone answer me a personal question  as i seem to be getting mixed information, with regards to sexual protection does anyone know do we need to use extras protection throughout the whole of the chemo or just the week following, thanks

Re: anyone starting chemo in August?

Anne I am in Sussex xx

Re: anyone starting chemo in August?

Rose you should just be able to click on the link and it will take you there. Then you just request to join the group xxx

Re: anyone starting chemo in August?

 

Hi Maisies - its beautifully sunny and warm down here in the South. To join the FB group do I just click on the 'join group'?

 

I've also got a nice spot Lols - first time in ages I've had one of those! I've got my pineapple chopped up and freezing - really hope it helps, my mouth is very sore today.

 

Anyone else live in the South?  From the posts I've read you mostly seem to be further North?

 

Anne-Marina

Re: anyone starting chemo in August?

God Lyndsey its exactly like that for me! I know lots of people just want gossip, prob cuz I've lived here all my life! xx

Re: anyone starting chemo in August?

Hi I've tried to add the Facebook group but don't know wether you will have to add everyone because even though I copied and pasted the link nothing is coming up hope everyone up today is ok had to read 4 pages this morning as my iPhone hadn't updated feeling fine today spaced out feeling has gone, hope everyone has a good day xxxxrose

Re: anyone starting chemo in August?

yes its nothing to be ashamed of,  i just dont want people gossiping about me lol and telling people who im not friends with whats going on. my home town is a bit like that so i would be talked about in the circle of people from my past.

Re: anyone starting chemo in August?

That's what I think I need to get my head round & I don't want all the sympathy stuff, don't like people feeling sorry for me xx

Re: anyone starting chemo in August?

It certainly isnt and we have not caught some dirty disease, we have been unlucky, simple as xxx

Re: anyone starting chemo in August?

I understand Lynsey, it is safe and private hunni xxx

Re: anyone starting chemo in August?

I feel exactly the same Lynsey & I don't know why? It's nothing to be ashamed of is it? xxx

Re: anyone starting chemo in August?

Thanks Gilly i will have a look now i just not ready to tell everyone yet! Xx

Re: anyone starting chemo in August?

Yes my problem is big fat mouth ulcers & cold sores & no energy xxxxx

Re: anyone starting chemo in August?

Our new page. This is completely closed so no one can see anyones postings apart from us that are members

 

https://www.facebook.com/groups/165815423611027/

 

xxx

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Re: anyone starting chemo in August?

thanks gilly r have joined good luck to all today at the bar and to those not too well hope things improve, im jst v v v tired all the time my nurse says thats quite normal!!

Re: anyone starting chemo in August?

Lynsey I can make our group a secret group so only us members can even see it. So you dont have to worry xxx

Re: anyone starting chemo in August?

yay Ju its brightening up a bit here as Peter Kay says a bit of blue ( for the dads!)

BTW my claim to fame is that on the Peter Kay top of the tower dvd at the beginning when the crowd go up the stairs Im on it with my first ( ex husband)  looking much younger it has to be said!!

Re: anyone starting chemo in August?

Can't remember who's itching , sorry chemo brain but i am arms, legs , head, neck no obvious rash though, drivin me mad!! Wonder if piriton would help might try one tonight don't fancy in day might make me sleepy. Since chemo wound and underarm pain worse is this normal, up most of night with pain. Going to Asda now for baking stuff , strike while the irons hot so to speak, basically currently in mood for baking might not by the time I get back. Sunny at mo in South Wales so outside might call. Also got 3 teenage spots on chin , what's all that about , not chemo surely !!!! Will add clearasil to shopping list, we should all be given grants for this chemo lark. Chezz go for picnic anyway boys will luv it xx. Ju x

Re: anyone starting chemo in August?

Lynsey you can join our closed group and I can make it secret too if peeps want me too xxx

Re: anyone starting chemo in August?

I have started a closed group now on FB. Here is the link girls

 

https://www.facebook.com/groups/165815423611027/

 

See you there for a coffee and a hobnob

xxxx

Re: anyone starting chemo in August?

I agree with Lynn .... FB page might be better as a private page...just a thought??...... for those that would like to get involved but dont want every man and his dog knowing whats happening to them.

 

xx

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Re: anyone starting chemo in August?

Morning, actually feeling normal the last couple of days I hope it stays like this until my 2nd dunking in two weeks.  Picc line bothering me I think, have pain under my arm which wasnt there before is anyone else having same pain?  Great idea Gilly on FB, apart from close friends have not made my condition known to all my friends on FB as I like to keep some normality but will certainly keep an eye on the link.  Anyone going this week for their next dunking, good luck and hope all SEs are minimal xx

Re: anyone starting chemo in August?

Gilly think if make it a private group then  we can go on it and we dont have to worry about our other FB friends seeing it.  Is that right????

Ive liked it so imagine my fb friends will see Ive liked a page but mine all know anyway

Re: anyone starting chemo in August?

Christy if you open Gillys link it takes you to page on FB and from there I think you can just register.  Think all you need to do is put your email address and a password.  Im not very techie with FB but think thats all you need to do

Re: anyone starting chemo in August?

I know that feeling too Chezza, its so fustrating!!

Re: anyone starting chemo in August?

😞 im not out as having cancer on my facebook so i cant join your group. But love the idea of it and the hob nob pics 🙂

thanks Jo43 and Breezy

yes rollercoaster i had little sleep in hospital but slept all night so feel better for it today!

Re: anyone starting chemo in August?

white blood count doubled thats brilliant at least we know those blasted injections are doing their job Lyns.  You must feel like the bionic woman now with all those super duper white blood cells.  Throw some my way!!!

Re: anyone starting chemo in August?

Welcome back Lynsey!! xxxx

Re: anyone starting chemo in August?

If I'm not on fb can I join this page? I confused with fb? Lol