tax 4 day3
morning maisies, hope youre all getting there and se's arent too bad. lois dont think milk choc counts she said has to be dark !! only thing i can think of is something yummy coated in dark choc in my case turkish delight mmmm. the weekly tax isnt too bad its the dreaded blood test i hate waiting to see if my counts are up or not, really dont want to be delayed but been told itll most prob happen as i dont have a down time. tired today was up with indigestion during the night then another hour to get back to sleep. my only bad side effect this morning apart from steroid rage lol is peeling skin on my fingers.
well hope chezza is feeling lots better and is getting sorted out hugs to her, and to anyone else suffering, sorry brain will not take in to much info this morning.
keep smiling girls we can do this xx
FEC#2 Day 5
Morning girls, so sorry that some of you are suffering so badly. I am on steroid come down today and it was my worst day last time, so hoping its not as bad this time. I have been more nauseous this time but havent had the banging headache I had for 10 days last time.
Lols, my ears never really stopped after first cycle, but didnt get any worse this time, thw wooshing noise is there most of the time and as you say is weird when it stops. Its worse when its quiet though, but my ears are sensitive to sound too, cant have telly too loud.
Thinking of Chezza this morning and hoping they are sorting her out, poor girl.
Hope Lynsey had a good first night last night after such a rough road last time.
Try and have a good day all you wonderful Maisies
FEC2 Day 16
Not much fun is it, Lois? Sorry you're feeling so rough, it seems quite a few of us have been poleaxed this time around. It's just all so debilitating - even walking upstairs makes me feel like an old woman - I keep saying to OH we need to get one of those Stannah stairlifts....and I'm not joking!
We'll get through it - this is just one awful year in our lives and we'll have many more good ones in the future!
Hope everyone sleeps well and SEs are bearable.
Ec #3 day 1. Woo hoo as you can see my little neuts came through! Up from 1.33 to 2.52, very pleased now halfway through I start tax and herceptin and injs next time, like you Annie I'm a bit nervous of the tax, lots of moisturiser on hands and feet eh? Sorry you are struggling Genevre Dee and Roller, hope you all feel better tomorrow. I flippin gained 1.5 lbs in 7 weeks but did have week away so that's my excuse and I'm sticking to it! Cooking and bubble bath sounds great therapy! Take care all xx
FEC2 Day 16
I'm finding it very hard to keep track of people's stages - I know a lot of you are on FB but if you can remember, it would be very helpful to me with my chemo brain if you'd put your regime and stage in your posts somewhere! It would help me relate.
Don't mean to sound bossy - just a thought!
Just to let you all know that Chezza is going back into hospital. Has felt lousy for a couple of days and is now running a temperature. fingers crossed for her xxxx
FEC2 Day 16
Glad you managed to get back on the forum Genevre!
Thanks to everyone who's given advice and tips about the mouth and throat problems I and others have been having. I had horrible cracks at the corners of my mouth on top of everything else, but they seem to be going now thank goodness.
Do most of you see your GPs regularly? I've been relying on my Onc and chemo nurses to point me in the right direction re medication etc. but they've not been much help at all! Think I'll make an appointment - somehow I was thinking that the Unit would prescribe all meds for SEs but apparently not.
Raining all day here in North Wales but am hoping to make the most of this weekend before my third chemo dose next Thursday. I seem to have had fewer 'good' days this cycle, but the next may be better - then it's the dreaded TAX.
Keep your peckers up, girls!
FEC 2, day 11
Hello everyone, I'm back in circulation! Thanks to Christymay and Moderator for helping me sort technology.
.Cheezap, so sorry to hear you're having such a bad time. Thinking of you.
Rollercoaster - sorry about the nausea, you're having a rotten time -hope things improve for you and all Maisies suffering badly today.
Deb, so sorry about your latest bad news. It’s awful how life throws things at families, people like you and Cheezap have got enough to cope with.
Breezey, sorry you feel weepy, you’re bound to feel emotional going through all this stuff. Let’s hope the cooking and pampering therapy has helped!
Christy, thanks for everything, hope you feel better soon, it’s like being steam-rollered, isn’t it?
Good to hear from you Annie. Take care
Thanks for people who’ve pmd me, it’s really comforting. Love and hugs to all Maisies.
I'm sorry to hear genevre is having problems with the forum. I wonder if you would mind asking her to email email@example.com and we will do our best to sort things out
Very best wishes
Morning maisies, I hope you are all managing to battle on through sending big hugs to you all. In case I forget later I will be away from tomorrow until next tues and not sure what the internet connection will be like so may not get to post for a few days. Had some rubbish news yesterday evening, my OH's step dad as just been diagnosed with bowel cancer. We are keeping fingers crossed that they have caught it soon enough with no spread. It never rains but it seems to pour sometimes. Love debs x x
Hi Genevre - yes got your PM and have replied.
FEC 2 day 15 - thought I'd feel better than this as lowered dose last time, but the painful mouth and throat still causing me problems! Only a week to go before number 3...
