FEC 3 day 20
Hi wt66 - this must be a truly dreadful time for you, I'm so sorry. I lost my Mum many years ago, but I so wish she was here now...
I know what you mean about the July thread, I can't help reading it but I live in hope that there are many others who aren't posting because they're not having bad SEs, and to be honest, the last FEC has been so awful for me that I'm quite glad to be changing. Today and yesterday were really the only two days I've felt 'normal' this cycle.
At least I've now got thrush meds ready and waiting...
You'll be OK - stick with us!
wt am so sorry to hear about your mum. What a hell of a time you and your family must be going through.
I know its easy for me to say but try not to fret too much about the tax. Yes a lot of the july girls are suffering but we all react differently some who found fec ok have been floored by tax whereas some who found fec really bad have found tax better as not having nausea. Fingers crossed it wont be as bad as you think xxx
looking at FEC 3 thursday with complete dread. I really struggle with the fatigue but more than that the nurse taking my bloods today tells me #T is much tougher.....thanks for that! Made the mistake of reading July starters blog and their SE sound horrific. Wow I wish I still loved the taste of white wine! I am finding it all a bit tough.......this sounds sooo moany. But my mum was diagnosed with ovarian cancer at the end of June the same time as my diagnosis and sadly she passed away on 1/9 and i miss being able to talk to her I think. Hubby is great but sometimes you need your mum don't you. Sorry folks just a weepy day today.
Am struggling a bit with side effects. Dont feel ill as such but my tongue feels huge and ulcerated, mouth sore , throat killing me. Now I know what you all mean when you talk about not tasting anything! I havent had that before today. Went to Gp and gave me antibiotics as said have upper respiratory tract infection courtesty of course of Sergio!
Anyway moan over as I know some of you are feeling far worse. Guess we had to expect this its the cummulative effect I suppose but it still doesnt make this journey any easier.
Is anyone up for chemo today? If so good luck and big hugs xxx
Nicki is on FB but not the other lady
Venice hasnt been on for ages nor has Lucy 58 I pm ed her few weeks back and not heard anything so am hoping they are both ok.
Roller sorry to hear you feeling so low today. Do any carers come round to your parents? Dad did the same re the tablets God knows what he was taking and when so we had to hide his meds and just let the carers admin ister them and physically watch him take them that was the only way.
Ive booked a flu jab for a few days before next cycle so fingers crossed the flu wont get me this winter cant bear idea of that on top of chemo side effects. been to zumba today and am now regretting it as throat really sore and feel shattered. Gotta try though as dont want my weight creeping up anymore.
Hope everyone is fair to middling.
Lols are you ok you been quiet
And Meg where are you?
FEC 3, day 14 – into good week hopefully!
Good evening Maisies,
Hope you are all struggling through and managing to have some good days in between the awful ones.
Glad you’re feeling rested Christy and that that you can get home to a germ free house asap.
Pendragon, sorry about marathon journey to have your rads – what a pain on top of everything else
Roller, you’ve every right to be grouchy. Thanks for lovely pm – hope all goes as smoothly as pos re parents.. My hair seems to be growing back as well, apart from stubbornly bad patches. Really weird.
Hope you feel better soon, Susie – it’s not fun not enjoying food
Hope the horse-riding was really therapeutic, Gill
Poor Dee, send her lots of love
Deb, you’re right, we will all come out the other side, thank goodness for Maisies!
Jacquie, sorry you’re having a bad time, hope things soon improve
Big hugs to you all Maisies xxx
please pass on my best wishes to Dee.
Ive got a portacath not a hickman line but think few of the maisies have a hickman. I know from other women that not having anymore needles is a massive plus even though it is a bit of a pain to have it hanging from you.
Hi girls was just going to let you know about Dee but Gill beaten me to it! Yes I think baby shower went ahead ok she didn't feel too bad till later on, no temp either which is a bit scary! I've had my first tax and just done first of 7 zarzio injections. Different side effects this time, back pain and diarrhoea but no sickness only day 3 though so see what develop s. Hope the rest of you are doing ok? Xx
Sorry to hear about Dee did she at least get to the baby shower does anyone know?
Roller I hate the damn jabs too although I only have one per cycle the headaches they give me last for a week after.
As from 21st Oct Im on weekly chemo like Angie I dont known if I will be given the jabs or not or if they will wait til neuts start to drop. Suppose in theory they shoulodnt drop too much at first as each chemo is a third of a dose. One things for sure theres no way Im gonna have the dreaded jabs every week no siree!!
Hope everyone managed to have a good weekend and do something bc free
Good morning maisies, sorry I haven't been on for a while but picked an infection up just before 3rd chemo which delayed it a week and felt rough ever since. Coming round abit now and feeling better and at the halfway mark yipee. Next will be 3 times docetaxel and herceptin so not sure what to expect side effects wise on that one. Sending love and hugs to Dee in hospital and all the other maisies that are having it tough this time around. Think it may be an accumulation thing girls but thank god it will all stop when we finish this crappy journey. Chins up, heads high girls we can do this together x x x
Good morning girls. Just to let you know that a few on the fb page are suffering quite badly this time, lots of emotional lows for sure. I had my chemo delayed last week due to a heavy cold, resheduled for Tuesday, so that will be my 3rd.
Dee is in hospital with nuetropenic sepsis, he nets were down to 0.1, so she has at least a 3 day stay until they sort her out.
