well done Lols and Roller.
Fran hope you keeping well and now start looking forward now chemo over.
I am due to finish 6th Jan but neuts were 1.5 today so just scraped through.
Had sub cut herceptin today didnt hurt nowhere near as much as I thought it might.
Annie hoping the rads fly by for you.
Meg thanks Ive asked Ju how you are but not received any pm.
Susie hope you have emerged from a pile of xmas cards I get bored after ten mins of writing them
My big news for today is Sergio said his first words with meaning... as I was leaving the house he said bye bye!!!!
So good to hear about more of us reaching the winning line! I think we're all feeling very emotional, both for ourselves and everyone else. We've all been through this together as some of you have said, I couldn't have done it alone. Just think, before coming on the forum I hadn't done any social networking in my life!
We'll all stick together on the rads journey and some of us are still poughing on with the weeklies.Let's hope we're all through this horrible stage in the new year. Lots of love to all and thanks for being there!
Congratulations, Roller! Wonderful that so many are now reaching the end of the chemo road.
Had my first rads session today, all went well although I did get a bit panicky at having to stay still with that machine looming over me! BUT I was given a gown, and they let me keep my wig on, which was a big improvement on the planning session, and only one male radiographer this time.
Even though I've been religiously applying E45 to the area twice a day for weeks, my skin does feel 'sunburnt', so goodness knows what it'll be like at the end of the 15 days. Will take Nette's advice from the July thread and keep a jar of cream in the fridge!
Good luck to all up for dunking or recovering from SEs this week. Annie xx
I agree that it's probably the lymph involvement that makes it standard practice to zap the clavicle area with radiotherapy. I didn't have vascular invasion, thankfully, but did have 12 underarm nodes affected. The problem with the neck zapping is that it can cause damage to the top of the lung, causing coughing and/or shortness of breath....(oh joy!).
FEC 6, Day 4
Hello Maisies, feeling horrible, as expected but wanted to see how you’re all doing
Roller, Lols very good luck for number 6 Monday! Confusing about rads on lymph glands, think it’s like my lympho-vascular invasion – they do remove the cancerous cells, but can’t be absolutely sure they’re not some of the little nasties lurking, so they zap them with chemo and radio.
Annie, no nothing’s simple, but the end is in sight. The hair watching is very frustrating!
Poor Pendragon, so sorry you feel miserable, the body image thing hits us badly when we’re feeling ill and wiped out. Once it’s all over you’ll feel stronger in every way, that’s what I keep telling myself...
Yes thanks Chezz, all done. Hope you’re still coping with weeklies, when will you be through?
Well done Deb, all done too! Glad you had a fab, well-deserved time in gorgeous Cyprus
Lots of love to all Maisie xxx
Afternoon ladies, well had a fab and healthy time in Cyprus just what the doctor ordered. Last chemo today now all done yipee! Must admit feeling quite overwhelmed and abit teary, at times I thought this day would never arrive.
Chezza don't worry about the sub cut herceptin I had my first sub cut today and it was fine and quicker than iv. Still had to be monitered for 2 hours after though.
Ju I am having my rads planning appointment next fri so I will let you know what they say to me as I had lymph nodes involved too. Try not to worry hun I'm sure its normal to do clavicle area when lymphs are involved. Just think mon and the chemo will be done hun, keep your chin up.
I hope the rest of us are holding up okay, sending love and hugs to you all x x x
hey maisies hope we all bearing up well
Nicola so sorry to hear about your mother in law and deepest condolences to your hubby. Hope you soon emerge form fog of final chemo and start to get stronger each day
Lols so you done your rads planning etc nice one when is your last chemo??
Susie hope you had nice lunch out and you are keeping well.
Fran did you do your final one actually will text you and see
Christy how are you keeping and when do oyu finish?
Annie hope you getting brighter and stronger each day
Im good this week and been told on Monday when I have herceptin will be the sub cut version am slightly scared now
thanks ladies, just me i think with the scanner, wish id have known bout the photo id have rearranged my bit of hair or tried too lol. thinking of others going through the same will help, though going on hospital transport will be a pain making my short appt even longer.
thanks again means alot xx
had my rads planning this morning, hate ct scanners, when i signed up for the trial no one told me that the machine can only be set up in certain ways and so not alot of vaiance for a big lady like me. Felt quite embarrased trying to get on and off the couch, never had this problem at my local hospital and that was during my dizzy spells and laying flat. evidently no enough flex in my elbows so one hand stuck in my trousers the other on my head, trying to hold onto my little bit of hair i had left. why then when im off yhe bed did i manage to flex my hands behind my neck. must be the elbow stirrups they had me use. god i felt really huge and was nearly in tears when i came out, ladys how am i going to cope everyday with this, sorry for moaning i should be grateful im nearly at the end. really hate enclosed spaces. also they took my photo for security reasons??
Didn't you have the chinstrap Ju? They said it was so your head doesn't move, but I reckon they took one look at my double chin...
They're doing my collarbone nodes as well, and the doc casually mentioned the fact that it could cause nerve damage, which worries me a bit. Nothing about this whole cancer treatment business is ever simple, is it?
