Yes, how awful, but I suppose the siruation hasnt changed( that doesnt help I know) and once he hears then treatment can be sorted...are you on anyhing just now? Your body has a little tme to recover in case of chemo being needed.
do let me know and try not to worry too much meanwhile. Someone said the other day that even tho she was told she doesnt need chemo...shes now worried in case she should have. Had it!
love ans hugs,
Hi Sonia and Sue,
how are you both? Sorry for butting in.
Sue, like you, Im also lucky enough tobe on filgrastim...I think thats the main reason the chemo hasnt brought me to my knees with sore mouth or other infections...I used to be on the ther end of needles when I worked and ive always been a wimp about needles! However, I got a dvt from the chemo, wasnt active enough at the time, now have to inject myself with anticoagulants every day and I too dont know how I do it! I always thought id never be able to.
anyway, well done Sue, its rather daunting, but at least we have control over the needle! Some nurses have been known to just jam the fluid in, wheras I take my time!
Sonia, I do hope you are rid of the drain? And now have some good results?
Where I am we get the Filgrastim to boost white blood cell production - but only for the T cycles (I know some people get it on FEC as well). I have 5 injections pre cycle starting on Day 2.
How do I do it? No idea really, I take a deep breath tell myself it has to be done and go for it......... Most of my SEs seem to come from that rather than the T itself, so that is off putting too.
I just keep remembering something I once read - courage is not being fearless; courage is being afraid but facing the fear and doing it anyway.
Wishing you and all the lovely ladies here all the courage you need.
Well done Sonia - isn't it nice to be free!
Don't be embarrassed about felling wimpy. We all have things that freak us out on this journey.....I guess we will all emerge a bit stronger. For my part, my previous fear of blood tests is definitely being put in context by cannulations, chemotherapy, self- injections etc. I hate those self injections....
My diagnosis was DCIS, plus a smaller associated invasive tumour. The invasive bit was 9mm in size and already in the local lymph nodes. It was ER+ and Her -ve. Of the 15 lymph nodes removed at surgery, 3 were affected. No secondaries so the aim is to throw everything at it to aim for a cure.
I was dreading chemo and it hasn't been a walk in the park but it has been far less awful than I feared. I've done 4 of 6 sessions and even survived so far without a PICC line.
Will have 4 weeks of radiotherapy once chemo ends in January.
Here's to a better 2017 for all of us 🎉
I had surgery first - mastectomy and ANR - and then chemo, FEC x3 and T x3. I'm currently in the middle of my first T cycle.
Like you, I was terrified of drain removal because I'm a wimp and there are some off putting stories on the web. As it turned out in reality it was nothing.......
First, the nurse cut the little stitch holding it in, then she said we would count to 3 and on three, I would take the deepest breathe ever and she would pull. I took the breath and it felt like I had pulled my stitches slightly. I said to the nurse that I had felt that and she said no ........it's fine.......it was just me and held up the drain in her hand. Honestly, it was fine and such a relief to be separated from my constant and sloshy companion!!
Best of luck!
I had a double mastectomy and reconstruction surgery with silicone implants on the 8th November and came out the next day with 4 drains. Got them removed along with the dressings 10 days later.
Had single mx in July with immediate recon (LD flap). 4 drains. Came home with 2. Put them in a shoulder bag and carried on with pretty much everything as normal - walking, shopping, Costa. Was tricky to hide the tubes as it was summer and everyone in t-shirts. But tucked the tubes under the belt of my jeans and kept them between my body and the bag, so very discreet. Mine drained most before leaving hospital. Really slowed down once I was at home. Good to keep them in whilst so much is draining as helps avoid seroma and haematoma. Bit grim seeing them draining - from time to time they'd splutter a bit. But got used to it. Worst bit was the day after they'd come out. I was in agony from having sat and slept so lopsidedly for 2 weeks - my body took several days to readjust. Good luck with everything.
I had a drain after mastectomy and node removal in August (no reconstruction). My drain was in for 10 days and yes it was a bit freaky at first. If you are concerned call your breast care nurse but from the feedback I had 100 ml at the start is not a lot. Mine drained off 700 ml over the whole time. It is good for it to drain as it helps avoid seroma etc.
You can have a new bottle put on so it is less yucky and also lighter - mine got to feel like carrying around a can of coke. Either the nurses can change it or they can talk you through doing it yourself (I was sent home with a spare bottle).
For going out put the bottle in a shoulder bag and hang across body. It is possible but just a bit logistically tricky..... I went shopping like that.....
The main thing is to ask the nurses whenever you are worried - they were very supportive even when I was probably being a bit paranoid! This is new to us all, so take any support you can get.