edinburgh

[Lulu34]

sorry to hear that tricia... im sure we will have plenty more for you to come along to in the future.... good luck with your treatment sounds like your getting bombarded with everything.

Lxx

[Guest user]

Hi, this is to say that unfortunately I wont be able to attend the meet up on thursday, this is due to my Chemo having been reorgaised to that day, and I just wont be able to make lunch. Its so typical, I was really looking forward to the day, and this is the first time in 18 weeks that theyve changed anything, and as Im due my Herceptin as well as Zometa this cycle Ill be ages, and ready to crumple into a heap after. So Ill keep watching for the next meet , and hope to be there.Ive been trying to answer people by pm but the site wont let me, not sure why. Hope thursday goes well. Triciaxxx

[Guest user]

Hi Lulu
I am re turning to work on a phased return, mornings only until the end of Feb then review. I imagine I will be tired the first week back so will give the meeting a miss....would hate to fall asleep in my coffee! I hope to meet up with all soon,particulary Val and Trixie
have a great lunch

[Lulu34]

O2 what time do you finish work? as we will be hanging about later so could hang about to see you too even if you just wanted to pop along and say hello for 5 mins.

but if not we will prob be making a regular meet after work time so that it wont interfere with jobs etc.... good luck going back to work.

tricia it will be lovely to see another new face... looking forward to meeting you.

[Guest user]

Sorry ladies but I cannot make that date. I would really like to meet up with you all and have a chat, so I am very disappointed I cannot come. I am going back to work on the 25th so here's hoping I manage the stairs!! Legs very weak and painful following taxotere.
Tricia I know what you mean about the feelings of loss of control over your life.... difficult to plan ahead, my husband and children want to plan a holiday but I am too scared to commit to anything. I feel it is very unfair on our families. I am hoping that by going back to work it will give me something else to focus on.
I hope you all have a good afternoon and as I said if any-one feels like meeting up for a coffee and a chat please let me know

[Guest user]

Hi So pleased something is arranged, I would like you to add me to the list for the 28 Jan,at Vittorias,as long as nothing comes up for me on the hospital front I will be there.Two more Taxol cycles to go, then decisions will be made as to how I go on from here, It all gives me a horrible feeling of being out of control of my own life, does any one else feel this way ?I suppose its up to me to cope somehow.So looking forward to meeting you , Triciaxxxx

[Glasgowgirl]

Thanks Val, I will go on & join the other thread to make things simpler
Angie

[scottishlass]

Hi to everyone on this thread....

"Anyone living in Edinburgh and the Lothians" is the other Edinburgh thread and on that are details of our next meeting for a blether.
It will be at Vittorio's restaurant on George IVth Bridge on Thursday 28th of January from 1.30pm onwards.....it usually goes on for hours so if that is too early for you drop in when it suits you. (It is near the Royal mile/also top of the Mound/also near Greyfriars Bobby or Forrest Road.)....!
There is going to be another meeting with Lizzie who is coming up for the weekend and a few of us are planning to meet on Sunday 24th .....but time and venue have yet to be decided. I will post on the "Anyone living in Edinburgh and the Lothian's" thread with details when I have them.
Anyone is welcome to both meetings BUT we need to know who is actually coming to each one as we have a table booked at Vittorio's. We can easily add on numbers but please let me know if you want to join us and you haven't told us yet.
I am sorry if there has been confusion. Anyone who needs to know more can PM me if they prefer. Love Val

[Guest user]

thanks xxxxx

[Guest user]

Lynn / Signet

Bumping this up, think it is what you were looking for?

Lizzie

[Lulu34]

hi zizi and co

we are having our next meet on thur 28th of jan at 1.30 to when ever LOL we usually stay out for a good few hours... we are meeting for lunch in vittorios on george IV bridge if you fancy joining us your more than welcome.... info is on the other edinburgh thread i posted before.

we are thinking of making a regular arrangement eg last thurs of the month perhaps about 4pm so any workers among us could come along too.

hope to see you all soon
Lulu x

[Guest user]

Hi to all of you , It seems we all want to meet, so Im really looking forward to this, Im sure I may know some of you already, as Im up at the Western on a weekly basis, but being a shy type usually keep to myself.Also Im afraid , usually fall asleep during treatment !So Ill keep watching for someone to post up a meeting time and place, and hope I can be there, still have a few treatments to go, plus odd scans etc, but I dont work , so most times would suit me. Tricia xxxx

[Lulu34]

angie i think when we started out meeting in june none of us were working so we used to meet for lunch during the week but now more of us back at work or going back in the near future we could maybe have a late afternoon/early evening meet that fits around those who are working would be good so that we can continue to meet up and support each other.