Tiny eyelashes starting to appear, but my eyebrows seem to be getting even sparser - only got about four on each outer end! No sign of head hair sprouting...
Good luck to everyone ending chemo/starting rads soon - in a way the four months since the beginning of August seem to have flown by, but in another way it seems an age away now. Annie xx
FEC 6 (!!!), day 1
Hello Maisies, as usual can’t sleep, hence post at this ridiculous hour! Neutros and wbc just high enough, and I am free! Bless you all for the support, I know we’ll continue to support each other. I’m glad that a few of you have finished now and many others are nearly there too. Thinking of you if you’re still carrying on after Christmas, we’ll be with you.
Had radio planning meeting, into CT machine like giant tumble dryer to be positioned for the off, agreed to be in trial and within hours had a phone call from radiographer to say I was in test group 2, i.e one week, 26 fractions of radiation, as opposed to usual 3 weeks of 40 fractions. Bit scared now but I think it’s the right decision for me, after all where would I be now without clinical trials?...I’m to start beginning of Jan.
Nicola good to hear from you but I’m sorry you’ve been really ill, and that you’ve had to cope with your m-in-l’s sad death, must have been a real double whammy. Chemo gets so bad as time goes on, but the end is in sight.
Susie, enjoy your good week and enjoy the treats. I loved the LGFB session and the freebies, you certainly need some pampering.
Pendragon, sorry about the travelling to rads but at least you’ll get the same amount of extra follow up because you’re in the trial (I’d hoped that I’d be in control group, but was not to be). Good luck with it – when do you start?
Love to all xxx
Hi everyone once again i havent been on the forum for ages, been dreadful with last two 4 and 5 so sick but finally i think i have sickness tabs that work and thank god only 1 more left, cant wait for it all to be over and radio im sure will be a breeze after this crap, also had to deal with the sad passing of my lovely mother in law on the 15th same day as my last chemo dreadful day, she was diagnosed in may with breast cancer but stage 4 and already spread to her lungs and brain, they gave her 8 weeks but she was so strong and was with us for 16 weeks but was awful towards the end, it was her funeral yesterday and we managed to raise £280 for breast cancer research in her memory, has anyone been to a lookgood feelgood workshop, i went last week and if you havent been and are able too please go as it was lovely and we were given £300 worth of makeup to bring home felt so much better yesterday been able to make myself look a bit better for the funeral, and it gave me a boost whilst there been able to talk to other ladies going through this awful stuff.
genevre, i go for my rads planning on thursday i am on the trial but in the control group, not looking forward to the travelling every day by hospital transport especially at 7 in the morning but hey ho no where nearer, well i know there is but evidently not in our same HA. I could even drive mysekf there and back.
still suffering from some ses, swollen foot and today for the first time spotty face, lovely eh.
good luck to thos still going through chemo and also to them moving onto rads xx
FEC 5, Day 21
Hello Maisies, I’ve been thinking of you all. Had a lovely long w/e in Beaconsfield with an old uni friend (sadly her husband died of kidney cancer 5 years ago – she’s been a huge support to me, acting as my researcher etc.) I hope to be dunked – for the last time!!! – tomorrow if bloods are ok. Last 2 times have been very borderline, and I’ve gone down with a cold (probably because I’ve been on trains) so really hope it goes ahead.
Susie, I’ve been mixing up words (or not being able to find them!), dropping and forgetting things etc, onc says it’s all chemo-brain, just hope it doesn’t last too long. Hope the ses are beginning to diminish by now
Annie, hope you continue to recover. When does radiotherapy start? I should have my planning meeting tomorrow pm, if chemo goes ahead, and I’ve been asked to go on the Fast Forward trial (5 days radio instead of 15, if you’re in that randomly chosen group) – haven’t decided yet, sounds a bit risky but you get lots more attention afterwards. Has anyone else been asked to take part?
Lols, I’ve found Optrex Actimist really brilliant for eyes. I’m really sorry about your friend. Hate my wig too, not the look so much but the feel, and I never feel really secure when wearing it.
Chezz, sorry you’ve been wretched but glad it’s all going ahead. How many more now? Know exactly what you mean about wanting to be you, not you defined by BC
Roller, sorry the saga with your dad continues. It sounds as if it will be a safeguarding issue (been talking to YD) if he returns home, make sure the SW is back on board with it.
Christy, it’s absolutely understandable to be knocked for six by your emotions, you never know how you’re going to feel from one day to the next. Well done to your daughter for the fundraising!
Lots of love to you all xxx
Ju, my first appointment with the radiotherapy dr was just so she could tell me what it was all about, I didn't have to sign the consent form until the planning session. I know what you mean about being fed up with medical staff - my GP is wonderful but the staff at the hospital where I had my chemo were less than h elpful (if and when you can get hold of anyone) and there were so many mistakes and delays.
Chezz, so glad you're feeling strong enough to carry on with your weekly sessions. At least you know you can have a week off if you don't feel up to it in the next few weeks - good luck! xx
Just wondering where Meg is and how she is. If you out there let us know you are ok?
wishing everyone the best on this freezing cold day.
