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anyone starting chemo in August?

Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 13

Ok this isn't funny now. I keep waking up early but its getting half an hour earlier every day. Today was 4:15 am and thats without steroidal input! What is going on? Guess coz theres no posts everybody else is sleeping more than me, good for them.

Also finding I cant wear any bo basher in my pits, it makes me sore and itchy, any other suggestions on that one?

Sounding like a right moaner today , i'm not really, I'm just baffled. Have a good one girls, hope all ses are improving and manageable today, hugs to all xxx


chezzap
Member

Re: anyone starting chemo in August?

rare as hens teeth like that.  I usually say rare as rocking horse s**t

Rollercoaster
Member

Re: anyone starting chemo in August?

Christymay, I have to say I'm jealous, it sounds like you have got yourself a genuinely caring gp, what wouldn't we all give to find one of those! They are as rare as hens teeth here! Exactly what did she explain re your bloods ? I'm agog to understand. My anniversary is on 28th, a week saturday, 39 years. Thank goodness i should be well on the way to the end of this in time for our 40th. That will be a celebration! Hugs xxxx
Christymay
Member

Re: anyone starting chemo in August?

Evening Maisie's,went to docs today, actually saw 1 that helped, she is a new doc who specialises in women's health & cancer, gave me some build up drinks as I've lost 12 lb already & can't afford to lose anymore! explained about bloods as nobody has & was angry the chemo nurses haven't written anything about bloods in my blue folder! She asked if I could see her every time now & follow me all way through treatment & actually booked me in to see her before she goes on holiday, so hopefully things will start to improve now!

sounds like most of us are slowy improving , can't wait to go to the seaside on weds our anniversary, wen is yours roller? xxxx
Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 12

Hi venice, I'm really sorry to read that you are feeling so bad again. It really is no fun, I know just how you feel, i was wiped out for 8 days on this cycle then gradually improved and much better now. I did work out it was the white cell jabs that did it to me so nurse told me to stop them and hey presto, things improved. Don't know if you are on them or not but either way you will get through it, you may not feel like it but you will. Sometimes we never know how we have helped somebody else so never think you are not supporting the rest of us, we all draw support and comfort from just knowing we are not alone with this rubbish. Just take it slowly, rest as much as you can and eat little and often as well as drinking as much as you can, and no I dont mean blackberry vodka! You/we can do this, we're stronger than we think and one thing I am learning is just how resilient the human body is! Lots of mega hugs xxxx

Chezzap, thanks for the info on the portacath, i think i will probably go that route as i will be useless with any line on the outside of me, probably pass out every time i look at it. Sounds like Rafa is a real character and certainly knows how to give a girl a good time! At least he's happy after what must have been a hard week for him too, and that's what counts most.

Christymay, glad you're feeling in a bit better spirits today. Don't worry about the tearful days, they are perfectly natural, we have to let our feelings out sometimes and a good cry often helps us deal with things hard to cope with. Some days are diamonds others are stones.

Btw, does everybody have repeat scans? Haven't heard anything about them but then they forgot to tell me i was having one in the first place and then wanted it done yesterday.

Actually got to see my poor old dad today, poor soul, he's in such a state and so emotionally drained he just cant stop crying, its pitiful to see. Think he's coming to realise that mum needs more care than he can give and something has to change but he's struggling with the concept of "putting her away" as he calls it . He is so weak he has no fight left in him, not the dad i always knew for sure. I feel better that I've seen him and my brother has kept him informed on how i've been and he knows I cant do anything much to help him. Have to say i feel somewhat useless but i know i have to deal with me first this time, that doesn't make it easy though.

Looking forward to some more comp therapy on tuesday and all being well a couple of days away next weekend for our anniversary. Hope all are doing as well as they can, hugs to all xxxxx
venice25
Member

Re: anyone starting chemo in August?

thanks Chezzap will do . Cant believe this feeling of fatigue am gearing myself up to bring in the washing thanks hope things are looking up for you you have had a rough time x

chezzap
Member

Re: anyone starting chemo in August?

Gill when you feeling wiped out its hard to think beyond that but try and set yourself little targets for each day til you gradually start to feel more human again.  Even if its something as small as dragging yourself from bed to sofa or dressing gown to comfy tracksuit etc.   When you are in the middle of the fog its hard to see in front of you but it will clear soon!

venice25
Member

Re: anyone starting chemo in August?

hi fec2 day 5

feel absolutely wiped out looking at past post looks like average 10 days before any improvement have horrible metalic taste and no energy whatso ever am in need of lots of encouragement once again. I feel so guilty that i never seem to give any support to anyone I always seem to be the needy one love Gill x

chezzap
Member

Re: anyone starting chemo in August?

sounds exactly like my dog Ju....Have a marvellous time away it sounds perfect just what you need my lovely.

