I'm a newbie who has just joined the August maisies and you replied to my other thread about joining. We seem to be at the same point/week in the chemo schedule- I'm at chemo 2 session on 11th Sept and you are having yours tomorrow. Also, the fact that you are just losing your hair now and mine has been coming out rapidly this past week. It is so upsetting isn't it ? I read your thread here and really felt for you. I cried a lot while my husband was shaving it or most of it off yesterday and I thought, s**d it, let's go and treat myself !! It's such a mix of emotions this experience and what your body has to go through - I've never had so many scans,x-rays, bloods taken etc etc never mind ops. I'm on FEC-T chemo regime so just trying to tick it off one at a time. Good luck for tomorrow and I hope it goes as easily or uneventfully (if thats the right word) as possible for you. I'm hoping I have my chemo 2 session weds as my white blood count was down last week and I had to spend a few days in hospital as a precaution.All good fun eh ??
Best wishes, LittleLilyx
It i smy first time on the new look site and I decided to look to see how people were getting on that have just started their chemo. Please accept a virtual hug from me. I started my chemo last November, finishing it in April. I went through it relatively easily compared to others and feel very lucky. I felt so sad for you reading your last thread, I haven't read any of the others for August as I felt I needed to reply to yours.
I live in Cumbria, am married with a teenage daughter who has struggled through it all, probably more than me! After the chemo I had surgery followed by radiotherapy and am now on Herceptin until February. Please contact me if you want to, but I won't be offended if you don't.
Take care x
Hi everyone. I hope nobody takes this the wrong way, but I'm leavng this forum. I know it's intended to be supportive, but actually I've found it quite depressing, and in all honesty I don't want to hear about everyone else's side effects and problems. I don't feel as though I've had much support - in fact whenever I've posted, I've had so few replies, and so little acknowledgement that I felt as though my (albeit minor) side effects weren't worth commenting on. The last time I posted was page 88 (23 Aug), and I have just ploughed through about 50 pages of posts, and not a single person has asked where I am (however it has been noticed when other people are missing for a few days). I'm a single parent, with no family nearby, and I joined this forum because I thought it would give me a lifeline during a time of huge uncertainty and worry, and I don't feel I've received that. Nobody's ever asked me where I live, and I even had a "group name" imposed upon me by someone who wasn't even having chemo on the same day as me. I've been getting more and more depressed as time has gone on, and I'm facing my third chemo on Friday and I know that when I post on Friday or Saturday nobody will say anything.
I'm sorry that I've felt that I needed to write this - and I'm sorry if I've hurt anybody's feelings or upset anybody. I'm sure plenty of people fall by the wayside during this journey, and I genuinely hope that everybody gets through this stronger and more confident in themselves and their health. Me, I'm going to do what I've always done, and look after myself.
hi all, very very tired today, still eating all the fruit and veg i can but just keep going to sleep , no hope for me this week, spose this wd be week three of a normal cycle for anyone else but just another week for me, dont know how the hell im sposed to feel.
love my kindle fire sam though bit peeved it wouldnt fit in my kindle case so another order into amazon, they must love me atm. getting on ok with it but cant download my pics atm so will have another look when my brain is less fuzzy, ive still got hair which i cant understand, thought mine would have really gone by now!!!
hope youre all ok congrats to those that are celebrating xxxx
Hello Maisies, very good luck for tomorrow's girls at the bar. The hair thing is horrible isn't it - I walked the dog yesterday and my head felt so cold, no wonder because I got home and under the floppy bits on the top both sides were completely bald. Definitely time to bring out the head gear. I really sympathise with all the se so many of you are having - sore head, sore mouth, sore eyes, exhaustion... no wonder we need to sound off or just howl!
Cheezap, I know exactly what you mean by being scared of chemo finishing, I guess we just need to take each stage as it comes. Try not to worry.
Hugs to all and hope the rest of the day has some nice bits in it for all - we deserve it!
