Hello Maisies, sorry I haven’t been on for a while. I’ve had a cold for nearly a fortnight, still at the head cold, sneezing, bunged up stage and am so fed up. Don’t really feel up to doing anything much and getting stressed about preparing for work, getting new clothes – feel dowdy in everything. Do you think that the cold not getting better is just the immune system being weakened still? Stupid thing is that I got through all the chemo without getting any colds or infections. .
Sorry the rads has thown out cough/cold etc. Chezzap. I hope you feel better soon. Keep rubbing in the cream to cope with soreness . Well done for trying the hair dye, whatever colour it’s turned out. Go girl! I’ve only got about half/one cm but think I might go to hairdresser and get one of these sensitive hair dyes – then I might have the courage to go bareheaded.
Rosie, so sorry you’ve had such a horrible time with your rads, it sounds so painful. I hope the antibiotics and cream help you soon.
Susie, fantastic news about the clear ct scan. What a relief, you must have been so worried. I’m glad you had a celebratory meal – you deserve it!
Lols, sorry you’ve also had awful skin problems.I hope you have avoided hospital. I understand how you feel about hair, eyelashes etc. We all must feel we’ll never get our looks back, but we will. It’s just hard to cope with when you’re not feeling great physically either.
Wales’ defeat last weekend caused grief for my Welsh born kinds – and much drowning of sorrows!
Roller, glad the hair’s doing well! So glad you enjoyed the week away and sorry you had to come back to more stress with your parents. It’s never-ending, isn’t it?
Nicloa, sorry all the journeys to hospital have taken it out of you. I’m glad you’ve been to your GP – about the thirst – you need your mind put at rest. Hope you get some reassurance soon.
Maisies, we’re all still struggling for one reason or another – and this horrible weather doesn’t help. I’m just so grateful for your continued support.
Love to all,
Ok, last post to Jo got through but when I tried to re-post longer message direct it still came up the 'please correct the highlighted errors' and 'Body' in pink. If this one works I'm flummoxed!!
Thanks for letting us know I will pass this on to the technical team to have a look at.
I've been trying to post a message copied and pasted from word and it keeps telling me I can't exceed 20,000 characters, which is ridiculous as I'm nowhere near that - never had probs before. Just to say I've replied to you all and haven't forgotten you. If this works I'll try again and forget copy and paste. Sorry about garbled message - so frustrated!
Love Fran xx
Well Maisies, it's been a rough couple of days with some nice bits in between. The skin is peeling away from all over the radiation site and is red raw and very sore. Went back to the GP and she has given me more antibiotic cream and tablets, so hoping that will blast it! My pharmacist also gave me the name of a radiotherapy cream that some recommend. It's called Xclair, I've looked it up and apparently you use it at the
start of treatment, then all the way through. But I'll give it a go if this doesn't work and it's available on prescription too. Also, (I'm going to put this out there) vaginal dryness, (there I said it.) It's been a blooming pain to be honest, so, wandering around the Macmillan website, they mentioned a lubricant called Sylk. I checked out the Sylk website and found that it too is available on prescription. You can also apply for a free sample, it's totally organic and is free from parabens. My GP was happy to prescribe it and I should get it today. Anyway, no connection, but I'm getting kinky! My silver grey hair has developed a considerable kink in it. It's still growing at a snails pace, but kinky.
Chezza, bless you, a cold to go with everything else! Keep it going hun, you're doing really well. Continue with that cream, as it's a must, especially when it's over. I wouldn't want you to be in the situation I find myself in and Lols is having a pretty rough time too.
Lols, how are you getting on? What a sham over the swab, what's all that about. Sounds like your trip to Occ Health put your mind at rest for when you are ready to go back to work, well done for facing your demons. Good for you signing up for the course, that sounds like a real positive thing to do. I had a chat with a lovely Macmillan lady and she's put me down for Complementary Therapy, Writing Therapy and another look good feel good course, but it's a new one run by Boots No7. There's a couple of others but I can't remember them! Phew, looks like I'll be busy.
Rollercoaster, you did have a long day at the unit. But I'm glad that the Herceptin went through okay. I hope you managed to sort out the problems with that so called carer and that both mum and dad are feeling much more settled.
Happy Valentines Day Maisies
hi everyone sorry been awol been on the big reunion tour with the Eurthymics!! ha ha no Ive had an awful cold. Think the cough wasnt rads induced but just picked up a bug. Was awful feeling so rough and having to drag myself out for rads every day still. However Im on the mend now so all ok. Ive done 6 now and skin is red and itchy but not all that sore yet (fingers crossed)
Hope evryone else is coping well in this awful weather and keeping warm!!!!
