thanks Chezzap will do . Cant believe this feeling of fatigue am gearing myself up to bring in the washing thanks hope things are looking up for you you have had a rough time x
Gill when you feeling wiped out its hard to think beyond that but try and set yourself little targets for each day til you gradually start to feel more human again. Even if its something as small as dragging yourself from bed to sofa or dressing gown to comfy tracksuit etc. When you are in the middle of the fog its hard to see in front of you but it will clear soon!
hi fec2 day 5
feel absolutely wiped out looking at past post looks like average 10 days before any improvement have horrible metalic taste and no energy whatso ever am in need of lots of encouragement once again. I feel so guilty that i never seem to give any support to anyone I always seem to be the needy one love Gill x
sounds exactly like my dog Ju....Have a marvellous time away it sounds perfect just what you need my lovely.
Wendy Ive got a portacath too and even though its not brilliant as some staff arent trained to use them and you still have to use a needle to access it on the whole it is better than being cannulated all the time.
Dee glad to hear this cycle being bit kinder
Christy hope you feeling bit happier. Im sure Mr Bones will cheer you up he sounds like a right character.
Fran hope you are feeling bit more energetic today.
Meg have pm ed you re Lindsay Boxer books. Started Hard Girls last night by MC.
Well yesterday went to pick Rafael up from school bearing in mind he only started last MOn and his reception tecaher had to inform me that he and his little girlfriend had been chucking water all over each other . His uniform was soaked. I tried hard to keep a straight face. She said he is showing his true colours now!!!! I did warn her!
No sickness then Dee??? If not that is a huge improvement hunni. Lets hope you continue to feel good today.
Hope all other maisies have the best day possible too
Hello Maisies, good to hear all your updates. Hope you're all coping as best you can. Thinking of the newly dunked as you go through it all again. Very tired today but haven't managed to doze off. so bed now, here's hoping.. xx
Rollercoaster when I went up for my preassessment last week I chose to have a Picc line. The nurse said I had good veins but you must alway expect that at some point you may need a picc line put in. So I get mine put in next Wed before FRidays dunking.
Well blackberries didn't get picked as I didn't get dressed till nearly 2 and it ahs been pi**ing down all day! Made a lovely soup with chorizo in mmmmmmmmm. Think it may be good for cardboard mouth SES as it ahs so much flavour.
Hope you love ladies are all doing ok and Ses are not causing too many problems xxx
Hey girls I am running a bit of a survey on the facebook page. I would like to know what your blood types are, basically are you rhesus negative or positive?
A book I read years ago about eating the right foods for your blood type said that negative peeps were more likely to get cancer than positive. Bearing in mind that 85% of the population are positive I was intrigued.
Anyhow so far most of us on the facebook page are negative, so I thought I would ask on here too?
thanks everyone for good wishes tax 5 day 1, 7 more to go. waited over 2 hours for blood results today but chemo went ahead, got a bit of a funny throat should i ring gp if it carries on temp is fine.
had lovely massage today whilst having pre meds fell asleep it was so relaxing with lavender oil too mmmm.
hope others at the bar are ok and coping and that everones side effects arent too bad, my chemo nurse said my regime is quite harsh as i dont get ups and downs and its cummulative , great news lol.
anyway really tired so online but off if you know wat i mean, keep going girls, and yrs it isd true we all reach a certain point and thing s+d this but at the end of the day we are all here to help each other,
BIG HUGS XXX
FEC 3 Day 1
Hi all, I'm back too - had yet another chemo nurse today, that's three different ones, and all giving contradictory advice and information!! She couldn't find a vein in my 'good' arm so persuaded me it was OK to use the other - hope I don't get lymphodema now...
Anyway, halfway there and back at home with a cup of tea, deciding what my inspiring thought for today's going to be! Glad you're doing OK Breezey, but sorry to hear about Deb, delays are so frustrating.
hi Roller, sounds like you have a busy day planned hope weather down south is better than here where is persisting it down!!!
good luck to Dee and Annie today (is there enyone Ive forgotten???)
Meg where are you up to with the injections?
Ang are you today for the weekly too???
Well Im going for hypnotherapy now for my needle phobia. I hope I dont burst out laughing. I thought Id give it a go as the needle phobia is getting worse as the treatment goes on not better.
will check in later
Have a good day all
FEC2, day 16
Hello Coco, I hope you’re feeling ok today, poor you.
