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delays for oncology appointment

15 REPLIES 15
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Re: delays for oncology appointment

Thank you for your good wishes

Poppet xx
Member

Re: delays for oncology appointment

Good luck princessbear x
Member

Re: delays for oncology appointment

Thanks ladies for your good wishes and support. I will be sure to let you know the outcome of tomorrow. Xx

Member

Re: delays for oncology appointment

Hi Poppet

 

Good luck with your op tomorrow, hope all goes well

 

Jaye x

Member

Re: delays for oncology appointment

Hi Princessbear

 

Good luck with your results tomorrow.  I did similar to you, armed myself with all the senarios of no clear margins etc.  I think it helps to be prepared before you go.  What I can say is my consultant told me before the op that 1 in 20 had to have second op for unclear margins,  not 1 in 3, so those are better odds lol. 

I was lucky and my margins were clear by 6mm.

 

Jaye x

Member

Re: delays for oncology appointment

Hi Princessbear
I will be thinking about you tomorrow when you go for your results. Hope it is the news that you are hoping for. Please let us know how you get on. You know that whatever the result you will have everyones support on this forum.
Take Care
Angie. X
Member

Re: delays for oncology appointment

Hi Princessbear, I did  not achive clear margins but was described as inferior.  So three weeks after results was admitted to hospital and clear margins were achieved.  I think all in all the medics have clear guidelines and timescales so dont worry too much.  My lump had not grown within the six weeks of diagnosis to excision although very aggressive cancer.  What I did ask at the re excision was that I did not have to wait until I saw surgeon for results before oncology referral.  So I actually saw surgeon one day followed next day by oncology about three weeks after re excision.  I have also met other ladies who had started their target treatment and were called back for further surgey.  Everyone is different so dont get caught up in other ladies situation as yours will be very different.  Good luck and try not to worry too much.  There are good treatments availalble.

 

Member

Re: delays for oncology appointment

I have been trying to arm myself with as much information as possible in preparation for whatever they might tell me tomorrow, so that whatever the news I am able to deal with it better, I don't know how much it will help. Feel convinced at the moment that they won't have got clear margins and I will have to go under the knife again. If this is the case does anyone know how quickly they do the second op and if you have to have the wire again? Trying to positive but when you read that 1 in 3 women don't have clear margins then I don't feel like the odds are in my favour...they certainly haven't been so far! Sorry if this is  bit of a negative post, the waiting is seriously messing with my brain!

Good luck poppet for your op tomorrow. I was worried about mine but found that it wasn't as bad as I had feared. Will be thinking of you.

Xxpb

Member

Re: delays for oncology appointment

Hi

Yes March and April have gone by in a whirl.
It is good that you already have an appointment for results, I hope they have all the info they need for your treatment plan.
I was unaware that if you had a drain after the op it indicated lymph node involvement, learn something every day.
All the very best for tomorrow, positive thoughts eh?
Let me know how you get on.

Wendy xxx
Member

Re: delays for oncology appointment

Hi Wendy

So sorry you are being kept waiting for results. Can only imagine what this is doing to your stress levels.

I go in for my WLE and SNB tomorrow and I am seriously freaking out! I got my appt for results when I went for my pre-op last week. It is for 9 May so just a week after op. I am assuming I will get all results then? Slightly worried now that it will be delayed or not all info will be ready.

I am already in a state as the first thing I will be checking when I come round after op is if I have a drain - obviously I will then know that it has spread to lymph nodes. Driving me crazy the not knowing.

I hope you can stay calm and the time passes quickly until you get results. We seem to be wishing the days away don't we!

Take care.

Best wishes
Poppet xxxx
Member

Re: delays for oncology appointment

Good Luck to everyone awaiting results....then onwards and upwards to treatment and recovery 🙂 xx Ruth xx

Member

Re: delays for oncology appointment

Hi

Sorry to hear you are both waiting a while for your results, the waiting is awful isn't it and the nearer it gets the less I found I could sleep at night.    I had to wait 18 days for my results in March.

 

Good luck

 

Jaye x

Member

Re: delays for oncology appointment

Thanks Lucy/PB

Just being able to write it down on here and get a response makes it feel a little better.

 

Yes pb, how could you forget!

 

All the best for your results on Friday, i will be thinking about you xx

Member

Re: delays for oncology appointment

Hi Wendy,

I am so sorry to hear that you have to wait so long for your results. Its really hard isn't it? I had my wle on Tuesday 15th April. Originally when seeing the surgeon about my op she said I would come back to see her today..the 30th. The hospital have told me that all results come back from pathology on a wednesday and they hold a big meeting early in the morning to discuss each case. When I went in for my op I was told I would get an appointment time in the post for Friday 2nd. This week is going so dreadfully slowly and although after the op my sleep had improved I am now back to sleepless nights and lying awake thinking all manor of things. I know whay you mean about second guessing every ache and pain, so I completely understand how you are feeling and now to be told there is a further delay...well you just wonder how you will get through each day don't you.

I would take them up on whatever they offer...I have had reiki before and it was very relaxing!

I hope you don't have to wait too long. I got a NHS text reminder today...don't forget your appointment on Friday at 2.30. Oh the irony! Forget!? Its all consuming and all I can think about.

Take care and fingers crossed for you.

Xxpb

Member

Re: delays for oncology appointment

Hi Wendy

 

I am so sorry you are having to wait so long for your results, anyone in this situation knows that the waiting is torturous. I have no advice other than to take them up on whatever they offer to help reduce your stress levels.

 

Sending lots of hugs xx

Member

delays for oncology appointment

I had WLE and SNB on 14th April after diagnosis of invasive ductal carcinoma grade 2.

 

I have spoken to BN today and she says that due to bank holidays and workload my results will not be discussed by the team until at least next Tuesday, with an appointment to discuss after that.

 

I have read that a lot of women get their results quite quickly.

 

The delays are driving me mad, and i am experiencing all sorts of aches and pains which is making me terrified the cancer has spread!

 

The BC is going to book me some reiki sessions, has anyone else experienced long wait for oncology appointments, or received reiki treatments?

 

I feel so stressed at the moment, i thought i was doing well but now feel like i am on slippery slope into despair.

 

Wendy x