Hope everyone else is bearing up and not suffering too much. No fun at all is ?
Hello Maisies, hope today has been as good as it can be for you all. Sorry you're suffering so much, I agree that feeling low is the last straw, when we're all so vulnerable anyway. I ventured out for lunch with friends today, despite tail end of paintstripper symptoms and raging mouth ulcers. Enjoyed company and outing, eating was interesting ....
Venice/Gill - glad you're so upbeat about cut and wig - well done! I wore my wig ouut for first time today, looked great but was really itchy. Good luck for Monday
Deb -so sorry everything's so bad at the moment - it will pass, hang on in there. Hope onco appt. went well
Lols - you're not depressing at all - it's good we can let off steam, and everyone understands how we are feeling
Jacquie - hope all goes ahead for dunking 3 - good luck with it
Annie, Christymay,Roller coaster,Cheezap - have sent pms - hope it hass worked!
Lots of love and hugs to all Maisies and thanks so much for all your support. Here's wishing you all a good night xxx
Hi Maisies EC DAY 21 #2
Well should be having 3rd dunking tomorrow but bloods low so have to have repeat tomorrow. If neutrophils come up by .17 then I can have chemo. I told onc about heartburn/indigestion and he said it was yet another se of dreaded steroids! He has halved the dose so I will let you all know how it goes. Omeprazole does help and he said no probs w strepsils as long as not caused by thrush. Good luck for anyone else up tomorrow, shame yours has had to be delayed Gill, I hope your Dad's appt goes well. Xx
Hi ladies hair cut off today sporting my new wig which I love, much better than my own hair. There was no tears the ladies in the salon were excellent my daughter didn't realise it was a wig thought it was just a very good different style . Had to postpone my treatment tomorrow until Monday due to having to take my dad for a consultant appt. wishing all well those of you up tomorrow and those of you today have minimal SE love Gill x
just back from my weekly dunking, taxol 4 day 1. feel very tired and hungry but ok. got given some bio oil as my skin is very dry atm. my bloods were fine maybe the spatone works lol, eating veg like its going out of fashion the chemo nurse also suggested good quality dark chocolate!!!! tell all your other halfs this one.
hope others up today are ok and thanks to all for much needed encouragement this week, been a harder one for me than usual.
good luck with se's and to those hitting the bar tomorrow good luck too.
love all xxxx
EC 2 day 15
Hi Rollercoaster yes I am the same with the pills they make me wretch too, I think it it taking so many in a short space of time and not being used to it. Before all this I only took evening primrose and a multi vitamin each day. Thank god this isn't going to be forever hun x x
Morning maisies, good luck to Rose and Bonnie today at the bar and to Sam with her appointment and anyone else with appointments too. I hope any se's are starting to slow down now. I have an appointment with onc at 5pm today when I should find out if he is likely to go to Cyprus in Nov before last chemo and when rads are likely to start before Xmas or after. Fingers crossed he will let me go.
Have a good day girls x x
Good luck to any of the maisies at the var tomorrow and to those with hospital appointments, sending hugs your way ladies. I hope all those suffering with se's feel better tomorrow, night night ladies sweet dreams love debs x x
genevre if you scroll to top of screen you will see an envelope if someone sends you a pm there will be a number on the envelope indicating how many messages you have. Click on envelope and it will come up and there isa reply option when you have read it.
Im feeling exhausted today which is frustrating as am only on day 3 of cycle 3 fatigue doesnt usually kick in til days 4a nd 5 so guess it must be catching up with me. No zumba tonight no energy.
Gotta be said Emmerdale and Corrie were on fire tonight cant wit for next episodes and whitechaple in a bit too great night for tv
FEC2 Day 9
Good evening brave Maisies.
Thanks for the advice as to how to post a pm. I’ll try it out when I’ve finished this, hope it works! How will I know if it has, and how do I know if anyone has sent a post to me? It seems a really good idea so we’ve all got a smaller group of people looking after us. But I think it’s important we use the forum as well so people don’t get overlooked if they don’t do pms or arenot in the fb group. You Maisies are really lovely and caring and I know none of us want this to happen.
Paintstripper ladies- hope you can all find something that works for you – I’ve got 4 lots of meds for mouth, throat, gullet and stomach – GP said he was covering all bases! I certainly feel much better today, hurrah!
Samj – I hope you can go ahead and will be thinking of you on Monday. You’re bound to feel nervous but the actual process is honestly not at all scary
It’s really interesting to read cold cap discussion – thanks for the info Gilly. I used the cap first session but had a blinding headache for the first half hour then had painkillers which took the edge off it and felt freezing cold the whole day, so decided not to use it again. I’m on FEC 75, and have shed lots of hair, so it’s quite thin, but only have bald patches at the sides and a bit at the back. No idea what will happen next...
Rollercoaster –hope you get through the next few bad days, am thinking of you.
Hope you all have a peaceful evening and some decent sleep xx
Roller the Fec is given by metre squared of body weight. I am on FEC 75 but I have 150mg as my body mass is 2 metres squared if that makes sense. xx