hi chezzap im on paclitaxol and herceptin, was feeling ok but had them both together for the first time last week and has made me really tired. also got painstripper mouth and horrible metallic taste driving me crazy, i have weekly taxol and herceptin every third week. not sure ill be at the bar this week usually im feeling quite normal by a tuesday bt not this week, think depression has kicked in too.
sorry to be a moany maisie this morning, was up at midnight clearing drawers out as i couldnt sleep , many more nights ill have nothing left to chuck away.
love to all hope this nasty se's arent too bad xx
hey Annie are you ok as they say in Smooth Criminal!!! I have only just cottoned onto that!
Its weird how we all get different SE isnt it thats why this thing is so unpredicatble. i just starting to feel I know where Im up to with the EC part and then after my next cycle Im changing to paclitaxel and herceptin so a whole new host of hidden delights to expect!
Hey heres an idea ( not to be taken seriously of course!!! ha ha) but maybe if you actually gargle with paintstripper it might be so strong it gets rid of the sore throat!!!!
Thanks Chezz - as I said, it's easing off now thank goodness. Yes, tried salt water but I think that's to ward off infection more than anything. It's no match for painstripper throat!
Hoping for a whole 'good' week this time - fingers crossed.
sorry annie oyu must have posted as I was typing! Sorry to hear about your sore throuat . have you tried gargling with salt water pre boiled?
Day 13 means that you should be coming into good week in next day or 2 so hang on in there
genevre sorry to hear you feeling down. This really is a crap six months or so isnt it. I try to reply and include everyone but is extremely difficult as there are over 70 of us so if someone disappears for couple of days etc it may go unnoticed. Its not intentional its a lot harder now that Alix cant post the list on here of who is up and when. Plus having the c hemo haze on top of it all doesnt help.
I suggested ages ago that we swap numbers with just a couple of maisies so that way we all know we are being kept an eye on more closely and if we are feeling that bad or down that we cant even be bothered to post we just send a quick text to one of our maisies and they can let everyone know that even though we are missing in action that we are accounted for if that makes sense. I know that wont be for everyone but its just added peace of mind for some. If you want to pm me I will give you my number if you like
If Ivory mummy feels the forum is too busy and that people get overlooked I hope she manages to pm someone who she may have felt more of an affinity with and gets some support that way.
Roller thats a really good hb count love those iron supplements must be working!!!
Lols good to hear from you hope you feeling ok this time round chick. let me know what hat you get. Wish I was in Swansea I LOVE jigsaws.
Christy good to hear from you too darling and you get better sleep tonight. Dreaded steroids!
Hope everyone else is good and Gilly gets home safely
Genevre, I get that painstripper feeling too - it's horrible, isn't it? I also feel as though there's a lump somewhere at the back of my throat which makes it hard to swallow. I'm on day 13 of FEC2 and it's just beginning to ease a bit!
I've tried Xylotene, which someone on here recommended, but like Difflan the effect is only temporary. I'm definitely going to get some Gelclair from my GP before next time, as all my Onc recommended was salt water....
Morning Maisies, so sorry for all of you having a horrible time, hope you feel better soon. Sorry I can't mention you all by name, I haven't been on for a couple of days, feeling bit grim, and am overhelmed by all new posts. Trouble is I don't want anyone to slip through the net like Littleivory, it's so easy to miss new people.
Now on day 8 of cycle 2 and it feel like I've swallowed paintstripper!- anyone else experienced this? Have tried Difflam for mouth and throat (works temporarily, will try to get gelclair as lots of you mention that) and gavescon for burning digestive tract (disgusting, makes me retch). Also feel quite low, perhaps because se much worse this time round.
Christymay and Linsey, I think we’re all scared as well as being fed up!
Lots of love to all you amazing people.
Morning maisies, sorry to hear you are feeling abit rough Ju lets hope it goes away after abit of fresh air hun. Dee have a fab day today with your friend. Good luck gilly I willl be thinking if you, let us know when you are back safely. I hope the rest of the maisies are doing ok and your se's are minimal, take it easy girls and plenty of rest , sending big hugs x x
HI Venice good to hear from you and glad you doiung ok. Are you up this week?
