Well girls i think my time has come. Had a phone call from the hospital this afternoon asking me to go for an ECHO tomorrow at 9 as the oncologist wants it done before Monday- looks like Monday could well be Chemo no. 1 day for me! Now I will **bleep** myself!
sorry been out all morning so just catching up.
Christy I didnt get your pm Ive only had one form Meg.
Genevre seems people have already told you how to send pm so feel free anytime you want
Lols was getting worried then saw your post so glad you are okish apart from the nausea and smells ie the usual suspects
Dee think you doing right thing ringing onc as you should be coming out of bad week now and you want to get at least some good days b4 next session. Fingers crossed you are ok
Venice/ Gill not used cold cap but ladies have given youi good advice espcially re the strength of the Epirubicin I think, thats what should guide your decisiona nd if it was beraable last time
Roller hope you manage to get in some zzzz this afternoon
Hope thats everyone apologies if have overlooked anyone - Gilly I will catch you on FB or text
I just been for reiki cant say it did much but I came out relaxed at least. feel very tired today on day 3 and it doesnt normally hit me til days 4 and 5 so maybe its a build up iof three cycles or maybe cos Im getting up earlier to get Rafa ready for school and walking the dog etc. Normally would go to zumba tonight but feel like maybe too tired. On other hand it might wake me up a bit - decisions decisions.
Hope everyone else keeping well - getting bit worried about the number of people who seem to have dropped out since forum changed not just on this thread but on July also. You dont know whether its cos they are struggling or dont like new format etc. Alix if you can email me the list of maisies when you get chance as I know you below par at moment I can try and cross refer those that are on fb and those that are on here and can identify any mia that nobody has heard from.
Hi Gill I don't know if it helps but I am on EC cycle 2 day 14, my dose is 90 of the epirubicin. I lost quite alot of hair coming up to 2nd dunk but since the second it seems to have slowed down alot. My hair was quite thick to start with and I can tell the difference but my OH said he can't tell. I am going to see how I get on after 3rd dunk next week. I hope this helps and if you want me to keep you updated just ask hun x x
Gill do you know what strenght FEC you are having?
If it it FEC 100 you stand little hope of keeping your hair even with cold cap
If it is FEC 75 you have a chance of it just thinning alot but not losing it all
If it is FEC 50 you have a very good chance of keeping most of it.
The different doses are the amount of Epirubicin you are having and that is the one that makes you lose your hair.
If you dont know its worth asking then you can make an informed decision on whether to carry on with it
in a quandry re carrying on with the cold cap.I am having 2nd chemo friday 13th I have still got my hair but is shedding not coming out in clumps but in strands, not had any loss on my pillow but coming out in the shower and if i run my hands through it strands do come away. I am undecided weather to carry on with the cold cap or just take the plunge and get it cut off . Anyone having the cold cap can give me some advice is it working as i havent lost any noticable amount of hair yet or am i kidding myself . Having FEC x 6 am going re -wig tomorrow dont want to wear scarves any input would be gratefully received. Am still checking on posts but having to reset my password each time i try to log on which is a pain Thinking about you all love Gill
Fingers crossed Dee it is just a case of you resting up hun, sending a hug your way. Yes please let me know how you get on, I have sent a pm with my mobile number in case you need me or just to let me know how you get on as I will be going out shortly x x
Morning maisies, I hope you are all coming round abit now, sounds like there will be some napping later on this afternoon. I speak from experience lol! I start off well then by mid afternoon I need a 'pensioners nap' for a hour.
Dee I have been ok hun just tired and a constant runny nose but no cold. Do you think you did too much yesterday maybe thats why you were dizzy, but worth a phone call if you are worried hun, let me know how you get on.
The tablets have helped with the indigestion but i still have wind as soon as i eat anything, thank god I'm not alone, oh the joys hey girls!
I hope any se's are minimal today gilly and glad you have had a good brekky. Genevere you can pm me if you want to hun the same applies to any of the maisies. I can't remembet if any at the bar today but if so good luck and also to any with appointments.
Have a good day ladies x x
Seems a few of you are struggling at the moment which is awful. Do you think it is beacuse when you start and have session 1 you are all geared up to it even if you are worried and then by session two its a bit of come down. I am not sure as I still have started mine.
Christymay, that's awful that yours has been postponed for so long , of course you just want to get it over and done with.
Roller not good the not sleeping, I am currently on nightwatch due to combination of OH working away and I think I am subconciously getting sacred of the imminent start of chemo.
