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hair loss???

Member

Re: hair loss???

Hi Caron
Yes the cold cap is used to prevent hair loss but as i said it does not work for everyone. The cap is very cold, kept in freezer, and pulled down quite tightly on your head, and changed a couple of times during each treatment, I cant remember how many times. Some ladies found it very uncomfortable but its whatever suits you, like Shell wrote maybe its one less thing to worry about.
Best wishes,
Jan x

Member

Re: hair loss???

Hi there,

I to am having chemo before surgery, different types of chemo have different side effects.The chemo is supposed to shrink the cancer so you can have a lumpectomy rather than a mastectomy..
I have had 2x AC chemo which made me feel very sick and very tired for about 6 days after that i was ok ish, it didnt shrink my tumour it went from 4cm to 10cm and i have 3 nodes in my arm pit.
I am now on Taxotere which makes me extremely tired all the time i have a mouth full of ulcers and my finger nails are sore to touch but i dont feel sick and i have a good appitite.
I lost my hair a week before my second chemo, i worried alot about it but once i had had it cut and it was all gone i felt relieved... it was something less to worry about.

Good luck and god bless.

Shell.xxxxxx

Member

Re: hair loss???

HI jan,
I dont even know what a cold cap is !!!
I figure you put it onyour head to try to minimise hair loss?
I dont know what treatment I am having yet she just said I have to have chemo 1st then surgery so I expect a full masectomy ?
But it's got to worth it for the price of a life?
I didnt think I had it I knew it was a possibility obviously I am not daft I think my consultant was a bit shocked as to how I took the news , I am probably still in denial?
anyway thanks for the reply caron

Member

Re: hair loss???

Hi, I had chemo, 4 x fec, 4 x tax then 15 rads in 2006 and have been on Herceptin since. I used the cold cap throughout my chemo and my hair thinned, didnt loose it all. I had the usual side effects bit of sickness, constipation, aches and pains but you are given drugs to help counteract any nasties. Probably a lot of other ladies will have other side effects but we are all different. Some friends of mine still lost their hair even with the cold cap but seemed to sail through chemo, we all cope differently.I am sure your hospital will explain things fully for you, try not to worry too much, I know thats very easy to say, but good luck. I am sure you will get more replies soon.
Jan x

Member

Re: hair loss???

thank you louise for answering me !
caron

Member

Re: hair loss???

Hi AyoJoy1

I am sure you will get plenty of replies soon with lots of helpful advice and support from other users, in the meantime, I would like to welcome you to the Forums and point you in the direction of some of our services and information.

Below is a link to a Breast Cancer Care publication Resources Pack which can be ordered on line, it is filled with information to help you better understand your diagnosis, test results and the various treatments available.

http://www.breastcancercare.org.uk//content.php?page_id=7514

If you would like to talk to someone outside of your family about how you feel at the moment please don't hesitate to use the Breast Cancer Care helpline. Here you are able to talk to someone in confidence about your fears and concerns and the team on the helpline are happy to talk to you and just be a listening ear if you feel you want to offload. Breast Cancer Care are here to support you so please use us if it will help. The helpline is open Monday to Friday 9am to 5pm and Saturdays 9am to 2pm. The number is free phone 0808 800 6000.

Also, our 'Live Chat' service gives you the chance to 'chat' online in real time to others affected by breast cancer and many issues are discussed in these sessions, they are held on Thursday evenings between 9-10pm. If you feel these services would be of help to you now or in the future please contact us for more details or look under the 'Support for you' tab on the homepage of the website for further information

Kind Regards

Louise
Facilitator

Member

Re: hair loss???

Am I on my own out there???
Nobody has answered me I have just been reading blogs all about sore mouths sore feet ect
This doesn't sound nice and I am scared stiff what the future holds for me.

Member

hair loss???

Hi all I was only diagnosed last thursday 27/th Nov 2008 , there was a lump I didn't know if it was a lump or not at first but as soon as I knew it was deffo a lump I got to Drs the next morning ! ( which was good ) the Dr said has it been hurting ? I said yes it has been like a stabbing in it ( not all the time ) he said that was a good sign ! . Got my appointment for hospital the next week ! . I thought it wouldnt be cancer as no body in our history ( as far back as 5 generations ) has never had it !
When the consultant exanined me she drew on me , then she drew on me again ( I knew this wasn't a good sign ), I said to my hubby " I think they have found another one " then went for a mamogram ( which wasn't as bad as I feared ) and that nurse said " you have a lump on your left breast I said "yes" then she said " you also have one in your arm pit " so I said " well I didn't know about that but I figured it out when consultant drew on me". so then I went for a scan and also a core biopsy ( which surprisingly was not as bad as I feared )! I had 3 from my breast and 4 from my armpit . Then I was taken to a quiet room with my hubby , the consultant came in and said " you actually have 3 lumps ( I thought oh my god ) then she said but 1 is a cist ( a small snippet of good news I suppose ) but we think the other 2 are cancer ( bombshell or what ). I asked might the other 2 be a cist she said deffo not.
But she did say I dont want to overwhelm you with too much information at the minute but she said I have chemo first to try and attack the small one in my arm pit as that is a enlarged lymph node !
Then surgery .
Do all people who have chemo loose their hair?????
It is sods law ( honest ) I have never had my hair long my mum wouldn't let me, So ths is the longest I have ever had it ( I am 41 now)
God why am I even bothered about my hair ( it should be the last thing on my mind )!!
I am going back to hospital on Monday to discuss treatment and such. so thats where I am now !
cheesed off to say the least my poor kids are deverstated as is my hubby.
Also I did want to make the point that a young girl who posted yesterday ( I couldnt log in ) said her dr said it was good if her lump hurt I don't want to frighten her if she reads this but mine was hurting well it was like stabbing every now and then and also tingling sensation.
The consultant told me it is a myth about it's nothing serious if it hurts.
I would like to say I'm sorry if I have posted on the wrong bit this is my first time here !!!
and may I say GOOD LUCK TO US ALL AND GOD BLESS !!!!!!!!!!!!