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anyone want to meet Tunbridge wells tonbridge area?

36 REPLIES 36
Hazelr
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

That would be good, let me know when you are back from wherever you are, somewhere nice I hope! X
nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Sarah, hazel and radiotherapy, I would be happy to meet up in a few weeks. Am away at the mo.  In I'm a few years on from you,  had all my treatment in 2012,so may be able to help if you have questions.   Jo xx

Hazelr
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Sarah, I have just finished my chemo fec and t and am having surgery in May followed by rads. Did you have mx? I am opting for bilateral I think with immediate reconstruction with implants and be interested to hear of your experience around mx. I have MRI on Tuesday to see how the chemo has worked and will the see surgeon again to discuss options. Be nice to hear from you if you go on here over Easter. Hazel x
Cocolily
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Rafi. Sarah, Jo & Hazel
I am also recently diagnosed. Had 2 Wle waiting to see if I have clear margins then can start chemo. I'm in T Wells as well x
Hazelr
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi I am in Wadhurst and have had my 4 chemo out 6 and thennhaving surgery. Which is a real worry. I am 54 so can help with any questions you might have. Have you had surgery? Hope you keep in touch Hazel x
nn
nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi rafi I am in tonbridge too. Finished my treatment in oct 2012. I'm 44 now. Xx
Jo x
Sassyses
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Rafi,
Are you in tunbridge wells area ? I am a
Member of the site but havnt been on for a while . Not sure really how it works . Anyway I'm tonbridge area age 49 and have just finished treatment in November last year . I would be more than happy to chat about my experience etc and to answer any concerns as I know how daunting it is .
Sarah
x
Rafi
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

I am new to the site so am a little confused. I am about to start chemo. I'm 48 and would love to meet some women similar age to me so I can get advice and support. Hope someone reads this. N xx

SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

I've just sent Sarah a pm to see how she's getting on. Hope she's ok.

SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Sarah won't make it tomorrow, Jo. She has said she has to keep the cold cap on for 4 hours after the chemo has finished, so I don't think she'll leave the hospital until at least 4pm.

nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Sarah,

really wishing you all the best for your first chemo. if you feel well enough tomorrow (tuesday 17th) we are meeting at 12.30 at scotney castle. Sue is coming and also another lady I met whilst gonig through chemo in 2012. I didn't get your message until now and since I don't know your full name it might be a bit tricky for me to come down to HODU and ask for just "Sarah". Glad you have got someone with you though, Please keep in touch though and let me know how you are doing. I am sending you a private message with my contact details so when you are feeling up to it, drop me a line and maybe we can meet up in Tonbridge if you dont make it tomorrow.

Take care, Jo xx

Sassyses
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi , Sarah here . I'm in early at pembury . All ready to go . Starting at 10. In HODU.
I have my aunt with me but would be nice
To see you if your around . Am I talking to Jo or sue?
Confusing as to who is who on here. 🙂
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Oops sorry about getting names mixed up! lol

nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

I am Jo Sue! Penny is my friend who lives near you!! Xx
nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

What time you in tomorrow Sarah? I could pop in and say hi as I am just down the corridor in ICU wherei work as an audit and research sister. I will be at work from 8 till 3 ish but have a lunch time meeting from 11-13.00. If you want company let me know and I can pop along for10 minutes or so. Good luck anyway. Xx
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Well, don't forget your password again! Keep us updated with how you're doing. Penny (Nurse...) is close to you too, and I know she'll be keen to see you once she catches up with this thread. x

Sassyses
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Thanks so much . How nice is it to chat to
People having been through it . I get so many
People patting me on the back saying how is it going and how well I look . I then have to
Explain that I havnt started yet etc ....
Most people just don't understand at all . Will be in touch .
I'm in Judd road , tonbridge and run the tanning salon in the high street on the corner x
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Ah, so long as you have someone with you.

 

Well, keep in touch with me through this forum, or private messaging, and we'll see how you go. If you're not up to meeting up away from home, I'd be more than happy to come to you, if you gave me your address.

 

Hopefully we'll meet up soon. Good luck for tomorrow. x

Sassyses
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi,
Thanks so much for the kind offer to sit with me. I have my aunt doing my cap and sitting with me . The hospital made a huge fuss re
Where I was going to sit for the 4 hours after chemo to the point where I said I'd bring my own chair if it was that much if a big deal.
Finally won them over in the end but it was stressful to say the least so I know what you
Mean re space there! Would love to see
U for chat sometime but don't know how this first cycle will hit me . If you let me know where I'll see how I am if not def next time . I should have been at Maidstone but the seating arrangements were better at pembury and is nearer. Sarah 🙂
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Wow, Sarah, you sound really well organised.

 

Penny and I are going to meet up on Tuesday this week for the first time. Hopefully you can meet up with us after you finish chemo.

 

Pembury Hospital is not that far from me. Is anyone going with you while you have chemo? I was wondering if you'd like me to drive over and sit with you for a while while you have your first session?