Pendragon, about to pm you
Thanks for good advice Rollercoaster, you are so right about pacing myself and I’ll be more sensible next time. I’ve done one sensible thing – today I had a reflexology comp therapy which was wonderful. You’re having your work cut out with the older generation, I don’t know how you are managing, feeling so terrible. Make sure you tell your GP everything. I went through the same with both my parents needing so much care at the same time – I remember the stress and the exhaustion, and I wasn’t going through chemo then. Both died within last two years and I felt so guilty that I hadn’t done enough. But you must put yourself first, hard though it seems
Lols, blackberry picking sounds so lovely as does the alcoholic results. I usually eat more than I pick! Hope you had a lovely time with your kids, they sound very sweet.
Gilly, try phoning chemo ward or GP. I’m sure something can be prescribed to ease things, there’s only so much you can take – you know you have all our support
Chezza has posted the extraordinary news about me teaching in the same school as Chezza’s brother down in the SW – we’re both so excited!
Chezza, was fab talking to you earlier and so glad you’re home again. Try not to worry about the next stage, you will get through it with our support and your good friends, and cuddles from family. Take each day as it comes and you will get through it. You sounded amazingly bright and chirpy earlier – what a fighting spirit you have! I feel already know you so well, even before I knew that you were the sister who my friend at work had told me so much about.
Pendragon you must keep going – you’ve survived so much already and you’re bound to feel like giving up, but you can do it, I know you can. If you’re feeling desperate there are people to talk to if you find it hard to hang out for the Macmillan counselling next week - there’s helplines on this site – and you’ve got us too.
Sam, as Roller says, we must pace ourselves and accept that for the moment we need to slow down. You may well have times in the cycle when your energy levels are almost normal.
Annie, very best of luck tomorrow, will be thinking of you. I so feel for you with the paintstripper mouth, it’s quite horrible. Mine’s much better, but have about four raging ulcers, including one just inside the corner of my mouth that looks and feels as if I’ve been cut by a knife.
Christy, that’s another amazing coincidence, these are such precious friendships. Hope SEs are manageable and that the dog walk and counselling have helped
All the best for tomorrow Breezey, sorry you’re so miserable Don’t worry, I’ sure your OH has broad shouders, and sound off to us whenever you like.
I’m fantacising about a good sleep, completely wiped out. Goodnight Maisies and hope you can sleep and stay asleep too! xx
ooh that sounds good I loved Cell Block H as a kid especially vinegar t **ts !!!!!
good luck for tomorrow Dee
cheers Annie best of luck for tomorrow
Genevre - our Ste sends his love, he was blown away when I told him.
For everyone else here is a heartwarming story and shows how the Lord works in ways to bring people together:
My brother doesnt live in Manc he lives down south. The evening before I went for my tests when I found the lump I was telling him on the phone had found lump etc and how scared I was. He told me that day a lovely lady who he works with had told him the bad news that she had a dx of bc and would be having surgery etc. I was dx day after so my bro shared our awful news with his friend and I in turn asked him about her and what her treatment plan is etc. Anyway after my post the other day re sending pm to a few maisies with number etc Genevre contacted me and told me where she lives and what she does as a living. Yes you have guessed it Genevre is the aforementioned friend of my brother!!! I was so excited when it clicked who she is I had to call her and tell her who my bro is. I hope I didnt freak you out too much Genevre as it must have been a real shock for you to get my over excited phone call. If we ever meet you will be shocked at how alike Ste and I are especially now i have no hair! same mannerisms etc and Im a teacher too.
well we all seem fairly quiet tonight ladies hope everyone is ok and doing something nice. Does anyone watch whitechapel??? I love it but it scares me so much its so macabre.
FEC2 Day 21
That's a very good idea, Samjs, I think I'll do it too. I've been feeling sorry for myself this cycle - I seem to have had only a couple of 'good' days, the rest have been mostly rubbish! The worst thing for me is the paintstripper throat which starts around day 4 and lasts until around day 15, and this time I've had very achey bones...
Pendragon, it must be so much worse for you, hope things get sorted out for you and for everyone else not doing so well at the moment.
