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anyone starting chemo in August?

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Re: anyone starting chemo in August?

Ju

 

I think it's totally reasonable of you to feel better returning to work with a decent head of hair. I also feel this isn't the primary issue because yes you will want to look ok but is your body ready for the massive demands of nursing? I also can't believe someone on your rads team ie a medical professional is asking you such a pointed question!

 

Even working in that environment they couldn't begin to know how you feel unless they've experienced it but wouldn't he/she have a better idea than most? Doesn't sound as if they observe anything!

 

Take your time love over all these decisions - to me you don't sound ready to return and you shouldn't be feeling forced into that decision. You need to heal physically and emotionally.

 

Hope it comes right.

Beatrice x

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Re: anyone starting chemo in August?

Evening Maisie's, hope everyone's ok.
I'm feeling really peed off ( is that word allowed?). Noticed today eyelashes disappearing!! Thought things got better after chemo!! Eating very healthy food wise, odd wine though!! X
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Re: anyone starting chemo in August?

The male radiotherapist I had most times was wonderful - if anything he was more caring and considerate than the women, but they were great too.  So different from the chemo nurses, who were anything but!

 

I know what you mean about going back to work without hair, Ju.  Mine is a secretarial and mainly sedentary job, but I still have to see people I used to know and work with before I left to have surgery/treatment, so it's still going to be weird.  Thank goodness I am only part-time, don't think I could cope with wearing a wig all day.

 

I think it's going to take another year before we're really back to the new 'normal' for us, whatever that is.  Yet one more thing they don't tell you...xx

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Re: anyone starting chemo in August?

Yes your right shouldn't rush yourselves back to work we have our own business and I haven't worked since surgery as its quite physical work, just the 2 of us, so my other half has had to do my share of the work and obviously I haven't had any pay since been off, but a doctor at the hospital told us I wouldn't be fit to work for at least 6 months this was at the end of December so don't put pressure on yourselves you have to do it in your own time when your ready not when others expect y too, they haven't been through this and don't understand how it makes you feel and the lasting side effects.
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Re: anyone starting chemo in August?

Hi Rollercoaster,

You're so right, we've been through enough and should be able to recover at our own pace. I know what you mean about radiographers, I had a male one in with me the other day and it made me squirm! Although there was a female as well, I decided I didn't like him when he felt the need to undo my gown entirely! The norm is that they just undo the poppers enough to expose area to be zapped, but no he wanted the full monty. I felt quite exposed and although I'm usually not bothered by these things, this did disturb me a little. 

As for hair growth, I've got a couple of cms and is quite thick, although it was before the chemo. Mind you I started eating a bit more fruit and veg but I have had terrible cramps and trumping like a good un Smiley Very Happy most embarrassing! Hey ho!

Enjoy the rest of your weekend

Rosie x

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Re: anyone starting chemo in August?

Hi Lols and Rainbowrosie, Just thought I would chime in with my two pennorth for what its worth. It really rankles when people assume that because a treatment is finished its all over and you can just go back to normal, we all wish it was that easy but it's not, the mental and physical ses can go on for some time. I even read on one website that chemobrain can go on for ten years! I hope not but you understand what I'm saying, we should not be expected to rush back to everything we did before, it takes time and we have to listen to our bodies as you have said. If your gp isn't sympathetic find one that is, it's the least we deserve. The other day at the rads room, one of the nurses said they had a make radiographer and did I mind. I said actually yes I do, let's face it they do get very up close and personal. There was no problem they changed him for a female but we have to feel free to say what we're happy with and not happy with. Sermon over, sorry. As re the hair I'm not doing anything specifically to help it but I do have a diet heavy on vegetables and fruit, don't know if that makes any difference. I looked at a few you tube clips to get used to the idea of losing my hair and now I look to see how others got on with their hair growth, I found it quite helpful as some are better than others as you'd expect. I would like to fast forward to this time next year really to see what it's like by then but patience is a virtue I'm told. Thinking of all you maisies, hope all are recovering slowly now, love and hugs to all xxxx
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Re: anyone starting chemo in August?

