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first chemo end april 2010

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Re: first chemo end april 2010

hi everyone

saffronseed, feeling scared about my first tax in 2 weeks too, feel like vomiting just thinking of it. I take a tablet before i go to calm me, lamazpam or soemthing like that, it helps a lot

Tina, glad you doing well on the tax, gives us all hope. I love your wig, you look great on the photo.

I have had hard week since chemo last thrusday, sickness etc were better but the hormonal/emotional effects hit me like a brick again on day 6/7, and had total meltdown. Feeling a lot better now, and done some retail therapy.

Halfway through now, hurray!

Vickie

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Re: first chemo end april 2010

hi everyone

saffronseed, feeling scared about my first tax in 2 weeks too, feel like vomiting just thinking of it. I take a tablet before i go to calm me, lamazpam or soemthing like that, it helps a lot

Tina, glad you doing well on the tax, gives us all hope. I love your wig, you look great on the photo.

I have had hard week since chemo last thrusday, sickness etc were better but the hormonal/emotional effects hit me like a brick again on day 6/7, and had total meltdown. Feeling a lot better now, and done some retail therapy.

Halfway through now, hurray!

Vickie

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Re: first chemo end april 2010

Thanks Nicky and Tina for your replies. I have bought some dark red/brown stuff for my toe nails and will put it on myself I may go to a salon and have my finger nails done as I am not very good at doing it and they always look a mess when I do them. I will ask to get a thick coating as possible and try and get a colour I can live with - like you say the 'goth' look isn't my scene (far too old). My big toe nails are already black/blue and look 'bruised' and that is just with FEC and they do look unsightly so I need to cover them with a darkish colour anyhow.

I don't know why I feel so emotional about Tax - everytime I think of it my eyes fill up with tears and I am almost dreading it. I don't know why as I didn't have the same problem when I started FEC I was just keen to get started. Maybe I am a bit fatigued by it all and am just having a wobble. I am sure you are right it is no worse just different and like you say I won't have that huge tube of red stuff pumped into me which looks and feels horrid.

stiff upper lip and deep breathes required I think...
x

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Re: first chemo end april 2010

Hi

With regard to nails, I don't think that the nail varnish needs to be dark..just thick enough to stop as much light getting through as possible. I used colours I liked, just made sure that they were the 'thicker' sort of varnishes and applied thick coats...it seemed to do the trick!

Regards Nicky

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Re: first chemo end april 2010

Hi, I don't like the dark fingernails either, looks a bit "gothic"! Have my toes and fingers done! Only had two Fec, and not sure if eyebrows/lashes were worse affected by Fec or tax/c, asked chemo nurse and she said fec was worse than tax on hair, but again it may be an individual opinion/experience. Please don't upset yourself by the thought of going on the tax, it comes through the drip so no sitting with a nurse pumping in that nasty red epirubicin! You will definetely need the jabs if you got so low, mine were 0.5 after the first fec but the jabs did the trick every time! Dont find the tax harder just different, wooly mouth, bone&muscle aches and getting a bit tired now. Sending you a big hug! Tinaxx

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Re: first chemo end april 2010

thanks Tina, do you do your toe nails as well as finger nails - I don't fancy dark finger nails it just isn't me...?? did you keep your eyebrows through FEC and they disappeared with TAX, did you notice any additonal hairloss with TAX? sorry for the stupid questions I am just worried about TAX.. I know I will cry when I go to the unit on Thursday..

I do suffer from low neutrophils even with FEC, 1st cycle went down to 0.3 (when I was admitted to hospital) last time they had only got to 1.7 before my treatemen, which I was told was borderline. I am already having the injections, so if TAX is harsher then I will have problems I think. big hugs backxxx

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Re: first chemo end april 2010

Had second tax/c on Thursday and with emend had no nausea at all. Did my nails with very dark blue and they seem ok so far. Have no lashes or eyebrows left now. Have eyebrow pencils and kohl eyeliner with a little sponge to give some definition to eyes. Very difficult to "glamorous"......
Tax is very harsh on the neutrophils, WBC went from 10 (which was after neulasta jab) to 1.6 during first cycle. 1.5 is cut off for giving tax, so just made it.
Big Hug to all and hope SE's are not too harsh. Tinaxx

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Re: first chemo end april 2010

Hi everyone I must admit this cycle I have felt so well in myself. I do get the 'smellies' if you know what I mean everything tastes or smells of chemicals including myself, this is usually up to around day 15 but after that I am fine its just the tiredness. This time round though i have felt less tierd and doing full days at work then coming home and doing 'normal' things.

