I'll see what my Onc says about alternatives to cannula - Roller, I do have a blue book but no one's ever asked to see it or written anything in it! I have a separate card for appointments.
Christymay, I 'm sorry your chemo nurses haven't been very caring - same here! I haven't had the same one twice and I know they're busy but some of them make me feel as though I'm on a conveyor belt! I've never been ill before and don't really know how to stand up for myself in this situation...
Thanks for being supportive, girls, I will definitely insist on them not using my poor node-less arm for the IV in future.
Hi I am new to this but just had my second dose of FEC and still terrified of it all. Its the tiredness I am really struggling with but the this forum looks like just what I could use to get through it with people going through the same...family are great but..
No, I don't - they seem to tell you as little as possible here! I specifically asked for details when I was in hospital with neutropenia, but didn't get them!
I've brought forward my next Onc appointment to next week as I have a couple of issues I want to discuss with her before my next treatment - will ask about blood levels then. And I specifically want to ask her what the protocol is in the Unit about using the other arm if they can't get the cannula in the 'good' arm. Last time I wasn't really given any choice in the matter and I dread getting lymphodema!! xx
FEC 3 Day 6
Interesting how advice varies throughout the regions! Here virtually nothing is banned, alcohol in moderation is OK and so are supplements, although not fad diets or 'cures'. I'm taking Spatone and I do feel a lot less tired since I started it - it may be psychological, of course! If I could get hold of some brewers yeast I'd take that too, in case it really does boost your white blood cell count...
Generally feeling much better this cycle, pity the next one's TAX!
Think Lucy58 is up today and worried she has nt answered my pm.
Lucy if you are out there love let us know you are ok
have a great time away Christy and bring senor Bones back an extra juicy big bone! happy anniversary
Was meant to go to0 physio today but full of a cold so think gonna cancel and go to bed am worried chemo might be delayed on Monday if got the lurgy
I pmed Lucy 58 but have had no reply am quite worried now.
Pennycrow/ Alix is active on fb
Good luck Fran for tomorrow be thinking of you
Im full of a bloody cold typical!!!
hi im week 5 day 5 on weekly taxol, hats why hair is hanging in there ive got a heart condition too and asthma so im being trickled with chemo its a 12 week course.
FEC 2, day 20
I was wondering about pennycrow too, I wonder if she's only using facebook.
I think the exahaustion is catching up with us all at the moment. I wake up feeling rested, then have to lie down again after I've showered and dressed.
Good luck to all being dunked this week. My turn for chemo 3 tomorrow. Dreading the ses this time. Today I washed my hair and was shocked to see the great mass of hair that came out. It itches all the time, and more hair falls out each time I touch it. I''ve had it cut really short, but can't face having it shaved for some reason.
Lots of love to you all, have a peaceful evening and as good a night as you can, whatever stage you're at. xx
does anyone know whats happened to Pennycrow not seen a post for ages wishing everyone a good evening love Gill x
hi im feeling dizzy too this cycle seems to be improving slowly. its awful have had more energy but hair is coming out and this dizzyness.
I'm actually on holiday this week lol well I would be if i was at work, seems strange we werent going away but always have a week off now to catch up on house cleaning etc, steves done most of it and cleaning his motorbike just few things left to do, when oh when will my energy come back !
hope people up today and for the rest of the week are not suffering too much, and those who are already in the middle of se's get some good days too.
it's a long old road but i'm sure we can do it, just keep thinking of next year xxx
Fec 2 day 11
Hi Maisies, sorry ive been absent from here ive had no internet at home, ive been able to get on facebook on my phone but i cant use this forum on there 😞 but its sorted now so i have a lot of posts to go through and read.
Hoping all se's are kind to everyone today and will post as soon as i catch up!
Ive managed to send Lucy 58 a pm she last poszted on 9th Sept I think and was having it rough so hoping she is through the worst now and able to let us know how she is
Has anybody heard from Lucy 58 aka Anne it seems ages since she posted????