Thanks Rosie I think your right with the listen to inner self. Will speak to gp this week as sick note runs out on 21 st.
Big hugs to you too xx
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Re: anyone starting chemo in August?

Evening Lols, 

I'm in your court in terms of when I feel ready to go back to work. My GP has been a wonderful support and being a woman understands how I feel. She has known my little family for years and I think it helps. Anyway, she has just signed me off for 3 months and said if I need anything to leave her a message and she will get back to me. She has also told me to make sure I've recovered properly until I return to work, especially with reconstruction in a few months time. 

I am rather fortunate to have such a good GP and the other medical services I've been involved with, Basildon hospital for my diagnosis and surgery and Southend hospital for my treatment, both in Essex. All I want to say is, you should be supported and nurtured, especially in your area of expertise. I can't believe you were subjected to such disdain and I hope that person never has to deal with what you've dealt with. My lovely only you will know when the time is right, so listen to your inner self. Tell your GP how you feel and if you need to see someone else then do it, your wellbeing is all that matters, the journey isn't over just because all the treatment has finished. 

Be kind to yourself and don't feel like you have to rush. 

Sending big hugs

Rosie HeartSmiley HappyHeart

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Re: anyone starting chemo in August?

Evening Maisie's,
I've never had a bone scan!! Had body ct prior to chemo and echo but that's all, so good luck all maises having them, glad I'm not I'd stress to much.
Right latest worry, was chatting to skin checking rads person yesterday and she was talking about me being a staff nurse and would I be going back to work soon? I said not without hair and just got a look!!! Now I'm worried that gp will say a couple of weeks after rads I could go back I know it will be phased return but in my job it's to hot for hat or wig it's a completely physical work environment and I couldn't do the job in a wig. No idea what to do if I worked behind a desk I think I'd manage a wig or hat but I haven't much sign of growth at all and panicking a bit. Will people find it reasonable that I want some hair before I brave the ward again? I know il have support of colleagues when I'm back but that's not my worry at the mo. does it ever end!!
Hi Beatrice I think it's crap I'm not seeing onc for 2 years but bc nurse said they would see me at some time In between, I think there's massive differences depending on where you live, but that's how it is in South Wales.
Venice I had diprobase from gp and so far so good, I use it twice a day on after rads I slap on e45 as I'm normally quite red straight after.
Roller glad your hairs growing any tips?????
Rosie well done all finished know what you mean though bit of anticlimax when it's all done, good luck with reconstruction though.
Where's chezz? Hope she's busy having a life, let us know Hun.
I'm looking forward to the Maisie meet up just hope I can keep up with all the party animals I'm well out of practice .
Well keep plodding on girls, good luck all still having rads and herceptin, have a good evening x ju
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Re: anyone starting chemo in August?

Just to add, my Onc prescribed Adcal (vitamin D and calcium) tablets at the same time as Letrozole - some areas seem to do this while others just wait and see!

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Re: anyone starting chemo in August?

Hello

in my case i am having a bone density scan due to having a blood clot through chemo. I was then unable to take Tamoxifen as this can (very rarely) cause blood clots. I have been put on anastrozole tamoxifen does protect your bones but Anastrozole doesnt so if I am at risk of bone thinning my oncologist will give me a calcium supplement. I had a couple of complications during chemo but so far had my tenth rads without any problems, hoping that this will continue but just waiting to be hit by the proverbial truck . I have been using diprobase cream which has been good for me. Wishing everyone trouble free rads love Gill x PS i did have a funny taste but now subsiding   

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Re: anyone starting chemo in August?

In my case it's to establish the current density of my bones so they can ascertain later on whether the Letrozole has affected it, although as I have now been taking the tablets for a month, they'd better get a move on! Smiley Frustrated

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Re: anyone starting chemo in August?

Sorry last question sounded a bit foolish I suppose I meant really what are the parameters for needing a bone scan.
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Re: anyone starting chemo in August?

