Morning ladies, good luck again to the dixie chicks today, go girls, sending big hugs to you all! Let us know when you are all safely back please.
Fingers crossed for Katherine who is hoping to get out if hospital today.
I'm on my way to Cleethorpes today for abit if seaside air so I will catch up with you all later, debs x x x
Meg if you come on forum Ive sent you a pm to test that its working as you said you pm ed me the list of books and Ive not got any new messages so dont know if I need to do something else since forum changed
on the great fb debate vs forum Im still happy to use both.
The one thing I do like about fb is that if you want you can upload pics of yourself and pets etc knowing only people in the group will see so as we have shaved our hair its been quite supportive to have others saying that we still look good. I understand that some people dont like fb though so thats fair enough.
However my philosophy is we started this group and chemo together so we end it all together. whilst there are still people on the forum I will come on here too.
Has anyone heard of a macmillan night in???
One of my new found BC friends is holding one soon think its like a macmillan coffee morning but at night so alcohol instead of coffee!
Has anyone held one or been to one??
I just wanted to say that the facebook page is great and much more manageable. I can see that some people are anti facebook but you can get a page anonymously.
First get a new email address with a different name and make sure it has no connection to you in any other way ( hotmail is pretty easy or gmail) then sign up to facebook also with a different name. The reason for the new email is people can track you if you use your regular email address. Go through facebook settings and set everything to private. You can always deactivate it at any time.
I know this sounds as if I am really dodgy - I'm not!!- but I have teenage kids and I know that they and their friends set up multiple silly facebook pages.
Good Luck Dixies. Not dreading tomorrow as much as the end of the week. Onc changed anti sickness tabs so I might not feel so affected mentally. Will be back to compare notes!
Hope all have had a good day despite the marked drop in temp.
Christy what is your daughter studying at uni??
Good luck fellow dixie chicks for tomorrow
Pendragon if you touch the bottom of the page it comes up with a back arrow and a house. Touch the house then touch web towards the top. x
I, too, rarely post now. I hate the new format of this site - I find it hard to read and hard to follow, and I can't keep up with who's on what/when etc. No one puts their regime, session and day number any more.
The only reason I look in is to find out about SEs and I'm looking at the July thread more now to see what TAX is going to be like.
The August group is too fragmented now with so many turning to FB. The September thread is going the same way.
I hope BCC take note of the disenchantment of its current members, but until they do more and more people are going to drift away.
Ivory mummy, I am so so sorry that you have felt left out on here. Our group is so huge now with over 70 people and I could not keep up with everyone, which is why I started the facebook group, it is so much easier to keep up with everyone and what is happening to them. I pop on here every day still and try and keep up with everyone.
Any of you can come and join the facebook group, it is so much easier than here, but it doesnt stop anyone posting here as well and most of us still do, we havent forgotten anyone or "left" the forum, any of you can join the page as well. It is completely private and none of your facebook friends can see anything you post on there xxx
sam could do with a basic course on my kindle lol but ill get there just want to download some photos now an how do u get from book reading back to the net lol. ??
just ate some graze box eton mess too trying to push my vit c up a bit dont think itll work im so tired.
sorry that we seem to miss some people out it is a big group unfortunately though no excuse either. im in northants too but am home all day if anyone wants to PM me xx
Dear Ivorymummy - I am sorry that you are leaving the forum because you feel you haven't made a real connection with the group. The August Maisies was/is a big group and it is all too easy to overlook an absentee - please don't feel that that was intentional. How you are and what you are going through is important. I now rarely look at the forum as I am part of the Facebook group which I find much more straightforward to use, and people may simply have thought that you had migrated to the fb group as well. I hope everything goes well for treatment on Friday.
Had a busy couple of days. been out and about and clearing out- what else is girl to do when she is still waiting to start!!
Sorry to hear that you feel that you don't want to be on here anymore Ivory mummy. It is a massive group and I know if I haven't been on for a couple of days it takes ages to try and catch up. If you want to pm do that I am sure all of us will reply. I ma in Northanst if thats anywhere near you. Hope you are taking care of yourself and are ready for your next round.
Dixxie chicks good luck for tomorrow- where have these three weeks gone? Hope you have little SEs xx
Pendragon- how are getting on with yoru kindle fire- I had mine for Xmas and love it.
Welcome LittleLily- I am here by default- I hoped to start chemo in August and still haven't started yet!! Hope you are as ready as can be for your next dunk.
Geneve- don't worry about not knowing what PM was, i didn't know what TNBC (triple negative breast cancer- just in case) and didn't wnat to ask incase I looked a fool.
Ju my leaking roof has actually been fixed by the roofer in the house- so no leaking boobs or roofs!!
Right off now, nee dto make Eton Mess for dessert x
Dear Augusts (Maisie)
I hope you don't mind me popping in for a moment.
It is a shame you have such a large group, as it does mean that some get missed. I know when I was going through chemo (February Valentines) I used to do one large post, and tried to put a comment to everyone in our group. However, some still fell by the wayside and stopped posting. We too have a closed fb page and now we only visit our thread intermittently, but the fb page is boiling hot. I think also that when there are a lot of you, you tend to form 'alliances' with smaller groups connecting with each other to the exclusion of others. It's sad when someone feels left out, especially when they don't have a lot of family or friends to support them at home.
I notice you have a new member, Little Lily. So big hugs to all of you, and I hope the rest of your treatment doesn't become too unbearable.
I've just had to ask my daughter what a pm is (ok, I can't pretend I haven't just turned 60!). How do these work - sounds a good idea because it's difficult to keep up with everyone in a big group, but I wouldn't want anyone to feel left out. As long as we all feel someone is looking out for us. Good luck again for the tomorrows xxx
Ivorymummy, I'm really sorry. I honestly I know just how you feel because a couple of weeks ago when I joined I wondered if anyone had noticed and ended up crying until pennycrow welcomed me. I also think the fb group hasn't helped some people - I'm not on fb and normally too busy to want to be. I don't think any of the fb group want to exclude anyone but I had wondered if some people weren't reading forum posts so much. Please don't feel alone, if you ask for help from now on or just want to scream we'll be there for you. It sounds as if you're having a really bad time coping on your own, I'm so sorry. Lots of us go on about se and hats and things but we're all facing the same thing, now and in the future. Best of luck for Friday and please shout anytime you want.Massive hugs.
Hi Maisies thank you for your good wishes but it wasn't actually my wedding I was just a guest! I've been married 32 years and luckily had all my own hair to walk down the aisle! Ivory we are up together on friday I think, didn't realise we had a group name tbh I must have missed it in maisie mayhem! We have ended up as a very large group for August, sadly, I am sorry you have felt ignored, maybe pm s would be better for you then you will get a reply? I think we maybe offload ses on here so we aren't moaning to our friends and families and we know all the lovely girls on here know exactly where we are coming from? Xx