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diagnosed yesterday

11 REPLIES 11
Lynnee
Member

Re: diagnosed yesterday

Thank you very much for all the advice and support,  it's very welcome.  I will keep you all posted on my progress xxx

poemsgalore
Member

Re: diagnosed yesterday

Hello Lynee,

 

I am very sorry to hear you have invasive cancer. All that means, is that it has spread from either the duct or the lobule, whichever type it is. This does have the potential to spread into the lymph nodes - which can be removed to prevent it spreading elsewhere. 

 

I had ductal invasive, 36mm, grade 3. It spread to one of my lymph nodes, which they found when they did my mastectomy and my sentinal node biopsy. They removed 3 nodes, but only the one contained cancer. I have had chemotherapy and am now on Tamoxifen as my tumour was 100% Oestrogen positive and 70% progestrogen positive. I have just been for my first annual mammogram after treatment, and will get the results within 10 days. But I feel confident that at the moment I am clear - or NED (no evidence of disease).

 

Sending hugs and best wishes

 

poemsgalore xx

Lynnee
Member

Re: diagnosed yesterday

Thank you Jane! I will take each step as it comes xxx

Freda61
Member

Re: diagnosed yesterday

Hi Lynnee

 

You are obviously a special case!

With both sides being done you will probably need some support when you come home.  I'd suggest you have a look under the going through treatment section and look at surgery.  People have posted on there about what to take to hospital, what bras are best etc.  I found it really helpful advice.  Good luck for the 18th.

helvellyn
Member

Re: diagnosed yesterday

Hi

I had WLE and sentinel node biopsy on left breast.  i too was worried about the surgery, but apart from wooziness immediately after, I have been fine. I was just in for day surgery and was home in pjs at tea-time.   I have had no pain, have done the exercises, been out for walks.  Physically, there have been no problems.  it is just the waiting for the results.  my results were delayed for another week.  But luckily the cancer hasn't spread.  I am still waiting for the treatment plan.  so another couple of days then I will know the next steps.

 

Good luck for your surgery.  Put yourself first and let yourself be looked after.  Take each step as it comes and deal with it all head on. 

xx Jane

Lynnee
Member

Re: diagnosed yesterday

Hi, thank you for your support it is very welcome.  The team are not able to tell me what type of "invasive" cancer I have or whether it has the potential to spread until I get the results back from surgery!  So everything is still up in the air and I feel so unsure and worried about what is going on in my body!  Some days it drives me to distraction but I am trying to be strong and positive but sometimes I just want to crawl into a ball and cry! The support I have had has been wonderful but I still feel so alone!  xxx

Lucy_BCC
Member

Re: diagnosed yesterday

Hi Sans61

 

Welcome to the BCC forums, in addition to the support here our helpliners are on hand weekdays 9-5 and Sat 10-2 on 0808 800 6000 with practical and emotional support so please feel free to call to talk your feelings/concerns over

Here's a link to the BCC 'Just diagnosed'' section, you will find lots of information and further support ideas such as 'Live chat' and 'one to one peer support' which I hope you find helpful:

http://www.breastcancercare.org.uk/category/cancer-journey/just-diagnosed-primary-breast-cancer

Take care
Lucy BCC

Sans61
Member

Re: diagnosed yesterday

Hi I was also diagnosed with invasive breast cancer two days ago following routine mammogram and two biopsy's i was shocked how matter of fact i took the news i was okay until i told my children, well young adults rather than children.

i was unsure whether to tell them but they were already getting suspicious changes in my daily routine etc

not sure what to think,act or feel should have MRI next week 😞

ps so pleased this site is here

Lynnee
Member

Re: diagnosed yesterday

Thank you very much for your advice and support,  I will certainly ask my bcn what  type of invasive cancer it is next time I see her. Obviously a blonde moment!  Lol. Humour is getting me through so far and I hope I canssustain it through my treatment. Not sure if it has truly sunk in yet but with the love and support of my family and friends I know I can beat this terrible disease!  Send you lots of love and best wishes xxx

Freda61
Member

Re: diagnosed yesterday

Hi Lynnee

Welcome to the rollercoaster.  This is one of those times in life when you feel completely alone, but you will also see incredible kindness and feel loved too.  My treatment has been very different from what you have planned, so I can't tell you much about your procedures.

 

When you have a chance ask your BCN to remind you what type of cancer you have.  There is lobular and ductal and both can be invasive.  I also didn't hear that bit so was floundering around at first not sure what information was relevant for me.

 

The bcc leaflets are good.  I ordered the ones I though would be relevant and had a quick look at them, but then have gone back to the different ones to look at in more detail at each stage in treatment.  This forum has been brilliant too. I have just tried to focus on what treatment was coming next.  Once you start treatment you can't really plan anything, they seem to change appointments and you hang around waiting a lot.  So you need to get Christmas sorted out quick!  I had 6 nodes taken out and found the underarm surgery more restricting when I first got home than the breast surgery.  For example I couldn't really lift a kettle for the first couple of days.  With both arms being done you might need a bit of practical help.  Try to still have a giggle and keep your head free of BC when you can.  Let us know how it goes.  Sending hugs - but don't squeeze!

Lucy_BCC
Member

Re: diagnosed yesterday

Hi Lynee, welcome to the BCC forums where I am sure you will soon have lots of support from your fellow users. Our helpliners are also here for you weekdays 9-5 and Sat 10-2 on 0808 800 6000 with practical and emotional support

You may find the following link to the BCC 'Just diagnosed'' section helpful, you will find lots of information and further support ideas:

http://www.breastcancercare.org.uk/category/cancer-journey/just-diagnosed-primary-breast-cancer

Take care
Lucy BCC

Lynnee
Member

diagnosed yesterday

I was diagnosed yesterday with "invasive" breast cancer and was absolutely devastated - I have lumps in both breasts! I have been booked in for surgery on the 18th December. Left breast central wide local excision and reconstruction and right breast WLE with stereotactic wire and sentential lymph node biopsy on both!  I seem to be ok at the moment but am absolutely terrified of the surgery and the radiotherapy afterwards. I have had immense support from family and friends and especially my husband but still feel quite alone and vulnerable!  Any advice would be greatly appreciated. Lynnee xxx