Sorry was supposed to say bone
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Re: anyone starting chemo in August?

Morning Maisie's I read that so many of you are having none scans, can you tell me why this is .
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Re: anyone starting chemo in August?

Hi to all maisies, 10 down 5 to go on the rads. Not bad going though, no redness or sore bits at all yet. Been delayed once for an hour but thats all, though I do have to agree its tiring going every day but much easier than chemo! Hair is coming on now, getting quite thick in places but only about 1-2 cms long and getting darker I'm glad to say, I'm not ready for white hair yet!

Susie, it was good to see you today, hope you're not too sore and things go ok with onc. Its a shame you have to miss therapy for your appointments with him but it won't be long now, you're nearly finished and then you'll be back there enjoying your therapy. Take care, see you soon xx

Nicola, sorry to hear you're still having a hard time with mouth ulcers and no taste yet either you poor thing, thats miserable. Sounds like your travelling is a nightmare too, its surprising how tiring and time consuming it is going every day for two minutes treatment but its short lived so we can soon look back. I don't see onc till the end of February but will see radiographer who specialises in bc on Monday to check skin etc. things up and down the country are so different, you would have thought there was a laid down accepted course to go through as far as appointments and checks were concerned but apparently not, ho hum.

Annie, will that be your first bone scan or a repeat one? I had one before chemo but haven't heard a whisper about what happens next apart from herceptin. I did have a repeat echogram before rads which I will have every three months, oh joy! At least it doesn't involve needles! I have one toenail that looks like its leaving but thats it, hope yours grow back ok.

Lols, I have a follow up appointment in July 2014 with the surgeon, 1 year after surgery. Wish boobs zipped on and off, they could look at them while I get on with living! Sure I'm going to make a charge to view soon! Are you doing rads or have you done them? I'm losing track with everyone - sorry, brain hiccup!

Rainbow rose, I look forward to completing rads next week. Really feeling I want my life back now but still a way to go. I sometimes wonder if I'll ever finish with the appointments, check ups etc. like you I enjoy reading but my concentration is not what it used to be and I'm likely to fall asleep while reading now as well so no, I haven't finished Grisham yet but I'm still going which is a positive! When are yaounde to finish your herceptin?

Well girls, I'm done in now so going to sit in bed and chill while watching some iplayer, have a good weekend all. Hope all rads girls aren't too sore and all goes well next week for all still on rads or any other treatment, love and hugs to all xxxx



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Re: anyone starting chemo in August?

Hi Beatrice
Think there is a huge difference in onc appointments throughout the country, as I said in my post seen mine once before the start of chemo and will not be seen mine again at all as have been discharged and am in now care of breast care nurses no follow up from onc at all, I have a different person dealing with rads at least there is a 6 week follow up at that be feel I was more in need after the chemo personally.
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Re: anyone starting chemo in August?

Hi Lols

 

That is rubbish for you having to wait nearly 2 years to see the oncologist! I saw mine end of November the day of my last chemo, I'm seeing him Monday next in the radiotherapy department and also have a chemo follow up with him in April. The variances across the country are scary indeed! Have you questioned this?

 

Hope they move it forward for you and quick.

 

Beatrice x

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Re: anyone starting chemo in August?

Hi everyone, 

Well that's it, last radiotherapy session complete! Feel a bit bereft if the truth be known, bit of an anti climax. Mind you it took us two and a half hours to get there, car accident then flooding that sent us in the opposite direction to where we wanted to go. I was an hour and a half late for my appointment, however quite a few people were running late so I only had to wait 5 minutes. Go back to see onc nurses in ten days and should see onc doctor six weeks after that. I also have an appointment with my surgeon in March to hopefully discuss my reconstruction. I've also made an appointment with an onc councillor, to try and get my head around what I've been through. 

