evening all, Chezza sending you a massive hug. You are so not shallow for having a melt down about the clothes. I really hope that you mnage to have some fun for your birthday but am sure it is not what was planned for the big 40. Next celebrations will have to be enourmous and make up for it. Great news that the swelling in the arm has got better. Lynns glad your internet problems have been sorted very frustrating isnt it we get so used to having internet all the time. I thankfully an in my good period and have had another day of meeting friends for lunch. I really have beceom a lady that lunches this week!!. Just opened a lovely bottle of wine first time I have felt like a drink since last chemo. Wishing everyone a good evening and a relaxing weekend xxx
thanks Gilly I know what you say makes sense but I have come to realise that all my self confidence was housed in my boobs as stupid as it sounds and now I feel Im not a woman anymore. Ive tried to get used to it but find some days really hard. I will be ok tomorrow it was just the clothes clear out that has triggered a feeling sorry for myself episode.
Thanks for support though ladies this is a hell of a journey thats for sure
Welcome to all the new maisies 🙂
Sorry ive not been on here much ive had internet problems but finally sorted and ive had 2 weeks of posts to get through!! Now im up to date i will try to get more involved!
Christymay have you had your hickman line fitted yet? i had mine fitted on the 13th Oct same day as my second dunking. its taken a while to get used to but its finally settled down now.
For the maisies having herceptin did you see the news about the injection form being approved for use on the NHS it will cut the time down to 5mins instead of having it in IV for 90mins. I know some people are on the trial for this but wondered if anyone had spoken to their ONC about it yet to see if they are able to have it in this form. i would much rather the injection if its abvailable to me.
Chezza i hope you are able to enjoy your birthday weekend but fully understand why you needed to vent its such a crap time for a birthday when we going through this i didnt celebrate my 32nd as had just been dx. Sending you a big hug xx
Hope you all have a relaxing weekend and those SE's are minimal.
Right im going to pop off now got my step kids round for tea and hoping to enjoy my weekend as my 3rd FEC dunking is due next Friday so got to make the most of feeling well while it lasts 🙂
Susie01 and other Maisies. July Junkie here. I've just had first Tax or T and it was fine. But too early to tell about SEs. I was really posting about flu jab.
My onc is keen for me to have one as I'll be immunosupressed going into the start of the flu season. So I am going to take her advice. She said the best time to have it is just at the end of a cycle or the very beginning of next while my immunity is at it's highest. She said it's up to the GP's surgery to fit around me, not the other way around. So if you have to girls, be firm and explain why you can only have the jab in that small window. Hope that helps.
Have a good weekend all, and no SEs. That's an order lol. x
Chezza, you have your whinge and cry, I have turned out a lot of clothes too. I was blessed with huge boobs so I did like to have cleavage showing, but those days are long gone now as you say, but hey ho. We are alive and that is what matter.
I hope you have a wonderful weekend, look around you at the wonderful children and hubby that you have and the friends that are there to celebrate with you. Those are the things that matter from this day forward and I know that you know that really.
Big happy birthday hugs for you
Ang hope you are better today
Spikey glad to hear you had good time last night and have nice things planned
Hi Susie welcome to the gang!
Roller hope you have something nice planned before Monday
Ive had a mixed morning. Went to physio and was made up cos she took my measurements from my arms to check for lymphodema swelling and its gone down by 7% since last time so now under any threshold. She says its amazing that during chemo my body is still fighting and even without lymph nodes its draining so she was really pleased and said I dont need a compression sleeve. Was happy at that. Then went to a Macmillan coffee morning at local pub with Claire79 from the Maisies and had a lovely time.
Then it went downhill! Came home and decided I needed to sort my wardrobe out so got bin bags and ended up throwing away 2 bin bags full of clothes that I will never be able to wear again due to my mastectomy. Cleavage flashing clothes and nice tops, all my bikini tops which were new few months ago. Im sorry I know it sounds shallow but I just crumbled and yet again was hit by what s happening to me. Then its like the floodgates open and I cant stop!
Think its cos its my birthday weekend and this time last year I was thinking what to do for the big 40 and now its all gone to s**t. Im going out with some friends for a meal but Im really not in the mood. Do I wear a wig or a hat? I just feel like Im going to be on show like some bloody exhibition and I havent seen some of them since started chemo and if I hear the "dont you look well" line I think I will smash some plates. Well it is a Greek restaurant so I will get away with it!!!
Sorry to sound so whingy today maisies I just needed to vent my spleen!!!
Hi Susie, welcome to the Amazing Augusts, or Maisies for short, you are our second new one today, good to have you aboard. You will get lots of advice and support with us, we are all in the same boat.
We also have a facebook page if you want to come and join that too xxx
I know Ang it must be really tough. Tues will be here before you know it and am sure you will get good b=news . Remember the low blood pressure Im sure will be that and all the added worry and stress of all of this.
