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got the resaults

18 REPLIES 18
Lily200
Member

Re: got the resaults

Hi
just wanted to wish you all a bit of peace and a few smiles this wek , if you can. Keep mentally ticking off those treatments, surgery, doses, appointments and rads. We have all come such a long way already
Hugs
Lily x

mallysally
Member

Re: got the resaults

Hi td
well good luck for friday ........ this tac is the nasty one but i think loke you said td that is is the effective one so now im thinking bring it on ........oooooooommmmmmmmmmgggggggggg...... im getting abit nurvus but i know it has to be done

went to my hairdressers to day thats where i work and had my long black hair cut short today .....look abit like hally berry now ......i wish but i had that sort of cut..... every one that as seen my hair today said they love it ..said it makes me look younger not that im that old 37 ......

any way hope everyone keeps this forum going so we can exchange how we are all getting through the chemo.

love to all sal

p.s i had my bone scan today get results back in about 2weeks they said.

xx

waitingangel
Member

Re: got the resaults

Hi Sal -

I had 4/14 nodes involved and original tumour was grade 3, hence TAC - same for you - TAC is nasty, but isn't it all. I'm calling it my IV poison rather than chemo! And as my onc mate said - TAC is nasty, but sooo effective. I'm starting on 20th which is 6 weeks post surgery. My original appt was a wek after that - but the time was rubbish so I asked to change the time - no appts, but they brought it forward rather than backward - SO they would have said if it was a problem....

Td xxx

lisaf
Member

Re: got the resaults

I waited 8 weeks after chemo du to ONC hols and had 1 node involved so fingers crossed okay!
I feel so old at 35, have no kids and wont be able to now which does make me sad
xx

Leeloo
Member

Re: got the resaults

Hey Babs,
it can strike anyone of us at any time, so don't feel you are ancient.
I don't feel like a sping chicken either compared to some poor girls on here, me being 32.
I am lucky I have 3 kids even if they are a handful.

Keep your chin up girls.

Love and hugs
Lisa
xoxo

bubbles2
Member

Re: got the resaults

I delayed my chemo so I could have a week in Egypt with my eldest daughter, I am feeling a bit ancient now though, I had three lymph nodes involved but only had a partial mastectomy then the clearance.
It seems so unfair when it affects such young women, I feel lucky that I escaped till now. Having had four children in six years I feel for all you youger mums.

All the best Babs

mallysally
Member

Re: got the resaults

thanks leeloo

it will be 6 weeks from first opp so he seemed ok about it and it will be 4 weeks from last opp as i went in for that on the 5th june ....and what i have read ,they say 4 to 6 weeks from opp that you start chemo... well it's done now so iv got 2 weeks breather so going to make most of it lol,,,,,,,,,

sal x

Leeloo
Member

Re: got the resaults

Sal
I had 3/10 involved and as I said earlier the onc had no problems letting me wait another week.
I don't think it will make much of a difference really hunny, if they were concerned they would have said.

L
xoxo

mallysally
Member

Re: got the resaults

Thanks to all for the replys , it has put me at eas to know that a week is ok ... i will just say tho girls that i did have 1 lymph node involved that was when i had my lump taken out and they took 4 out and 1 came back infected.. thats why i had to go back in and havve masectomy done so that it would give me a better chance of it ot coming back.. when they took the rest of the nodes out thats when they said there was no more involved......so sorry if i miss lead you ....but still that will be ok to go a week longer ?????

And zoe74 glad that you have some in the freezer hope all gos well

sal x

holly56
Member

Re: got the resaults

Hi Sal good results - similar to mine in fact no node involvement and good clearance round the surgery. I wanted to havefurther treatment from the start as my sister who had the same results did have a recurrance witihn 3 years (she finished her chemo just as I was dx and it looks like she is in remission which is good news) .
I am having 8 lots of chemo as I am on a trial and am not finding it too difficult though it does seem to get a bit worse after every 'fix'. Certainly doable and if it improves my chances by another 10% thats fine by me! Enjoy the wedding, look at the thread on tips for chemo and then look forward to the end of the year when your treatment will be finished.
XX

Leeloo
Member

Re: got the resaults

Hi Sal,
Yeah a week is nothing in the bigger picture.
I asked for mine to be put back a week as my kids are in their school play and my eldest has his leaving ceremony before going to secondary.
Enjoy it while you can hunny, I have been partying hard cause I intend to concentrate on getting better and strong when the chemo starts.

Angela that is so good that you decided to sort out the embryos now, I am lucky we have 3 kids but at 32 the onc did discuss the issue with us.
I hope everything goes brilliantly once the treatment is all over.

Love and hugs
Lisa
xoxo

Lily200
Member

Re: got the resaults

Hi
Sal, if a week made any difference they would have said no, so rest easy and build up some good memories to see you through the less enjoyable days. I have my next dose on 1st july so will be with you in that cyber chemo chair in my little town, thinking of you. It will be fine.
Zoe ooh I am loving your little frozen fishfingers tucked away, what a great thing to see you through all this. Hope you end up with 8 babies one of these days!!!!!!!
Hugs to everyone
Lily x

Zoe74
Member

Re: got the resaults

Hi Sal,
Great news that the surgery got all the cancer. I was fortunate too and did not have spread to nodes therefore the oncologist was happy for me to wait an extra month - so that my husband and I could have a round of IVF (we now have 8 embryos in the deep freeze, just in case) - so I am now 10 weeks post surgery and had my first chemo yesterday. You only want to delay by a week and if your onc is happy for you to wait then I always think that is a good guide - and you may need some good memories to get you through the next few weeks - so go and enjoy the wedding.
Angela

EmilyJane
Member

Re: got the resaults

Sal
I am happy for you, too. It is wonderful to read that your husband has been supportive; nothing compares to that really. We are both lucky that way.