I do sleep well at night though which is great!! I even had a glass of Cider last night along with my take away curry!! I know it won't last as next week I have bloods on Tuesday for my first TAX on Thursday which I am not looking forward too. Just about to go shopping for some dark nail varnish and an eyebrow pencil (which I am told I will need).

My head hair is continuing to 'grow' I nearly have a fringe! it sticks down under my wig - I still shave my legs too although underarm hair gone.... I hope to keep my 'hairy' bits through TAX but will let you know how it goes....

Take Care everyone and good luck with treatments...xx

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Re: first chemo end april 2010

HI GIRLS i had FEC 3 yesterday and have not been too good this time dont feel unwell but the sickness has really hit in this time ive had projectile vomitting nearly didnt reach the loo today ive just rand BC nurse to see if i can have any other sickness meds and she going to ring me back .It seems to be as soon as i take the tablets so dont know if its them or psychological or the chemo but dont dare not take them in case im worse.and my face and neck is like a turkey today got a right flush on but temp ok xxx sorry for winging today hopefully feel better next couple of days

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Re: first chemo end april 2010

glad its not just me with the pstchological sick thing, though dont mean i am wishing it on anyone else, just makes me feel less mad! Its odd tedoris that you have the different consultants with different views - you should perhaps ask what they agreed as your treatment plan at the mdt meeting after your results were first through. My understanding from ym friend who is an oncologist is that 3 fec and 3 tax tends to be used for lymph node involvment, but i could be totally wrong so don't quote me on it. Theres a thread about benefits of different chemo that may help you. I agree, i would prefer to have everything thrown at me now , if i have to go through this then make sure its gold standard please! My onc friend though said some consultants would have given me 6 fec on the basis that no lymph nodes, and some would have given me 3 fec 3 tax, with the fec being because i am low oestrogen positive plus only 36. My consultant has chosen the latter.Hope that helps rather than worries you? I take my temp a couple of times a day but more over my at more risk middle week, the dr at hospital when i was neutrophenic said i should do it about 4 times a day then ( was more like 4 times an hour to be fair, v paranoid!)

hope evryone keeping well in the circumstances

Vickie

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Re: first chemo end april 2010

Hi everyone
Totally agree with the smell of chemicals it makes me feel sick thinking about it! The colour and smell when you wee is enough to make me feel sick. I really stuggle with the tablets for the first few days often feeling worse for taking them, OK once they actually go down! (physchological nausea it is!)
I am concerned at the fact that I havent yet seen the same oncologist and therefore dont seem to get any sort of repor with them. The last one told me to stop taking temp when I wanted to discuss That fact that I keep getting really low temps at night!
My other concern is that originally told would be on FEC the TAX (although it was the BC that said this) now seem to be on 6 FEC. Why are the different treatments used any help would be great so I can approach the next oncoligist I meet! I had 2 lymph nodes affected and not good margins. I just want it to be done right!

Scoobs my daughter told me that "no offence Mum you look better without hair" when I wore my wig!! Kids hey!

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Re: first chemo end april 2010

Hi all,

I totally agree about getting a 'mental nausea' effect Vicky. Although I luckily don't heave like you, I have got a bit of a thing about the smell of the chemicals and therefore my toxic body. Can take the pills ok but only with juice, not water. Silly really, as so far I haven't really even felt that sick, just generally odd and grotty.
Still, I turned the corner on Fri, just in time for 2 parties over the weekend! Lost the indigestion pretty much and feel tired but 'normal' again which is a relief. Wore the dreaded wig for the first time to a drinks party on Fri eve. (Children howled with laughter and said I shouldn't wear it - so supportive!) Got lots of compliments but did feel rather self conscious and kept wanting to itch my head. I reckon that peiple who didn't know me certainly wouldn't have known it was a wig though and luckily it wasn't windy as we were outside for most of the eve! Then went for the scarf on Sat night. So many headwear options compared with people with boring old hair!!

