You could try to see if there is a different Oncologist at your hospital you could talk to instead - if not, be persistant - it's your life and choices and they should respect that.
Hi Globalnomad, I am sorry that you have been treated like this, but I have only just left a post on a different thread saying exactly the same thing about the specialists being questioned about treatment! I was diagnosed 21 months ago and since had 2 ops, Chemo, Rads and now 10 months into the 5 years of Anastrozole (AI). I was originally given a prescription for Tamoxifen by my Onco but on my next visit she changed it to the Anastrozole. I am guessing it was given my age (53) and she asked when i last had a monthly, which i wasnt sure about because i was having Depo injections up until i was 50 and never had a monthly during them. Why should you have to pay for a service that we get free just because they are not willing to listen to your fears and allow you to have the treatment you feel is right for you? I refused to take Warfarin recently, which they wanted me to start taking as they think that my irregular heartbeat will increase my risk of stroke. But i have not even seen my Cardiologist yet (next month) to discuss the problem (which hopefully is as a result of the cancer treatment either one of the Chemo drugs or the Anastrozole), so i will take more drugs on top of more drugs until i have seen the expert!!!
Sorry to waffle on but it really gets me angry that whenever there is anothe side effect the solution seems to be to throw another load of drugs at it and hope it does the trick! I was offered the Calcium and Vit D to help the bones although my Dexa scan was okay. I am not taking then though i try and eat the right foods and get loads of sunshine (plenty about at the moment)!! Cheers, Michele x
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Hi had lumpectomy, sentinel node clear, everything around apparently ok. Oncologist put me in tamoxifen, nit aromatase, which is for post menopausal like me. Why? Cos I have osteopenia and aromatase can reduce bone density. As I have history if polyps, tamoxifen is bad as can cause endometrial probs. When I said this, she reiterated that tamoxifen didnt have same effect on bones. BUT on aromatase you can get bone strengthening tabs. Choice=bone problem that can be alleviated or risk of serious cancer and big op. Its a no brainer. Oncologist not approachable, so considering paying for second opinion. Do we have any say in treatment or are we at the mercy of these arrogant and impersonal characters? Professional medics do make mistakes. What they don't like is being questioned. Its my life at stake here, and as i live alone without the support that most people have, a big op is not an option. I wish now I hadn't gone for mammogram as I don't know how much much difference its made to my lifespan. Ignorance is bliss ...probably thousands of people walking around with csncer untreated and live to good old age.