I also have BC and Crohns. I had to stop taking azathioprine before my surgery due to the lowered immune system. I am seeing my consultant in a couple of weeks. My hemicolectomy was in 1986 so t was a while ago. My chemo started this month. So far the anti sickness drugs have slowed down the diarrhoea which has been a bonus. I do have a little more Crohns pain but nothing I can't deal with. Hope this helps
Hi ..Thank you so much for getting in touch ..my communication may be patchy as my surgery is on Tuesday ..I feel relatively calm ..not like its the first body altering surgery i have had ..and like you we already know what a life on drugs and various side effects already feels like!..what stage are you at ?...are you starting chemo?..would love to know how our damaged wee bodies are going to cope with that cocktail!!...GOOD LUCK..and if you come accross any pearls of wisdom regarding coping i would LOVE to hear them..x
I am new to the world of forums but this is much needed advice . I have HLA B27 in all its glory with an ileostomy for my crohns done in 1993 (23 years ago). Despite being on Mecaptorpurine and nabumetone i have had flare ups and more surgery (2014) ..I have now been diagnosed with breast cancer ( lucky me!) and am due to have a mastectomy this week followed by hormone therapy and chemo ..which combination is yet to be decided..Does anyone else have any experience of dealing with all this and how best to protect from dehydration etc during treatment . I do have fantastic consultants that TALK to each other but could really do with anyone who has has a similiar experience...any input would so gratefully be received..
Welcome to the forums. I'm sorry to hear of your diagnosis, this must be a very difficult time for you.
As well as the support you will receive on the forums you might find it helpful to talk things through with one of the helpline staff, they are there to offer emotional support as well as provide information. The free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.
Has anyone experience of undergoing chemotherapy with Crohns Disease ???? I am due to start chemotherapy early March, seeing Oncologist 23rd February. Just curious to know if anyone on here can lend support or advice.
I am well cared for both by breast unit, oncology & GASTRO as have gone down as a complex case but just curious if anyone on here has been through it ?