Sue

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Re: first chemo end april 2010

hi everyone,

i definitely recommend the lanzarprole whatever it is called heartburn tablets ( sorry but cannot be bothered getting up to get them out of the cabinet to check their name but i am sure they are the ones other people have typed). I think a lot of my nausea the last 2 cycles was from heartburn as well as nausea. I have had different anti sickness meds this time and it has been better. I didn't get the emend as my consultant was struggling to get it as my trust dont usually prescribe it, but he says he will get it next time for me if i want as he will have more time to fight for it! He didn't want to delay my chemo last thrusday just for the emend, which i totally agreed with.

Has anyone else had psychological nausea? I am sure a lot of mine comes from my mind as well as my body, though it is no less reaL FOR it. I cannot eat or drink red stuff cos of the red liquid in the fec. I can smell the chemicals still when i wee. taking the steroids and antsicknedd tablets makes me heave and gag. talking about the treatment does. Thinking of the room does. I have had to wear a long sleeved cardie all weekend as the bruises on my hand from the cannula make me heave when i see them. Bloody hell, i sound like a right basket case!

Anyway, 3 down, 3 to go, bit nervous about the tax which starts next time.

Hope everyone is ok. Maria, i read your other thread, hope you are getting through this tough time, big big hugs to you. Caz, i too am at satllite hospital for christie, so is suze. We christie girls should meet up. Tina, was the forum worth it? Am considering travelling up to the newcastle one of it ties in with treatment and general life, though really don't want to stay away.

Did anyone read Kylie's interview in the sunday times magazine today> It was good, she didn't say too much about the ins and outs of her treatment and diagnosis but it was obvious what a profound effect it has had on her life.

Take care all,

Vickie

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Re: first chemo end april 2010

Hi everyone not been on for a while as I am now back and work and its keeping me very busy and making me very sleepy.. so I either work or sleep (what a sad person?). Hope everyone is fine and getting through the Chemo ok. Tina you seem to be doing really well - I am too old to go to the forums as they are for under 50's, they don't have them for us old un's.. although I don't feel old...!

I got another infection this time round, only a septic finger but it was red and swollen and asked to go to hospital, luckily my bloods were ok this time so they didn't keep me in , but on another round of antibiotics... so more constipation and runs...

I start my Tax on 24th June, I am not looking forward to it as I have sort of got used to FEC and know what to expect and when so its like starting over again. - I don't fancy the swollen face... I thought I would get 'moon face' with the steriods on FEC but I have been lucky so far.

My Hair hasn't grown anymore, I just have a covering about quarter of an inch all over - I suspect it will go with Tax, along with my eybrows and eylashes - up to now have been lucky and i am still shaving my legs...

Good luck to everyone who is having treatment or tests this week and take care xxxx

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Re: first chemo end april 2010

Well, I hope you had a nice weekend there, the hotel is 5 mins from where I live! It must have been a real boost to see your daughter.

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Re: first chemo end april 2010

Lol Tina....
my OH booked for the de vere hotel at Shaw Ridge Leisure Park as we like de vere hotels and he wanted to get fairly close to Southmppton where my daughter now lives since April. He wasn't sure if I would be up to much travelling so wasn't sure what to do.
Anyhow it's worked well as daughter has come up to the hotel and is staying here tonight (and my grandson) so that was extra surprise. We move down to southampton tomorrow for the day before returning on Monday (original plan was just to see them on Sunday so I've had extra time with them). SE's have seemed to fade away completely, dunno if it's the excitement or it was just the right time for them to fade anyway. Whatever the reason I am not complaining....what a difference a coupe of days makes.
Hugs Suze xx

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Re: first chemo end april 2010

Well, not many people come to Swindon for a break! I should be looking out for you! Kitchen coming along going into week six of building work, really, it keeps me busy and I at least I don't have to worry about the housework! Hope everyone is taking it easy this weekend, off for bloods on Monday for 2nd tax on Thursday. Must remember to put the emla on my port, forgot last time....Julie, I had the bone&muscle pain after tax, they told me to take nurofen regularly. Also felt the odd one out at recent BC openday day, majority ladies of screening age. But sat next to a very nice lady and the age gap didn't matter really. Would have liked to have gone with a friend! Nice weekend everyone!

