thanks for the kind wishes ladies. Think wherever you are in the country you will hear my whoop tomorrow when I moonwalk out of that chemo ward at Christies owww hhhe heeee Michael jackson styley!!
I felt exactly the same, Nicola. I was prescribed Letrozole back in November, but decided to let my body recover a bit from the chemo before starting it. Then as I'd only just started feeling anything like normal when I began rads, I put it off and have have only taken it for three days (no SEs so far, but who knows?).
Besides, my argument is that how would you be able to tell which symptoms/SEs were caused by which treatment if you were taking the hormone tablets during rads or chemo?
Sorry to hear that you're still having problems with your mouth, it's unbearable but hang in there. I would do what's best for you as it's enough to cope with at the best of times, if it helps I would probably have done the same. Whatever you decide I wish you well with it.
I'll tell you something Lols, it's not much fun when your heads like a furnace and you're under the rads machine and can't move! I was quite relaxed until that happened yesterday and threw me into sheer panic. There's no way I could relax in a yoga or relaxation class with that going on! I've too been experiencing these through chemo, but I'm finding them very fierce since the Tamoxifen. My hair has stopped growing at the moment and I've lost my eyebrows and most of my lashes. Leg hair and lady garden starting to sprout, so I'll have to start gardening duty soon
I started my Tamoxifen Christmas day, which was 3 weeks after my last dose of chemo! Oncologist said to do it then, although she did say I could leave it for a couple of weeks or so. I just thought I'd get it started, the problem I'm experiencing at the moment though is terrible (and I mean) terrible hot flushes! They are driving me mad, I think my heads going to explode . Also experienced tummy pain, a bit like crampy period pain, lasted about a week after first taking it. Nothing else has appeared yet fingers crossed.
Hopefully you'll be fine.
Hi everyone hope your all improving slowly, chezzap good luck tomorrow last one at last then you can hang out the banners, Annie sorry to here your so sore after your rads shope you improve soon, Rollercoaster glad you seem to be getting your dad sorted then surely it will become a little easier and hope your energy improves soon, im the same hardly able to do anything and when i do just knackered afterwards, Lols well done you, cant believe you managed 4 miles, carry on like that and the wait should start to come off hopefully, i start rads on 9th thanks for asking 15 days, Rosie yes i was told the same as you 6 months before you will feel yourself and get energy back and 12 months before the chemo is out of your system, Genevre hope you hair begins to grow soon, i used the cold cap so have still got hair although very thin and fine and have it so short and has to lay a certain way so you cant see the patches underneath, but still have to wear a hat when out cos scalp feels cold, its 4 weeks since last chemo and hair still falling out so may be bald before iv done, sorry if iv missed anyone so hard to remember everyones posts, has anyone started taking any of the hormone tabs yet, mine is tamoxofen just wondered how your getting on with them, my breast care nurse said get sorted after the chemo and maybe start part way through the rads if wanted rather than straight away, so thats what im going to do, hope your all getting through the different side effects and we all begin to feel better with more energy soon.
Not confirmed for sure yet Annie but somewhere Midlands ish like Coventry, Birmingham or Nottingham as we are from all over the country.
no worries thanks for quick reply Rosie and hope you manage to get away somewhere.
Lols have you spoke to Meg about it think she is good for that weekend too
Can't go Chezza, money really tight! Haven't had any money coming in since October and as we had to cancel our holiday last year, anything spare we want to save for a family break in the summer.
Thanks for putting it out there,
ok Maisies update
We have been looking at trying to organise a weekend away somewhere central ish for weekend Fri 30th and Sat 31st May. We are looking at some hotels that do party nights with a disco etc on the Fri night. If anyone interested please let me know.
Feeling better now finally thank goodness
Lols you be careful with those coastal walks dont want you swept out to sea!!!!
Roller good to hear from you although you sound rushed off your feet.
Heard from Christy yep she is ok
Rosie good to hear you doing well on the rads
Annie hoping that skin is healing now
BRING ON MONDAY!!!!!
I was advised to use E45 cream during rads, although they didn't give us that, just the acqueous stuff...
I had to phone the Radiotherapy Unit today as the area is still painful after 12 days, and the nurse I spoke to was lovely and said it had probably affected me more severely because I've had an mx and no flesh on my chest, so to speak! So much more helpful than the chemo nurses, it's hard to believe it's the same hospital!
Glad you can at least taste something Lois, those tax SEs are really the pits, aren't they...? Hopefully you'll soon be feeling and looking yourself again - and all the rest who are still affected. At least my eyebrows and eyelashes have grown back OK, just a pity the head hair (and also the down-below hair!!) is taking so long...