Have agood day ladies xx
Roller, I was up with you at 4am, but stayed in bed on my phone and I cant post on here from my phone. I was so nauseous last night, god knows how I didnt hurl. So I went to bed at 10pm and crashed out. Woke at 2am hugry, went back to sleep, woke at 3 hungry, went back to sleep again and by 4am I was wide awake and starving but didnt get up until 7am, I think I managed to doze again for an hour. The smells thing is horrible, it was just lillies and perfumes last time, but last night every smell would have made me sick I think.
So far have the appetite of a horse today, which is how I was last time, so I hope that last night was a blip.
Hope all you girls have a good day and that no one is suffering badly xxxx
Annie and all paintsripper sufferers– just been to GP who has prescribed biotene – saliva-replacement gel you put on the tongue and spread round mouth – it’s really helping.
Cheezap thanks! I’d like to be in touch by text/pm with a few people - embarrassed to ask, but can you tell me how to do a pm?
Pendragon, sorry you’re feeling depressed, you’re going through such a lot.
Samj- thanks for kind words. It’s so unfair not being able to sleep, when that’s the one thing that might make us feel better. So sorry for Maisies who have young children.
Gilly good luck with se this time
Christymay, at least we’re all in this strange cancerworld together! So sorry about all the upsets you’re having. What a medical marathon we’re all going through.
All Maisies- thinking of you tonight as we try to sleep....xx
Evening ladies sorry to hear a few of you are having a rough time if it. Christy first cycle I struggled with real bad acid and indigestion but gp prescribed lansoprazole to take first thing in morning and I have bern fine since maybe worth a try! Dee sorry to hear you had a dizzy spell hun you rest up.
Sorry if I've missed anyone out but I hope you all start to feel abit better soon and get a good nights sleep x x
Roller, I had to turn out lillies as they made me really nauseous. Other perfumy smells affect me too, so you are not alone xxx
Thanks for letting us know french fancy, please send her our best wishes. I thought she was having Emend this time xx
thanks for letting us know we were asking about her on FB as she usually posts on there too.
Please send on our best wishes to her for a speedy recovery
before my taxol i have a cocktail fed in as a pre med so not too sure wats in there i asked but got told dont you worry bout this!! i usually just feel bit wired for a few days and then come down for a day and then i'm okish but as i say this week ive been so v v tired all the time, might just be cos im on week 4 supposidly come thursday so se's might have just built up over the past few weeks. this weekly waiting for the blood tests to come back is usually my only prob, the yes or no business. didnt mean to scare you and as i say usually im ok , the only meds i get to take home are anti-sickness which have worked very well. please let me know how you get on, yure more than welcome to pm me too xxxx
ah Ang thats what Im having too a lower dose but every week he said the SE would be less that way now Im not so convinced. So do ylou not have steroids b4 but piriton instead? Thats another reason I was switched to that as was originally meant o be th eother dreaded tax one. Ive one more of EC then the weekly stuff starts on 21st october am dreading it as havent been too bad on the EC apart from first week of first cycle.
hi chzzap, mines a lower dose over a longer time cos of my heart probs, the se's seem to have built up this week and are hitting me from every side. just wish i could get some quality sleep, might make me feel better. maybe my body just couldn't cope with the herceptin as well cos haven't felt this bad before. moaning again girls, im sorry xx
hope everybody up at the bar is ok and chillaxing, ill be coming down in the night to watch old shows ive recorded if no sleep for me, i might ask for some gelclair as the taste is awful!!
thanks for everyones concerns love to all x
Roller just got back so will text you in a bit
Ang Im staring weekly Paclitaxol too with herceptin every third week. Is yours a low dose paclitaxol or the full whack??
Sam enjoy the pasta bake my dear
Hi guys, back from number 2. Feeling ok so far, just a muzzy head and funny ears and a bit of a headache so far, so chilling with OH watching telly.
Hope everyone else is doing ok this afternoon
Angie sorry you are not feeling too great. I am not surprise dthough it's a really harsh regime you are on, it is bound to take its toll on you. Sorry to hear you were cleaning out cupboards at silly o'clock. I was wake for hours in the night and i had taken diazepam.
Paintsriper is obviously a commen side effect. Doe steh gelclair work for that?
Geneve hop eyou are ok. We all have down days and I know it doens't matter what anyone says on those days it rarely helps. All I can say is try to remember something good or look through some old photos that might cheer you up. x
Rollercoast I am so jealous of your sleep- I was up for hours in teh middle of the night. Watched 3 episodes of one born every minute, that was after dimissing a few films and getting a snack at 2am- I do not normally eat at that hour.
I dilue the Laimon drink with sparkling water, thats nice too.
Right chicken and ham pasta bake to cook, chat later ladies. xxx