I have to say I have coped pretty well with all the side effects this time around - whether I'm just listening to my body more and taking it a bit easier I don't know! I'm certainly enjoying myself when I feel well enough thats for sure! The oncolology team are so happy with how minimal the side effects have been they are giving me some another cycle after my sixth now (thought I was nearly finished but I guess its a good thing they can throw some more treatment at the little *******) and potentially will go up to 8. They have assured me that any of the side effects I have had have been related to the docetaxal and that the other treatments should not really affect me going forward.
I am seeing alot of people posting about their receptor status changing - I find that a bit scary in itself as you get used to a treatment plan, but I guess it also means it then opens up a whole load of other options for treating it all. My research nurse was telling me yesterday that there is something else coming out this year for HER2 peeps so its good to know there are developments happening all the time that can help us!
Have you decided if you will opt for cold capping? I don't know where you live but I have found the best wig place - honestly I have just been to pick up my second and it really is nicer than my own hair!
Apart from the hair loss, I felt a little sick on the last cycle but it passed really quickly and was probably my own fault as I haven't been taking the anti sickness tablets they give you because quite frankly I just haven't needed them!
I know everyone is different but I haven't even lost my eyebrows and eyelashes this time around albeit they are a little thinner and I have a few gaps. My nails are all hanging on in there aswell and thats after 5 treatments!
I honestly believe that even a little positivity goes a long way - I hope your sons are a massive support for you. I feel so lucky to have my husband - he really has got me through ALOT!
Let me know how you get on and good luck with it all! xx
Hi SDP, I was interested to read your post not because of the children aspect although I cant imagine how you must feel - I am 57 so both my sons are now in their early 20s but the thought of not being able to have them because of this awful illness is just another knock back. But you never know hopefully after chemo your body will recover and then who knows. But what I wanted to ask is how you have coped with the treatment you are now on. I am due to go on this next - having been stable on just hormaone treatments for past 3 years since double whammy diagnosis.But a recent biopsy has shown the receptor status has now changed and is HER2 positive so hence the change. I am very apprehensive having never had chemo before but am remaining positive that the chemo will hit the little bu..... so I then can go on herceptin and hormone treatment after. xx
I am 35 and have mets to the bone, liver and lung (diagnosed Oct 13 after initial breast cancer in 09). I also had FEC and radiotherapy and am strongly HER2 positive. I'm just about to head towards my 6th cycle of Docetaxal this time around, with Herception and Pertuzumab. Its so awful to have this in the first place let alone knowing it may have taken away any chance of having children especially after coming through it a first time and thinking you were getting back to being 'normal'. I have been told that I will be put on another hormone treatment once the chemo finishes so I just assumed from the off that ended any thoughts of having children now. I feel so sad for myself (although probably more for my husband) but he would rather have me here with a good quality of life than the alternative. I never had the conversation with my onc as I hadn't considered if may be a possibility but I would be really interested to know if anyone has discussed this with their onc and knows any differently. There is still a big part of me that in just reading all the good posts on forums like these that sees a whole lot of hope out there!
There are forum users who have gone on to have babies after treatment, and am sure if they see this post will give you some much needed support. In the meantime I have put for you below the link to BCC's publication Fertility issues and breast cancer which I hope you find helpful. Also our helpline team will be only too happy to talk to you about this subject. They're here to support you. Calls are free 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2
I'm new to the forum & looking to share experiences with anyone who has gone on to start a family after metastatic cancer diagnosis? I was diagnosed in August 2008 and am ER and Her2 positive. I had a small lesion on my liver which shrank during chemo so is believed to have been a cancer spread. I had FEC & taxotere chemo followed by radiotheraphy. I've since been on Tamoxifen and Herceptin. I'm really well and live life as normal now. I am 37 and desperate to try for a baby but my oncologist has recently advised that I shouldn't come off the meds because they don't know what will happen. Anyone in a similar position?