FEC 3 tomorrow (blood tests allowing) then the dreaded TAX to look forward to! On the plus side, still got my eyelashes and eyebrows and have certainly not put on any weight. But I'm so tired all the time I'm almost looking forward to the steroids tomorrow!
Very glad you're out of hospital, Chezz!
Glad Chezza is back- sound slike you have afab support network around you . pendragon is having weekly chemo so she maybe able to offer some advice.
JU I am going blackberry picking tomorrow afternoon.
Coco could you please email me the recipe- I will pm you my email addy.Coco- AA meetings: My name is Sam and chemo drove me not to drink just blackberry vodka!!
Rollercoaster- I can't believe SS don't think you parenst need to be in care. I know it's a difficult decision to make but you will be constantly worrying about what's happenening when you can't be there.
PAndragon- don't worry about moaning- we have all had our moments.
generve- exhuastion is one of the things I am dreading- most of the time I am like a whirl wind not sure I will cope with little energy.
Ladies if you can get to the cinema on a good week I went this afternoon and saw About tIme- it was really good- funny bits and sad bits but the moral of the film was to look at the postives in every single event. It has inspired me to start a journal chemo day next Friday- I am going to record at least 1 postive thing each day (even if its something silly like I saw a nice shaped cloud.(random I know) I just thought it would be areally good thing to look back on.
cocoa can i have recipe please thanks in advance.
chezza ive had a couple of really bad days ive just told my OH enough is enough, im on weekly taxol week 5 if i go tomorrow but i have honestly had all I can take, in a way i wish they'll say no to me tmorrow, but then will i get upset if they do. My mind is all over the place can't wait to see the macmillan physcoanalyst next tuesday. maybe you need to ask if they hae such in your area. I'm just fed up feeling tired and achy and just not me. sorry again girls wish i could be on a up and have a good week out of three.
Maisies Im back!
Just spent bout an hour reading through all posts and I am so touched for all your concern and support especially when you are all going through so much yourselves. Some of my so called best friends and family didnt even bother to text or call me when I was in hospital to see how I was yet each and every one of you showed genuine concern. A massive thank you to you all.
Some of my friends have been amazing one in particular looked after the kids all day Sat and Sun with her own two so that Jose could come and visit me at hospital. Some of my other mates wanted to come and see me but Im a funny one when in hospital I dont want anyone seeing me like that ( I didnt have any head covering either) so only wanted Jose there. Just to know they are thinking of me and texting Jose regularly is enough. Others on the other hand couldnt even be bothered to pick up the phone and see how I was and thats the so called godmother of Rafael.
Had a great evening when got home - Sergio was already in bed so he just got a small cuddle and he has a cold so cant get too close to him and Rafa was asleep on sofa so woke him up and clung onto him for dear life.
Am now fully au fait with Corrie and Emmerdale bloody brilliant cant wait for tonight and also good news that new series of Homeland is starting next Sunday.
It seems most of us are on the up now which is good. I must admit I had a night in hospital when Jose had gone that I felt I just could nt carry on anymore with the chemo. Knowing that I feel so ill and have so many more to go was unbearable. Think am freaking out cos after my next cycle I start the weekly one and am terrified I wont get any good days at all. At least on a 3 week cycle you more or less feel human on week 3 most of time. Dont think mentally or physically I can bear 12 weeks of feeling crap every day.
Also for some reason losing loads more head hair this cycle its all over the laptop as I type and like you have said you look in mirror and just dont recognise what the hell is staring back at you.
Lols I have found vitamin e cream with coco butter great for massaging. I tried bio oil but it seemed to make scar tighter.
Christy and Dee great that you met each other its so nice to have that added support when the virtual becomes reality. Its the only silver lining of all of this rubbish.
Good luck to Sam for popping the chemo cherry today she has been holdi g onto it for such a long time the little tease!!!!! And of course Tash on numero tres
let us know how you get on girls
love to all xxxxxxxxxxxx
Lols, have a restful day and a great evening.
Roller I am sorry you have all the added worry of your parents, but I think you are right to stay away and look after you at the moment.
I am getting awful nauseating headaches in the afternoon and evening. It is from the bridge of my nose across eyes and nothing seems to ease it. I didnt feel nauseous on cycle one at all really, but this time it feels endless and I am day 10 now, its needs to do one.
Hope you all have the best day you can girls