 

Wendy Ive got a portacath too and even though its not brilliant as some staff arent trained to use them and you still have to use a needle to access it on the whole it is better than being cannulated all the time.

 

Dee glad to hear this cycle being bit kinder

 

Christy hope you feeling bit happier.  Im sure Mr Bones will cheer you up he sounds like a right character.

 

Fran hope you are feeling bit more energetic today.

 

Meg have pm ed you re Lindsay Boxer books.  Started Hard Girls last night by MC.

 

Well yesterday went to pick Rafael up from school bearing in mind he only started last MOn and his reception tecaher had to inform me that he and his little girlfriend had been chucking water all over each other .  His uniform was soaked.  I tried hard to keep a straight face.  She said he is showing his true colours now!!!!  I did warn her!

 

 

Lols
Member

Re: anyone starting chemo in August?

Morning Maisie's, not sniffed yet meg but had a quick look, !!!!!! Will it get to 6 weeks with an Irish man in the house!!!
Hope all Maisie's ok and hope it's an up day today for all.
Busy packing and baking and bathing the dog, as away tomorrow in little cottage in Carmarthenshire, not far from home but need the change.
My dog will swim in the dirtiest, coldest , fastest, slowest water, she'd lay down in a muddy puddle given the chance, but run the bath and she disappears, we don't even say its for her she just knows!!!!!! So here goes!!!
Hope all with appts have good days. Speak later Maisie's if I survive the bath struggle!!!!!! Xx ju x
Coco0896
Member

Re: anyone starting chemo in August?

Morning Maisie's! how are you all today? I have seen that some of you are still suffering terrible Ses, really hope they decrease for you very soon. All the best to anyone up at the bar today, sorry don't know who might be as we no longer see a list on here. Lols hope you have put the blackberry vodka away and not sniffing it not that I have you understand!!! Chezza, I had my second injection yesterday and also saw Onc! things will stay as they are and a repeat Ct scan in eight weeks time, also saw my scans yesterday very interesting how everything shows up and all the areas where the bone mets are, am just so happy that it was the first time seeing a dr who didn't give me more bad news........ Hope you all have a peaceful day Take. Care one and all Love. Meg xx
Christymay
Member

Re: anyone starting chemo in August?

FEC 2, DAY 12

Morning Maisie's, feel in better spirits today, had a sad day yest & don't know why? Was feeling ok in morn, took my dog for a walk,then went for a walk with my sister, then in aft, the tears started for no reason & didn't stop for ages!

Thanks Fran for txting me,& others for mentioning me, only just read the posts , going to see doc today so maybe he can help! Went to healing last night so got a good nights sleep & that def helps!

My poor OH doesn't know wat to do with me wen I'm like that!

Hope everybody is ok from their dunking yest & all other Maisie's coping ok with se,

Sending big hugs to you all xxxxxxxx
Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 12

Hey Breezey, Glad you're having an easier time this time, you've given me hope. Have a good days rest, hope the good lasts for you, sleep well xxx
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Re: anyone starting chemo in August?

No gill just feeling sick n headachey and very very tired so huge improvement and even better if I can sleep all day 🙂 x
GillyR
Member

Re: anyone starting chemo in August?

No sickness then Dee???  If not that is a huge improvement hunni. Lets hope you continue to feel good today.

Hope all other maisies have the best day possible too

xxxxx

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Re: anyone starting chemo in August?

Morning Maisies Fec 3 day 2 , well having Meds changed for a third time seems to have helped , was still feeling very sick and headachey yesterday but considering they doubled my steroids I couldnot stay awake and had a good nite sleep , have managed to get ys up for school and make us breakfast and feel like I'm on day 3 so fingers crossed 😉 plan for today is to sleep eat and drink ., hope everyone else is ok and if anyone is up to the bar or has apt good luck lots of love dee zxx
Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 11

Hi all. Had a good day today, few visitors and nice chatty evening with good friend. Feeling cosy and dozy now so hoping for a good nights sleep. Hope all those dunked are managing their ses ok and not feeling too bad. Congrats to those now half way through, it must feel like you've climbed the mountain, just have to get down the other side now. Nite nite Maisie's,hugs to all xxxx
Genevre
Member

Re: anyone starting chemo in August?

Hello Maisies, good to hear all your updates.  Hope you're all coping as best you can.  Thinking of the newly dunked as you go through it all again. Very tired today but haven't managed to doze off.  so bed now, here's hoping.. xx

 

Nikki49
Member

Re: anyone starting chemo in August?

