Hello Maisies, back from fab holiday in lovely countryside. Feel really revived - all set for FEC5 on Tues! I've read through all your posts since 22nd Oct - can't reply to all individually but it's really good to catch up with everyone, been thinking of you all and hoping you're struggling through.
Rollercoaster, really glad your parents are settled now, it's all very sad but at least you have some peace of mind now.
Susie, sorry you're having a rough time and Nicola too and Lols.
Much love to all xxx
Roller - Susie been on fb page she was admited to hospital but is at home again now.
Annie hope you are ok and the talk with onc is productive.
My heating and hot water has packed up have now been waiting for British Gas since half six. cant see them turning up now at this time!!!
ec 4 day 6
can you tell me is anyone else really really struggling with feeling sick all the time have tried 2 different sorts of anti sickness, changed it after the last chemo, but just nothing seems to be working even the ones they send you home with for the first few days havent worked this time, seems endless just fed up of feeling dreadful all day has anyone any suggestions please help
Hi Teffy echo what all the girls say join us anytine for a chat etc and to see there is an end to all of this.
Lols poity it wasnt jobsworth would have paid good money for a ringside seat! Hope tyhe chat with neighbours daughter went well and she has helped you get some perspective on how the future can be.
Where is everyone?? Christy know you ok cos we been in contact but where is everyone else???
What about Annie? Do you have any news on her Ju???
Lucy disappeared a while ago
Fran is coming home today I think
What about all the others????
HI sorry been missing couple of days. Note to self dont take Small child to cinema whilst on chemo I was sick as a dog next day!! Thankd goodness was only 24 hr thinga nd still made chemo yesterday.
So thats 2 down 10 to go!!! Arrgghhh so much longer to go cant wait til Jan is here
Seems very quiet on here
where are you all hiding?????
Hi everyone feel a bit out of touch been so long since posted even though i have still been reading your posts, just had number 4 on ec day 2, was so sickly last time thought it was never going to end, changed anti sickness this time so hope it works and indegestion and heart burn was terrible last time too , i am using the cold cap and so far the hair is doing well just having to wear hats when out somtimes because i cant style the hair anymore but it seems to be working for me, if anyone else says to me well your over half way i think i may scream, people dont seem to realise that the build up in your system meens that your going to feel worse the further we go through, but i suppose unless youv been there how r you expected to know, and we wouldnt wish this on anyone, hope everyone isnt suffering too badly and keep your chins up hugs to you all and hang in there
hi just a short note Genevre is fine is enjoying a much needed break at as she says a lush cottage and is feeling really relaxed, she sends her love to all xx
Hi Roller, did you send a request to the Maisies facebook page? We have had a Wendy join us and wondered if it was you xx
tax 9 day 3
morning all, glad you are sorted with your parents huni, such a worrying time, working with old people i know that it takes alot of careful consideration of everyones needs to make the descision to look for homes, and then finding one you are happy with.
woke up today with runny eyes, looked in mirror seems eyelashes have decided to leave me overnight, eyes are sore and im trying not to rub them, any ideas please, see my onco on tuesday ill ask him then just looking for a quick relief.
slept better last night but still shattered wish my body was my own again, i too have felt like giviing up on the chemo but like most others my good head has persuaded me to keep going, another thing to discuss on tuesday, need to make another list.
sold my wedding dress this week has made me feel bit better once i got over the upset, OH has said once im back at work he'll divorce his wife suppose thats all i can ask for.
anyway best try and get my body moving, love to all, hope se's are manageable xxx
Aw Ju you made me chuckle imagining you with your big dressing gown and sleep cap on I think you encapsulated how we all look and feel! Its a very sexy look isnt it! I swear I dont know how Jose has managed to keep his hands off me these last few months!!! ha ha
Roller glad to hear you are emerging from the fog of cycle 4. Good that your parents are sorted now too well in a fashion. At least you know they are safe and if they fall etc there is someone at hand.
Im ok not had any SE so far with weekly just a sore throat every morning when firdt wake up but as day goes on it gets better. Taking Rafa to pictures today and he is on half term next week so gotta think of lots of indoors things to do as it is permanently persisting down in the rainy city!!!
Love to all xxxx
If you have a FB account the link is
its a closed group so just send a request to join
Hi just popped on here to see whats going on am on the FB page. I am same diagonsis as you there are a few of us who are Triple Negative. Had just had my fourth chemo (3 FEC - 3 Tax) then having rads after. You should join us on FB x
sorry youre feeling so bad roller, you have such alot to cope with as well as the horrible illness, wish i could help in any way, all i can do is send hugs huni and all the best wishes in the world for your parents moves, cpns are ok til the crunch then they seem to become invisible
hope you start to feel better rest up when you can
taxol 9 day 1
just back from the chemo unit, not as many probs thos week just told to expect a longer wait as hospital was shut this morning due to a fire alarm in fact im done and dusted an hour earlier than normal.
im on no 9 so if nothing goes astray ill be done in 3 weeks time, see oncologist for heart echo results on tuesday next week then ill know more about the herceptin.
hope everyones ok xxx going for a rest feel very drained today xxxx
Really feeling for all you ladies taking the steroids and lack of sleep. The 8 a day seems a bit excessive doesnt it.
Roller I took emend and cyclazine instead of steroids so that I would nt be sick with the EC regime and you dont get nauesa ( fingers crossed) with paclitaxol so am hoping am gonna be ok.
I dont know if some of you may know that we have had our first graduate of chemo college. Katherine aka Bakes when stressed finished her chemo the other day so come on maisies we are getting there!!!!!
I dont know who will be next across finish line Im a bit muddled now with everyones treatment and number of cycles done
Ang you will be done in about 4 weeks wont you??