 

If you're interested, pm me with your full name and the time of your appointment, and I'll meet you there.

 

I'm 48 too, and my hair is now growing back as the effects of the chemo which I finished in April are wearing off. I had a mastectomy in May, and start radiotherapy in a week and a half, but I'm having that at Maidstone Hospital.

 

Anyway let me know if you're interested ion having some company tomorrow. Assuming it's the same as the William Harvey in Ashford, you were allowed one companion in the chemo room there (due to lack of space)

Sassyses
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi, apologies for delay . Loads going on and
Had forgotten my password to this forum !
I'm starting Monday which is tomorrow . Feeling anxious at the thought. I've put the chemo off for 11 weeks after my op. I should have started weeks ago but declined it initially
As my nodes were clear and I'd had the op. What a shock to be told you have to then do chemo. Anyway ready to get on with it now .
I'm cold capping but bringing my own machine in which I'm renting at a reduced rate through
Contacts that are pioneering the machine. I'm
A sort of guinea pig for it but going to give it a go. It was hard work getting through to someone in the NHS to allow me to give it a go but I persisted and finally found a nurse
That really wanted to help. She was brilliant . Anyway will be wheeling all my stuff into
Pembury early tomorrow for first one (fec75).
Will keep you posted re the hair thing . The cap stays on for 4 hours min after the chemo
Cycle is done . ......
nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi guys. I am in tonbridge too Sarah. I am sure we can sort something out before you start rads Sue. I am sadly arranging my Granads funeral at the moment which is next tues (10th June), but after that will be a bit freer. When do you start chemo Sarah? X
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi, yes we're still about. It's better to be safe than sorry. Worth it in the long run.  x

 

Would you like to meet up and talk it through? I live in Biddenden, but I've finished chemo and had my mastectomy now so I can drive over to your area, if you'd like a chat with someone that has been through it.

 

Nursemakeyouwell - I'd love to meet up with you now as well. Don't start radiotherapy until 25th June - any chance of getting together before that?

Sassyses
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi there , don't know if I'm doing this correctly or if anyone is still chatting on here. I'm
Sarah (48) tonbridge area. About to start chemo course 6x fec. Have deliberated for too long . I had lumpectomy and clear nodes but still recommended chemo 😞
nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Catherine, so sorry you need more surgery. I had laparoscopy in Jan due to gynae probs caused by tamox but they decided once they were in there not to do anything!!!! It is such a roller coaster isn't it just when you think you are moving on something else happens. Where are you from? Xx
catherinethegr
Member

North or central London?

Hi not been here for long time.  Just been told I need hysterectomy due to tamoxifen and wonder if anyone had same prob.  Had mastectomy two years back.  Had so much surgery and thought I was free now but now this.  Bit fed up...  Would love to meet up with someone for chat ?  

nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

No probs. So glad you're nearly done. I will never forget my last docetaxol. I had on 26th June (not that it's etched on my brain or anything!!!), 4 days before my birthday. Do guess what I did for my birthday that year!! I was laid up in bed waiting for the pains to go! Everyone kept saying to me "oh you must be so excited to have finished chemo, and I kept thinking, actually no, I am in agony, can barely walk cos the muscle fatigue is now so bad and in four weeks I will have surgery. In the meantime, as you say, there were many appointments to attend. One was the day before surgery to have wires inserted into the tumours under ultrasound, followed by a mammogram to check the position.

We could book something up towards the end of April and then if you're well enough to come you can, if not then we'll do another one after you're op maybe. Anyway sending you lots of Good wishes. I didn't find surgery too bad. Even the drains, which I was dreading were fine. Really sending you all my love and good thoughts. Xxxx
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

I had my final dose of taxotere on Wednesday this week, so the side effects are just kicking in. All booked for a full mastectomy and lymph node clearance on 1st May, then 3 weeks of radio in June. 

 

All full steam ahead with non-stop hospital appointments throughout this month.

 

I am keen to meet up but really not sure when. Maybe the end of this month before my op. I'll have to let you know. Won't be up to it for the next week or so anyway.

nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Karen, I would love to meet up. Why don't you pm me with some ideas of when and where. SJB, how are you doing? How's the docetaxol going? Hopefully you can see the light at the end now. If you fancy meeting up too pm me as well and we can pick a date and venue to suit everyone.
spikeyred
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Hi Jo, I'm from tunbridge wells and if your still looking to meet someone for coffee I would love to. I'm 44 had lumpectomy, chemo and rad and now on tamoxifen for 10 years. Going back to work on Monday but part time to begin with. Let me know if you want to meet for coffee Karen
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

No, I hail from Ashford so have opted for the William Harvey. I will have to travel to Canterbury for my radiotherapy though - no facilities at Ashford.

nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Excuse all my spelling mistakes, am sending from my phone which keeps making strange words up!!!! Where are you getting treatment by the way? At Maidstone? X
nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Sorry you're finding the taxol difficult. I found i was fine for the first few days then on day 3 post treatment the pains would come. Made worse by the filgrstim injections. I got my onc to reduce the dose in the end add my blood counts were all ok. I also took voltarol as well as paracetamol and codeine but then needed omeprazole to counteract the heartburn and stuff to help with constipation from the codeine!!! I remember living each day from one pill to the Next as all that was on top of the anti sickness pills and steroids!!!!!! All completely alien to me add I Garr popping pills usually! Anyway good luck. Hope this cycle is more bearable for you. Xxxx
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Thanks for the reply.