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Re: first chemo end april 2010

Hi Ladies,
Tina...hope your kitchen is coming on well, I don't think I could handle having all that work done as the same time as the treatment...my hat's off to you xx

Ingegestion people...I got lansoprazole on Thurs which has helped a lot...i just need to try to remember to take it an hour before food:-((( If I only had a brain!!! xx
Staying in Swindon this weekend so having a bit of a break :-))

Can't stay as reading.tyoing makes me dizzy :-((

Hugs Suze xxxx

Have an SE free weekend :-))

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Re: first chemo end april 2010

I went to our drop in session last week at our local hospital we had a really great laugh there is only about 3 of us in our 40's i went with my friend and collegue who ive already said was diagnosed only a week before me we also go for chemo together so its good support for each other they now sit us round the corner with the stores out the way cos we have the place in an uproar ha ha .My friend is starting her tax next chemo and is a bit apprehensive anyone got any tips i can tell her. there was another lady at the drop in just having started tax and was having a really rough time and has had terrible pains in her fingers as if they've been jammed in the door and i think it frightened her a bit .I fortunatly dont have to have tax just staying on FEC x 6.Im also booked into the look good feel better session begining of July so that should be a good afternoon. Hope everyone else not too bad after last chemo ive got my 3rd on thurs and ill be 1/2 way through woo hoo . xxx take care Hugs Julie

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Re: first chemo end april 2010

Caz. My chemo sessions are done by Christie satelite also, could be the same hospital as you. You are further on than me, I go for my second FEC next Thursday.

I have booked a place on a Made For Life day which includes make overs & therapies,pink champagne & fun. Not sure about the "fun" but looking forward to some tips on makeup

Carol

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Re: first chemo end april 2010

Hi everyone
You can tell the weather has been good as we all seem to go alittle quiet.
Had my 3rd FEC today was feeling rather low about it but I just think I got alittle 'over tired' as I have been back to work this cycle. Got told off by my boss for doing too much! Never thought I hear that! Really nice to know they are looking out for me and its not all about money.

Hope kitchen going well Tina we have been renovating house so understand what mess it causes. Not surprised you are tired being a mum is exhausting in itself! Your research is Fab! Keep it coming please!

How did it go today Tors????

Great to hear about the indigestion stuff Emily have been using
Gaviscon but doesnt seem to hit the spot! Will ask Doc for it.

Caz family really make a difference!

Scoobs I am down for a 'Look good feeel better' session with maggies in Inverness looking forward to it too!

Well I hope everyone else is doing well.
Will catch up again in a few days when SE's pass.

Take care big hugs
Sarah

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Re: first chemo end april 2010

Hi everyone

I suffered really badly with Heartburn and Indigestion with my first chemo and my doctor prescribed me with Lansoprazole and Peptac Liquid it was such a relief. Have just seen my onc today ready for my 2nd chemo tomorrow and she will have some ready for me to take home. Really recommend you ask for something, I tried to do without but was in so much pain and found it so hard to eat or drink.

Take Care
Emily x

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Re: first chemo end april 2010

Gaviscon is ok I have been told! Unfortunately, they don't do the make up sessions here, would have to travel to Oxford or Reading. Week five of builders in, the whole of downstairs is gutted, we knocked down walls, the kitchen is gone! We moved two weeks after my op and started after my first chemo, it keeps me busy, but no rest! Hope you get the emend sorted out, Vickie. Sue, have you decided about the forum yet?

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Re: first chemo end april 2010

Hi everyone I am new to this, diagnosed with breast cancer Dec, had surgery Jan, Feb and again March, followed by chemo started FEC 14th April, go for my 4th next Weds. Its been a roller coaster ride for me and reading through your postings I can relate to a lot of what is discussed, wish I had done this before.

I go to my local hospital which is a satalite for Christies, the staff have been great. Have brilliant husband, wonderful family and some fab friends who have helped me enormously. But its really good to hear about others who are going through a similar experience.

