chezzap a star in the making, granada was my local tv station when i grew up, well done !!
hope people are not suffering too much today, my hair is still hanging on or am i just imagining there is more that i think there, just cannot take that last step to shave it off, wish i was as brave as the rest of you!!
just had mushrooms on toast for lunch and am having liver for tea hope my bloods are ok for tomorrow after lst weeks nearly no go !!
does anyone get swollen ankles? mine look like im pregnant, is this to do with the steroids theyre not sore just balloon up by the end of the day, dog chewed a hole in my poufee last night little white balls all over the place lol x
hope thos suffering feel better soon, hugs to all xx
Sorry to hear the Dixie chicks are feeling like poo. That is why I refuse to take steroids cos they make me feel dreadful.
Christy hope you feeling better today you have had a rough few days
Thanks Gill for advice that cherry cordial sounds lush! Might have to get some of that
Ive got some news! My onc just called me and weants me to appear on Granada reports ( regional news after news at 6) They want to film someone recently diagnosed going through treatment and maybe film me having chemo etc. Dont know if anyhting will come of it but hey should be good. If I do get on I will big up the maisies!!!
I am feeling like you Roller coaster, up at 4, tired and nauseous. Sorry to hear you have been feeling rough Christymay.
The I have opened the petition to sign.
I'm not working during chemo as I am a tecaher to KS1- far too may bugs around children of that age.
Hope all you ladies feeling it are soon better.
Hello to you girls still on Chemo. Just visiting your thread.
Hang on in there you are doing great Girls.
In answer to Gizmos-mum. I was able to work right through Chemo. My chemo day was Thursday so i had the day off (i dont work Friday) then i used to work from home on the Monday so was lucky i got 5 days off after each session but also i had my Chemo before any surgery so i think that made a big difference to my energy levels. I did accept any offers of tea out / help with any chores to make life easier and took it very easy in the evenings. Like some of you girls i had all the se's / headaches and was unable to sleep. i had a vociferous appetite throughout (i could have eaten a horse between two slices of bread).
Just a couple of things i found helpful ----- Black Cherry Cordial (Holland & Barrett) made with boiled water to help induce sleep also used to play a Relax and Sleep app on my fone (downloadable for free) really helpful. i also used to use a natural Migrastick product on my temples which took the edge of the perpetual headache (again Holland & Barrett) but i think there are a number of similar products out there.
Take Care of yourselves Girls. Gilly x
Well chemo number 2 under my belt. Felt more nauseous this time and was actually sick last night. was up at 5.30 bonus after last time which was 3.30. Had to take extra anti sickness tablet before lunch, then went for a walk to get some fresh air. now camped on the sofa.
Well done to Ju and Roller on there dunkings and chezza on her first herceptin.
Geneve I hope you feel better for your pamper session tomorrow.
Susie are you a Northants girl too?
Angie- good idea about Brighton but staying on your own and not with family, hopefully the best of both worlds then.
Thanks for all the good wishes girls. xxx
geneve hope you have a wonderful week, im thinking of a night away once chemo is over maybe go to brighton and see steves grandchildren, but book into a b and b so we have some time together. im working really hard at making this work atm and i think now i've stopped talking bout marriage steve is too, hopefully things will work out, thanks to all for your help.
paklitaxol makes me very tired and after 8 weeks im finding it hard to not only get up but to actually sleep, sounds daft i know but im tired then lay down and cant sleep, awake for hours. my counsellor told me this morning that it builds up over the weeks. i too felt sick when i had my first herceptin, and had an awful headache, lasted for days.
hope everyone is ok i know that some are suffering really badly fraid my head if fried this morning and can't remember all your names, always thinking of you all xxxx
Morning all maisies!!!
Fran hope you feeling better and hope you hjave a really nice time at the cottage sounds like bliss
Sorry didnt get to post yesterday was a very long day as it was first herceptin and paclitaxel.
I had a bit of a reaction to the herceptin just felt bit nauseous and flushed so they stopped it and gave me some iv anti sickness then started it again. They ahve to mionitor yu for six hours after though so didnt get out of there til gone six o clock. So far so good but this is the weekly stuff so smaller dose. My neuts were only 2.9 so thats a bit worrying as they are usually about 5 and Ive goptta be dunked agian on Monday so hope they pick up a bit by then. Good news is they managed to get blood from portacath first go so am hoping that means the blood clots are going.
