73.4K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

brain mets and radiotherapy

11 REPLIES 11
SDP
Member

Re: brain mets and radiotherapy

goodness really? I literally do not have a hair left on my head .. I didn't know it was even possible to be this bald and I've had chemo twice!  I'm still really really tired and getting quite alot of headaches but they said this would happen for a few weeks after treatment stopped as it carries on working.  Don't get scanned for ages as they wait for the swelling to go down .. really nervous it hasn't worked as can still feel something behind my eye. I look like I have chronic sunburn and my forehead and scalp is just peeling for England!

skelts
Member

Re: brain mets and radiotherapy

Hi glad treatment finished , I didnt feel that tired really, hair is weird ,some come out but still got all over hair ,just going to see how it goes .

 

I have appt with oncologist week after next, was told swelling would have gone done by then. A bit worried what happens next ,i suppose a scan to see whats what?

 

Do you know what is happening with you?

 

Any way take Care, Hugs Carolx

SueCheshire
Member

Re: brain mets and radiotherapy

I've had 5 WBR, 10days ago. I'm still in in hospital because I live on my own and my friend is away. Hair all falling out, going to get it shaved off. Friend back tues night so expecting to get out Wed.

Mileytom
Member

Re: brain mets and radiotherapy

Hi I finished wbr two weeks ago you will be fine just get plenty of rest, you won't really feel the fatigue until you finish just read your body my hair only started coming out when I finished plenty of e45 cream for your head lots of love and hugs xxx
Princesspea
Member

Re: brain mets and radiotherapy

I start on Monday so anything you can share on your experiences so far would be brilliant. Good luck xxx
skelts
Member

Re: brain mets and radiotherapy

Hope u do ok , had 2 treatments now not too bad,just counting the days off

SDP
Member

Re: brain mets and radiotherapy

I am starting treatment on Wednesday! Getting my mask made tomorrow ... yuck!

skelts
Member

Re: brain mets and radiotherapy

Starting treatment Thursday. Has your s started

skelts
Member

Re: brain mets and radiotherapy

I a due to start treatment end of next week

Olives
Member

Re: brain mets and radiotherapy

Hi both. I was diagnosed with a secondary brain tumour in Feb this year. I had one tumour 1.9 cm in left temporal lobe. I was lucky in that they managed to remove it by craniotomy and as they didn't see any more mets they have taken a watch and wait approach with me. I am off for third follow up CT and MRI scans this pm. So I don't have much I can say about radiotherapy I'm afraid. I do know there is another lady who did have radio fairly recently and as I recall the side effects were not too bad. Her post may have been bumped, if not I will try and find it for you. You could always pm her as sometimes users do not always check forum that often. There are a few of us about still going strong. Sending positive vibres. Sarah
SDP
Member

Re: brain mets and radiotherapy

Thats exactly the same as me!  Not finding alot of people with any experiences to report! Do you know when you start?  They said within 2 weeks to me so it sounds like we may be doing this at a very similar time!

skelts
Member

brain mets and radiotherapy

Hi have been told i will have 10 sessions of radiotherapy over a two week period. Very scared as i guess its the unknown,. IF anyone can give me any advise really gratefull