Lulu xx

[Glasgowgirl]

All sounds good to me - how funny you got married in Polmont Val!

Is it normally weekends you guys meet up? At present I am working during the week at the Royal Infirmary at Little France but finish at 4 so could either meet after work or a weekend. we have my partners children every second weekend but let me know what dates you guys are free & hopefully I can join you.

I lived in Canonmills for 10yrs & Hamiltons is an old haunt of mine! (am originally from Glasgow, defected to Edinburgh in 1989 & lived there for 17yrs. When Scott & I moved in together, we needed a house in the middle as he works ib Glasgow, hence the move to Polmont!

Hopefully catch up soon,
Angie

[scottishlass]

Hi there Zizi/Tricia, o2walk and Angie, (and to Lulu who I already know!).
I am one of the women who meet up in Edinburgh and would love you to join us when we meet up next. I had BC originally in 1989 and in 1999 I was diagnosed with bone mets. I too attend the Western, (but Angie I got married at the Polmont South Church, so know the area well)!! but I now live in Edinburgh. I am keeping relatively well just now and am on Bondronate and have recently started on Femara. So I have 10 years of secondary BC knowledge under my belt! I personally would love to meet up with others with secondaries. I do not know why they don't introduce us to someone who has secondaries already when we get secondaries ourselves. I have volunteered myself to the BC Nurse who deal with ladies with secondaries who is based at the Western. It would good to meet up with you all sometime. If any of you want to meet up with me before the next get-to-gether please let me know. I am not working so have lots of free time now that I have recently finished 8 months of chemo. Take care Love Val

[Lulu34]

hi girls..... we regularly meet up in edinburgh.... usually in hamiltons kitchen in stockbridge or vittorios on george iv bridge.

the more the merrier.... we are all very different stages and diagnosis etc... grade 1 stage 1 to HER pos, triple neg, recurrences, and secondaries....

heres our thread.... we havent arranged our next meet up for january yet.....
http://www.breastcancercare.org.uk/forum/viewtopic.php?f=40&t=22368

shenagh and i are away the weekend of 15th to 18th of jan.so maybe the end of the month would be a good time....

Lulu xxx

[Glasgowgirl]

Hi there, I was dignosed 7 weeks ago with my primary & also secondaries in sternum & pelvis at the same time.

I live in Polmont (nr Lilithgow) & am getting my treatment in Falkirk (under the Beatson) but work in Edin & know it well so would be happy to meet up there.

I am on Tamoxifen, Zometa & Zoladex. I am 41. Have some side effects - initial increase in pain, tumour flare, flu like symptoms, fatigue & all the menopausal symptoms!

Completely agree with what you say about trying to protect others Tricia! Its still all very raw for me & I think talking to others in the same position would help.

Let me know when you are thinking about meeting up.

Angie

[Guest user]

Hi there, I seem to be having trouble with this website, or mabe its my computor, cant seem to send you a private message. I have two more Chemo to go, and then to continue on Herceptin, and Zometa, it would be really nice to talk to someone else who understands, and not always trying to say the right things, to protect others, which is what I seem to do. Will keep trying to send a message. Thanks for responding. Tricia

[Guest user]

Hi Tricia
I also have secondary breast ca and I am also receiving treatment at WGH, 2 treatments to go. Once I have completed my treatment I would love to meet up.
Look forward to your reply

[Guest user]

Hi , are there any people meeting in Edinburgh, I know there is one group around , but cant seem to get any update on this, Ive secondary Breast Ca, having treatment at the Western at the moment, hope to hear from someone , mabe in a similar position. Tricia