To send her a pm do I need to scroll all the way back to her last post?????
FEC 2, day 19
Lols, so glad you’re having such a peaceful, away from everything time, let’s pray it does you the power of good!
Roller, glad you’re having a good few days, well deserved after all the stressful stuff you’ve been through.
Christy, glad you’ve had such nice time and hope you’re not too weepy at the moment. Those big fat ulcers are horrible, mine lasted for almost a week, roughly days 12-18. Combination of difflam and bonjela lessened pain a quite bit, try using both before and after you eat. Also my district nurse recommended fresh pineapple, and strangely that helps too
Chezza, make the most of every good day, and have a ball on your birthday. I celebrated my 60th between surgery and chemo. My family’s toast to me was ‘To Recovery’!
Jacquie, you’ve got every excuse to stay in bed until ten or later. After trauma with my daughter yesterday I couldn’t sleep until about 4am, so stayed in bed until midday!
Venice, the fatigue is horrible, try to pace yourself, lie down whenever it gets too much, if you are able. Hope you feel better at some point during cycle
Coco, thinking of you as you soldier on.
Annie, how are you after the tax? Hope it’s bearable if nothing else.
I’m having dunking 3 Tues, so plan to make the most of tomorrow. Only really troubling thing is painful scalp. I haven’t had the shave, so it hurts as it falls out. Still got something in the way of eyebrows and lashes, though a bit feeble, and some very short hair on top, with straggles on sides. Beautiful! Now going to snuggle down in pjs with glass of wine and watch Downton Abbey.
Maisies love to all, look after yourselves,
hi yes I am here thanks rollercoaster. Still suffering from acute fatigue wiping me out having to sit down after least little thing I do but on the plus side this seems to be the only SE at present. Hoping it will pass soon so debilitating.. Wishing you all a good evening and good nights sleep love Gill x
Morning Maisies, still in my bed catching up on all your posts. How annoying to have ses from drugs that are meant to improve things Roller! I have had a new drug added this week as pain from mx scar was waking me up. Luckily the se is to make you sleep so quite impressed with it!
Chez I'm so sorry your 40th is at this time, you will have to have a delayed combination 40th and finished chemo party? I think it's the way this bloody diagnosis turns your life upside down that's the worst, my life wasn't perfect pre bc but I was happy with it and now it just feels like control is in the hands of the doctors and I'm just being swept along? I hope you have a great birthday in spite of this I will be thinking of you.
Right better get my lazy bum out of bed, day 10 today so no excuse really, hope you all have a good day girls xx
Hope everyone is ok
Fran hope your daughter home and recovering and that particular worry has dissipated .
Christy sounds like you haveing a decent enough week.
Roller you too sound over the worst of it and of course our other Dixie Lols is away relaxing.
We need to enjoy this next week and not think of 30th Sept til that morning. Its my 40th on 29th so I dont particularly like the idea of being dunked the day after the big 40 and this time last year I never imagined my 40th would be like this but at least Im here to tell the tale. Still doesnt stop me feeling any less bitter though about how my life has been taken from me.
Planning to make most of today and feed ducks and go to park with the boys whilst its dry.
Happy Sunday to all
Take care xxxxx
FEC2 Day 18
Hello Maisies, hope you've had a decent day, just been reading through all your posts and catching up. Every sympathy for all the ses you're suffering, it's a long haul isn't it? Have been out of action for a few days, first with just being wiped out, then in hospital - not for me - but my daughter who was admitted with acute headache, home now but really traumatic as they has to rule out various horrible things. Hey, I'm meant to be the sick one here! THinking of you all, take care, Fran xx
FEC3 day 3
I think they give the Nivestin or other white-cell promoting injections automatically in some hospitals. I've had to inect five from day 3 for all three of my FEC cycles, but they certainly didn't work the first time as I ended up in hospital with neutropenia for four days!
I'm surprised they haven't suggested them to you though, Breezey.