Still got my Herceptin injections every 3 weeks, so at least I will still feel a bit cared for. Rollercoaster, I don't think there's much difference between sub cut or intravenous except, my injection is concentrated and in a 5ml bottle. Have you finished your book yet? My husband and daughter like a bit of John Grisham too. I love to read, but at the moment, I struggle with my concentration. 

Have a good weekend MaisiesSmiley HappyHeartSmiley Happy x

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Re: anyone starting chemo in August?

Hi Maisie's just reading through today's posts . I saw onc 17 th dec after last chemo and my next appt with him is 15 th dec 2015!!!!!!!! Scary stuff I've even had the appt letter for that date!!! I'm so going to remember where I put that, NOT!! I think in the mean time might be called to see bc nurse, not sure though.
Annie , that's the joys of chemo!! Hooe your ok otherwise x
All Maisie's have a good evening xx
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Re: anyone starting chemo in August?

Lost a toenail yesterday!!!    Didn't notice til I put my socks on this morning - thought it looked funny, sort of pale and very thin nail whereas my toenails are a bit tough normally.  Had a look in the bed and on the carpet, and there it was....

 

Not at all painful, I just hope it grows back properly.  My fingernails haven't actually fallen off but they're about half and half new and old nail.  Don't you just love these unexpected chemo legacies? Smiley Very Happy

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Re: anyone starting chemo in August?

Feels like you have just been abandoned doesn't it, my appointment was back in August nobody even spoke to me about tamoxifen , found out about it from leaflets, hope you get ours through soon annie
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Re: anyone starting chemo in August?

Me too, Nicola, saw my Onc at the end of October and she said she'd see me in a couple of months, and am supposed to be having a bone scan, but no appointment yet.  I've got an appointment to see the Radiotherapy doc in June, and one with the breast clinic in July, but that's it so far.  Not been discharged/signed off or anything...Smiley Frustrated

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Re: anyone starting chemo in August?

Hi Maisie's hope everyone's ok day 5 of rads so time consuming travelling back and forth and to make matters worse seem to have delays every day 4 out of 5 days had to wait 1 1/2 hours for treatment, days are going nowhere, chezzap would love to have come to reunion but unfortunatelly can't make it had already booked a trip away with hubby just had to double check the dates I'm sure you'll all have a great time. Rosie I think it was you that said about your nails sounds awful, hope all the herceptin girls are doing ok, my mouth ulcers are still there back on more tabs, thought my taste was beginning to return but mouth washes have taken care of that and back to everything tasting lousy, hope everyones rads r going ok, however bad this is with the travelling at least its not as bad a s chemo no needles and sickness, don't know if its just me but I haven't seen my onc since starting chemo, except when in hospital, went back to hospital with mouth last week and saw registrar have now been discharged and got appointment in July now with breast care nurses I assume this will be for 12 month mamogram , feel a little neglected by doctors to be honest has anyone else had this .
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Re: anyone starting chemo in August?

Hi Maisie's, thought I had better report in, don't know where the days are going,radiotherapy is taking up a lot of the day, today my appointment was 45 minutes late plus travelling time so nearly all afternoon gone! Plus beggining to feel quite tired, think the journey and weather dies not help. Rollercoaster, will not be at therapy next week as cannot Change my rads appointment as Onc want to see me as well, so will now have to wait until rads finish! Am going on the mindfulness course there, so hopefully that should be quite good, if I do not see you at rads or therapy, hope you have a lovely break away and that you chill out away from it all! My hair is very slow at growing and like you all, really fed up with wearing wig, but not enough courage to go without.
Anyway hope all other Maisie's are ok and things are starting to improve, all take care xx.
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Re: anyone starting chemo in August?

Hi Rainbowrosie, thanks for your reply too. Its good to know the herceptin is so manageable after the chemo. Unfortunately mine will be via a cannula as my hospital hasn't got to sub cuts yet. I know the time for those is shorter but not sure if there is any other benefits one way or the other, time will tell.

As re the book, I love John Grisham books so am enjoying this one too, "The. Racketeer". Talk again soon, xx
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Re: anyone starting chemo in August?