Look forward to reading more.

Caz

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Re: first chemo end april 2010

Hi

Tina - can't believe you're doing the builder thing alongside chemo! I guess it might be a welcome distraction, but so knackering! I had my boy home from school yesterday and that made me more tired as I kept going all day rather than having a rest/read at some point. He's hobbled back to school today, rather keen to show off his 6 bright blue stitches!
ANyone know if it's ok to have indigestion remedies? Not keen to take any chemicals, but they're quite mild aren't they? My digestion does seem to be struggling.
Having lost the inital chemo glow of last week, I look a bit pale which reminds me to pass on a top tip from a friend who did the BC thing two years ago. Get in touch with your local Maggies centre and ask about 'Look Good, Feel Better' sessions they run - or do in Oxford anyway. You can book on to a make up session and get a great pack of lovely freebies apparently! She even asked my colouring so she can order the best pack. They do get booked up, so best to ask as soon as poss. I'm going at the start of July - something to look forward to!

Sue

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Re: first chemo end april 2010

hi everyone

going to see what my onc says to me tomorrow, but he is a from christie hospital, whcih is the big specialist cancer hospital in manchester, and does satellite work for my area, and it is my trust who i don't think pay, whereas other local trusts who christie doctors do satellite clinics for do pay, so theres that minefield to get through. To be fair, i haven't tried the different treatment yet so it may work, fingers crossed. I have offered to pay privately for the drugs but will have to talk to him about it.

Sue, a and e when you are on chemo is scary as hell. My eldest was there a few days after my first chemo and i felt awful that i couldn't go, his dad took him. It feels like a cave ful of germs doesn't it! Hope he is on the mend soon.

Hi to everyone else too,

Vickie

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Re: first chemo end april 2010

Went to BCC open day today and checked, the YWF is definitely residential but sounds like a really worthwile event. Had major wobble sat in carpark, thinking I can't go in, never felt like that before, lack of confidence! Glad though I did, even though out of the nearly 50 women there probably 3 incl myself were under 45. Really tired now! Vickie, sorry to hear you have to fight, get your legal powers out! You should not have to suffer if there are effective treatment! Sue, don't be guilty, however, I am not sure how to switch it off either! I hope your son is recovering! I have one of those accident prone boys, too. Probably getting more tired now as further into chemo! Not helped that we are renovating the whole house and there is no chance to rest. House full of builders all day. Hope everyone doing ok. There was a lady there today who had her 4th recurrence and still going strong. Amazing.

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Re: first chemo end april 2010

Hi all,

Annoying you can't have the anti-sickness you know works for you. Good luck with that battle.
Normal life took over yesterday when my 11 yesr old fell over at school cutting his knee badly so I got the call to take him to A&E for stitches. I have had enough of hospitals at the moment!! I sat in A&E hardly daring to breathe in case people had horrid germs lurking. Son then didn't sleep and was sick in the night so off school and we're both mooching about feeling even more knackered than usual! Honestly, I'd like a period with no medical dramas and am scared of getting an infection. Feel I should be more concerned about him and less about me too. Mother guilt!

X

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Re: first chemo end april 2010

hi tina, hows the tax been for you now you are further in? still tiredness main side effect?
My oncologist wont give me emend for my chemo this week, am v annoyed, have only spoken to him via his secretary so don't know why, suspect the trust might not pay for it. I will ask him on thursday. v annoyed, hjad been psyching self up that would bebetter this time as nausea would be more controlled. He is going to give me a difft anti sickness and increase steroids. fab, not.

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Re: first chemo end april 2010

Hi, I think the forums are residential, it's held in the Hilton hotel which is just off the junction16 on the M4, no trouble to find. I have not received any further info other than an email requesting the session confirmation. I know what you mean by being away, Vickie, I am going for the information and opportunity to meet other young women, so far I have only used the forum for contact to others affected by bc. Hope the SE's hold off so you can attend, Sue! Hope everyone else is getting by!

