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diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

6 REPLIES 6
patricia4
Member

Re: diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Many thanks for you kind thoughts

 

Yes my leg has at last healed.

 

I ended up going to A & E last night as some of the swelling had hardened under my arm and I was worried about a seroma forming.

 

6 hours and not much help, but no infection, I am much better this afternoon, but it is still sore under my arm and underneath the mastecomy scar, but a lot of the swelling as gone down. 

 

i am going for my first physio appt tomorrow, at the same hospital where the breast care team are, so it it is still swollen, i will try and see the nurse there.


I have my apointment with the surgeon on the 14th for the results, fingers crossed, I am worried, as the amount of pain that I have had in my breasts since diagnosis is worrying.   Also need to push for the biopsy in neck to be done, hopefully that will just be a thyroid problem.




The post mastecomy bra given by the hospital is rubbing to much so havent worn a bra for a couple of days, hoping the skin can recover.

 

Dee-Jay
Member

Re: diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Hi Paricia4 you have been through so much. I hope you are resting and taking it easy after your surgery. You have had a lot of decisions to make regarding surgery and that in itself can be mentally tiring. Hopefully the lump in your neck is biosied as soon as possible. Hope your leg is healing or has healed. Thinking of you.

Dee

CelticK
Member

Re: diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Thinking of you, sounds like you've been through a lot. Xx
patricia4
Member

Re: diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Its still been a bit of a rollercoaster as on the thursday of easter good friday found a lump in neck, it had been there for a few weeks but was getting better, and been to the doctors several times about it, but they put it down to anxiety.

Saw the oncologist on the thursday who wanted me to have a scan straight away, it turns out to be a growth on the thyroid of about 3cms, they said it didnt show the normal signs of being a cancerous growth and could be the clixsane feed the growth.

To go ahead with the mastecomy which I have had on Tuesday.   I am black and blue, it looks awful, I think I have had a lot of bleeding because of the clexsane.  The fluid is loose on the mastecomy side and that is okay.  Its the other boom that is black and painful.

Its such a relief to have the operation, I will being going back in two weeks for the results, I have mentioned to them again about the possiblility of a double matecomy, because my reconstruction route keeps changing, I would rather have the other boob done, and then reconstructed later. 

Now need to get the lump in the neck biopsyed, hopefully that will be in the next few weeks too, as the uncertainty is driving me crazy, it has been a very hard time, as from being diagnosed to mastecomy has been 12 weeks, which is far to long to have the cancer there.  Fingers crossed things are okay.

 

patricia4
Member

Re: diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Saw my consultant who ensures me that im on the right path, will scan again in a month to see if anychanges, if tamoxifen hasnt helped then mastecomy route.

 

 

 

 

 

I now think i might have a dvt, on clixsane, seeing dvt clinic on monday.

I also now have terrible leg and knee pain, can this be dvt or just the tamoxifen side effects. The knee feels like a ligament tear.

 

I am so worried, need to chat with someone, as alltough family arewonderful they dont understand the fears.

 

 

 

Sam_BCC
Member

Re: diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Hi patricia4

 

Welcome to the BCC forums, it sounds like you're going through a really tough time at the moment.  I'm sure some of the other users will be a long soon to offer your their experiences and support.

 

In the meantime you might find it helpful to order the BCC resources pack.  It has been specifically designed for those newly diagnosed and contains information to help you have a bestter understanding of your diagnosis, test results and treatments available. If you sould like to order a copy just follow the link below:-
 
http://www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early...


Also, if you want to talk things through do give the helpline a call on 0808 800 6000.  Here you can share all your concerns with someoen who will offer you a listening ear as well as emotional support and practical information.  Lines are open weekdays 9 to 5pm and Saturday 10 to 2pm.

 
Best wishes Sam, BCC Facilitator

 

patricia4
Member

diagnosed with grade 3 invasive DCI and other DCIS like small grains of rice in a cluster.

Hello I was diagnosed 4 weeks ago with grade 3 invasive DCI and a cluster of about 20 small flexs of cancer, so was offered a mastecomy, DIEP reconstruction and reduction on other breast.

I have since had a sentinel biopsy and the nodes came back clear 2 weeks ago.

I have the complexation of a leg wound that is open and not recovered and infected.  On seeing the anaesthist and plastic surgeon last week they decided to cancel operation.  Mastecomy only at original hospital.  On seeing my surgeon he offered for me to have a second plastic surgeon opinion, but this will take a few weeks, and in both our opionions we know that we have a very good plastic surgeon and that is why he recommended me to him in the first place.

I was told that i could have reconstruction delayed but it would be at least a year and reading through comments and my own research as shown because its not a life threatening procedure immediate reconstructions come first, and i know from others that they have been cancelled several times because they are classed as non urgent operations.

My surgeon has offered to put me on tamoxifen as a safeguard, wait a few months for the leg to heal, then the plastic surgeon will operate within 4 weeks of that date,  if not I can have a mastecomy next week.     I am going through so many emotions and its been a rollercoaster, I want the cancer out, and if i had a mastecomy I know that I would always be disappointed in not having a reconstruction.   I know I will have life.  But it will be hard to go back next year and then take six months then to recover.
I have both breasts that are really painful at the moment, and feel in my head that there is something wrong with the good one (I know this goes through lots of people heads) the pain is bad though.
I did stop taking HRT last month, so I hope it hormonal.

I am going back to see the surgeon tomorrow, who will check my breast again, but they wont offer a double mastecomy, or any more mammograms.

Its such a shame that the leg hasnt healed but this was here a few weeks before being diagnosed and I had told every one about it at every opportunity, it was only when i came in for the final screening after lymph nodes taken out, that I saw the anaesteist who said i should see the plastic surgeon has he isnt going to like my leg.   Otherwise I would have been having the op on 1st or april.

I am seeing a wound specialist on friday but need to make the decision about the mastecomny before that.

I keep swinging one way and another, everyone I speak to says get the cancer out now, I am worried and scared, but if i can wait for a few months I can have everything done and dusted, even though that is not always certain.

I am not a fit as  I can be, because of the leg, and my BMI, its a big op, but if I put my head on straight I can do it, its just that its been a rollercoaster and life is crap at the moment.

Sorry for such a long first post.