One other thing I forgot to mention is the added bonus of it being under the skin, so no problems with showering/bathing you can even go swimming if you want!
I'm on FEC T so 3 x fec & 3 x t
Gilly - I'm a September Star so not on your Facebook page.
I only have a nosey on your thread now & again, so probably best to pm me if you have any more questions xx
samjs
Member

Re: anyone starting chemo in August?

Evening girls,

 

Rollercoaster when I went up for my preassessment last week I chose to have a Picc line. The nurse said I had good veins but you must alway expect that at some point you may need a picc line put in. So I get mine put in next Wed before FRidays dunking.

Well blackberries didn't get picked as I didn't get dressed till nearly 2 and it ahs been pi**ing down all day! Made a  lovely soup with chorizo in mmmmmmmmm. Think it may be good for cardboard mouth SES as it ahs so much flavour.

Hope you love ladies are all doing ok and Ses are not causing too many problems xxx

GillyR
Member

Re: anyone starting chemo in August?

Nikki, are you on the facebook page? xx

Annie62
Member

Re: anyone starting chemo in August?

Hi Gilly, my blood type is A positive (just to throw a spanner in the works!)

 

Annie x

Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 11

Thanks for the info Nikki, that helps a lot. I was thinking that one of those sounds better than the other alternatives but wanted to know how others got on with a portacath. Sounding more attractive now, thanks again . Hope your treatment carries on ok as it can. Are you on FEC x6? I have another 4 FEC then rads then herceptin for a year every three weeks, not sure my veins will hold up especially since when I'm nervous I go cold, no good for veins and cannulas.
GillyR
Member

Re: anyone starting chemo in August?

Hey girls I am running a bit of a survey on the facebook page. I would like to know what your blood types are, basically are you rhesus negative or positive?

A book I read years ago about eating the right foods for your blood type said that negative peeps were more likely to get cancer than positive. Bearing in mind that 85% of the population are positive I was intrigued.

Anyhow so far most of us on the facebook page are negative, so I thought I would ask on here too?

xxxx

Nikki49
Member

Re: anyone starting chemo in August?

Hi Rollercoaster, I have a portacath. I have had had one dose of chemo so far no problems, blood can be taken from it too so no more needles for me:-). It was put in under a local anthesetic, after a sandwich & cup of tea was allowed to go home. My mother a (retired theatre nurse) told me to have it. It transpired the surgeon that fitted mine had worked with my mother in the past as he recognised her when he came to check on me prior to release. He said to me I was very wise to have listened to her advice, he also told me that the operation prior to mine was to remove a portacath and the patient told him it was the best thing she'd done. Hope that helps, if you need more info feel free to pm me x
Guest user
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Re: anyone starting chemo in August?

thanks everyone for good wishes tax 5 day 1, 7 more to go. waited over 2 hours for blood results today but chemo went ahead, got a bit of a funny throat should i ring gp if it carries on temp is fine.

had lovely massage today whilst having pre meds fell asleep it was so relaxing with lavender oil too mmmm.

hope others at the bar are ok and coping and that everones side effects arent too bad, my chemo nurse said my regime is quite harsh as i dont get ups and downs and its cummulative , great news lol.

anyway really tired so online but off if you know wat i mean, keep going girls, and yrs it isd true we all reach a certain point and thing s+d this but at the end of the day we are all here to help each other,

BIG HUGS XXX

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Re: anyone starting chemo in August?

Glad ur ok Annie , I've just come up to bed hoping I can sleep away the next 6 days lol wishful thinking , Deb is feeling crap at the min but I'm sure will post when she's up to it zxxxxx
Annie62
Member

Re: anyone starting chemo in August?

FEC 3 Day 1

 

Hi all, I'm back too - had yet another chemo nurse today, that's three different ones, and all giving contradictory advice and information!!   She couldn't find a vein in my 'good' arm so persuaded me it was OK to use the other - hope I don't get lymphodema now...Smiley Frustrated

 

Anyway, halfway there and back at home with a cup of tea, deciding what my inspiring thought for today's going to be!  Glad you're doing OK Breezey, but sorry to hear about Deb, delays are so frustrating.

 

Annie x

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Re: anyone starting chemo in August?

Big hugs to deb xxxx
Guest user
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Re: anyone starting chemo in August?

Fec 3 day 1 yay I got dunked , still on antibiotics and bloods were low again but borderline so im now half way there 🙂 in bed , got huge bag of driugs now too and have been prescribed movicol for constipation so just taking it easy and looking after myself ,deb was up today too but it's not gone ahead 😞 shes not feeling too good but il let her fill u in when she posts but I have texted her , hope annie is ok ?x
Rollercoaster
Member

Re: anyone starting chemo in August?