Another Dixie Chick here absolutely dreading this week. The first few days last time were OK but by the end of the week I would have been quite happy if someone had shot me as the feeling in my head was so weird. The Onc said he thought it might have been a reaction to the steroids or the anti sickness tablets that block the message to the brain, so for this time he is changing the sickness tablets to a different type. If that doesn't work he will have me reduce the steroids gradually.
I have also been given sleeping tablets as I had so little sleep the first week I think it was affecting the way I thought. I've never taken any before. Is anyone else taking them?
Hope everyone has a nice Sunday with minimal SE's and good luck to everyone else up for a dunking this week x
Morning maisies, I hope everyone is feeling a little better today with any se's. Congratulations to those with celebrations this weekend and that you have a fab time.
Ju I know what you mean about feeling anxious before tomorrow I was the same. Luckily I wasn't as bad with se's as first time though.
Sending big hugs to all at the bar tomorrow in case I don't manage to post later before you all go tomorrow. Let us know how you get on girls.
I have an appointment with my onc on thurs for him to look at how I am doing so far and I need to ask if he will let me go to cyprus in nov. It will mean my last chemo being delayed by a few days but chemo nurse diesn't think it would be a prob, fingers crossed he will say its ok subject to bloods of course.
Have a fab weekend girls, lovely and sunny here at mo, sending hugs to all my fellow maisies x x x
Lynsey, when I bathed last night the hair was floating and my hands and towel were covered in hair and mine was a number 2. I nearly died when I looked in the mirror, I reckon I only had half my hair left! So I "blowdried" my head and got the clippers and took the rest off. Ian walked in and cried when he saw it. I was a shock to him as when I went to the bath, I had hair...lol. I am going to have to bic it now though as it is catching on everthinh, including being uncomfortable to lay on the pillow. I couldnt stand the pathciness at number 2 though, I now feel like a guy with a days stubble if you know what I mean. Hey ho, I could do with some sun on it too, It is very white compared to my face xxx
Oh yes, I forgot the alcohol thing - was it Meg who was wondering? No, I'm not off it, it hasn't been advised or suggested by my Onc team - just don't go overboard, that's all!
There have to be some compensations for the rest of the stuff we're having to put up with!
got my statone OH bought one with apple in so got enough now to last me right through chemo and beyond will report back with blood results on thursday lets see if i get through this week?!!
chemo 3 day 3 feel awful tbh, no energy, usually im full of get up and go but its all gone, never eve really got the munchies like i usually do but this week was first with herceptin first and then taxol later so might be differet effects, another wait and see, when i asked nurse how i should feel as dont know ayone else on weekly chemo he said oh we're waiting for you to tell us great eh!
oh well off for another lil rest tc everyone hope you're al ok xx
Happy anniversay Dee have a great time
Meg I havent received a pm . Wonder if its playing up????
Annie glad to hear you are doing better this time round
morning everyone happy anniversary, hope you have great day and night!! xx
O/h i think after talking to his sis last night decided on a kindle fire as theyve got one and think its brill hes just going into the local town to pick one up, we shall see later on. thanks for all the advice.
going to try to get some Spatone too see if that brings my levels up a bit dont want to over do it but may help .
hope you are all ok and keep smiling maisies we'll get there xxxx
FEC 2 Day 10
I'm still in the land of the living and seem to have got over the worst of my SEs, which weren't as bad as last time due to reduced dose - have been keeping my fingers crossed while taking temp these last few days as I can't face another stay in hospital!! Seem to be OK though....
Lois, will reply to your PM. Hope everyone else is doing as well as and good luck to everyone up next week. Lois, what chemo are you having that you have to take steroids beforehand? Is it TAX? Not looking forward to that myself.
I've been looking in but can't keep up with everyone's news, but congratulations to those who've had weddings and anniversaries recently!
Hope all are ok and the Dixxie chicks are going to enjoy teh weekend before their dunking next week
Ju are those sachets teh gelclair stuff? I got some free samples off line.