My chemo was ok yesterdya and bloods were slightly higher so am not gonna have a break next week will crack on for as long as I can sooner its done sooner its over with!
Oh girls, I identify with so many of your SEs and emotional problems! I had the runaway mouth as well, plus forgetting what I meant to say and groping for words...I think my daughter was worried I was going senile!
Dropping things and generally being clumsy as well, plus I've only just got rid of the evening swollen ankles and diarrhoea six weeks after my last dose of chemo. I don't think I'd be able to go through it again either, ever.
Ju, at least you've still got your gorgeous eyelashes (I hope!)! I think my eyebrows are bothering me more at the moment - I've still got a few at the outer edges and anything drawn in looks rubbish...
It's been harder than we thought for a lot of us, and thank goodness most of you are reaching the end of chemo despite all the family problems and setbacks along the way. I've got a week off before the start of rads and should be starting my Femara but can't quite face it yet.
Best wishes and good luck to all Maisies, especially those having a rough time at the moment. xx
Sorry not been on for few days have not felt up to posting to be honest and just wanted to be me not me with bc if that makes sense.
Im in touch regularly with Christy so she knows we are all here thinking of her.
My brother shaved his head for BC but grew a beard for Movember and has raised over £30o for BCC so am really pleased with that. One of his friends at work donated £100 alone!
Where is Lols? Ive been in touch via text but she hasnt posted for a bit.
Wendy sorry to hear about your dad and another fall. Its extremely frustrating isnt it. Its my dads 82nd next Sat so hopefully my brother will come up and he can wheel him out of the home to the pub on the corner for some lunch.
Susie hope you ok and SE being kind
Ive heard from Lucy58 as well she sends her best wishes she is due to finish next week bloods permitting.
Hope everyone else doing ok. Good luck to anyone joining me being dunked tomorrow xxx
FEC5 5, day 17
Hello Girls, I hope you’re all as well as can be expected. My last dunking is next Wed followed by radiotherapy planning meeting, so should know roughly when it will all be over and when I can get back to work – mind you the thought terrifies me as I’ve lost loads of confidence. Must be back by mid-March as my salary drops to precisely nothing then!
I’m going to stay with a friend in Beaconsfield for the weekend, so looking forward to it. I’m near the end of my cycle so feeling about as good as it gets!
Hope you start to feel better soon Susie, it certainly gets worse each time doesn’t it?
Annie, glad you’ve moved onto the (undignified) radio – one step closer to the end. Good luck with it – a June jewels friend says it’s a walk in the park after chemo, here’s hoping...
Rollercoaster, glad you’ve turned the corner with ses. Nearly there now. Hope you’re coping with Dad and getting nearer a long- term decision, it’s really tough I know.
Nearly half-way for you Chezz, hang on in there.
Lovely about your workmates’ present Lols. Hope you’re coping atm. I envy you your lashes, no use for the Lancombe mascara I got for free at the pamper session, although the eyebrow pencil is a godsend!
Good night Maisies, let’s hope we all get some sleep!
Love Fran xxx
Oh dear, I wasn't really complaining ! They did explain that it was because they had to make a chinstrap to keep my head in one position during treatment - as I'm having a bit at the side of my neck lasered they don't want to risk any getting into my mouth area.
It was just a bit disconcerting at the time, because the person I'd seen beforehand (who I had presumed was a doctor, but who knows?) had said it was fine to wear a cap.
Yet another case of left hand not knowing what the right hand's doing...
Had my rads planning appointment today, tats done all ready for 2nd December - hopefully will be finished before Christmas!
No room for dignity though - they wouldn't even let me wear my lovely(?) sleep cap, had to reveal my semi-baldness to a crew of 18 year olds! Plus, they only gave me a sort of tissue to cover my 'good' boob and they had to keep looking at it anyway to check whether one side of my chest matched the other!
Still, once we got started it was all very efficient and quick. Can't wait for it all to be over!
Good luck and best wishes for all those stuck with SEs and/or yet more chemo treatments. It's been a long, hard slog but the time seems to have flown by.
dee just posted on fb grandsons hangig on in there atm, no signs of making an appearance, good luck to him and his mummy. xx
HI maisies lovely to see so many posts just like the good old days!
Ju hope you have a lovely catch up with OH back from Ireland and get your counselling sorted
Text Christy too the other day as Fran says she is ok ish hope she gets back on soon.
Has anyone heard from Dee as her grandson was due???
Im just home from dunking 5/12 just scraped throough with 1.6 neuts. Gonna ask after nect week as have reached halfway to have a week off to give neuts chance to come back up am waitinhg from call back from onc to confirm I can do that
Hope everyone is fair to middling!
Hello everyone - Well all my hair is gone, head, eyebrows and eyelashes. No hair on legs or underarms so no shaving hooray! The only thing thats strange is that I've still got hair forearms! How weird is that - must be decended from an ape I think!! Some of the FB maisies said they had a bit of regrowth when they started on tax but mine has gone even more.