Hi Sarah, hazel and radiotherapy, I would be happy to meet up in a few weeks. Am away at the mo. In I'm a few years on from you, had all my treatment in 2012,so may be able to help if you have questions. Jo xx
I am new to the site so am a little confused. I am about to start chemo. I'm 48 and would love to meet some women similar age to me so I can get advice and support. Hope someone reads this. N xx
Sarah won't make it tomorrow, Jo. She has said she has to keep the cold cap on for 4 hours after the chemo has finished, so I don't think she'll leave the hospital until at least 4pm.
really wishing you all the best for your first chemo. if you feel well enough tomorrow (tuesday 17th) we are meeting at 12.30 at scotney castle. Sue is coming and also another lady I met whilst gonig through chemo in 2012. I didn't get your message until now and since I don't know your full name it might be a bit tricky for me to come down to HODU and ask for just "Sarah". Glad you have got someone with you though, Please keep in touch though and let me know how you are doing. I am sending you a private message with my contact details so when you are feeling up to it, drop me a line and maybe we can meet up in Tonbridge if you dont make it tomorrow.
Take care, Jo xx
Well, don't forget your password again! Keep us updated with how you're doing. Penny (Nurse...) is close to you too, and I know she'll be keen to see you once she catches up with this thread. x
Ah, so long as you have someone with you.
Well, keep in touch with me through this forum, or private messaging, and we'll see how you go. If you're not up to meeting up away from home, I'd be more than happy to come to you, if you gave me your address.
Hopefully we'll meet up soon. Good luck for tomorrow. x
Wow, Sarah, you sound really well organised.
Penny and I are going to meet up on Tuesday this week for the first time. Hopefully you can meet up with us after you finish chemo.
Pembury Hospital is not that far from me. Is anyone going with you while you have chemo? I was wondering if you'd like me to drive over and sit with you for a while while you have your first session?
If you're interested, pm me with your full name and the time of your appointment, and I'll meet you there.
I'm 48 too, and my hair is now growing back as the effects of the chemo which I finished in April are wearing off. I had a mastectomy in May, and start radiotherapy in a week and a half, but I'm having that at Maidstone Hospital.
Anyway let me know if you're interested ion having some company tomorrow. Assuming it's the same as the William Harvey in Ashford, you were allowed one companion in the chemo room there (due to lack of space)
Hi, yes we're still about. It's better to be safe than sorry. Worth it in the long run. x
Would you like to meet up and talk it through? I live in Biddenden, but I've finished chemo and had my mastectomy now so I can drive over to your area, if you'd like a chat with someone that has been through it.
Nursemakeyouwell - I'd love to meet up with you now as well. Don't start radiotherapy until 25th June - any chance of getting together before that?
Hi not been here for long time. Just been told I need hysterectomy due to tamoxifen and wonder if anyone had same prob. Had mastectomy two years back. Had so much surgery and thought I was free now but now this. Bit fed up... Would love to meet up with someone for chat ?
I had my final dose of taxotere on Wednesday this week, so the side effects are just kicking in. All booked for a full mastectomy and lymph node clearance on 1st May, then 3 weeks of radio in June.
All full steam ahead with non-stop hospital appointments throughout this month.
I am keen to meet up but really not sure when. Maybe the end of this month before my op. I'll have to let you know. Won't be up to it for the next week or so anyway.
No, I hail from Ashford so have opted for the William Harvey. I will have to travel to Canterbury for my radiotherapy though - no facilities at Ashford.
Thanks for the reply.
I haven't met anyone currently going through it all, but have met one lady who did it all about 5 years ago, here in the village.
When I was diagnosed in December, my tumour was grade 3 and 5 cm, and very aggressive. It had already spread tp my lymphnodes, so they thrust me into chemo 11 days later to stop it in its tracks and reduce the damage any further before its removal. Regardless of how much it shrinks, they are still giving me a full mastecomy to be safe.
I have been very lucky because I have not suffered with any nausea at all. However, for my first two FEc cycles, I got terrinble mouth ulcers - 10 or 12 at the same time each time, but eventually got on top of them with prescribed mouth wash and anti-inflammatory spray. Didn't get them on the third FEc cycle or on my first T cycle, so it seems to be in the past now. I've lost a LOT of fillings, which has caused some intense toothache. My dentist has given me one temporary filling but is desperate to do some proprer repair work after I finish my chemo. It's just fitting it around the op and recover period that is a pain!
I got very bad fatigue by the third cycle of FEC and stayed in most of the time as I found myself hobbling about like a 90 year old. The first cycle of T dragged me down a lot with the bone pain. One day, about day 7 I think, I literally curled up on my bed and just sobbed for hours because I did not know what to do with myself. My whole body felt like it was dying. But it started to ease off again after that. Didn't enjoy it though! Hoping to control the pain better this time. I only really got back to normal for the last two days of the cycle before this next lot of chemo yesterday! And how did I spend my good time? Cleaning the house on Monday and shopping on Tuesday! lol
I got my appointment yesterday to go back and see my breast surgeon on 29th March, which is the week before my final T cycle. I am keen to discuss the op as I have been reading a lot about my options here on the forum and want to know how many options are available to me. I am not happy about the idea of ending up lop sided as you say you are. I am hoping he'll give me a double MX for xosmetic reasons, and that he may consider a natural reconstruction, using excess fat from my tummy area for a more natural look. Don;'t fancy silicon implants if I can help it. Also the natural recon can be done at the same time as the MX because the fat won;'t be harmed by the radiotherapy which is to follow. Sounds good to me. Just need to talk him into it!
Anyway, enough for now. i'll talk to you again soon x
There don't seem to be many people on here from from this part of the world.
Hi, my name is Sue, I'm 48 and live in Biddenden, so not a million miles away.
I am currently having neo-adjuvant chemo (today is my fifth session) - I am also on FEC-T - the same regime as you.
I am due to have a mastecomy and lymph node clearance in early May, then later on I have to have 15 sessions of radiotherapy, then Tamoxifen, so very similar story to yours, only not so far down the line.
If you are still around to read this, I'd love to meet up at some point - maybe meeting half way? Probably not till April though, when I have finished my chemo, as I have not been driving very far throughout this ordeal.
Hope to hear from you soon.
Hi, I am 43, diagnosed 2 years ago. Had neo-adjuvent chemo ( 3 FEC, 3 docitaxol), then partial mastectomy and mastoplexy, then 4 weeks of rads. Now on tamoxifen. Would love to meet other s in this area for Coffee and catch up!