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Re: first chemo end april 2010

Hi
I'm still planning on coming to Swindon Tina, but will be feeling grotty I suspect as having 3rd FEC on the Tuesday before. Have signed up to various interesting sounding groups and am rather fascinated as have never been to anything else like it. As Tors says though, if I was feeling good I'd rather be doing stuff with the family, so maybe it's a good distraction and the family can have fun without me drooping around that weekend.
Tina - do we stay the night or go for the 2 separate days in Swindon? Maybe I haven't studied the blurb carefully enough!
Gloomy day today, but the allotment needs the rain. Weather does affect my morale...
Sue

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Re: first chemo end april 2010

hi ladies,

saffron, hope your hair stays....tina, let me know what the forum is like, i am in two minds about going, think may try the newcastle one, but at the moment i don't want to go when i feel ill after chemo, but then on my good days i want to spend all the time i can with my family. I wish there was one nearer manchester which i could just go to for the day. I really don't feel up to staying away from my family at the moment.

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Re: first chemo end april 2010

Hi Sue, hope you are a bit better & back to teaching!!! Tax different to fec, different Se's and probably a bit more tired. Still planning to attend the YWF? Going for the 9th June event in Swindon as well, so far not met anyone else with bc, so should be interesting!

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Re: first chemo end april 2010

Congrats on the hair Saffron! Hope it lasts through Tax...
Starting to feel better (day 4 after 2nd FEC) I think, but have been sleeping badly. I keep smelling the drugs on me which gives me the creeps! Horrid taste in mouth and don't fancy food but feel simultaneously v hungry! Hopefully will be back to more normal tomorrow. Having said that, v relaxing weekend and I'm not stressing about starting back teaching tomorrow after half term, so can't complain!
x
How did the first one go, Suze? And how different is the Tax for you Tina?

Sue

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Re: first chemo end april 2010

Hi everyone hope everyone is ok whatever stage they are in their cycle. I am fine.. day 6 of cycle 3, having injections which give bone pain and this time round do have a nasty taste in my mouth - a bit of indigestion too (when I eat) not sure why.. otherwise ok. Enjoying the sunshine and doing a bit of easy gardening which is nice. Good news for me (might be short lived though given I'm moving to Tax) my HAIR IS GROWING!! yes, I have a short sprout of hair all over my head. I didn't really notice it as I don't look at myself in the mirror as I hate my look. As it has been hot I have gone around the house without any scarves etc and my husband said 'your hair has grown' and sure enough I can actually feel it!! its 'white' and its straight a bit like a crew cut - and its all over my head. I am sooo pleased. I don't want to raise my hopes but heh its brilliant if its growing ....

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Re: first chemo end april 2010

good luck with chemo today everyone

xxx

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Re: first chemo end april 2010

Hi Sue, hope the SE's stay well away! No. 2 done! I went out and about with the hats, bandanas first, too. Like my wig now, even though I thought I never would, maybe it's because it makes me look so different it's like a disguise! Suze, nice your bc nurse called, you will have a lot of support! Anyone planning to go to the YWF in Swindon end of June? I have signed up and am looking forward to it! Good luck for tomorrow! Tinaxxxx

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Re: first chemo end april 2010

Hi all. Came back yesterday from lovely few days on the far West of Cornwall in time for second FEC today. Fab to be away walking the coast path. OH shaved off all hair when we were away which felt great - I hated the coming out stage. Nice to get ot done not on home turf too and have been happily out and about with bandana. For some reason can't cope with the wig yet...
FEC today went smoothly but 3 hours late as the drugs hadn't arrived. Noe popping pills and hoping for the best. Feel a bit odd now but had supper. In laws staying to amuse children as they're on half term. Mother in law cooked supper but keeps asking advice. Can't complain but it feels as if it'd be easier to do it myself!!!
Suze - good luck tomorrow.

Sue

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Re: first chemo end april 2010

Suze easy to be scared but try and sleep tonight the situation will not change the only thing you can do is change your thoughts and get through the first one and things will get easier as you know what to expect.easy for me to say but it is true x

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Re: first chemo end april 2010

Hi ladies,
Nice to 'meet' you billia, I go for my first FEC of 6 tomorrow...feeling very scared at the moment.

Tina, glad the SE's are being kind to you so far...lets hope it continues....positive vibes for you.