Hi all. Just a quick question, anyone got or know anything about a portocath as opposed to a picc or hickman? Would like to know the advanages/disadvantages of each of them because I can see the cannula thing not going on much longer somehow. Thanks in anticipation for the reliable info I just know will come girls xxx
Lols
Member

Re: anyone starting chemo in August?

Morning Maisie's, hope everyone slept well I can't complain better sleep than normal makes so much difference.
Whoops TAC 2 day 11
Rollercoaster hope you sorted meds for indigestion it makes all the difference . Glad your feeling more like you it was a long time for you off your legs so to speak.
Tasha never hear from you or I miss posts due to chemo brain but hope chemo went ok Hun x
Good luck breezy today could see you were having bit of down day is it in expectation of another dunk? I feel like this when the days nearly there cos we know this feeling ok is going to disappear for a while, this bc has a lot to answer for.
Chezz and genevre small world , lovely though perhaps you will meet up , chezz could visit bruv for a little hol and you could meet you never know. Chezz I hope your still resting up , take it easy for awhile just looking after little children is enough I don't think I could do it right now so hat off girl!!!!!
Meg, hope injection and onc appt goes ok today Hun il catch up later. Got to buy vodka today meg I've got the blackberries!!!! Need the important bit now.
Christymay glad your coming out of the gloom and absolutely love your dogs name. My dog really helps me with all this crap as you have to get up and walk them and when I do I always feel more human after, bless em they really do heal .
Can't remember who said ( sorry can't scroll back) about talkin to bc nurse about forum and she didnt sound keen, I had similar experience was telling my bc nurse quite a while ago about forum and our thread which had just started and she suggested I didn't use it said it causes anxiety thought it best I spoke to her!! Right what a load of b........ks , I'd be there all day leaving messages trying to track her down and she might have all the experience in the world but she's never been where we all are . They should check this site out perhaps then the penny would drop!!!!
Gilly I get headaches which sound very similar but only started on this round didnt feel like this last time. Worse on one side but I get trigeminal neuralgia that side . I take temp and if ok take burden and paracetamol which keeps it in the distance but it doesn't go, also get sharp pains into head but I know that's tri gem, drives me mad!!!!
Plus well done girl braving the bald look!! I know that times coming I'm shedding all the little shaved bits on head now bit like chez mentioned. No hair on legs , underarms, and very sparse in other departments!!! Very wierd!!!!!!!!
Got onc appt today for se discussion and then an appt with wig hairdresser to cut a fringe I bought the other week currently looks like a small furry animal , so we will see if she can do anything with it she's a miracle worker!
Pendragon I hope your get some good support from psychoanalyst next week and find a road through all this, I know what you mean about not feeling you, it's horrible . I went out with my 2 sons last night for a meal in Cardiff bay, it was lovely but I felt really sad not that I let them know . They are so good and really nice young men I'm very proud of them but although no bc mentioned ( nice change) I can see they are frightened for me and I don't want that for them, feel things have changed ( elephant is always in the room) will we ever be back to pre bc ? Hope so for them anyway.
Sam, liked the post you sure it's worth picking the blackberries? Thought you'd drunk the vodka and you were laying on the floor looking at nice clouds!!!!!!!! Go girl make the most of it before you jump on the chemo train
Annie good luck today hope all goes well in next few days.
Right after that long ramble I'm off hope every Maisie has a good day luv to all
From the afore mentioned pressie of friend little bit of one of chapters,
"You can remember that beyond the clouds , the sun is still shining. You can meet each challenge and give it all youve got.
You can count your blessings. You can be inspired to climb your ladders and have some nice, long talks with your wishing stars. You can be strong and patient. You can be gentle and wise.
And you can believe in happy endings. Because you are the author of the story of your life ".
Thus ends the sermon of the day!!!!! It just keeps me going sometimes
Xx jux
chezzap
Member

Re: anyone starting chemo in August?

hi Roller, sounds like you have a busy day planned hope weather down south is better than here where is persisting it down!!!

 

good luck to Dee and Annie today (is there enyone Ive forgotten???)

Meg where are you up to with the injections?

Ang are you today for the weekly too???

 

Well Im going for hypnotherapy now for my needle phobia.  I hope I dont burst out laughing.  I thought Id give it a go as the needle phobia is getting worse as the treatment goes on not better.

will check in later

Have a good day all

Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 11

Morning all, how is everybody today? All slept well? I hope so,we all need it. Sleep is the best medicine, thats my argument and I'm sticking to it.