Rollercoaster, thanks so much for taking the time to reply. You've hit the nail on the head! My mind's all over the place at the moment. What hasn't helped, is that I can't have my reconstruction for 6 months, which means that I'll be deformed when I go on my holidays to Cyprus. I just can't imagine myself in a swimsuit! Mind you I spoke to the senior radiologist earlier and she gave me the number of an oncologist councillor, so I'm going to phone tomorrow and book an appointment. 

As for the Herceptin, I'm on that too. I started mine in October with the 3 Docetaxcel treatments, I'm now having it as a subcut injection and only takes 5 minutes! It's a breeze compared to the other treatments. 

Anyway thanks again Rollercoaster, enjoy the bookSmiley Happy

xxx

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Re: anyone starting chemo in August?

Rads Day 7

Hi girls, nice to read your posts, it's very quiet on here these days so glad to see some activity. I think ses are fading fast for most of us, just the few niggly things going on and on. Having a life to a degree is good but can't help thinking about another year still to get through, seems endless at times. Had a call from chemo wing yesterday to say they had spoken to onc now and he says I can start the herceptin now if I like. Previously he told me I couldn't start until after rads because bc was on my left side and the risk to the heart of two things at the same time was too great, I wish he'd make his mind up! Anyway I decided I can't hack the two at the same time so going to wait until after I finish rads, then our lovely daughter has organised us a week away to recover so have agreed to start herceptin on 10th Feb so should finish 2nd Feb 2015!

Lols, I agree rads is easy in comparison but the traveling is a pain as some of mine are early mornings so we get caught in rush hour traffic but only 8 left now, no redness or sore bits yet anyway so thats good. Glad yours seems to be going well too. My hair is growing well but slow, seems slow to me anyway, I have about 2cms all over. I had an Indian head massage today so see if that helps at all, it made me feel good anyway.

Rainbow Rosie, now you know why my name is Rollercoaster! This whole experience plays with your head and emotions as much as it messes up our bodies, it must take time to deal with it all and we're all different in how we deal with it. For me, even when I'm dressed up in really feminine clothing I look in the mirror and feel like a boy because I have very little hair and I feel embarrassed about the lack of hair in "other places" too. I agree everything moves so fast that you can't keep up with it to start with but these feelings will and must come out somewhere and as they do we have to deal with them and thats the part that onlookers don't see or understand so take your time and don't think you're alone, you're not! Everyday we get through is a day nearer the end and the time we get our lives back though. As regards the eyesight I think I would visit the optician for a sight test to be sure, it would put your mind at rest.

Annie, I sometimes wonder just how long it will be before I'm comfortable without wig or hat. My hair came out in one fell swoop the day before chemo no 2 but coming back seems to be taking forever. My eyebrows are coming slowly and eyelashes have just stopped poking me in the eye so making progress, downstairs, nothing, great! My hair was looking very white but is now darkening down nicely and is growing slowly, this time next year we'll see! If cream was the answer to hair growth I would win hands down, I have different creams for different parts of my anatomy all over the place, takes ages every day to put them all on!

Chezz, I didn't realise you were doing the herceptin as well, I begun to think I was the only one on that road. How many have you had? How are the ses from it? I think you and I will be the last two on the forum still plodding through the rubbish, RAH! I think the next person that tells me it will be worth it all in the end might get a slap, I know that but right now it doesn't help!

Susie, I should see you next week at ICT, you're in at 12 and I'm in at 1pm, it will be good to catch up at last. Did you know the French lady is taking 6 months off to go backpacking? ( no names). One of the therapists is in charge now till she comes back. Hope your rads are going ok, see you soon.

Well girls, going to indulge myself with a book for a while, take care all, thinking of you and sending hugs to all xxxx




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Re: anyone starting chemo in August?

Hello everyone,

 

Sorry you're having problems with your feet, Lois, it does seem unfair when you've already been through so much.