Julie hope you are doing well and the SE's are bearable.

My BC nurse just rang to see how I was which I thought was a nice touch to know that I am being thought of, very reassuring...either that or she was just checking that I had not run away or gone into exile or something and that I will be attending my appointment tomorrow!
Take care all
Hugs Suze xx

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Re: first chemo end april 2010

gosh tina you posted your message early, i cant normally get out of bed until 11ish but then again i have no kids to look after and husband is normally out early at work, thanks for your comments re SE of tax, going back to sleep for a bit now and then prepare myself for cycle number 3! x

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Re: first chemo end april 2010

So far the tax se's have not been too bad, tired and muscle&bone aches. Emend took care of nausea very well. Painted nails dark pink can't do blue/black, too gothic. Eyebrows/lashes patchy. Hair, what hair??? Good luck&hugs to all doing chemo this week! Xxtina

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Re: first chemo end april 2010

oh well, no boob, no hair, and now no nails !!

Vickie found your post funny as with all the SE tiredness nausea mood swings etc i have experienced them, but the one about wee smelling of chemicals made me laugh as thats one thing that does knock me sick after the chemo i can just smell it!!!

better get some sleep ready for chemo tomo i am just so addicted to this site as it is so reassuring that people in the same boat,x

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Re: first chemo end april 2010

good luck you girls having chemo tomorrw take care xxxxx hugs Julie

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Re: first chemo end april 2010

yes I agree I thought maybe my hair would grow back with Tax, but the Onc was very clear in what she said. She said it is very different and some ladies get through it with minimal side effects but the main problem is fatigue (worse than FEC). She also said that my hair would definately come back! (again I have heard that with Tax the loss can become permanent) maybe she was just alerting me to the posibility that I may lose my eyelashes and brows (again not everyone does) but I think the nail problems are common. Like you say we are all different and it affects us all different ways. Apart from the tierdness with FEC I am been relatively unscathed with SE's - lets hope it continues...

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Re: first chemo end april 2010

Saffronseed
i am confused now! i too will be having my 3rd FEC tomo then move to tax,i am so so tired from the fec but also i have M.E (chronic fatigue syndrome) so this does not help, i am confused as i was told that my hair will grow back after FEC not been told about losing eyebrows and eyelashes, some posts say FEC more difficult than Tax others say differently, suppose will just have to wait as everyone is has different experiences!

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Re: first chemo end april 2010

hi everyone, had FEC number 3 today and now half way through yuppeee... move onto Tax next time which I am not looking forward to, my Onc said it will make me more tierd (more tierd...? I am sleeping loads now) She said I will lose my eybrows and eyelashes and my nails will split and look awful and be painful- she said the idea of painting them with a dark varnish will not stop that happening but it will cover up my nails looking nasty... which is interesting as I have heard from numerous sources that painting nails dark will stop the light getting to them and help stop them splitting...

so not only will I be one breasted and bald, I will have no eyebrows, eyelashes and my nails will look at mess and be painful.. o what bliss.....

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Re: first chemo end april 2010

hi julie

well done on on the hair chop! I felt much better after my came off as it was doing my head in.

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Re: first chemo end april 2010

hi notvery brave,

I am under christies too though having treatment at local hospital but under the care of dr misra, he is lovely and very calming. I also was given 3 fec then 3 tax, i have had 2 fec so far, and seem to go in a nausea,jittery, achy hole for just over a week then get tons better and function. I am sure the chemicals affact my hormones as my body just doesnt seem my own for that first week and i am teary etc. But it isn't asscary as you may think . My dr prescribed a drug to calm me which i take before i set off and that does the trick! Good luck with yours

xxx

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Re: first chemo end april 2010

Hi Tors

Your Mum sounds great. I have had my sugery braest removal & LD reconstrction about 6 weeks ago & have still not started chemo which i am finding frustrating & is adding to trauma. I know now I am having 3X FEC followed by 3X taxotere. I am very frightened too after reading all the information sheets. You start to feel you must be mad to even consider chemo! Have you had any chemo yet? My oncologist is on holiday this week so I cant start till the week after. I am going to Christies in Manchester. Good luck