When i said it may be up for discusssion. As other have pointed out the usual practice is Herceptin only given with Chemo but some places will do just one Chemo to start and then continue with Herceptin (very rare).
The general concensus from other forum users seems to be suggesting you have everything offered.
Wishing you well with your treatment. It is always tough when they give us a choice / offer discussion.
Take Care Gilly x
Hi angel, Am wishing you well and all the best,so many desisions for us all the time for us to make on this journey. Thank you for your answers and i hope you can decide soon as to what to do..xx
I assume as Her 2+ it has been recommended that you have Herceptin, in which case my understanding is that it has to be administered with Chemo but that may be up for discussion depending on where you are receiving treatment.
Wishing you well in your decisions and further treatment.
Take Care Gilly x
Evening Debs and Angel
Debs i am also a bit confused. Like you i think it is not 4% chance but that the Chemo adds an additional 4% to the original %. It all takes a lot of 'getting your head around'.
Angel is there an opportunity for you to go back and discuss again with Oncologist or Breast Care Nurse to get a clearer picture before you have to make the decision.
Hope you are able to get all the information to help you make the right decision for you.
Take Care Gilly x
Hi Angel,my oncologist put a percentage chart in front of me based on my type of cancer and my age etc. It showed me how i would do with no treatment at all and then how i would do on chemo then rads then heceptin etc. for me personally my percentages were much higher and better the more treatment i had. Maybe you could ask for one of these print outs to help you make up your mind? Only you can make the decision,hope you find your answers,all the best.
sorry to hear of your diagnosis
They would not offer the chemo if they felt it was not beneficial. Like Lucy said the herceptin is usually only given if you have chemo
Every ones journey is different.....the worse part for me is the hair loss; but I bought 2 wigs identical to my hair (highlights and all) and wore it before I lost my hair to see peoples reaction.....which was "No idea" I now feel confident wearing my wig.
We are given excellent antisickness medication and any side effects are well controlled....... the first 6 days are when you feel most groggy.....but after that you start to feel better......
I would personally take the chemo to ensure I had done everything to achieve a cure. Your hair will grow back........ You could try the cold cap in an attempt to maintain your hair
I hope you make the right choice for you xxx
Best wishes Donna
I'm so sorry your results weren't what you were hoping for. I turned down chemo based on the very small percentage increase it gave me - I was very borderline as to whether I would be offered it or not. I went on to have 20 sessions of radio and now on tamoxifen.
My understanding is that you must be Her2 + as you will be having Herceptin? Herceptin is only licensed to be given in conjuction with chemo which is a bit daft as you can be Her2+ without really needing the chemo bit of the treatment. While I was waiting for my Her2 result, my BCN told me that IF it came back positive (which it didn't), it was very important that I have the herceptin and that they can often get round the system by giving it with a single dose of chemo and then discontinuing the chemo but carry on with the herceptin - it seems odd but she said that's how the system works! I don't know if this is the same scenario for you but worth asking. Are they only giving you chemo because of the herceptin or would they be offering it to you even if you were Her2-?
But if you do decide to have chemo, you WILL get through it. You may find with that particular mix of drugs, you don't lose all of your hair - many women on the fec-T chemo say their hair starts growing back once they start the taxotere so this is also something you can ask about. You may also be one of the lucky people who don't feel ill, the only side effect my best friend had from chemo was hair loss - she was never once sick or ill and worked full time throughout... and her hair grew back.
It's a HUGE decision and ultimately one that only you can make (I didn't even tell my family I was offered chemo as I wanted it to be MY decision and for them not to 'guilt trip' me into it!). Speak to as many people as you can (the helpline here, your BCN, ask for another appointment with your onc for more information)
Wishing you all the very best for your journey
hi all. i got offered chemo and im unsure whether to go with it because of the hair loss side and the fact i read it makes u feel poorly .. has anybody elsed been offered chemo and turned it down ? if so what other treatment are u having .. i was told 4 sessions of chemo with hercepin injections every 3 weeks and 6 weeks of radiotheraphy and 5 years of tamoxifen x please give me some advice x