Thinking of you both, M1yu and Nancy as you approach this next stage of treatment.
I can understand your fears Nancy but maybe speaking more here on the forum, or with your BCN or a support group might help allay your deep fears regarding infection whilst living a normal life.
M1yu and BCC have given you good advice so I'm hoping in time you'll be able to make the next step....
Sending you my very best wishes whilst you are so worried.
M1yu, I do hope your treatment continues to support your recovery too.
thanks for advice on xeolada but anymore woulb be gratfully received.can you go and do a normal supermarket shop or go into the town. i am so hyper now about infetion that i havent been out of the house except to a secluded beach with my dogs. am using cream for my hands and feet but dont understand what the symptoms are likely to be.also i was due to fly to london to a wedding that my daughter is taking part in and now i feel i cant go. help!
Sorry to read your news and just wanted to say that our helpliners are here to offer you support and a listening ear if you need one, they can also talk to you about other support services BCC can offer you, the lines are open 9-5 weekdays and 9-2 Sat on 0808 800 6000.
Localised is relatively "good" news. Having permanent chemo is not so good.
Xeloda doesn't usually affect the blood count. So, I don't think infection would be a problem. However, tiredness and the hand and feet problem are! There is a cream called Utterly Smooth cream and other types of creams which will help a lot with the later.
I'm starting my 3rd cycle tomorrow and my blood count is more or less what it was before I started. If you search for "xeloda" or "capecitabine", you will find plenty of info on this forum. There were also talks about a reduced dose for my 4th cycle (yey!). Also the option of having a few months break if you are struggling with side effects. If you have any questions, there are a few of us on it for a while or just starting it like me, I'm sure if we see your post, we can all help.
Take care and hope it works for you.
hi havent been on here for a while. found more tumours in my arm in july. had hoped the surgeon could remove them but they have decided that not an option. cancer is still localised but have now been put on xeloda which could be a permanent thing. would love to hear from anyone in a similar situation. not coping tooo well at the minute because i feel my life will now have to be planned like a military operation to avoid infection as best as possible. sorry for moaning but any pratical tips would be so helpful. thank you
back home with a whopping big scar. was sick this time which has never happened me before but the staff on the ward were so nice and did everything to make me feel more comfortable. gettting staples out on tuesday and then have to wait for results. dont like playing this waiting game. i couldnt wait to get back on the forum to see how you all were. sending you thanks and lots of hugs to you all OOOOOOO
mine came up as a lump. cant advice on how else it can manifest itself but if you are worried pester your cancer team. peace of mind is so important. you take care xxx
What does local recurrance look like? My scar line has became a bit red and sore again. I have an itch at the end of it which is also red. Spoke with my nurse today and she said just to keep an eye on it. The least wee thing makes me worry, but with having TNBC i am aware of the high risk factors with recurrence. Just had Mastectomy 1st March, no node involvement. However grade 3. I think I recall reading on the site someones recurrence was a rash around they scar. Can anyone help?
Really sorry I didn't include you Helen in my previous posting...
Trying to scan/read too quickly!
Really so very unfair to go through this for the third time!
Good to know you are now receiving more attention now but how awful that you felt so poorly...
Do hope today's 'high' can be repeated many times so you can feel more like your real self again. Feeling 'absolutely brilliant' is what you deserve...
Good luck and enjoy the weekend.
Welsh girl xx
Wishing you lots of luck.
I didn't seem to be getting much support to start with,but I have been really poorly with the EC chemo and people started to notice me then! I am going to a day care centre next week where there will be people who I can talk to.
My family are absolutely fantastic but I do tend to hide my feelings from them most of the time.
I had my 2nd docetaxol yesterday and I feel absolutely brilliant today,just hope I don't get too many side effects.
Nancy good luck with your op i hope it goes well.... im a second timer..... and felt bloody unlucky at that so i feel so much for you and helen having it for a 3rd time.
love and hugs xx
Wishing you well for tomorrow.
I can only imagine how dreadful this time has been for you.
I am wishing you well and hoping once you begin the physical journey of recovery your emotional recuperation/strength will return.
Easy words to say from someone who's only been through this once but I really hope you can get through this third episode.
This is just so unfair.
When you are able it would be wonderful to hear how you are faring...
I'm sure tonight won't be an easy one for you...
Very positive thoughts winging your way from Kent.
Welsh girl x
hi helen. sorry to hear about your third time diagnosis. cancer sucks. it is so hard to be upbeat at times. i just finished chemo and radiotherapy 1 week before xmas so this has been such a shock. i belong to a breast care support group and they arrived out to see me unexpectedly. some of them have secondaries another is a second timer on herceptin. they are such a inspiration. do you have anyone to talk to like that?. i wish you very best and probably wont be on for a few days cause surgery tomorrow. so all the very best and hope to chat again soon.xx
I just wanted to say I am thinking of you.
I am also going through this for a third time,I had it in 2002,2006 and Dec 2010.I have been feeling very down about this time but trying to be strong for my family.