Pendragon- what tablet did OH get you? ANd more importantly how are you getting on with it.
Christymay- if that healing works go for it regardless to OH thinking you have lost the plot!
Off now ladies as I nee dto get ready for a morning of gossip with some girl friends. Oh has ended up working today which is pain as we were going London but as he is earning as much today as he normally does in a week I can't complain especially with all the shopping I have been doing lately. Have a good day ladies xx
Yes you can buy frozen spinach but the only prob is for those of you who dont like it cooked whilst it defrosts it loses loads of water and becomes very soggy so i would nt recommend it if you dont want to eat it hot and cooked. I use the frozen spinach and fresh fried in a pan with chickpeas, garlic and olive oil. Its a typical Spanish dish.
Sergio seems better, still wheezing but much more lively. Going to get rafa's hair cut today in preparation for his first day in reception on Monday. Can t believe he is starting school already where did 4 years go to???
Hope everyone manages to do something nice this weekend especially us dixie chicks who are up for dunking on Monday. Yes Roller its number 3 for me. Its going really quickly which suppose is a good thing.
Is anyone else worrying about chemo finishing? I know it sounds daft and it should be cause for celebration but as awful as chemo is its kind of like a security blanket thats keeping the beast away. Dont know how I will cope when treatment is over and how I wont be petrified every day
Evening maisies, I hope you are all doing okay this evening and any se's have settled down for you.
I've been out shopping today and returned with one pair of shoes, one jumper and a kfc consumed yummy lol! In my defence its the first thing since last week I have wanted and tasted properly, but not on my list of recommended foods unfortunately ha ha !
I hope all your appointments have gone ok today and fingers crossed your bloods are ok for mondays dunk.
Have a good night girls and sending big hugs to all debs x x x
Hello lovely Maisies, hope that today is bearable despite rain and se. Thanks for kind replies and it's just lovely to read all your news each day.
Tell me about the healing Christymay - we have healing at our church - is it like that? Sleep sounds a great response! I hope you and Sergio better today, you must be exhausted.
Rollercoaster, hope the horrid trots have calmed down. I’ve had 2 treatments and constipation – not sure which is worse.
Spikeyred, sorry about chemo delay, damn boob.
Pendragon, you’ve had such a tough time, I feel for you as my dad died in 2011, mum in 2012 and BC dx in 2013!
Thanks Breezey. The tamoxifen programme was about the severe menopausal effects some women get on tamoxifen, so bad in some cases that they are putting their lives at risk by not taking them. But let’s worry about that later!
Big hugs all.
thanks rollercoaster could only got frozen in our shop, might have to leave it to defrost lol. about vit 3 im drinking orange and eating fruit anything else i can add in here im so determined to bring my blood count up xx
thanks for all info re tabs O/h ended up getting me one so will wait and see wat he brings home tomorrow. Told him bout counselling he said oh it'll do you good lol, not he might need it too. He said he wants an us night lol well i hate footy but at least he's trying. Very we all say.
My friend is back home to spain on wednesday for 5 weeks i will miss her so much she has run me round everywere whilst shes been here working.
Feel reeal weird today headache wont go, funny taste all usual chemo se's i know, boufght all my stuff from morrsions to try to boost my bc for next week even going to try spinach mmmmmm, thanks again for all the suggeston was keen to try that spatone but our Boots is miles away.
Well take are everyone and hope those not to good get better soon. xxxxx
Jacqui hope you have a lovely time today despite the weather
Roller immodium is very good so it should sort you out and all should be ok for mOnday and thanks for reminder we bought a humidifier for his room few months back so will get it on again.
Not sure if anyone is up today???
Yes JUlie - Tasha is always saying that that product is really good, havent tried it as so far touch wood not had any probs with mouth but it comes hightly recommended. I will have a look at the hats and may have to order some
Hope everyone is well on thisw rainy rubbish day