Lols, at last my gp and I are talking the same language and you're dead right, the omeprazole is getting to grips with the burning cannonball under my ribs at last, thanks for the advice/encouragement. I think its lovely that your boys are so caring of you, you've obviously done a good job of nurturing them and now they're returning the compliment, enjoy it.

Gilly, just wondered if the headaches are a se of a med or the jabs if you're on them, have a read of the leaflets first then call chemo unit to ask for a change depending what you find. As I know not all meds agree with everyone!

Chezzap, great to see you back on the forum. It must be sooo good to be home, back with your darling babies. I bet your house was an emotional place when you got there! I know what you mean about families though. I have one brother who is brilliant and caring and supportive but the other one may as well be on the moon. Still, we can appreciate what we have got and do without what we haven't, what doesn't kill us makes us stronger. I heard a quote from Eleanor Roosevelt, "women are like teabags, you never know how strong they are until they get into hot water". How appropriate.

Pendragon, I was in the same place as you last week, said no more, I cant do it but you will get past it and you will think of something positive that will help you cope. Sometimes a good cry helps, we can't be strong all the time. Just take an hour at a time then a day at a time. My OH says its like looking at an elephant. If you look at it close up its so big you can't see anything else, but if you stand back a little it gets smaller and easier to look past and the further you can stand back the easier it gets deal with. Sounds corny, but its true. Hang in there hon, we're all here for you xxx

Sam, that sounds a nice idea, record something positive every day, I like that. Will give it a try. Just wondering though, will yours say Blackberry Vodka every day! Only joking. Tbh, i've never found ss much help, but my dear old parents have always been so independent they would not accept help from anyone other than me, which is music to ss's ears of course. Things have to be different now, I just can't do what I was so they're having to face a few harsh realities. We will see how things turn out but big bro is sorting them out in large measure now. That film sounds good, will look that one up, thanks

Annie, whats your positive thought today? There is always at least one but often if you can find one others follow and then you start to feel more positive. Its surprising how little it really takes to get us feeling a bit better. And as others have said, we're all here for each other so feel free to vent or whatever you need. At least one person on here will know what you're feeling and have a suggestion or some advice to help or a shoulder to cry on. Keep going, the goal posts are there.

Christymay, day 10 and you've picked up. Are you eating now as well? Thats 3rd day post jabs. You should talk to chemo unit about them, not eating all that time is no good and the acute lethargy is impossible to live with.

Breezey, hope you're feeling a little better today. Hope your dunking goes as well as it can, that will be another one off the list. I was looking back yesterday at the whole journey so far and realised just how far I've already come, it somehow makes the rest of it seem more manageable.

Genevre, guilt re parents is defo not on the agenda. I've spent my whole married life with them in tow. My OH and kids have put up with a lot on their account. You, me and anyone else in our shoes have nothing to reproach ourselves for. Like you say, we have to look after ourselves first now. Glad you're able to pace yourself a bit more, its a pain but its necessary and worth it.

Well, hope I've remembered everybody, if not I'm sorry, its not on purpose, I'm just sharing a brain cell! Have rellies coming to visit for lunch so better get dressed now. Breakfast in bed all done and pain free, hurrah! Friend bringing dinner this evening so all is ticking over nicely. Thanks so much for all your support and kind comments re the parents, its much appreciated. Will check back in later, hope all goes well for all today and ses are minimal for all. Hugs and much love to all my amazing maisies xxxx


Genevre
Member

Re: anyone starting chemo in August?

 

 

FEC2, day 16

Hello Coco, I hope you’re feeling ok today,  poor you. 

Pendragon, about to pm you

Thanks for good advice Rollercoaster, you are so right about pacing myself and I’ll be more sensible next time.  I’ve done one sensible thing – today I had a reflexology comp therapy which was wonderful. You’re having your work cut out with the older generation, I don’t know how you are managing, feeling so terrible. Make sure you tell your GP everything. I went through the same with both my parents needing so much care at the same time – I remember the stress and the exhaustion, and I wasn’t going through chemo then. Both  died within last two years and I felt so guilty that I hadn’t done enough.  But you must put yourself first, hard though it seems

Lols, blackberry picking sounds so lovely as does the alcoholic results.  I usually eat more than I pick! Hope you had a lovely time with your kids, they sound very sweet.

Gilly, try phoning chemo ward or GP.  I’m sure something can be prescribed to ease things, there’s only so much you can take – you know you have all our support

Chezza has posted the extraordinary news about me teaching in the same school as Chezza’s brother down in the SW – we’re both so excited!

