yes everyone seems quiet. Think a lot of us are flagging as we reach half way stage and feeling quite jaded. The weather doesnt help either.
Im leaving in bout ten mins to see breast surgeon first time since mx so dont quite know what it will entail.
Think this weather waits for me to think about taking Laika for a walk. She will have to wait now til OH gets back its persisiting it down here too!
Love and lightness to everyone
Hello girls, just back from dunking 4. Have spent most of the day in hospital because neutros were down to 0.6 when DN took bloods yesterday. (Also had flu jab done and there’s been no problem). Fortunately they were up to 1 today, but they hadn’t ordered the chemicals, so my treatment was delayed by 3 hours. Home now, and so grateful it’s gone ahead. Have booked a country cottage for a few days next week and should be past the worst - can't wait!
I hope all of you are soldiering on and coping as best you can. Starting to feel really weird and shaky now so forgive me for not mentioning you all by name. Thanks for all your support, sometimes it calms me down just reading your posts and knowing that you all understand what it’s like. Good luck to any other dunkies this week, and love and hugs to you all xx
Hi yes the runs finally settling down hurrah hoping for couple of normal days before weekly dunking starts next week.
Jose is giving me the injections every morning and they actually arent too bad at moment no bruises yet.
MY mind wont be settled though til next Fri when I have follow up ultra sound I need to be assured the clot has gone and Im gonna give them hell for not having any follow up monitioring of ports in place when they know clots are a potential risk.
Hope everyone else is doing ok. Just depressed myself watching this morning and item on BC.
Have a good day everyone. Good luck to anyone up for dunking
Hi maisies, sorry I havent posted much lately but i have been doing really well and been doing normal things. I actually went out fri, sat and sunday night.
The hair was now gone, it as started coming out last Thursday and it just lasted for my weekends activities. By yesterday I looked and felt like a scarecrow so I got oh to clipper it then wet shave it. Felt better once it had gone.
Anyway enough about me. Sorry to hear about the tough times some of you are having, not only with the chemo. AS If chemo isnt enough to deal with.
The lack of taste is horrid , like you ju i was eating everything in sight to try and taste something! This chemo does change how you feel about things and Ju your friend probably needed you to say that to her. We all deserve to be happy.
Poor you angie struggling with these injections. Geneve i understand how you feel about your daughter leaving, i was devastated when my son moved out at 19.
Rollercoaster sorry you are still having so many probs with your parents.
Sorry I havent mentioned everyone but I wish you all well. Jealous many of you are over half way and i have only had one so far.
Take care Maisies and remember you are amazing. Xxxx
FEC 3 day 4 feeling relatively normal just a bit tired. Haven't lost any taste yet but my lipsare chaped to helldespite copious amounts of Blisteze. Hope everone else is doing ok. I am just dreading the T sessions next. Happy days
Hope you had a ice time away from it all Meg. The d and v acvtually gave me a chance to sit down and read some Martina Cole. I finished Dangerous Lady. I had read mauras game months ago and didnt realise it was a sequel so of course after reading dangerous lady I had to read Mauras game again!
Venice after having the whole familt struck down with d and v I can honestly say hand on heart that yes there is a funny smell following me round ha ha. No on a serious note Ive not noticed anything unusual.
Hope everyone else ok and good luck to anyone up this week. Not sure where we are up to with everyones treatment
Just a thankyou to you all for your continuing support.Day 7 of FEC feeling ok if i dont do anything at all but totally wiped out if i move about . Does anyone else have a smell it that seems to follow me about and i a heavy feeling inside roll on day 9-10 that seems to be the turning point . Most of us are half way we just gotta battle down the hatches and keep moving forward love to all Gill x
Its Christy whose internet is down not me so she is the one who is up for treatment tonorrow
Things here ok apart fromIve got Sergio's d and v bug well the d part of it anyway so not moved from the house all weekend
OH is no
Oh is now giving me the stomach injections dont like it but what can you do its just another thing this has thrown my way so you just gotta get on with it
Hope everyone has had a decent enough weekend just think its another week down so we are all a week nearer to the end of treatment
Thanks to Yankee for your words of encouragement
Dear Maisies -- just dropping in from the February Valentines! I choose to follow a thread of Ladies from both before my treatment started (October , 2012, Pumpkins) and after (you). Just wanted to say, I can remember all too well where you are at the moment. I had a very mixed time all through Chemo, never needed to delay treatment or reduce dosage, but felt absolutely terrible every single day from February through the end of May! However, it does come to an end.! From my current prospective, it actually seemed to go by rather quickly. You will feel better. You will be able to taste a glass of wine. Life will be easier.