Lucy you are on the fb page alreday arent you as the swan????
Evening maisies, glad all the girls are back from the bar now, I hope all your se's are minimal. Lucy it sounds like you have really been through it hun, if in doubt hun ring the chemo ward you shouldn't have been passing out. Some if the maisies are on a closed facebook group and it is easier for us to keep track of one another on there. If you want to join just send a request and gilly will accept it. I hope you start to feel better soon x x
Good luck to gilly and any of the maisies up at the bar tomorrow, goodnight ladies sleep well debs x x
I am back OK with lots of delays but feel OK and really wired with all the steroids. Got back atafter eight but then started making cakes! Just trying to make most of a few normal days.
Some of you sound as if you have a really bad day.Hope things pick up for all of you.
Wishing you all well for the rest of the week xxxx
Aw Lucy what a crappy few days you have had. If it happens again dont take anychances just ring the ward and see what thye say. Have you had the wbc injections? Remember your blood count will start to dip now so even if you feeling better dont overdo it
FEC-T #2, day 7
Well I certainly don't want a repeat of the past 31/2 days. Only been out of bed for trips to loo. Yesterday panicked when my temp went to 37.7, but fortunately came down an hour later to 37.4. Think I probably should have phoned chemo unit on Saturday after I was passing out and actually fell off loo. I have now got a bump on my forehead to boot. Did not realise how cold bathroom floor tiles can be! Still feel quite delicate, but at least I'm now eating properly again.
Second chemo so different from my first, that I now have no idea what to expect on the third. So a case of wait and see I think.
Having just read all previous postings since my last post on Friday morning, I can fully empathise with Ivorymummy, and know where is coming from. Hope she has decided to give the forum another try.
Hope all goes well for anyone up for dunking tomorrow with minimal se's x
Well 3 down! After massive delays and numerous failed attempts to access the portacath finally done it. Did nt get out til six but am feelimg fine so far.
Claire hasnt let me know how she got on yet last I heard she had been sent home cos bloods were too low but the dozy sods had read the results from Thurs so when they realsied they called her back to say she could have it after all so she had to head back to Christies.
Christy you sound like you have had a tough day but its one less to worry about
Roller not been bed of roses for you either but you are back and in one piece thats the main thing
Lols hope you are in bed now and resting up
Has Daisymegan posted on fb I will have a look soon
Hope everyone else is doing well
Looked up Aloxi and it is the same drug as ondestron. One of the things it effects is the ears. Trouble is that mine havent returned to normal, they are still humming and growling away...Grrr. Just hope it doesnt get lots worse tomorrow, it will drive me nuts xxx
Ju I dont have ondesteron, I have Emend and Aloxi, maybe I should look up their side effects.
Hope you and the other girls have a good night tonight.
I am up at 10.30 tomorrow if bloods are ok
Afternoon ladies, fab day out at seaside with fish and chips yummy!
Welcome back Ju, Rollercoaster and Christymay I hope you all continue to feel ok, remember rest and plenty of water to flush the chemo through, sending big hugs x x
Still waiting for 3 more dixies I think to report back in? X x
Ju, what anti sickness are you one? The onc told me the ear thing is probably the anti sickness, my ears are still making odd noises, it never went away, I just lost the headache xx
Christymay that's a nightmare of a day. Hope you are resting now.
Ju glad you found this session a bit easier thna last time.
Maseo- you can get a free sample of Gelclair online, it comes within a couple of days.
I am manically cleaning and clearing out this week girls incase on Friday they say, I am starting on Monday x
chrissymay, every week i go my first blood test is clotted as im on anti- coagulant injections i asked if there was a prob no no they say its our machine!! luckily thery've a;lways just bout managed to find a vein, eventually. ive got a picc line put in alot easier though bit of a pain as my plaster keeps coming off.
hope you get sorted huni xx