Chezza, was fab talking to you earlier and so glad you’re home again.  Try not to worry about the next stage, you will get through it with our support and your good friends, and cuddles from family. Take each day as it comes and you will get through it.  You sounded amazingly bright and chirpy earlier – what a fighting spirit you have! I feel already know you so well, even before I knew that you were the sister who my friend at work had told me so much about.

Pendragon you must keep going – you’ve survived so much already and you’re bound to feel like giving up, but you can do it, I know you can.  If you’re feeling desperate there are people to talk to if you find it hard to hang out for the Macmillan counselling next week -  there’s helplines on this site – and you’ve got us too.

Sam, as Roller says, we must pace ourselves and accept that for the moment we need to slow down. You may well have times in the cycle when your energy levels are almost normal.

Annie, very best of luck tomorrow, will be thinking of you.  I so feel for you with the paintstripper mouth, it’s quite horrible. Mine’s much better, but have about four raging ulcers, including one just inside the corner of my mouth that looks and feels as if I’ve been cut by a knife.    

Christy, that’s another amazing coincidence, these are such precious friendships.  Hope SEs are manageable and that the dog walk and counselling have helped

All the best for tomorrow Breezey, sorry you’re so miserable  Don’t worry, I’ sure your OH has broad shouders, and sound off to us whenever you like.

.

 I’m fantacising about  a good sleep, completely wiped out.  Goodnight Maisies and hope you can sleep and stay asleep too! xx

 

 

                                                                                                                                                                                  

chezzap
Member

Re: anyone starting chemo in August?

ooh that sounds good I loved Cell Block H as a kid especially vinegar t **ts !!!!!

good luck for tomorrow Dee

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Re: anyone starting chemo in August?

Hi ladies thought is better post although feeling miserable , really fed up this evening and have as usual taken it out on oh who has now brought me flowers an I now feel worse lol , thanks christy for texting just what I needed to snap out of it . So glad you got out and about again today and met another new friend , you will have to bring her to coffee morning , Chezz how are you doing ? Watching White chapel as we speak I love it , then I watch wentworth prison which I also love , good luck to my fellow Dunkers for tomorrow , hope all our bloods are up enough for us to get dunked , il check in on return xxxx
Christymay
Member

Re: anyone starting chemo in August?

He was originally called mylo but my mad daughter called him mr bones, cuz he always used to eat bones, we are a very strange family lol xxx
chezzap
Member

Re: anyone starting chemo in August?

love the name of your dog Mr Bones genius

Christymay
Member

Re: anyone starting chemo in August?

FEC 2, DAY 10

Evening Maisie's, hope everybody is well, or better than they have been, I feel alive today for the first time this cycle!
took mr bones(my dog) out for a walk, then went to counselling & met up with another lady I met on this forum but a different thread, she lives 2 miles away from me, another friend for life I hope, she is starting chemo in a couple of weeks so wanted to know the se & things but was so worried about scaring her but remember how useful it was wen I joined this forum & you amazing people have helped me through this!

So I want to say a big thank you to you all, too many to mention by name sorry!!

chezzap
Member

Re: anyone starting chemo in August?

cheers Annie best of luck for tomorrow

Genevre - our Ste sends his love, he was blown away when I told him.

 

For everyone else here is a heartwarming story and shows how the Lord works in ways to bring people together:

 

My brother doesnt live in Manc he lives down south.  The evening before I went for my tests when I found the lump I was telling him on the phone had found lump etc and how scared I was.  He told me that day a lovely lady who he works with had told him the bad news that she had a dx of bc and would be having surgery etc.  I was dx day after so my bro shared our awful news with his friend and I in turn asked him about her and what her treatment plan is etc.  Anyway after my post the other day re sending pm to a few maisies with number etc Genevre contacted me and told me where she lives and what she does as a living. Yes you have guessed it Genevre is the aforementioned friend of my brother!!!  I was so excited when it clicked who she is I had to call her and tell her who my bro is.  I hope I didnt freak you out too much Genevre as it must have been a real shock for you to get my over excited phone call.  If we ever meet you will be shocked at how alike Ste and I are especially now i have no hair!  same mannerisms etc and Im a teacher too.

 

 well we all seem fairly quiet tonight ladies hope everyone is ok and doing something nice.  Does anyone watch whitechapel???  I love it but it scares  me so  much its so macabre.

Annie62
Member

Re: anyone starting chemo in August?

And a quick thank you again to Ju, who very kindly sent me some gelclair and who is an absolute star! Smiley Happy

Annie62
Member

Re: anyone starting chemo in August?

