It's been 5 months more or less since surgery and it is as if I was never diagnosed. I don't consider I ever had cancer this I think is bad. Basically as it was all removed and no further treatment the doors were shut for 12 months until follow up.
It will all depend on the size of your DCIS - if removing just that area would disfigure you - then they will recommend a MX.. If it will not leave you disfigured and they can get a clear margin then you will be offered a lumpectomy with radiotherapy. It is very much a whirlwind time when you are first diagnosed and it feels like it is all out of your control, once you have seen a surgeon I hope you will feel a bit more in control and know what you are dealing with. Good luck and let us know how you get on.
I have a knitted knocker.. they are brilliant.There is a Uk branch for the site.I wear it in the house sometimes if I know the delivery is due.... hate it when I am stared at
In my case from routine first mammogram recall biopsy and diagnosis was 12 days..... 3days later I was on the table. It's like a whirlwind..... your emotions are all over the place.you are bruised battered and not in control, you dont know what will happen next ....
Then you are expected to make descisions that will affect the rest of your life. No wonder you feel like you do.
I did not feel I gained control until after the surgery findings. Both then when you are clear the aftercare seems to stop.
I am at the hang on this is my body my decision stage. There is so much pressure reconstruct..... I say no.
I've had 2 WLEs and having MRI tomorrow to see if the margins can be seen, but don't think doc very hopeful of clear image.. so expecting MX to be on the cards. Like you say -how can I go from tiny hardly visible specks to this ? I thought I was fairly clued up but really had no idea that a a scattering of DCIS often ends up with the final solution. I'm too thinking that I won't have a recon, I had several months out of action last year with a broken ankle and expect that I'll need a hip repalcement before long, so the thought of more time recovering from bits being moved about and stiched on feels just too much.
So, hope you keep well and kind regards to Myrtle, thanks for taking the time to post -it makes such a difference to me to read what other women are thinking,
Have you come across Knitted Knockers, try the US site it's so generous and kind and a bit bonkers!
Hello. I am sitting at home after second biopsy and feeling very shaky. The first showed precancerous but the only person that told me the proper name was the radiologist today. DCIS. I am seeing a surgeon next week and all I can think of is my childhood fear of a mastectomy .....I don't know how I got from squishing, to recall to biopsy, second biopsy in three weeks.......you all sound so positive and brave but tell me is an 'my' always the only option? Thanks for being there in the ether
I too was the same as you. Dcis but in two areas of breast so my performed in Feb. I had mri to pick up second area as mammogram was not showing anything.
I m so glad I had my and have needed no treatment either.
I am going to discuss reconstruction in next appointment in Feb but will need reduction in other breast too. I am thinking of requesting mastectomy in other breast too to get rid of anxiety of developing there too. At least two then can be reconstructed and will look similar.
Hope you re doing well xxx
I was given no further option as the area affected was 6.5 cm, my consultant said that it would be too disfiguring to do anything other than a mastectomy. I was not offered any other investigations and was in 3 days later for the op as thyey had a space.
When the tissues were examined, I had an area of 16.5 cm affected.
I just wonder if they are too get in there and get it off rather than lets just wait and see for a couple of month to see if it has devloped further. Thanking back I went to my gp 4 years ago with a clear discharge fron this side. As I was doing quite alot of training at that time and had no family history I was told it was nothing to worry about, it was probably due to the treadmill. I wish I had pushed it further.
The good news is that I had no spread to nodes and need no further treatment. I have decided against reconstruciton, I have had enough and even though its only 8 weeks along the line I am quite happy with my prosthesis, called myrtle. But I will also go out without, I dont have an issue with being lobsided.. its them others!!!!
Yup, and me... how can this non invasive, caught early, itty bitty DCIS go from little calcified spots on a routine screening to an MX in a few weeks. I've gone for a second opinion and this surgeon is willing to give me an MRI to see if the margins can be shown, but ... so anyone had an MRI to search for DCIS margin?
I'm not holding any hopes that the MRI will be helpful, but maybe I'm being pessimistic.
Hello - like you I was diagnosed after my first mammogram - high grade 5cm dcis - no choice other than a MX, Diagnosed in Jan 14, Mx and Sentinel Node Biopsy Feb 14. I had immediate reconstruction with implant and dermal matrix, and have since had symmetry op and fat transfer, though I have not taken up the offer of the nipple reconstruction or tattoo so far. I do not imagine your surgeon would be suggesting MX if they did not think it was medically necessary, and until they can determine which cases of DCIS will NOT become invasive cancer I do not think there is much they can do but treat it.
I have an appointment tomorrow morning to plan my treatment but this time I am armed with questions and will not leave until I am happy with the information I have been given, unlike last week.
I know its still early days and I still need to get this clear in my head.
Thank you everyone for the support so far, you are life savers x
Hiya Kat, Sorry you have had to join us but we all try and support each other and I hope you will find the forum of some help too, the way you have described feeling is so normal in these circumstances, especially the bit about wanting to thump every well meaning person that tells you to be strong etc!! The thought that it will be every where is one we all have , the slightest twinge anywhere and we are convinced it has to be cancer! Am I right in thinking that you have been diagnosed with DCIS ? Xx Jo