Sorry for the late reply; I've been enjoying a wet and windy few days in Tenby.
The earache seems to come on in the afternoon, just a twinge, and then is more permanent through
the evening. It doesn't stop me from sleeping though.
I have had mild earache after Denosumab, but it goes off after about a week or so.
I think the problems I had with it before were that it doesn't mix that well with certain parts of FEC chemotherpay (drug interaciton checker website).
My last jab after chemo. I had no problems at all (apart from the earache).
Hi there ladies
My cancer has progressed to sternum and sacroilliac. Onc suggests I try elirubin IV as my last oral chemo has stopped working.
I couldn't help noticing bc lass that you have mistletoe injections? Is that something that is offered by oncologist?
Thanks Ethel - I was a bit achey yesterday after the injection but I had had my mistletoe injection the day before and usually achey after that anyway. Feeling a bit better today though. Will the densubomab reduce pain? I take ibuprofen or paracetamol sometimes at the moment. Pain seems worse at night for some reason, do you find that?
Good luck with your denosumab tomorrow bc-lass. I have had 21 of the injections so far & luckily no side effects. Just feel a bit more tired that day.
Updated 16/10/14 - After checking on a drug interaction website it appears that Denosumab does not mix well with parts of FEC chemotherapy. Injection after chemo finished had no problems apart from mild earache.
I think I am a bit of an exception to the rule.
I had my first jab and didn't really know that I'd had it. Second jab slight backache/stomache pain (thought it was the AdCal) two days after. Third jab, after two days fairly bad lower back and stomache pain for about 2 days. Fourth jab really bad back pain and not so bad stomach pain started two days after for about 5 days then went. I was quite breathless too, but as I had recently had a cold it's difficult to know.
I have been on FEC chemo as well for three of these jabs so that might make a difference. My onc has given me some painkillers and suggested changing to a bisphosphonate immediately but I want to try once more to see if it gets better.
I know from the nurse that most women don't have a problem with it.
This booklet was quite useful