FEC2  Day 21

That's a very good idea, Samjs, I think I'll do it too.   I've been feeling sorry for myself this cycle - I seem to have had only a couple of 'good' days, the rest have been mostly rubbish!  The worst thing for me is the paintstripper throat which starts around day 4 and lasts until around day 15, and this time I've had very achey bones...

 

Pendragon, it must be so much worse for you, hope things get sorted out for you and for everyone else not doing so well at the moment.

 

FEC 3 tomorrow (blood tests allowing) then the dreaded TAX to look forward to!  On the plus side, still got my eyelashes and eyebrows and have certainly not put on any weight.  But I'm so tired all the time I'm almost looking forward to the steroids tomorrow! Smiley Very Happy

 

Very glad you're  out of hospital, Chezz!

 

Annie x

samjs
Member

Re: anyone starting chemo in August?

Afternoon ladies,

 

Glad Chezza is back- sound slike you have  afab support network around you . pendragon is having weekly  chemo so she maybe able to offer some advice.

JU I am going blackberry picking tomorrow afternoon.  

Coco could you please email me the recipe- I will pm you my email addy.Coco- AA meetings: My name is Sam and chemo drove me not to drink just  blackberry vodka!!

Rollercoaster- I can't believe SS don't think you parenst need to be in care. I know it's a difficult decision to make but  you will be constantly worrying about what's happenening when you can't be there. 

PAndragon-  don't worry about moaning- we have all had our moments. 

generve- exhuastion is one of the things I am dreading- most of the time I am like a whirl wind not sure I will cope with little energy.

Ladies if you can get to the cinema on a good week I went this afternoon and saw About tIme- it was really good- funny bits and sad bits but  the moral of the film was to look at the postives in every single  event. It has inspired me to start a  journal chemo day next Friday-  I am going to  record at least 1 postive thing each day (even if its something silly like  I  saw a nice shaped cloud.(random I know) I just thought it would be  areally good thing to look back on.

xxx

 

 

Guest user
Not applicable

Re: anyone starting chemo in August?

cocoa can i have recipe please  thanks in advance.

chezza ive had a couple of really bad days ive just told my OH enough is enough, im on weekly taxol week 5 if i go tomorrow but i have honestly had all I can take, in a way i wish they'll say no to me tmorrow, but then will i get upset if they do. My mind is all over the place can't wait to see the macmillan physcoanalyst next tuesday. maybe you need to ask if they hae such in your area. I'm just fed up feeling tired and achy and just not me. sorry again girls wish i could be on a up and  have a good week out of three.

chezzap
Member

Re: anyone starting chemo in August?

Maisies Im back!

Just spent bout an hour reading through all posts and I am so touched for all your concern and support especially when you are all going through so much yourselves.  Some of my so called best friends and family didnt even bother to text or call me when I was in hospital to see how I was yet each and every one of you showed genuine concern.  A massive thank you to you all. 

Some of my friends have been amazing one in particular looked after the kids all day Sat and Sun with her own two so that Jose could come and visit me at hospital.  Some of my other mates wanted to come and see me but Im a funny one when in hospital I dont want anyone seeing me like that ( I didnt have any head covering either) so only wanted Jose there.  Just to know they are thinking of me and texting Jose regularly is enough.  Others on the other hand couldnt even be bothered to pick up the phone and see how I was and thats the so called godmother of Rafael.

Had a great evening when got home - Sergio was already in bed so he just got a small cuddle and he has a cold so cant get too close to him and Rafa was asleep on sofa so woke him up and clung onto him for dear life.

 

Am now fully au fait with Corrie and Emmerdale bloody brilliant cant wait for tonight and also good news that new series of Homeland is starting next Sunday.

 

It seems most of us are on the up now which is good.  I must admit I had a night in hospital when Jose had gone that I felt I just could nt carry on anymore with the chemo.  Knowing that I feel so ill and have so many more to go was unbearable.  Think am freaking out cos after my next cycle I start the weekly one and am terrified I wont get any good days at all.  At least on a 3 week cycle you more or less feel human on week 3 most of time.  Dont think mentally or physically I can bear 12 weeks of feeling crap every day.

 

Also for some reason losing loads more head hair this cycle its all over the laptop as I type and like you have said you look in mirror and just dont recognise what the hell is staring back at you.

 

Lols I have found vitamin e cream with coco butter great for massaging.  I tried bio oil but it seemed to make scar tighter.

 

Christy and Dee great that you met each other its so nice to have that added support when the virtual becomes reality.  Its the only silver lining of all of this rubbish.

Good luck to Sam for popping the chemo cherry today she has been holdi g onto it for such a long time the little tease!!!!!  And of course Tash on numero tres

let us know how you get on girls

love to all xxxxxxxxxxxx

GillyR
Member

Re: anyone starting chemo in August?