 

Yes, thanks, I'm feeling more or less back to normal now although still have up and down days - must seriously think about going back to work soon!  I have a darkish fuzz on my head but not enough to go without a hat or wig, and my eyebrows and lashes have grown back but some of them are sticking out at funny angles...Still bald as a coot 'down below' though! Smiley Very Happy

 

Nearly finished, rosie, good luck and don't forget the radiation keeps working for several days after your last zap, so keep up with the cream etc.

 

Good luck and best wishes to everyone else as well xx

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Re: anyone starting chemo in August?

Thanks for your kind words Lols Heart I'm still up and down at the moment, to be honest I think when I was diagnosed everything moved so quickly I don't think I thought about or realised what I was going through. In the past week or so, it's hit me hard and I'm beginning to really dislike my body/appearance. At least rads finish Friday, so another thing out of the way! It doesn't help when you're travelling and tired. I'm very red and a little sore now, last night it even started to itch, which was quite frustrating! Will be having a catch up with senior radiologist later, so will talk to her. 

By the way, has any maisies had problems with their eyesight, as I have problems with focusing, I wear glasses and they don't seem to be doing their job. Any ideas?

Have a good day girls

xxx

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Re: anyone starting chemo in August?

Morning Maisie's, thought I'd better post before our thread disappears of the page, I hope it's because we are all busy having a life and not cos of se's that thread is
quiet.
Roller I've no idea with cholesterol but wouldn't be surprised as chemo does affect so damn much, my feet are still really painful I ended up back at gos due to pain yesterday but they have little knowledge of se's she was going to speak to oncology so I'm just waiting for a reply.
How's rads going girls? If it wasn't for the journey and traffic everyday I don't think I'd notice it much , bit red on bc side but nothing major yet ( touch wood).
Starting to think about work but to be honest it worries me as job is so physical and on feet allday I don't want to go back and not pull my weight so I've self referred to occ health and just waiting for appt.
Not much sign of hair!! Anyone's growing? No leg hair either which is a bonus but im six weeks since last chemo now so a little bit of hair would be nice.
Drs just phoned apparently not much they can do she can offer epilepsy meds as they can help nerve pain, but oncology feel it won't help much, so basically just deal with it!! At least I know it's all chemo damage.
Hi Annie , are you getting back to normal now Hun?
Rosie, hope the weepy and fed up feeling going, I get a bad day and then a really good one, nice to know I'm not the only one.
Chezz how are you feeling ? Herceptin on its own yesterday, hope it went ok.
Susie, genevre and all Maisie's hi . Christymay may how are you Hun?
Meg il catch up later with your news but hope alls ok today x
Have a good one girls hope traffics good for all travelling to and from rads x ju
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Re: anyone starting chemo in August?

Hi Susie and all others doing rads. It's been good having the weekend off to catch our breath, back to it tomorrow girls. Can't say its causing any problem yet apart from the trekking back and forwards being tiring. Does anyone out there know if chemo affects cholesterol levels? Mine has gone up drastically without any other apparent reason but gp wants to wait and see if it settles down again before giving me meds, suits me ok. Hope everyone else is having a reasonable weekend and that all have a good week re treatments etc, love and hugs to all xxxx
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Re: anyone starting chemo in August?

Thanks very much Annie I will certainly give it a go. It's becoming quite warm too, so will also try leaving it open to allow the air to get to it.

I really appreciate your help. 

Xxx

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Re: anyone starting chemo in August?

Just a quick tip, rainbowrosie - smooth the cream on rather than rub it in, I did that a bit too enthusiastically and ended up with dead skin accumulating.  Also, expose the area to the open air a couple of times a day (indoors of course, bit too cold to do it outside at the moment!) Smiley Happy

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Re: anyone starting chemo in August?

Hello everyone,

I've completed 10 radiotherapy sessions now and feeling very hot and tingly at the site. Skin is very red and am rubbing in the cream like mad! Glad the weekend is here as the travelling is very tiring, so feet up and a few naps for me this weekend. Feeling really fed up and weepy, hey hoSmiley Happy

Wishing you all a restful weekend

Xxx

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Re: anyone starting chemo in August?

