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docetaxel- taxotere bad flu like pains

9 REPLIES 9

Re: docetaxel- taxotere bad flu like pains

I finished chemo in April and didn't suffer too badly, but was recommended Epsom salts in the bath and udder cream for the feet! Give them a go, I found it very relaxing. Keep going ladies, it gets better (though still v tired!)

Re: docetaxel- taxotere bad flu like pains

I had my first docetaxol on Tuesday.  Nowhere near as bad as FEC.  Really bad dry mouth and no taste buds left, but didnt really have any anyway.  they got me to suck ice lolly while having it, supposed to help with the mouth.  No sickness to speak of but took anti sickness for a few days as given. Few pins and needles in hands and feet now and again, but plenty of energy and can carry on.  Did have lack of sleep first coupleof nights, cos double steroids, but had a good sleep last night which helped.

 

Still waiting for toilet though, not been since monday.  Taking meds as given by doc, he assured me they were stronger than what I had been taking, but Im still waiting lol......feels like somethings on the move, maybe tomorrow, otherwise I have to do something else and go back to old regme.

 

No taste buds so hate food at the mo, the only foods i can tolerate or taste are curries, bolognaise and lamb, not my normal staple diet oh and pepsi/coke which i never usually drink lol.  The old glass of red tastes ok too. Oh and Ice cream, lots of Ice cream always helps with the mouth and throat.

 

I will be enormous at this rate, especially if i dont go to the loo lol

 

Hope you are all okish - Val xxxxx

 

Re: docetaxel- taxotere bad flu like pains

I am having FEC-T about to have first Doxatel on Friday. Worried it will be worse than the FEC 😁 any tips to help. Using cold cap as well hair clinging on hope it survives if I lose much more the wig will have to come out 😔

Re: docetaxel- taxotere bad flu like pains

I had similar pains in my arms and legs and the only painkiller which helped was Tramadol - it will get worse with each cycle, so perhaps you should ask your GP or BCN for a prescription.  I am sure you will not need to have to take it for long, but we all have enough horrible side effects without suffering needlessly. Hope things improve for you soon. Remember you also have the build up of FEC in your system too.

Take care

K M x

Re: docetaxel- taxotere bad flu like pains

Hi I started docent axel/carboplatin last thurs at Christies. I've ached a lot so just trying to rest and take paracetamol with care. My worst problem is stomach cramps. Not sure if anyone can help. I'm hoping I will improve before the next cycle. I've had the 'filagrim' for 5 days. Thx Helen

Re: docetaxel- taxotere bad flu like pains

Hi Maryland. Thanks also for taking time to respond. Everything you suggest makes sense s I learn more about this switch to Tax from FEC. I'm going to avoid skimping on paracetamol and ibuprofen and I agree I need to be ahead of the pain and proactive with pain killers. 3rd night not much sleep. Well done for getting through this. I'm not normally a "struggler" but am struggling right now. I'm hoping for some gradual adjustment in time for next cycle. Many thanks x x take care

Re: docetaxel- taxotere bad flu like pains

Hi Ash66
Thanks for taking time to respond.I am allowed to do as you suggest with paracetamol & ibuprofen. But I am also in 5 day injections riots of filgrastim. I'm awoken by pain. No fever just an intense throbbing/soreness in legs, arms, back, headache chest area- feeling like proper influenza. I'm not normally a wimp but this has knocked me flat out. Thx for the tip re warm bath and reference to post-docetaxyl med for pins & needles. Appreciated x I'm thinking of you and hoping you're progressing ok after your chemo. Barbara

Re: docetaxel- taxotere bad flu like pains

Hi Delphinium....as Ash66 says try alternating paracetamol and ibuprofen, but remeber to take your temp before taking para. My treatment finished nearly 3 years ago and the switch from FEC to TAX hit me like a truck! After the event, my Onc said the first TAX after FEC is usually the worst as your body needs to accommodate a different treatment when it was just getting over the first....why she didn't tell me before I really don't know. TAX is a really effective treatment and plant based (yew tree) which is what kept me going. A warm bath with good old Radox crystals may help, or one of those wheat bags, you heat up in the microwave, applied where the pain is worse. For your next TAX start taking painkillers the day after infusion for 5 to 6 days as this should help to mitigate the pain as it turns off the receptors in your brain. If you need stronger painkillers, please ask. From a 12 tablets a year oerson, I took over 300 painkillers in 9 weeks!!! You may also have the 'white blood cell injections' as TAX can cause your immune system to be less effective. These, too, can cause aches, usually around the neck and shoulders ....HOWEVER this is a good thing as it means they are working and stimulating your white blood cells 🙂 I think most find that the worst aches/pains are over in a few days, and do lessen as your body gets used to TAX. The pins and needles may be peripheral neuropathy (PN) again caused by the TAX. I found soaking my feet helped, along with keeping them well moisturised - massage is good - and raised where I could. Please mention this to your Onc if it continues as I didn't and still have a level of PN nearly 3 years later 😞

I hope that your discomfort eases soon......all the best with the rest of your treatment....take care x

Re: docetaxel- taxotere bad flu like pains

Hi Delphinium

 

I finished FEC-T back in March. I had a harder time with the docetaxyl. It didn't like me. Did you have any of the white cell count injections? These can cause pain as they boost your bone marrow. I suffered badly as I was told not to take painkillers. You could try paracetamol or ibuprofen if you've not been told to avoid but they can mask infection by reducing your temp. The only way I could ease it was lying in a hot bath.

 

The pins and needles are a common side effect of tax. I still have it 3 months after finishing treatment but I've been prescribed gabapentin by me GP which does help.

 

x

docetaxel- taxotere bad flu like pains

Hi I've just finished 4 x FEC and started docetaxel. Haven't been able to sleep much. Body very sore and achy. Quite painful limbs. Please does anyone have any tips to deal with this. Also got tingles
Use pins and needles in feet. Thanks so much. Barbara