Sam how did you get on????
Lols and Roller how you feeling today?
Good luck to anyone up today
FEC 4, Day 8
Hello Maisies, writing again from sleepless bed. Haven’t been on for a few days, feeling so awful though bit better now. I’ve been reading all your posts and feel really out of touch- several of you are newly dunked and everyone seems tired but I’m thinking of you all whatever stage you’re at and hoping you’re struggling through. Sorry I can’t mention you all by name, but can’t cope a with long message right now
Feel absolutely exhausted, sleep so badly at night – OH in spare room! – then fall asleep when everyone’s up in morning, have to drag myself out at midday.
Going to Pamper session tomorrow and hoping for miracles, especially in the eyelash department ( got about 5 on each lid to work with!) Going away on Wed for a week to a farm cottage in Somerset. Hope for lots of rest and county air, fires in evening etc .even if weather is ghastly! Doubt there’ll be internet but will keep in touch by text
Much love to all, together we’ll get there! xxx
sounds like my chemo unit write one time on the pc and tell you another, glad your feeling ok, pjs sounds a good idea to me too and i've done nothing all day, get some rest xxxxx angie
Hi all Maisies
Hope evryone all ok
Extra special wishes to Roller, Lols and Sam who are keeping me company at the bar tomorrow. Wendy Ive got 12 weeks left of it as Im having weekly from tomorrow boo hoo so a chemo xmas and new year for me.
Christy hope you managed some well needed sleep!
Ang yes the wigs itch I just wear a hat all the time. Plus point of having chemo in winter you dont stand out with a hat on!
had a good weekend. Rafael got star of the week at school so was given Bertie bloody Bear to take home for weekend so of course have had to take photos of said bear in various locations. Been to Sealife today with it and saw Jason from Corrie. PWOARRR!!!
Hoping everyone who has dunking next week cope well and are nearing the end of it now. If you dont have chemo take advantage of a hopefully decent week!
thanks rollercoaster and lois. i know its the right thing to do to keep going ...and in 10 weeks it will be done....and i'll do it. It's the control freak in me.. hate not being able to control how i feel etc . Too much wo is me at the moment. Lol
FEC3 Day 10.. feeling good. Lips seem to have recovered so making OH take me for curry later. Had row with OH this week cos I said I was thinking of jacking in chemo - can't stand SE's and dreading the extra ones with Tax. Probably just me having a petulant moment but sometimes it is tempting. Having been off work since July my employer is instaling some IT equipment at my home so I can do a couple of hours a day when I am feeling ok... freakily I can't wait to start.
Hope you all have as good weekends as is possible. Keep smiling
thanks chezzap no youre not speaking out of turn, he wont go to councelling but just told me he doesnt want me to leave cos he loves me and hopes i love him, he came to one of my counselling sessions but waited outside he wasnt pleased wen marie went and called him in, he said she was causing problems and asking too many indepth personal questions, so i dont think he'd agree to any more.
to cap it all my hair thats hug on for weeks has decided to make my day even better by appearing to have disappeared in the last hour, i don't joke one minute there the next gone, i hate it i really do, i dont know how youve all coped, got wigs and bandanas at the ready but hate them all, im large and think i look awful. to top that off my OHs mother in law in coming tomorrow with his sil think i'll hide. how did you all cope going out for the first time with a head covering on?? please help !!
hope everyone is ok and im not making anyone feel worse than they are without my probs, im a good listener and would rather help someone else than be like this xxxx
Ang I may be speaking out of turn here and obviously I dont know you or OH but all I will say is if there is anything this thing has taught us is that life really is too short. I know its a cliche but its frighteningly true. You have to be happy whether thats with OH or not only you can decide ultimately. Please dont waste time in a relationship that doesnt work for either of you. Hopefully maybe a bit of realtionship counselling where you both go together might help as he might be able to say things that are on his mind. Whatever decision you both come to hope its the right one for you both and you know whatever happens we will all be here for you.
Venice sorry to hear you have had such a rotten time. Think Breezy was in with that too it sounds awful.
Just been to Tesco and bought 5 winter hats. Love them. One is black and its got a little sparkly owl broach on it its so sweet! I must have now approx 10 winter hats all from tesco!