Hope you all have a good Sunday, I am off out for a ride on the horses this morning in the sunshine, to try and feel normal before it all starts again on Tuesday xxx
I've just had my 6 Taxol out of 12 and i dont have injections my neutrophils are now at 2.9 so worried bout the decreasing and not being able to have chemo! strange how things are so different, just got my booking forms for radio too got to travel 48 miles to local centre every day for maybe 3 weeks, ive asked for hospital transport but got to be ready by 7 in the morning to leave. seems a very long day but hey needs must and all that.
hope everyones coping its lovely here in sunny beds atm x
Morning Maisies hope you're all feeling a bit less wiped out today? I had my first tax yesterday but no herceptin as they want to give it separately apparently? Miffed as not been told that before! Neuts were very good at 6.6 so am worried injs which I start tomorrow zarzio will be nasty. Think I will maybe have to stop them too Roller, nurse said I may not need a full week with levels so good at start. So far ok on tax but Chez says day 4 is worst. Love to all xx
FEC3, day 11
Roller will pm you later when YD home
Just a quick post to say I'm thinking of you all struggling with SEs, bugs, complications, delays and confusing info. Re flu jab, onc has said I should have mine the day before treatment, but I guess it depends on each individual's general health and medical condition.
Just met up for lunch with all my friends from work - gave me a real boost, and they all admired the wig!
Love and hugs to all Maisies xxx
breast nurse just rang me back its an elevation in one of my blood counts that my oncologist is worried about i too had looked up the neurophils and wonfdered why she'd mentioned them! thanks for the info too. evidently my oncologist is very thorough and the bc nurse said they will keep an extra eye on me, my AF is still playing up so this could be another cause, wish they would explain though as it leaves me wondering all sorts. i understand that decreased levels means your liver isnt working as well but what does elevated mean, am i eating too much iron things??
Not much to report from this neck of the woods as am still fighting off the cold and its pouring down here. Just popping in to say hope everyone is ok but from sounds of it we all sound like in the same boat, no energy, feeling like rubbish.
As Roller says we just have to keep thinking Jan is now in sight we have come so far already maisies!
Come on girls lets kick ass!
Pendragon, your neutrophil levels seem to be well within the 'normal' range which is 2.5 -7.5. I do hope you don't have hepatitis on top of everything else. Fingers crossed for you...
Taxol no 6 day 2
morning all, not feeling too bad just tired, had neighbour in before 7.30 chatting in her high pitched voice to my OH so that woke me up just over and hour from him coming in from work. got up in the end lol.
just rang bc nurse and left a message re my unusual blood test yesterday, chemo nurse didnt explain properly and i dont want to stress out for a week, my neutrophils are low 2.9 and she said my oncologist had asked for a blood test to see if it was hepatitis but then as i say didnt explain when i asked her. as far as im aware i havent got hepatitis and kept asking questions but got no answers, i have read up a bit and you can get damage due to cancer so i'll just have to wait til bc nurse rings back.
hope everyone is ok and chilling if got se's and any up today get on well. xx
FEC 3, day 10
Hello Girls, nearly 2pm and just got out of bed! Not feeling ill really but can’t summon any energy, same as you Breezey and Sam. Has anyone else been having really vivid disturbing dreams? I’m waking up drenched in sweat, no wonder OH tends to sleep in spare room! Thunderstorms and torrential rain all day here in Devon, but going to make myself walk the dog, feel so unfit.
Roller, good luck with meeting re mum today – let me know how it goes
Pendragon, Tylerrose, Susie, hope things go ok today and for anyone else I’ve missed. Pen, you must feel like a medical experiment, poor girl.
I’m sorry you feel so low Annie. It sounds as if you’re really being dragged down by all the ses. I really sympathise about throat and mouth pain, it seems as if there are only a few days in the cycle when we’re free from it. Lots of confusion re flu jab. Chemo ward said should have it and best time the day before treatment, just waiting for a call back from onc’s secretary to confirm.
Take care not to tire yourself Lols, you’re sounding really battered and bruised by it all
Sorry about delay Gilly, hope you feel better soon
Thinking of you Chezz, hope you fight the bugs
Christy, hope your lovely break sustains you as you face the next lot of nasties
Love and hugs to you all xx
Thanks, Roller, but it seems different areas have different 'rules'. It's like the ban on alcohol some people have had!
I don't intend to have the flu jab - think my body's got enough to cope with already...
Why can't we take vitamins or supplements? I haven't been told not to.
Struggling this cycle (FEC 3), mainly with oral thrush and a persistent mouth ulcer - eating is very painful!! Doubly annoying because I had absolutely no queasiness this time.
Got appointment with Onc this PM and have several concerns to raise, not least of which is the Unit's policy on using my mx side arm for the cannula, which they did last time. What's the point in us being careful not to get any sort of injury to that arm if the nurses don't think there's a problem with lymphodema?
Not been on the site much as felt too down, but good luck to everyone else going through this horrible treatment, hope things get better for all of us soon. Annie x
So sorry to hear so many of us are feeling rubbish - think its the build up of the chemo alongside the change in the weather, cold season is upon us!
Good luck to Susie, Gilly, Ang and Rose who are up today
Good luck with bloods Christy how is senor bones??
Lols hope you feeling bit better? Im feeling pretty much like you pooped after the wbc jab. Sergio got a cold too so been trying to avoid him but it was his first birthday on Tues so it was a bit of a non event really. At least he is too young to realise at the moment.
Just been watching Lorraine and seen Anastacia has just had a double mx, She has a second dx of bc so decided to get rid and bin the bra. She looks fab bless her.
Good luck to those at the bar today. Mine is cancelled because of this damn heavy cold I have got. Waiting to be re-scheduled for next week sometime, I am gutted, but not well enough to have it today. I've never wanted to be well more in my life, to get this over with.
Have a good day girls