Thankfully it hadn't spread and I had surgery before Christmas.Today I have been for my 5th lot of chemo,only 1 more to go!(can't wait). I'm also going to have herceptin for a year and maybe tamoxofen.
Take care xx
thsnk you gingerbud and all encouraging words from all
Best of luck for Friday- good to hear that your problems are 'only' local- still a nightmare as I know only too well, but a huge relef for you to hear your vitals are ok 🙂
you can do this! X
surgery friday one year and a day from the last operation
Thinking of you, I hope you are able to get your treatment started soon.
Thanks for letting us know - this sounds like your hospital is sorting things out quickly for you.
Enjoy your night out
hi got word today cancer has not spread to major organs although breast care nurse tells me that the cancer has spread further in the localised area than the surgeon had thought. she tells me he is hoping to be able to remove it. while i am delighted it has not spread to the major organs i am still in bits. going to go out with my family tonight to the cinema. they are fab and so patient with me.
Don't beat yourself up about not coping with this AGAIN. It's so bloody hard. As saffronseed told you, i'm also a third timer and i also felt i could'nt cope with it, 3 years later i am getting on with life and though i still have my manic moments, when i feel it all building up in me i have learn't to take the time for a deep breath and every now and then a few tears. I also decided enough was enough and asked for helped. I spoke to my bcn who put me in touch with a cancer psycologist who helps with the stress and the emotional scars that we don't realise are left behind after a dx.Hope this helps a little.
thanks to all that have left me comments.
still feeling very low and finding it hard even to do everyday small tasks. I am hiding away from people i suppose even some of my good friends. I burst into tears at the drop of a hat. It is as if i have given up already and i definitely dont feel ready to leave my brilliant family. I am so annoyed with myself for not coping with this better
thinking of you.
My counsellor has had bc three times and is fine. Her first two were 15 years apart, the third was close after the second, but that was five years ago now. Hope your treatment goes well. Debx
thanks so much ladies. i found my local recurrence under my arm it just felt like a golf ball size lump which my surgeon drained and found cells in. the same has happened again the lump is down from my arm pit on the inner side of my arm. i just cant understand that the chemo and radiotherapy have made no difference. it makes me think it is so aggressive that nothing will stop it
Hi, just wanted to say what awful news for you. I had dcis left breast 2006 with mastectomy and now invasive ductal cancer right breast with mastectomy this year so even I feel at times its determined to get me so with 3 diagnoses you must be a million times worse. I am being a bit thick now though when I ask if you had mastectomy in 2005 how did the lumps manifest themselves without any breast tissue? Along the scar line I would guess, I would really like to know if you dont mind posting as then we'd all know what to look for. Thanks Rachel
Hi Nancy - my friend (who I 'met' on here) 'Sway' has had primary cancer three times too. I am sure she will come on soon and tell you herself - she has gone through one WLE and two MX's and grilling radiotheropy too. She won't mind me saying that she has come out the other end now and I know how hard it has been for her to get through it all - she has though - and she is fit, well, a lovely sense of humour and in a really positive place.
There is support on this site from lovely ladies and BCC hold some wonderful events that are worth going to - I know from talking to 'Sway' - the physical part of three diagnosis's is very hard but the mental and emotional torture is worse - she is campaigning hard to get more emotional support from NHS to all ladies diagnosed - particularly those with re occurances. x
I am sorry to read that you are having such a difficult time at the moment, please feel free to call our helpline for further support on 0808 800 6000, the lines are open 9-5 in the week and 9-2 Saturday and our team are here for you
thanks girls for replying to me. your messages are so much appreciated. xxx all cancer on the same side but i dont know if it has spread to liver or bones etc.
Just to say that I'm thinking of you - what a difficult situation to cope with; no wonder you are feeling so "all over the place". It's good that you have a treatment plan mapped out and that it's starting very quickly with a date for the surgery. I hope that with time you will gain confidence that yet again your cancer can be treated but this will probably take you time - I know it would with me...
Sending you a big hug and hopes for the future
Do keep in touch
Sorry, I have no advise, but if you did it once, and you did it again, you can do it a 3rd time.
Goodness me it is so unfair for you. Has it been in the same breast each time ?
I have had it twice (2003 and 2010) and just getting over the 2nd time, I would hate to be starting over again. Just as before, it is one step at a time, one day at a time. You can share all you feel on the forums, you will find plenty of support here.
All the very best to you
first had cancer in 2005. had a mastectomey reconstruction fec chemotherapy and radiotherapy. the cancer was oestragen positive so i was on tamoxifen. then in 2010 i had a local recurrence this time oestragen negative. the oncologist left the decision to me as to wether i had chemotherapy. so i decided to go ahead with it this time 5 sessions of taxotere and then more radiotherapy which i finished just before christmas. on the 31st of march i have discovered another lump near to the last one. i have had a ct scan on monday past no results yet and i am going in for surgery on the 22nd of april. i am so frightened and feel so hopeless. i already feel i am on a death sentence.i feel i cant come to terms with this any advice. nancyb