Try and do something nice this weekend if possible although it will be on your mind all the time
sending postive vibes and best wishes xxxx
hi chezza ive had a bad few days huni, hope you are all ok on here, just not a good time for me atm, had to go for a brain scan today and its wiped me out. had dizzyness following my last chemo and so dr sent me for a mri that turned into a ct scan, so worried i really dont want to carry on xx
kep well ladies xx
cheers Fran. Steve , Pascaline and Romily coming up tomorrow for my birthday weekend so hoping am going to be on top form. Hope your tiredness and general yuckiness soon passes xxx
FEC 3, day 3
Roller, will pm soon re parents
Hello Maisies, just a quick catchup as feeling sick and tired still, but better than yesterday.
Welcome Wt66, hope you’re managing ses ok, it’s a real shock when you’re fit normally
And Nickililly, sorry you’re in such pain – thinking of you
Breezey, yes swollen face and often can’t stop eating – you're not alone
Hope you’re having a reviving time, Christy – you deserve it
Chezz, thanks for explanation. Hope you have an awesome w/e
Pendragon, Spikeyred, haven't heard for a while how are you both?
Love to all, and be gentle on yourselves.
yes Wendy thats what Id worked out too but even if I was having the three weekly the first one would be 21st oct also so still dont get why an extra two weeks is added on. I assume its cos the last of the 4 would have been 23rd Dec but Id still be feeling effects of it afterwards wheras with the weekly its a longer stretch cos its a full twelve weeks of treatment rather then nine weeks when you have the 4 sessiosn every 3 weeks. I think I get what I mean ha ha.
Echo what the other ladies have said take any offers of therapy , massage etc if anything it gets you out the house for a bit and change of scenery.
Hope everyone ok today just come back from bloods and doc- bloods fine so dunking going ahead on Monday regardless of my cold. Just been told to keep an eye on it.
I feel slightly cheated as originally Id worked out with 8 cycles my last chemo would be 23rd Dec. However for the tax as Im having it weekly now rather than every 3 weeks over twelve sessions for some reason it finishes 6th Jan. I still cant work out why 4 sessions every 3 weeks is not the same length of time as 12 sessions every week??? Am I being incredibly dense????
hey Dee welcome back to humanity ha ha
was just about to say to you about whitechapel and you beat me to it!!!!
Hope you keep getting better now you have turned the corner! Are you changing cocktail next cycle??
Meg thanks for letting us know about Ju. Its quiet on here without her but glad she is having a break from it all.
Hope everyone is well and battling through
Hi WT66 welcome aboard
Genevre I think wbc means white blood count per se and there are 4 components that make up your white blood count and neutrophils are just one of them but they are the ones that fight infection so if they are low they wont give you the chemo. Think thats right.
Well Im still full of a cold and praying will get better forn the weekend for the birthday and the Monday for the chemo. Having bloods done tomorrow so will see what they come out as and take it from there.
Hope you feeling better Dee remember its Whitechapel tonight!!!
thanks for the welcome Rollercoaster; I had a lumpectomy and lymph node removal in July and started FEC/T in August. Its only 6 hits which compared to some people is not much really.I don't seem to get any feedback re the blood tests I have - don't know if this is normal. I just seem to have to turn up every 3 weeks.
I've never really been ill and from being active to having to go back to bed after a shower has been a rude awakening. I have been reading up on energy boosting foods so re-writing the weekly shopping list for hubby at the moment lol.
FEC 3, Day1
Good evening girls!
Back from the bar by 1.30, bit of delay because onc said my wbc and neutro (can anyone explain the difference? - I forgot to ask) were a bit low, but blood was retested and had gone up a little so treatment went ahead, thank goodness! Feeling ok, just weird, heavy and cold. Know I won't sleep at all tonight if last 2 anything to go by, so lots of tea, snacks and a good read! Thanks for thinking of me and all the supportive messages.
Who else is being dunked this week/next week? Let us know so we can look out for you (although I might be out of it for just a few days....)
Roller, glad you're having a good day. Pleased things are happening wth your parents. It was only when my parents hit crisis point and I coudn't cope thar SS took quick action. My YD is a socialworker with the adult complex care team and works with people like your parents and their families all the time. If you have any specific qus feel free to pm them and I'll ask her. Thanks for support re hair, I won't need to shave it, it's falling out without any help!!
WT 66, welcome, as Roller says you'll find lots of support here. Sometimes you won't feel like writing loads, but if you pm (private message) me I'll give you my mob. number so you can text your news.
Annie, sorry you're not getting the support you need. I got it wrong, your tax is next time, so hope things continue manageable for the moment.
Christy, thanks for lovely text. Enjoy your break, relax, be pampered and happy anniversary!
Breezey, rest as much as you can, and hope you feel better soon.
Coco, thanks for your message. How are you feeling?
Chezz, thanks for thinking of me, sorry about the cold - that's the last straw!
Goodnight Maisies, big hugs, Fran xxx
Dont forget we also have our closed facebook group for chat and support