Good luck to anyone up this week. Roller and Ju have a great weekend before bloody Monday beckons!
tax 8 day 2
rang gp they were calling me in for a flu jab great seeing as last year they refused even though i have asthma and a heart prob, told her bout chemo she sed well? so i explained i cdnt come and sit with bout 50 people waiting to have jab and would need to see oncolgist first she said ok thank you bye
still no sleep went up but couldnt settle so down gain, mushrooms on toast more to drink watching old war film, got to wake him up soon, feel like a drink today but not sure wether its allowed? anyone know dont drink usually but feel like being nawty!!
hope everyoe up today is ok and others with se's not too bad, its a horrible road we travel but a necessary one, i'm using to being the carer in my job and this is driving me mad the sooner i'm able to go bk to work the better, though it'll be all new people with new needs, i'll miss my old round and i know lots of them miss me xxx
well hope yoou all have a good weekend get lots of rest and hugs xx
Angie, so sorry things are at that point between you and your OH. I wondered why you hadnt put it on the page. Angie you can always send me a personal message on here if you want to talk, moan or sound off. I am a good listener. Please dont feel alone through all this. Big hugs to you hunni xxx
tax 8 day 2
been up most of the night not sure of thats steroids or worrying bout drs today, can seem to get my head round the fact im not a bat!!!
tidied bedroom up at 5, sorted out lots of old jewellrt for my friends daughter sio she'll be happy, also found something i've been looking for so a plus there too.
oH and i had row on phone last night, i really cant do this anymore, maybe a bit pf good news occasionally would help instead of waiting round for test and scan results.
heads to fizzy to mention you lovely ladies by name sorry but you know i'm thing of you all.
Fran will text you later huni get drs out of way first, also got to ring re long term sick money as my sick pay will run out soon too, xx
Good evening Maisie (actuallyit's nearly midnight, can't sleep of course) hope at least some of you are feeling ok and the rest are bearing up. It definitely seems to be getting worse this time, I had treatment on Tues and have been feeling terrible, although the nausea is just about coming under control. I’ve been really shaky as well, hate feeling this bad but will get through it, we all will girls.
Lols, if you wear a wig cap you can use hairpins to hold it at the sides. I only wear mine when I have to, so uncomfortable. Also, sorry if I’m stating the obvious, but it can tightened by the Velcro thing at the back, but you probably know that! Sorry about eyes etc, it’s all a pain. I’m away last week in Oct, will make sure I take half the medicine cabinet with me
Glad about the good news Chezza, and hope the high spirits last!!
Fab news about the baby and good luck with tax next week Susie
Thinking of you Annie with tax and all ses
Pendragon, get in touch whenever you need
Venice and Christy hope you feel better soon
Good luck Monday ladies and big hugs to all xxx
been in hospital 3 days with neut sepsis was so ill home now .has anyone else sufferred this thanks for the thoughts rollercoaster. Will catch up with everyone tomorrow going to bed hope everyone is faring ok love Gill x
had bad day at chemo im no 8 day 1, bloods were ok but blood sugar was low 2.1 had to eat chocccie biscuits, and temp was high and blood sats were low, god thought id have to miss chemio, ayway went ahead with lots of delays, got home and got an answerrphone mess from my docs please ring tomorrow noreason why no who rung now im worried somethings wrong.
sorry to go on but its big decision time for me and my OH this week whether to stay together or split up, tis is follwoing my counselling, so as you can imagine my head is wll over the place, had a meltdown in choemo too so wondering if they vve contacted me gp as they said im very depressed. sorry girls ill go now feeel better for writing it down cant put it on the maisiies page on fb as other half read themxxxxxx
How is everyone today?
Hoping everyone enjoying the day and doing something nice.
Just been for a Macmillan morning at church and had a great time. Made some new friends and am high on caffeine now! feel in really good spirits today I think its the caffeine but hey Im not complaining gonna take advantage whilst I can.
Got flu jab this pm boo hoo that will bring me down to earth with a bump no doubt.
Ju how good was Emmerdale and Corrie last night!!!!! I was in tv heaven. Roy and Hayley were so sweet paddling in the sea in Blackpool. hey if the cancer doesnt finish her off the water there will!!!!! Sorry ladies gotta have a sense of humour through all this.
Wishing everyone a good day xxxxx
can you pass on best wishes to Annie from me
Just got back and the surgeon examined me etc and said everything was ok so gotta go back in three months
thank God some good news for a change