 

I haven't met anyone currently going through it all, but have met one lady who did it all about 5 years ago, here in the village.

 

When I was diagnosed in December, my tumour was grade 3 and 5 cm, and very aggressive. It had already spread tp my lymphnodes, so they thrust me into chemo 11 days later to stop it in its tracks and reduce the damage any further before its removal. Regardless of how much it shrinks, they are still giving me a full mastecomy to be safe.

 

I have been very lucky because I have not suffered with any nausea at all. However, for my first two FEc cycles, I got terrinble mouth ulcers - 10 or 12 at the same time each time, but eventually got on top of them with prescribed mouth wash and anti-inflammatory spray. Didn't get them on the third FEc cycle or on my first T cycle, so it seems to be in the past now. I've lost a LOT of fillings, which has caused some intense toothache. My dentist has given me one temporary filling but is desperate to do some proprer repair work after I finish my chemo. It's just fitting it around the op and recover period that is a pain!

 

I got very bad fatigue by the third cycle of FEC and stayed in most of the time as I found myself hobbling about like a 90 year old. The first cycle of T dragged me down a lot with the bone pain. One day, about day 7 I think, I literally curled up on my bed and just sobbed for hours because I did not know what to do with myself. My whole body felt like it was dying. But it started to ease off again after that. Didn't enjoy it though! Hoping to control the pain better this time. I only really got back to normal for the last two days of the cycle before this next lot of chemo yesterday! And how did I spend my good time? Cleaning the house on Monday and shopping on Tuesday! lol

 

I got my appointment yesterday to go back and see my breast surgeon on 29th March, which is the week before my final T cycle. I am keen to discuss the op as I have been reading a lot about my options here on the forum and want to know how many options are available to me. I am not happy about the idea of ending up lop sided as you say you are. I am hoping he'll give me a double MX for xosmetic reasons, and that he may consider a natural reconstruction, using excess fat from my tummy area for a more natural look. Don;'t fancy silicon implants if I can help it. Also the natural recon can be done at the same time as the MX because the  fat won;'t be harmed by the radiotherapy which is to follow. Sounds good to me. Just need to talk him into it!

 

Anyway, enough for now. i'll talk to you again soon x

nursemakeyouwel
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

Would love to meet up sometime Sue. There's another lady I met through a look good feel better session who was going through treatment at the same time as me who lives in tenterden, so not far from you. I know I found it a tremendous support to meet up once a month or so during treatment to compare notes and talk to someone else going through the same things. Good luck with your final chemo session. How have you found it? Have you had many side effects or any problems with it? I hated FEC. Made me so sick and therefore found taxol easier to deal with as I just got pain and extreme muscle fatigue ( could barely walk after last one). But felt that was easier to deal with than vomiting!! How come you had to have chemo first like me? Mine was that way round as my tumor was multi focal and too big and they thought that if I had chemo first i might get away with lumpectomy. It didn't work well enough for lumpectomy but they managed to preserve a decent amount, so now I gave one Big Boob and one small one! I am supposed to have the other one reduced to match but can't face any more surgery at the moment. Look forward to chatting on here for a bit and maybe a meet up when you're feeling up to it. Have you met any one else going through treatment? Like I say, I found it really helpful to have someone to talk to about it all , any way take care and look forward to hearing from you. Good luck. Xxx
SJB
Member

Re: anyone want to meet Tunbridge wells tonbridge area?

There don't seem to be many people on here from from this part of the world.

 

Hi, my name is Sue, I'm 48 and live in Biddenden, so not a million miles away.

 

I am currently having neo-adjuvant chemo (today is my fifth session) - I am also on FEC-T - the same regime as you.

 

I am due to have a mastecomy and lymph node clearance in early May, then later on I have to have 15 sessions of radiotherapy, then Tamoxifen, so very similar story to yours, only not so far down the line.

 

If you are still around to read this, I'd love to meet up at some point - maybe meeting half way? Probably not till April though, when I have finished my chemo, as I have not been driving very far throughout this ordeal.

 

Hope to hear from you soon.

nursemakeyouwel
Member

anyone want to meet Tunbridge wells tonbridge area?

Hi, I am 43, diagnosed 2 years ago. Had neo-adjuvent chemo ( 3 FEC, 3 docitaxol), then partial mastectomy and mastoplexy, then 4 weeks of rads. Now on tamoxifen. Would love to meet other s in this area for Coffee and catch up!
Jo