Guess you can think of chemo in two ways. Delay it to have a good time (which I am sure you deserve...) to start it and get it over with faster. I choose that road, but am having it before surgery, so it prob feels more urgent to me.

Chemo has not been as awful as I thought it would be. Yes, my lifestyle has changed and I am more tired than normal and can't do all the things I used to do...run about like the Energizer bunny (have you seen that commercial on TV?) 24x7. But that's not exactly a bad thing...I'm slowly learning how to relax. And I have kept out of the hospital except for my iv treatments; so am lucky.

I hope your journey through chemo is easy and uncomplicated!

Emily
xxx

mallysally
Member

Re: got the resaults

Thanks ladies

nice to know there are some of you out there that are willing to give surport..

told all my family yesturday to and they are all so happy , my daughter came home from school and asked me straight away..
when i told her she had a tear and said im so pleased mum and she kept on telling me she loves me ..
had a good night sleep last night ,,, my husband seemed to sleep good to which im pleased as he has been looking his age bless him ....he has been there for me from the start and been yo every app... with me he has been my rock ..and he is so supportive.

just trying to get my head round the chemo side of it now .. even tho my onc wonted me to start on the 24th of this month i asked if i could start on the 1st he said ok as i wanted to go to a family wedding and have a bit of time out before i started to feel ill ...do you think that is bad of me or is it ok ... after having two opps in 3weeks just wanted some good time before chemo kicks in ..

would like your feed back on that ladies if you dont mind
sal x

Leeloo
Member

Re: got the resaults

Hey Sal,
Glad to hear they have got all the cancer.
Pity you have to have chemo but as Lily and Lilac say it is to mop anything, just in case.
I know that I have to have the chemo as I had node involvement, and if it got in there who knows where other cells have got to.
I am trying to be very positve.
I even let the local paper use my story to promote the Relay for Life I am organising. Although since talking the legs off the reported and not managing to finish my banana and choc scone because I was talking to much I now worry that maybe I will come across all wrong and sound patronising and and and and, but I am sure Elinor will write a nice piece and we will get loads of teams and volunteers and more importantly money.

Well babes at least the 2 of us will be going through the same things about the same time I start FEC on 25th.

Keep yer chin up
Love and hugs
Lisa

Lily200
Member

Re: got the resaults

Hi Sal,
great great news on the results, now the tricky bit to try to make sure you don't have to sit there and get results again. Just keep that thought in your head. I know several people who did not have chemo first time and are back in for the second go, wishing they had been blasted first go, this helps me to get through it. I think you need to walk away knowing you have done everything they said would help you and then no regrets. They would not recommend it unless it significantly increased you chances. Tough road at times but as you will have read we all chug along and help each other through and most of the time you will feel fine. Don't worry to much, that's why we are going through this to stop more worry in the future. You can do this. All the luck in the world to you and get celebrating and enjoy before it starts, don't waste thids good bit.
Lily x

sukes
Member

Re: got the resaults

Hi Sally,

firstly i as pleased that you have been given the good news of no more cancer. Please do not be scared of the road ahead of you. Don't forget it is there to help you. chemo is to mop up any stray cancer cells if any as they say and it is doable. I started chemo on the 5th feb and will not finish till end of august. I've had 3 epi and 3 tax and 1 cmf so it is doable.
from somewhere somehow we do find the stenght and remember this is to help you.

there is a thread for tips for chemo which might be useful as lots of ladies have commented on it. When i was preping for chemo i got baby toothbrushs, for bad gums, antibacterial hand wipes and gels for when out and about. Lots of dettol toilet spray as 1 have 3 littleones and i can't always guarantee they wipe themselves properly. I also got a wig from the hospital but to be honest i have stuck to bandana's.

Sally, it really isn't as bad as you may think. You will be suprised you will have more good days than bad and i;ve found BC has changed my outlook on life.

hope this helps and take care and good luck

Don't forget we are all here to help.
Hugs
Sukes

mallysally
Member

got the resaults

Hi ladies

well went to see doc today for him to cheek my wound and also to get my final results
so hear i am sat there on edge thinking please give me good news today, as for the past few times iv been there i have had bad news.
well sally he said, it is all clear no more signs of cancer......

i was so pleased, it felt as tho i could breath properly.
so left that room then off i went to meet my onc.. sat and waited for a hour and half, then in i went, he has told me that i will be having chemo and that i will be having tac. 6 times.every 3 weeks.

i will be starting this on the 1st of july..

i was so glad that i have had the all clear of the cancer but now im thinking [omg]
iv got this road ahead of me now....
got quit scared.....

so any tips would be nice ladies
as i wont to go shopping before i start to feel like poo ..to get all that i need for the deration.

sal x