Nearly there, Maisies! Annie xx
Those side effects are a flipping nightmare eh! I've still got bad taste and sore mouth, plus all the aches and pains but good for you completing those walks, what an achievement! My hair started to grow after the last docetaxcel and is about 2cms! Hubby keeps threatening to put it in curlers, silly twit! The cream they gave me is just an aqueous cream and works a treat, it's just to keep the area soft and supple. I was also told to just wash with a bar of Simple soap, as that's what is recommended, as well as Pitroc, a solid deodorant. I've used both of these and they work quite well.
Hope this helps
Sorry to hear you've been feeling unwell Hope you'll be on the mend soon. Thank goodness you've only got one treatment left, then you can give a big two fingers up at it, whoo! whoo! Radiotherapy going okay, skin quite normal so far. Feeling extremely tired and can't walk far, but still suffering from the chemo! I've been told that it can take up to six months or more to fully recover from all the treatment, so I'm going to listen to my body and be kinder to myself
Best wishes for Monday
HAPPY NEW YEAR!!!!!!
Sorry not been on Ive been feeling as rough as the proverbial badgers you know what! But Ive only one more to go now on Monday. Ive got my chemo graduation t shirt at the ready!
Hope evryone had a good xmas and new year. So nice to hear from you all. Roller hope you are ok as you havent posted for a while.
Fran hope you soon get those rads over and done with!
Nicola hope the mouth feeling much better now
Lols well done on that walk thats impressive!!!
Annie hope life is getting back to some sort of new normal for you
Meg hope you had a lovely xmas and new year
Rosie well done on getting that first rads session under your belt
love to all xxx
Thanks, Lols, we all deserve a happy new year don’t we?! I hope it’s been as happy a Christmas as possible for everyone. I don’t know if anyone else is feeling a bit low now – family gone home, treatment coming to an end, which is brilliant but also scary because it feels as if the massive support network – the medics, friends etc will all fade away and here we are left to return to work or our usual normality, and hope and pray we are cancer-free. And I expect you all feel like me, not very well, tired, painful joints (has anyone else whose started on Anastrozole had this?) itchy and watering eyes and generally fed up.
Sorry, rant over, this must be a better year for us!
Glad your rads are over Annie – my turn next week and some others too.
Hope you’re feeling better Nicola
Nearly there Chezz!
Lols, my hair doesn’t seem to be making any progress, I’m really fed up with wigs and scarves but it’s too cold without, even at home. How long will it be before we have a proper head of hair again, does anyone know?
Roller, I hope you’re coping with your Dad and not feeling too bad yourself.
Lovely to hear from Facebook Maisies!
Love to all xxx
Lois I did post after my last rads on 20th Dec but have had nothing much to report since then! Area still a horrible dark red shade and sore, but at least the side of my neck is nearly back to normal!
I know what you mean about the lack of hair. I've got a sort of fluffy covering but it's growing very, very slowly and I am so sick of The Wig! Also my thumbnails have split from the base and catch on everything...
Good luck to all Maisies still undergoing any sort of treatment, let's hope it really is a happy and healthy New Year! xx
Hope you had the best Christmas you could manage. Mine was very quiet and restful, which I enjoyed very much. I can't believe how many maisies seem to be on Facebook as it seems that I only know a few girls from the earlier days.
Anyway, I had my first radiotherapy session today. I was a bit scared of the unknown, but the staff were wonderful and put me at ease. I was given my own gown which I have to change into as soon as I get there and take it home with me afterwards. I'll give it back when the sessions are over. I laid on the bed in the same position as when I had the planning and after a bit of readjusting, it got started. It made a bit of a noise, but it went okay. Afterwards I was given some cream to put on morning and evening, they said it's best to keep the area soft and supple. My wrist aches a bit now after having it put in the support, but that's about it. No redness as yet but this tends to develop later, I was also told that I will probably feel tired as time goes on but to rest if needed. Mind you it should be a million times better than the chemo!
Anyway, belle22, I had my Herceptin injection last Friday, it went in within 3 minutes and that was it. I had to wait for 2hrs to be monitored, then I went home. When I had it with the docetaxcel as an infusion, I was monitored the same amount of time. With Herceptin there are very few side effects, they are milder than what you've had to cope with already. I just get a few niggles but that's it, although, we're all different so ask one of the nurse's to be sure and to put your mind at rest. Hope this helps.
Well, we're nearly there girls,
Happy New Year!