Rosie hope you are ok?
Wendy hope things looing up with the folks
Chris catch you on FB
Lols Hope you good and that skin is healing nicely xx
Oh Susie,11 pints is alot of liquid, let's hope the blood tests help in some way. I did read somewhere that too much water isn't good for the body, have you been advised what and how much you could drink? Please let me know how you get on.
Chezza, my god girl, you must be really fed up . But I do feel your pain Annie. As for your hand, apparently you can get swelling as a side effect of the radiation, make sure they watch you carefully. I too have alot of swelling, but at the top of my arm. I've got an appointment to get it looked at, at the lymphedema clinic next Friday, so I'll see what they have to say. Try and keep the humour going as it's probably one of the only things we have left. Take care hun.
Rollercoaster, how did you get on today? I hope the Herceptin didn't give you any concerns. X
Lols, whilst having Herceptin injection I had the oncology registrar look at my skin. She said it's normal for it to happen, but she gave me antibiotic cream too and said to go topless when indoors! She also said that I shouldn't have used the hydrocortisone cream, as it makes things worse! So, I'm glad I took your advice. Thanks. Hope your own problems with the skin are easing off a bit.
Anyone I've missed I hope you too are keeping yourselves well
Nicola well done on finishing the rads
Rosie and Ju hope the skin is healing now and the cream working.
Roller hope your folks are better from the scabies and that carer has had a stern talking to
Ive done 3 rads only and have the most irritating tickly cough and sore throat. Did anyone else have this? My armpit feels a bit sore but my hand has swollebn like a balloon depsite wearing compression sleeve.
I made the mistake of dying my hair on Friday ha ha it said mahogony on the packet no way was it mahogony. For those of you that remember stars in your eyes all I will say is.... Tonight Matthew Im going to be.... Annie Lennox!!! At least it was veg one form Holland and barrett so its meant to last 3 weeks thank God I didnt go for a permanent one!!
Thanks for your quick response, good to know its normal hope the hot flushes improve soon.
Well done finishing your rads! Keep slapping on the cream as it can get very red. As you have read both Lols and I are really suffering at the moment. I've been on Tamoxifen for 2 months now and I too have a raging thirst! I believe that it's one of the side effects, I suppose so long as we're not guzzling down the alcohol we should be fine. The side effect that is bothering me, is the intense hot flushes I'm experiencing, I have had my front room windows open constantly, then have to shut them because I'm cold. Grrrr!
Anyway Nicola, get some rest, as the tiredness from all that travelling back and forth might catch up with you.
All the best
Rollercoaster sorry to here about the problems your having with your dads carer, thats terrible definately shouldnt be making them descisions without talking to you as if you havent got enough to contend with.
Lols sorry to here about your skin problems and the loss of your eyelashes, hopefully they will grow back quickly and the hair too,
Rosie good luck with herceptin tomorrow
Cheza hope your rads are going ok
I havent been on whilst having rads just seem to take all time with the travelling back and forth but finished now and skin seems ok . I have been taking tamoxefen for 2 weeks now and am finding that i am so thirsty, drinking pints of water even more than when having the chemo and still cant quensh my thirst, has anyone else experienced this or no of it, is it normal?
hope everyone is doing ok luv to all
My god what a nightmare you're going through. That so called carer your dad has seems totally incompetent! How dare she make important decisions without consulting you, she needs to be reported. Just when you were getting somewhere with your dad, she takes it upon herself to turn it all upside down and make him totally confused. Life is tough at the moment, so you could do without all this extra stress. My thoughts are with you and hope that you can get it sorted.
Anyway my lovely, good luck with the Herceptin tomorrow, I'm sure it will be fine. What time is it? I've got mine tomorrow at 2.30 and this time once I've had the injection I can go home. I don't have to wait for the recommended 2hrs after as I haven't shown any signs of problems with it, after the last few sessions. I know you're having yours by IV, so at least you'll be looked after and monitored carefully.
Keep your chin up
How are you getting on with your rads? Hope you're not too tired and that your skin is holding up
Well it was a reversal of fortunes in the rugby world this week, what with Wales losing and England winning! Hope the boys weren't too disappointed anyway. Sorry to hear you're having problems with your skin too. I think I need antibiotic cream, my skin is completely coming away now and is so sore. I've given up on the hydrocortisone and now putting sudocrem on instead, which takes the sting away at least! As for the hair, mine started off white but now it's silver and so thick with a kink. It's not growing much though. My eyelashes fell out about 3 weeks ago but yesterday I noticed that they have started to grow back! So, hopefully you won't be without them for too long. Take care
As I mentioned, I have my Herceptin tomorrow along with Rollercoaster and another counselling session with Macmillan. Probably cry my way through it again but I suppose that it's good to get it out of my system!