That said, feeling really "normal" takes a lot, lot longer than I ever expected. I finished chemo the end of May and Rads the end of July, and I am still a long, long way from feeling like the real me. It is coming though. I have my first annual mammogram check-up next week, and I tell myself that things will start to feel real again if I pass that!
Good luck to you all, and keep on truckin!
With love and solidarity, Louise
Hi girls, just had txt fom Chezzap - her intenet is down, should be back on Mon. She hopes to go ahead with next treatment on Mon.
My turn Tues, neutros permitting (only 0.8 last time, borderline but went ahead, trouble is they have steadily fallen since the whole circus began..). I feel a bit down today, probably the thought of it all stretching ahead with ses getting worse each time. Also YD leaving home at in a couple of weeks of course it's the right thing as she's 24 and needs her independence, but she's been such a star supporting me.
Sorry so many of you are struggling - Pendragon, Annie & Breezey, thinking of you all
Roller glad SS finally acknowledged what was staring them in the face, that your poor mum needs 24 hr care. Thinking of you and both your parents It’s a sad time for you all. Venice, sorry you’re going through the same problems
Susie, the onc situation is shocking – the last thing you need. Why not tell the onc’s secretary you will be forced to make an official complaint if you don’t get an appt soon – it might shake them into action!
Thinking of you all, sorry if I’ve missed anyone out
Love and hugs xxx
been told to try thighes but dont fancy it tbh, not been told anything bout arm be quite difficult cos of were my picc is sited too, will persevere with tummy for now but started hitting lumps so got to be a bit careful , clexane was so much easier for me straight in push straight out, smaller amount of bruising, now ive got a band of brusing and red spots all over, i know i have to do it but i wish it was easier xx good luck huni, im sure it does get easier maybe just the other things we're going through affecting the way we feel xx
sorry bout your news chezzap, i have stopped herceptin atm cos of my heart prob, due to have cardiogramme on weds morning, then see onco on following wedsnesday. i know they check around my picc line during these exams too, i am on innohep daily injections these are a pain as i have to measure my dosage out each time. the stomach bruising is a pain but i think its alix on fb says using arnica helps to calm the bruising , ive been on warfarin nearly a year and will cotinue on innohep til i finish my tratment then itll be reviwed hopefully back to warfarin. stick with it huni we all go through times of questioning it all, i have especially over the last few days, i think everyone gets to that point at some time, look for something in the future to focus on and take each day as it comes along, hard i know but you will get there.
rant and rave on here huni we all do it and we are all here for every single amazing august xxxx
Hi ladies sorry Ive been AWOL for couple days. I will explain in a minute after caught up with everyone.
Annie well done for getting through first tax as you say its days 4/5 to watch out for so hoping it will be kind to you
Venice welcome back good luck with the parents
Roller hope you are doing well and enjoying this week think we are both up next on 21st arent we
Christythanks for the text how is the hickman line settling down??
Well then I went for an ecg on Wed as due to start herceptin and they discovered that around the line of my portacath there are lots of blood clots! I had to go to Chrsities to get an injection and now have to have daily stomach injections to thin blood for at least three months. they cannot take port out as its too risky as could dislodge the clot and could travel to lungs etc and then it would be goodnight Vienna. Im so angry that there was no monitoring of the port if they know clots are a potential complication. If I hadnt gone for the ecg this would nt have been discovered til it was too late. What is that all about!!!
Am upset at the thought of my stomach becoming a mass of bruises and am now paranoid about this blood clot. The plan is to continue to give chemo through the port and then take it out after chemo finishes in the hope that will be able to have herceptin via cannula ( yuck) or sub cut injection ( yuck also) but have to play it by ear. Why are things never simple and straightforward the whole idea of port was to make life easier not to give me yet another potentailly fatal condition!
AAARRGGGGGGHHHHH!!!! Sorry for rant ladies am just completely and utterly sick to the back teeth of it all I think if I didnt have the kids I would have given up by now
tax 7 day 1
just back fromchemo unit, my neuts to were very high, in fact higher than theyve been since chemo started, cant understand what ive done different, hope they stay up for another few cycles as well as all my others!!
hope everyones not too bad with sesi
im a mobile carer and lots of our elderly people have major probs with meds, and now we've been told that in our area they are bringing in a charge to do these boxes, ridiculous i think,!! alot of our calls are just to help with meds tbh it is complicated i know , when im in chemo fog i have enough probs sorting mine out, hope they get things sorted.