I noticed you have had the herceptin I have to have it to i have my first one with my 5th T and have to stay and be monitored do you get the same side effects as the chemo when you have the herceptin.
Hi Nicola good to hear from you. Yes Ive got 2 left one tomorrow and then last one on the sixth. Finally say goodbye to this annus horribilus. Hope everyone doing ok. Been feeling rough last few days due to the build up in my system but have come so far I am determined to get last 2 under the belt
Hi everyone a belated merry christmas to everyone and lets hope we all have a better and healthy new year, im sure the rest of our treatment in most cases will be a doddle compared to what we have been through, my mouth ulcers have finally started to improve the only good side to them was that i have lost over a stone in weight due to not been able to eat, chezza i think you must be nearly there now if you arent already lost all track of weeks, if not good luck with your final ones, lols hope your aching limbs soon improve and 2 years does seem a long time i havent seen my oc since the beginning and still havent got an appointment, no discussion about tomoxefen seems lax to me, rollercoaster i hope you dads ok, and susie i hope your portacath removal feels better and heals soon, love to everyone and sorry if i have missed anyone but there doesnt seem to be many of us posting on here anymore i hope everones side effects soon pass and are taste recovers soon all the best for 2014,
Hello Maisies, wishing you all a very happy Christmas, with as little pain and weaakness, and as much joy as possible. 2013 hasn't been a great year, has it, but let's see it as one in which our lives were being saved, and look forward to next year with hope, and feeling a lot lot better! Much love to all, Fran xxx
Rainbow Rosie so great to hear from you and you sound so upbeat and positive now that the chemo part is behind you.
Hope everyone else has a fab xmas. Anniw well done you on finishing rads!
Roller hope you get a peaceful xmas
Susie and anne chat to you on FB!
Lols hope you doing well my lovely
Christy is ok she finished last Monday she text me today.
Hi Everyone - just popped in from the Facebook group to wish you all a Merry Christmas and a very Happy (hopefully) New Year.
I finished my chemo on 4th December and am waiting for a date for my MX - probably be mid-January - then rads. The side effects of the Tax are still pretty bad - they just go on and on don't they? I've almost got my taste back so hopefully dinner tomorrow will taste ok. My legs are very weak and achy as well - especially when going up stairs. I've got a little bit of white fluff growing on my head - you almost need a magnifying glass to see it, but its definitely there! I hope the painful fingers get better soon - my fingernails are such a pretty colour - red stripes!
Anyway - wishing you all the best - Anne xx
Just checking in to say that I hope you all manage to have a good Christmas and that we all have a better New Year!
I finished my Chemo on 5th December and it was a roller coaster of a ride. The last three treatments were the worst- Docetaxcel and Herceptin. Docetaxcel was the nasty one and like most of you, I suffered and still suffering from the side effects. After the first one, I ended up in hospital for a week, which resulted with the Oncologist reducing the Docetaxcel by 20%! The upshot was that I didn't end up in hospital again and it reduced the awful leg pain.
I'm still very weak and tired, but my taste buds are shot to pieces and I find it difficult to deal with, it's not as bad as it was but I'd really like to be able to taste my Christmas dinner! The good news is that my hair has started to grow back and although it's only a couple of centimetres, I feel like I'm achieving something at last.
I start radiotherapy on the 30th December for 15 sessions, then just continue with Herceptin injections every 3 weeks for the following 9 months. Hopefully I will have my reconstruction around July, then god willing the main part of this journey will be complete.
I remain positive for most of the time but the one thing that still bothers me at times is the loss of my boob. Don't get me wrong, I know I had to lose it, but having the other one just hanging there makes me feel ugly. I have my prothesis, however it's large and heavy, which is a constant reminder of what I've been through and I hate it with a passion! Mind you I'm very fortunate in the fact that I've got a fantastic husband that tells me I'm beautiful inside and out. Without him I would have been lost, my wonderful daughter has also been amazing and it's great that she's home from university to spend Christmas with us.
Well Maisies, I've gone on longer than I planned so please forgive me, let's hope we all get through the next stage with not so much drama or pain.
So, take good care of yourselves and here's to a better, healthier and Happy New Year!
Last day of rads today - hooray! Very red and sore, especially neck area where they zapped the nodes, but so glad it's over.
I have an appointment with my Onc surgeon for July next year and radiotherapy doc for June, don't know what's happening about the chemo doc but am supposed to have a bone scan sometime in the near future.
Love to everyone, whatever stage you're at, and thanks for all the support and help along the way. I do hope we have a much better 2014!