Enjoy the rest of the weekend and maybe a week without too much bother.
Fantastic news on your scan results! What a relief, have a really super weekend, hope the drinks are on ice .
Glad to hear that your first rads appointment went well Chezza. All I will say is, make sure you rub the cream religiously. I finished my rads on 17th January and had to go to the doctor today as the skin under my arm and under my mastectomy scar has come away. It is red raw and really painful and brings tears to my eyes. The doctor gave me some hydrocortisone cream to use for 5 days and to go back to her in a week. I can't even wear my bra or even a camisole as it rubs, so with my large boob dangling, I look like quasimodo with a lump in the front instead of the back!
Hope everyone is managing, whatever stage you find yourself at.
had first rads today which was fine apart from having to hold arm in an impossible position for 15 mins it went numb and bhad pins and needles!!
Ju my hair seems to be coming on Ive bought a dye from holland and barrett but not put it on yet was gonna wait for it to get bit longer first!!
Hope you are all ok and still coping with things whatever stage you're at. Susie, my rads nurses told me I could swim after 2 weeks so long as the skin isn’t broken and itchy still. Lols, hope you’re not feeling too bad with it all.
I'm going back to work on March 17th, and I'm really scared because I haven't been in school since June, so lots of my classes are new and I can’t seem to remember anything much. How long can we carry on blaming chemo-brain?....
Rosie, glad you’ve had some nice treats recently; Chezz, good old Steve! My son had his mates over for the rugby at the w/e; my kids were all born in Wales and his friends are English so tensions ran high in both matches and lots of beer and shouting were involved! Rosie I’ve seen the film about Iris Murdoch, although it’s really sad they made lots of positive things come out of it too. I also watched a late night film on the box last night called ‘Away from Her’ also about a lady with dementia played by Julie Christie. Mind you I should have been in bed early because today I got up after 11am and felt really fed up with myself. I need to get back to work.
Chezz, thanks for paying in the cheque. I’m sorry about your Dad; it must be so sad. But the ‘rum hair-do’ comment makes him sound fun, if you know what I mean! It’s a sort of compliment really....I’m in despair with my hair, all the bald patches have gone but it’s not much more than half a cm. and doesn’t seem to be getting longer at all. And my eyebrows and lashes are still very thin. Looking in the mirror each morning is like watching paint dry!
Rollercoaster, I’m really sorry things are so upsetting with your mother. I hope this really difficult stage passes soon. You’ve had so much to cope with and certainly don’t need other members of your family interfering and making things worse. You’ve got every right to rant! I’m glad you have somewhere good for your Dad to move into.
Bye for now Maisies, take care
Blooming Man City typical!!!!!
Dont worry Ju I will prob be in a hat still too just hoping that once spring comes will grow bit quicker!!
Good job didnt watch it then if they lost. City play Chelesa tonight and I got a bad feeling about it!! Massive match for us.
Im off to get my herceptin jab now so will prob be waiting round Christies all blinking day.
I bought some hair dye other day from Holland and barrett but gonna wait for few more weeks growth before I dare try it. It washes out after a month anyway so if it looks awful not the end of the world.
Hope everyone well.
OMG, that's so hilarious, I must tell my daughter! . Mind you he's her idol and I don't mind him either . Don't mention the rugby, England lost with a touchdown from the French a few minutes from the end. Mind you in Lol's part of the world they should be pleased as Wales won. Hope you've had a good weekend yourself my lovely.
Rollercoaster, I'm glad you had a lovely break. Thank goodness you were prepared for the weather. Good for you braving the great outdoors without head coverings, I bet it felt very strange but quite liberating at the same time.
Well Lols, your boys must be pleased with the rugby result! I meant to say about my hair the other day. It's about 2cms long (not grown much at all in the past few weeks) but very thick. My hair was always naturally like that, so I don't know if it will thin out as it gets longer. Also it seems to feel nice and soft. Hope your boob is okay and not giving you too much grief.
Here's to a good start to the week Maises
Hope everyone had a good weekend. Not seen rugby so dont know who won?????
Rosie that made me laugh about the transparent muslin cloth.. perhaps its called CoriolANUS for s reason hee hee!!
Roller its neverending with the folks isnt it? I feel for you I really do. Even though dad is now in a home its much easier for us as we arent constantly worrying about him falling or blowing the house up etc!!
