This not tasting anything is rubbish and I think I have eaten more just to see if I can taste anything!!! Felt like I had hit a wall today, didnt get up until 11.45 then was asleep on the sofa by 2. When I started waking my legs felt like they didn't belong to me, awful feeling.
thanks lois that paradoxl af is what i have took 5 days last time this time according to my oncologist its been like this for 3 weeks, i do sometimes feel palpitations but nothing like last year. i was on clexane but they have now put me on tinzaparin (innohep) which is a pain as i have to measure it myself and its two injections each morning also take verapamil twice a day, hopeit bumps back in soon just adds to my tiredness tbh, they did talk to me bout cardioinversion but i really didnt fancy that. suppose as always have to wait and see.
hopefully chemo no 6 tomorrow depending as always on bloods, liver, mash and two veg for tea, lol, good luck to all xx
Lois, as far as i know ive only ever had one AF attack and that was when i got taken into to resus last dec have had loads of echos and wore a 24 hour heart monitor which showed nothing, was actually discharged from one AF dept in may, not sure what they'll do now though, id put racing heart down to my chemo, no wonder i have to have my chemo laying on a bed.
feel bit fluey but ive never had a week 2 before so not sure what im sposed to feel like just hope with all the stress my bloods are ok for tomrrow.
good luck to all
Sorry you are having such a rough time Ju. I too have haris on my legs and have to shave still. I have like a bum fluff on my head that I wet shave twice a week to keep it smooth.
I have come out with a stinking cold, I am streaming. Been for bloods this morning at GP's but I will ring the unit this afternoon as I really dont fancy chemo on top of feeling like this. Really fed up though as wanted to get on with it.
Hope everyone else has the best day that they can, big hugs all round
Rollercoaster already had 2 herceptin and if they let me have more been told its an all day thing again, like starting over, taxol has been rediced a little too, hope my bloods are ok now and i get the go ahead for thursday.
thank you and all the others for lovely comments too,
FEC 3, day 8
Roller, glad you had a lovely break, hope things bearable after dunking, and something finally being resolved re parents
Lols, thinking of you on sleep rations, and coping the next day, first night always ghastly
Chezz, glad you managed to enjoy the birthday – bet you looked gorgeous and everyone made a fuss of you. Thought of Steve and Pasc having to go to work on Monday! – and of you back at the bar yesterday. How are you feeling? Sorry about having to cope with vile injection.
Christy, hope you’ve had a lovely break. Sorry about the delay in treatment. You’re now up the day before me
Breezey, lovely to have a baby shower to think about, so glad it takes your mind off things. I think I’ll ask about sleeping tabs next time
Pendragon glad brain scan good, and that the heart should get back to normal. It's been a worrying time for you
Feeling good apart from throat/ mouth stuff, so off for walk with OH and dog to dog-friendly pub. Really fancy a G&T!
Hugs to all xx
hi everyone thanks for the good and lovely comments, im back with good news and a little bit of bad. firsly brain scan was fine but unfortunately when i had my heart scan i was actually having an AF attack at the time and so its shows some damage, hopefully they think it will be ok as soon as my heart goes back into usual (sinus ) beat but have taken me off my herceptin for now.
sorry i havent posted but i was imagining allsorts and couldnt talk to anyone, had counselling this morning and shes ringing soon to see how i am too
love to all xx
thats good she has replied send her our love
Tyler is on Fb
Not heard from Alix for few days so hoping she is ok
Ang not posted either think she prob wanted to get her head straight before her results today
Morning amazing maisies
Hope everyone well
Thinking about Ang today as she gets her brain scan results. Have kept you in my thoughts and prayers please check in later if you up to it to let us know how you got on
Really worried about Lucy 58 she not been on for weeks I sent her a pm and she didnt respond. Lucy if you are out there please let us know how you getting on.
yes Lols was thinking same about Annie too hopefully she will come back soon and let us know she is ok
Is anyone up today??
Hope everyone has as good a day as this crap allows us
Im just waituing for the DBN to give me the dreaded wbc injection. I too hate it it gives me blinding headaches and boneache for about three days after.
Glad you are back ok Ju, we had a lovely lunch and a real giggle. The ear disturbances are the anti sickness from what I can work out, mine are still buzzy most days, some worse than others.
Hope your SE's are minimal hunni, I have changed my day to Thursday so a couple more days for me xxx
Sorry not been on for few days just wanted to enjoy birhday and ry not to think about BC too much.