Evening all Maisie's, hope you have all had a good week, Rollercoaster, 5 rads down, only 10 to go! May bump into you next week although I think most of yours are earlier than mine! Saw Karen from FB at rads today which was lovely to meet her for the first time. Genevre, yes the nails is a se of being on tax, even though as suggested had dark nail varnish throughout and thought they were ok, but just started lifting 5 weeks after chemo! It must be lovely for you now that rads are over and that you will be starting back to work soon.
Anyway, hope everyone has a good weekend, take care xx
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Re: anyone starting chemo in August?

Evening Maisie's, hi chezz yeah I'm up for that. Sorry didnt reply sooner only just seen it. X hope your feeling ok how's work going? X
All other Maisie's hi , fran well,done that was a quick rads treatment. 4 down 11 to go with me, bit red and hot on bc side otherwise all good. Everyone have a good weekend xx ju
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Re: anyone starting chemo in August?

woo hoo congratulations Fran on finishing well done

 

Good to hear you can make the reunion is it during half term Ive not checked Manchester holiday dates yet but I will be able to get someone to look after Rafael if it is so I can go on Fri day during day

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Re: anyone starting chemo in August?

 

Hi everyone, have just returned from last rads - all over in a week, which is wonderful - I just hope it does its job as well  as the 3 week course, although they can't put people at risk on clinical trials, and Fast Forward has been going for quite a while now, so I'm sure it's ok. I have my final check-up with the onc in two weeks, and that's it!

Chezz, def ok for 30/31 May -- should be fun. Hope you're beginning to feel better, don’t over-tire yourself at work. I'm due to start back at school mid- March. I'm really nervous about it although I'm getting cabin fever at home and can't seem to settle to anything.  The tiredness is the main thing, makes it difficult to concentrate.

Lols, I’m glad the counselling has helped, I might try it myself because I feel in a real rut.

Susie, the sore nails sound horrible – is that caused by the chemo?

All the best to everyone who has two or more weeks left of the rads. It must be really tiring for those of you who have a long journey to the hospital

Take care everyone,

Fran xx

 

 

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Re: anyone starting chemo in August?

Hi Susie,

Good to hear from you, sorry you're still not feeling good and losing nails is horrible. Rads is a walk in the park so far, bit tired from the to-ing and fro-ing but otherwise ok, not sore at all yet but am only 4 days in so far, tomorrow's is at 9 am so an early start. All my other appointments are mornings between 9 and 11, does that coincide with any of yours? Maybe we can have a cuppa together? Wishing well to all maisies, love and hugs to all xxx
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Re: anyone starting chemo in August?

Evening Maisie's, sorry I have not been on for a few days but now I am having rads, the day is taken up with travelling to the hospital and back and then snoozing when I get back! Side effects still troubling me, especially achy limbs! Also finger nails very sore and looks like I will lose at least one nail, makes it hard to do much work as they are very painful, especially if I knock them! Rollercoaster, replied to your message, I think! I have missed our chats at therapy and don't think I will be able to make it until the week after next, as have appointment with Onc after rads next week. Hope to make it the week after! Hope your rads are going ok, perhaps we may bump into one another soon! Lois, glad councillor has helped and I agree it is sometimes better to talk to someone who is not a family or friend! Anyway, hope all Maisie's are well and recovering slowly, take care xx
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Re: anyone starting chemo in August?

hi all

 

Can I confirm that Lols, Meg and Fran are all def coming on the reunion weekend think Gilly wants to try and sort it out this weekend?

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Re: anyone starting chemo in August?

Evening Maisie's, thanks meg, got to say so far so good with rads.
Went to see councillor today, didnt think it would be any help as I normally find them annoying but she was so down to earth called a spade a spade so it was all good, nice to get the crap out if my head if you know what I mean and it's easier to do when it's not friends or family as no fear of upsetting them, feel she summed me up right so might see her again , doors always open would recommend it girls if your struggling with dark thoughts with treatments coming to an end.
Hope everyone's getting there and feeling brighter. Have a good evening Maisie's xx ju

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Re: anyone starting chemo in August?