Lols, have a restful day and a great evening.

Roller I am sorry you have all the added worry of your parents, but I think you are right to stay away and look after you at the moment.

I am getting awful nauseating headaches in the afternoon and evening. It is from the bridge of my nose across eyes and nothing seems to ease it. I didnt feel nauseous on cycle one at all really, but this time it feels endless and I am day 10 now, its needs to do one.

Hope you all have the best day you can girls

xxxx

Lols
Member

Re: anyone starting chemo in August?

Morning Maisie's, rollercoaster ask for omeprazole will work I promise. Must be a big worry with parents so vulnerable sounds like you need a lot of help,there Hun.
Well I'm blackberry pickin this morn for the vodka, and my es is taking me to Cardiff this afternoon ( my car he's driving) to go for a meal with him and ys. For some reason my children now think I'm the child hence the taking over the driving etc but I suppose they feel they are doing something.
I've now learnt that il have to take it easy today to cope with this evening it really affects your life this chemo crap.
Hope all Maisie's at bar today have a good one. Chezz check in soon Hun so we know your ok hope you didn't watch soaps till early hours!!! Take it easy today.
Have a good day all Maisie's xx ju x
Rollercoaster
Member

Re: anyone starting chemo in August?

FEC 2 Day 10

Morning all. That was a long night, the indigestion is rampant abd very painful so back to gp today but with low immunity now, hope he will just leave a script that can be picked up for me .

Christymay, are you starting to recover now! Take it easy, don't rush it, you will get there but you need to talk to chemo unit about those jabs before next time. Mine now understand how bad they made me and said no more. Hope the next cycle is just 'normal' if you know what I mean, no interference with unnecessary things.

Genevre, its a temptation when you feel ok to rush around and do everything you want to but our bodies are taking a bashing and they need all the rest and support we can sensibly give them. Pace yourself a bit, plan rest times as well as activities, take care of yourself, you deserve it and need it. End of soap box speech now, hope you have a good day.

Breezey, did you get good vibes re the forum from the breast nurse? Mine tried to warn me off, think she needs to have a look at it before she passes any more comments, or, heaven forbid, be in the same boat. I wouldn't wish this on my worst enemy but she might understand the value of it if she did experience it. Anyway, really glad you and christy had such a good time together, friends for life is good. You really do find out who your true friends are in all this and the good ones are really good, we won't mention the others.

Lols, You're dead right, a new woman but almost bald. Hey you can't have it all can you. Actually still have a thin covering of hair hanging on but not enough to feel comfortable out and about with. Do you think every time we need pills or something they just give whatever is cheapest first to see if it works and then graduate up the scale till something does? It just seems we all have to fight to get the rolls royce kind of tablets and we shouldn't have to put up with going through that on top of every thing else. Is it me or am I being cynical? Maybe this awful indigestion is addling my brain as well, be glad when something gets it under control finally.

Chezzap, sooo glad you finally made it home, bet you're still sleeping, so much catching up to do on so many levels! Well done, hope you get some good days now before the next dunking.

Well, my dad is home now, very weak and emotional. He hasn't got MRSA after all but coag negative staphylococcus so iv antibiotics for 6 weeks in progress now. Meanwhile dementiad mum has become a nightmare, she thinks she has everything organised but all is in disarray including her own meds. We organised a dosette pack for her and instead of going across the day she went down the evenings list so had 7 evening doses in a couple of days! Then insists the pills she needs weren't in there at all! Then refused to get dad any food and screamed at the carers when they went in to do it! But ss say they don't need to be in care! Who does then? Dad got so stressed he asked for tranquilisers, now thats bad. Think I will just stay in bed personally, can't do much to help them right now but if I go there they will expect me to do things as normal. Good job I get another massage next week, its so relaxing. When i came out i was really dopey but later was really good feeling, amazing and would recommend it to all.

Well girls, I've had my moan, thanks for 'listening'. Just going to try some breakfast, dreading the after effects but must eat. Gp is going to give me a telephone appointment soon, Have a good day all whatever you are doing or having done to you, take care all, hugs to all, xxxxxxx



Coco0896
Member

Re: anyone starting chemo in August?

Morning Maisie's, hope you are all ok, and all the best to anyone up at the bar today. So glad to hear you are home Chezza and hope you are feeling better. It sounds lovely Breezy and Christymay you time together yesterday and glad you enjoyed seeing each other. Anyone who wants the blackberry vodka recipe, just let me know, you can join Lols and myself at AA in a few months time!!!! Have a peaceful day one and all . Love Meg xx