Lols - ha ha yep Alzheimers or not my dad certainly has a way with words. ha ha heres me thinking my hair aint that bad and of course dad brings me down to earth with a bump with his child like honesty!!
Chris hope that skin is healing now
Fran/ Ju will pay your cheques in on Tues if that ok??
Take it easy ladies xxxx
Sorry to hear about your book. I don't know if this happens to you, but when I turn over in bed it blooming smarts! Mind you, in a way, at least hubby can't rollover on it and trap my nipple as I haven't got my booby anymore! (now that was painful) .
We love the rugby in our house and will be settling down to watch it later, come on England!!!
I had a lovely time on Thursday, Coriolanus was brilliant and Tom Hiddleston was great eye candy! At one point he came out in muslin like tunic which was totally see through that left little to the imagination. It was really nice to spend some quality time with my daughter and we're looking forward to our next trip.
Chezza, I can't imagine how you must feel when you visit your dad and the sense of loss when he doesn't know you, I know I would find it difficult, so all credit to you my lovely. I don't know whether you have seen this, but a few years ago I watched a film called Iris. It starred Dame Judi Dench, Kate Winslet and Jim Broadbent. It's a true story about a famous writer whose life is is turned upside down in later years by Alziemers. It's a beautiful film and well acted, if you haven't seen it, I thoroughly recommend it.
Rollercoaster, I really hope your break away was just what the doctor ordered and that the weather was kind to you. Did you get a chance to finish your John Grisham book?
Genevre, glad mine and Chezza's humour made you laugh, I'm glad it made you smile. I know what it's like to travel on the tubes, I did it every day for five years! It's ten times worse now, so well done to you.
Lols, hope you're okay and that post rads your skin is still doing alright. I had my last session on 17th January and my skin is slightly cracking, red and quite sore, really tempted to use my bio oil.
Susie, sorry your suffering with your skin too. I don't when you can go swimming, but I wouldn't recommend it while your skin is sore, as I would think the chlorine would make it sting.
Girls, have a good weekend, whatever you may or may not have planned
Rosie hope you enjoyed Coriolanus and seeing your daughter.
Fran hope you enjoy these last few weeks before you go back to school. Our Steve is in my good books at moment as he managed to email Man City and get me a signed photo of Sergio Aguero and a get well card from him.
Lols how are you??
Roller how's things with you and the parents?
I went to see my dad in the home this week and took my hat off ( as he has alzheimers I havent told him) Of course first thing he says is" thats a bleeding rum hair do" I tell him Ive had cancer etc and got upset. Later on my sister went ot visit him and he asked her if the woman who went to see him before was his other daughter. So sad to see him decline like this and remindede me why I hadnt told him in first place cos he wont retain it.
Hello girls - I've just got back from London where I've been catching up with friends before I go back to work. So pleased I coped with all the tubes etc., I was really nervous but now I'm almost feeling I can be normal again after all these horrible months. I've been really lucky with the rads, I only had a week of it and the soreness only lasted a few days.
Well done to all of you who have finished rads - the soreness does pass, just keep putting on the cream but don't rub it in too hard. If you're still ploughing on with it, the end is in sight. Anyone who's still got worries, remember we're here for you.
Thanks, Gilly - Coventry will be amazing!
Rainbow-Rose and Chezz, you make me laugh!
Love to all Maisies,
Ha, Ha! Have you ever thought why me? I had alot of ink blobs where they tattooed, but it all washed off and left two tiny dots in its place. When I had my rads, the radiographer struggled to find them! Had my follow up with nurses Tuesday and said that my skin was itchy post rads, it's redder than before and very hot. He told me that I was at the peak and will be uncomfortable for the next ten days! He's not kidding. Also spoke about fluid under my armpit and top of arm, he told me that it could be the onset of lymphoedema. Have been referred to that clinic now, lifes never ending hospitals, but at least it will be looked at.
Daughter home from uni, so we're going out to see Coriolanus at the cinema. We had tickets for the theatre after Christmas but I wasn't well enough to go, so this'll be my chance to see it, that's if I don't fall asleep .
ha ha you not gonna believe this though Rosie my bloody tattoos washed off in shower last night! Did they get them from a bubble gum wrapper ha ha. I called radiology today and they said that they may have to redo them nexrt week when start rads!!
Glad you found my comment funny . My husband has great fun telling people that he sleeps with a tattooed lady, very exotic! At least it all went okay.
ha ha I should be used to that then Rosie!!! Yes you were right they were fine just the one on the chest wall stung a little but nowhere near as bad as I thought!!!
Just a quick post to wish you well today Chezza. Susies right, the tattoos don't hurt, just a couple of pricks and it's all over. Mine are only tiny dots.