Morning to you all Maisie's, hope you are all doing ok, it's so lovely to read that chemo having now finished you seem to be finding Rads ok so far, I hope that continues for you all. I agree with Lols, Chezza be careful rushing back into work, I do admire you though! Anyway just wanted to say Hi to you all. Take Care xxx
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Re: anyone starting chemo in August?

Evening Maisie's, agree with genevre and roller had first rads session today and didnt even realise it had finished, complete doodle just hope it stays that way for next 14.
Chezz well done going back to work my jobs so physical I know I couldn't manage yet but I think it might be good for my mind!!
Also saw physio at lymphodema clinic and I was right I had cording in armpit and top if arm, hurt like hell when she got rid of it!! But done now I hope
Hands and feet still very numb especially feet anyone else still suffering from this? Spoke to another lady same stage and she's taking B6 so might ask gp if I can try it.
Well hope all se's fading , chezz mind the germs for a few weeks Hun .
Thinking of all of you, take care xxxxx ju
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Re: anyone starting chemo in August?

Rads day 2

Wow, this is a doddle in comparison with chemo, hope I'm not speaking too soon, but hey no nausea, no steroids and no needles are 3 definite good points! Had reflexology today too, so good! Sorry haven't caught up with you yet Susie, I'm at 3:30 tomorrow, what time are you in?

Fran, Genevre, hope your rads are going ok, not getting sore I hope. 3 weeks and its over, wahay. Then onto the last stage, the longest one unfortunately but hey ho.

Chezzap, would love to see everybody for a weekend but really short of the readies so probably can't make it, sorry. Glad you finished your chemo at last, hope your ses soon pass aswell and you start to feel human again.

Hope everybody else is doing ok, not suffering too much with ses. Thinking of you all and sending love and hugs xxxxx
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Re: anyone starting chemo in August?

glad rads went well Fran

 

When are you going back to school?  I dont know when rads start yet but I went back in work today going to work this next few weeks til rads and then go back on a phased return a copuple of months after rads finish I think

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Re: anyone starting chemo in August?

Chezz, the dates are in my diary! Not sure if I'll be on half term that Friday so may arrive late from sunny Torquay! Thanks so much.  So glad it's all over for you. 

 

First rads today a breeze compared to chemo, only 4 more to go because on trial, so roll on Jan 10th!  Thinking of everyone who's going through it now and for longer.

 

Guess we must all be patient with hair, looking in the mirror every morning is like watching paint dry!

 

Love to all lovely Maisies,

 

Fran xxx

 

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Re: anyone starting chemo in August?

wahay all done result!!!

 

Chris glad to hear your first rads went well xxx

 

Roller hope your dad shakes that cold quick enough.  Are you free for the reunion??

 

Lols thanks for all the text supprt xx

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Re: anyone starting chemo in August?

Rads day 1

Hi all, I'm still chasing my tail a bit although dad now has a stinking cold, courtesy of the care manager who went in last week, so I'm keeping my distance again. Just trying to sort out details re his move from the safety of my house.

Chezzap, well done on your graduation at last, what a relief that must be!

Susie, so sorry they've messed up your appointments so much, it does seem ages since nice therapy, can't wait to get back there. Maybe I'll bump into you at rads sometime, apart from Wednesday and Thursday this week mine are all mornings, tomorrow at 8:40!

Sorry to hear so many are still struggling with ses of all nasty kinds, hope you all soon improve and get some hair growing. Rads nurse reminded me today, no shaving! What is there to shave! It's growing on my head but nowhere else yet, I've got a soft, thin but rapidly thickening layer all over my head, not comfortable without hat or wig yet though, can't wait to ditch them!

Early night coming up as sleep is restored to normal and I've got an early start tomorrow, love and hugs to all, sleep well xxx