Afternoon ladies, glad all went ok for you Annie with no se's so far, like Dee said we have both been delayed to next week now but still thinking about our other one degree. I hope all our other maisies are coping ok and managing to plod through this fog. Take care and sending hugs to all x x x
TAX1 Day 1
Back from the Unit with no problems except that the first saline flush took longer than I 'd expected and altogether the treatment took 3 hours because they did it quite slowly. No reaction though, so pleased about that although apparently that's more common on the second TAX.
I was amazed to hear my neuts were 6.7 - don't know how I managed that but I won't be so worried for next time.
Glad my daughter came with me, it's a long time to spend on your own in there!
Day five start of possible SEs and low immunity, so will try to make the most of the next three days...
Hope everyone else is doing as well as can be expected, or better! So sorry a few of you are having parent and/or communication problems - it all does seem to be a bit of a lottery, treatment and care-wise...
I am here thankyou all for remembering me and thinking about me . I am doing ok FEC 3 day 4 feeling tired and no energy but so far so good no other SE at present. Unfortunately having major problems with elderly parents like afew other ladies on here so not been on the forum very much. I do try to catch up and you ladies are never far from my thoughts as you have given me much need support .Quick question at what stage will they cancell chemo due to low neuts love Gill
Thanks, Breezey - it does feel a bit lonely....were we The Three Degrees?
Good luck to all Maisies, whatever stage you're at!
Blast! Just lost a long (for me!) post!
FECx3 day 21
Looks as though it's only me up for first TAX tomorrow then, enjoy your extra week, Breezey So many of us have had a bad time recently and I do hope those still suffering feel better soon. It's amazing how you can feel absolutely rubbish one day and fine(ish!) the next...
I've got quite used to FEC - off into the unknown tomorrow - will keep you posted if I'm able!
FEC 3, day 15
Hello Girls, hope you are all as well as can be hoped, next time some of us will have passed the half way mark, which I’m told is a real psychological boost. You’re right Annie, we will get there, but I’m really sorry you’re having such a bad time.
Susie, I’m holding out great hopes for enjoying my Christmas wine, I have a glass whenever I feel like it now, it calms me down when I’m feeling anxious (probably not what I should be doing) but everything tastes weird atm
Lols, hope you can enjoy a few good days in between the steam-rollered ones. It’s hard to connect to the real world when we’re all in the strange cancer-land place – mind you, it’s very real to us!
Chezzap, you seem to have all the bad luck, hope you can shake off your infection soon. The sore mouth and ulcers seem to be affecting us all, though as I’m in week 3 it’s more or less ok now
Wt66, I know how you feel – you’re bound to miss your mum, especially as you’re feeling so fragile yourself. Mine died last year and I miss her so much – although in a way I’m glad I didn’t have to tell her I had BC
Roller, I haven’t heard from my BC nurse since I started chemo, nor have I had the same chemo nurse twice. Luckily they are all very kind, and the RD&E in Exeter is really good and efficient – I think I’ve been treated better than many Maisies. Hope you are feeling a bit less weepy now – but I don’t blame you with all you’re going through with parents and treatment.
Love and hugsxx
Morning maisies, I hope everyone is starting to come out the other end of their se's and for those still suffering that they are minimal. Wt66 I am so sorry to hear about your mum, what a horrible time it must be for you I can't imagine. Feel free to have a moan, scream, shout and cry on here anytime we are here for you hun. I think we have all been hit this 3rd time with one thing and another and all been quite low in ourselves, lets hope this passes quickly and we can see the finishing line approaching. Ju so sorry you are still feeling rubbish hun I hope it passes soon for you, I 'm just coming out of the fog and feeling alot better today, lets hope I get a few good days before 4th dunk and change to docetaxel next fri. Have a good day ladies sending virtual hugs to those who need them x x
I start TAX on Thursday, Chezza, tomorrow's bloods allowing! Just hope my veins hold out, my Onc says it's fine to use my other (nodeless) arm for IVs, against all the advice from the surgical team..
Dreading it in a way, but glad to get on with the second half. My sympathies with those who've had unhelpful nurses - I've had conflicting information from all three of mine (I never see the same one twice...).
Still, onwards and upwards, Maisies! We'll get there in the end