Thanks for all birthday wishes. I actually had an ok time. Wore wig to restaurant then as we were the last ones in whipped it off as was getting on my nerves too ho and itchy even though it looks good on.
Roller - happy anniversay and hope your dad ok. meeting of best interest is way forward. Does your dad still have mental capacity to make decisions etc as hat was what we had to do with my dad who is now in a home a few weeks ago. Good luck today also at the bar.
Is Christy up for chemo today also?? If so good luck and glad you enjoyed time away
Lols good luck chuck and glad you had op time at cottage
Genevre hoping you emerging from the tunnel now and turning a corner.
Sam hanks for text chuck my nex is 21st Oct also!
Ang thinking about you and your results tomorrow
Welcome to Susie
meg enjoy your lunch oday wih Gilly, is karen going too? Sure you will have lovely time
Good luck Dee with baby shower
Hope everyone else well
Morning Maisies , Good luck to everyone at the bar today i cant believe how quick these dates come around .
i hope you three lovely ladies enjoy your lunch together , have a fab time 🙂
Not alot planned for today , may walk over to my friends for coffee and a spot of housework .
it is my daughters baby shower this weekend so still have lots to sort and organise for that , so should be kept busy this week.
enjoy your day everyone and i hope you are all feeling ok love Dee xxxx
Good luck today Ju, hope all goes well.
Meg, really looking forward to seeing you later.
Hope everyone else has a great day, roller, go and kick some arse at the hospital
FEC 3, day 6
Good evening girls,
Thanks for all your support. I’ve got less to put up than many of you.
Roller, thinking of you and your family. Good luck tomorrow.
Thanks, Coco, what stage are you at and how are you feeing?
Good luck on Monday Lols, Chezza and anyone else I’ve missed, and to all who are braving the bar this week.
Susie, I know what you mean, this is the last sort of club any of us thought we’d ever be in – but it’s such a lovely one! Good luck on Thursday
Glad you’ve had a nice day Spikeyred. How old are the kids?
Breezey, hope you feel rested now. Glad to hear good news of Christy.
Pendragon, hope you’re ok
Hugs to all xx
FEC 3, day 5
Hi Maisies, I’ve been out of it for a bit, feeling wiped out, but clawing my way back to normality now. Paintsripper mouth and gullet symptoms becoming evident, but not too bad atm! Finally had no 3 shave a few days ago, terrible shock becaue what was left of my hair was grey, and I’ve never faced it before – have dyed it for ages. My scalp is really itchy and sore, I don’t know if any of you have any suggestions?
Pendragon, I’m so sorry you’re feeling wretched, sometime you feel you can’t go on, but you’ve survived so far and together all of us will find strength. Thinking of you.
Welcome Susie, I hope things are not too bad for you. What stage are you with treatments?
So glad you had a great break Lols
Sam and Spikeyred glad you’ve had such a busy time, but don’t overdo it!! I made myself ill when I packed out my good week. But I know how you feel – you want to seize every good moment you can.
Hope all of you who are struggling can stay strong, and all who are partying etc have a great time.
Love and hugs xx
Hi ladies, sorry i have been AWOL again. This week i had a manic week pre chemo. Had the need to see as many friends as poss before chemo as the next time i see many of them i may be bald. This was so important to me and one friend even surprised me by coming up from london.
I had my first chemo yesterday and it really wasnt as bad as i imagined, OH was really scared as we sat there before it started bless him. SEs yesterday were ok, just felt a little hungover, ate normally and drank litres of water. I was up at 3.30 this morning and hadnt had steroids since yesterday morning so it may be a long day.
Habing my next chemo on mon 21st oct as onc is there on mondays. This is great as the OH and I put on a charity ska and reggae nght every oct and this year its on the 19th so i shall be able to go!
Thats enough about me, just wanted to fill you in.
Welcome to the new ladies who have found themselves here, its a good place to be.
Sad to hear some of you are having a tough time. Ang sorry the scans have got you down fingers crossed for tuesdays results. Chezza I know your birthday wont be how you wanted it but try to focus on the fact you will have anymore. However, i feel you deserve the right to go smash some plates tonight.
Roller I've seen you're next up on monday so does that mean you will be up on 21st? I am up then too at 9am.
Sorry for not mentioning everyone, hope SEs if any subside really quick.