benign Phyllodes tumour

[LFaye]

Hi Jenna,

I had a malignant phyllodes tumour last year, glad to hear yours is benign! There is a support group on Facebook which is so helpful. Just search for 'phyllodes support group'

Hope to chat there

Lauren xx

[BonitaE_BCC]

Hi jen1985,

I'm sorry to see you haven't received a response yet and I am sure other users who have experienced Phyllodes tumour will be along to share their experiences soon.

In the meantime you might find this article helpful: https://www.breastcancercare.org.uk/information-support/have-i-got-breast-cancer/benign-breast-condi...

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/diagnosed-breast-cancer...

Or feel free to use our helpline service.

Best wishes,

Bonita

[jen1985]

Hi there,

Just seeing if anyone has any personal experience with Phyllodes tumour? I have had the lump for around 6 years and was originally diagnosed as a fibroadenoma. As it has grown recently they carried out a biopsy and determined it was a fibroadenoma.
I decided to have the lump removed and have just been for results today. They explained that it is in fact a rare benign phyllodes tumour. I have to have more surgery to achieve clear margins to make sure it is all removed.

Struggling to find much information on the Internet and would be good to hear from anyone that has experience with this tumour. I am relieved it is benign but also worry about reocurrance.

Many thanks

Jenna