i am much further on than you two ladies. Found a lump, 6 weeks later lumpectomy and 3 lymph nodes biopsy on 22 May. Then today got my results, got the lot, cancer free! May need chemo as I can't take tablets and definitely will need 3 weeks of radiotherapy. Was allocated a breast cancer nurse who helped a lot, especially after the biopsy as - to me - the lump got bigger - no one told me that after a biopsy it would get bigger as it had been blasted with a large needle!
Anyway, good luck ladies, you will all be fine, positive thoughts and keep listening and learning, ask loads of questions
Good luck MANDY THE SLAYER (of cancer)
I am new to this too, I fully understand what you are going through and the thoughts going round in your head which won’t leave you alone.
Try to make a list of things that you want to ask your specialist before your appointment on Wednesday, I have found that the team at my clinic are always happy to answer as many questions as I have – no matter how random. Ask somebody to go with you for support, and ask them if they can take notes for you.
If you are allocated a breast care nurse she will be a big source of help and support for you - mine went through all of my results with me and filled in the gaps from the previous appointment when I had been numb with shock.
I hope you get some good news on Wednesday - the specialist will give you the results from your biopsy and tell you the treatment options that are available to you. If I can help in any way let me know, I am a few weeks ahead of you in this so I might be able to pass on advice or information. I have been given a surgery date of 30th June – which is my 14th wedding anniversary!
Big hugs to you and everyone here – this forum is brilliant and you ladies are so strong and supportive, I hope I can help others in some way too xx
Hi everyone I am new to this sort of site/forum. I was only recalled for 2nd mamogram last week and am still in shock at what I was told--- I had some calcifications that had changed since last mamogram? No one told me anything at that time. I remember the specialist telling me that I would need a biopsy the only way to see what type of calcifications they are. It is all a haze really. I was due to have the biopsy there and then but due to blood thinning medication I had to have blood test for INR? They rang me before 9am next day to go in for biopsy. I cant say the procedure was pleasant just uncomfortable but it has to be done. They did it with Xray/Computer and put a spacer in? They showed me about 5 samples in the bottle before it went off for examination. I think the young lady who did the biopsy said it is DCIS (insitu I remember hearing)
Do I sound really thick for not listening I have never been so sick in my life I never thought this would happen to me as I have just gone through knee replacement in last 12 months and heart bypass surgery 4 years and am still not good, had to have ballon stenting 9 weeks ago, I feel such a mess as if I am crumbling all at once and not here for long!
I get my results on Wednesday 10th June (my sons birthday) I got my bad news on Monday 1st June our Wedding Anniversary after a good weekend away for my husbands 70th Birthday. I cant get it out of my head I feel so deflated if thats the right word. What might I hear from the Specialist on Wednesday??
Just want to say having tried to find my way round this site and reading all the messages I wish you all the best whatever everyone is going through its true yu never really understand enless it has happened to you! now I know how you all must have initally felt.
I too was unable to have a lumpectomy because of the large area of DCIS. I agree with your statement "For anyone facing this dilemma in the future I would always advise try the lumpectomy route firstly as a mastectomy is such a drastic step especially for a non invasive cancer."
This journey we are on has several routes but its the determination to reach our destination and get off the train that will always be our focus.
Hope you are well.
Hugs Dee xx
Thinking of you. Hope you are taking it easy after your surgery. I look forward to hearing from you when you feel up to it. Take care of yourself. Here for you if you need me.
Massive hugs Dee xx
Sorry to be so late replying.
I see you are due surgery today and wanted to wish you good luck 🙂
I had a similar dilemma and really didn't want to lose my breast for a non invasive cancer. I did end up with three surgeries due to dcis being in the margins, but I am glad I stuck with my choice and didn't go with what the surgeon wanted. The dcis has been fully removed and my breast is in pretty good shape, just slightly smaller and of course with a scar, that is fading nicely.
As my bcn said once you have a mastectomy there is no going back, so if you are unsure it is best to go with the least surgery possible.
Best wishes for a quick recovery.
Any type of surgery is such a personal decision. We have to do what we feel is right for us, bearing in mind that what may be right for one person may not be right for another. Procedures offered to one person may not be appropriate for another person.
This is a journey that none of us would willingly go on but unfortunately none of us have a choice.
Here to help and I agree with taking each day as it comes.
Hope you had a chance to phone the breast care nurse. They are very helpful and supportive. To keep changing your mind swinging from left to right is understandable, you have a life changing decision to make and can only do what you feel is right at the time you make that decision. I totally understand your biggest fear. I know its hard but don't despair. There is so much advice and support that you can acquire from your Breast Care Team and so much support from these forums.
I have walked in your shoes and am still on my journey if your asking me if it has always been easy then the answer is no but if you ask if it's been worth it then the answer is yes.
You will get there ... take each day and each step as it comes. Here if you need me.
Hi Kabry 63
A lot depends on the size of the area affected by dcis. Your decision to have the area removed was what you felt was the right decision when you made it. If you are now unsure phone the Breast Care Nurses and have a chat with them. Dont panic it really is a hard decision to make in a limited amount of time. Good luck in whatever you decide and I am here if you need to talk.
Best wishes Dee
Welcome to the forums, you've come to the right place for support as the users of this site have a wealth of experience and knowledge between them.
If you would like to talk to someone in confidence you may like to phone our helpline where you can talk to a member of staff who are there to support you. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
We also have a service whereby you can talk to a volunteer by phone or email who has been through a similar situation as yourself, this is called 'Someone Like Me' , here is a link to the sevice if you would like more details. http://www.breastcancercare.org.uk/breast-cancer-services/someone-talk/one-one-support.