high grade malignant phyllodes

[LFaye]

Hi Scratchy57,

Thanks for your reply! I'll take a look at that support group, that's really helpful thank you. Xx

[scratchy57]

LFaye
Sorry I didn't respond to your question. I've joined a Phyllodes Support Group, in which there are hundreds of people who have or have had PT. As to my treatment, I had a mastectomy and 6 weeks of radiotherapy. I'd be interested in your history and hope that you are well.

[LFaye]

Hi Scratchy,

I'm 26 and wasn't given the choice of mastectomy for a malignant phyllodes, but radiotherapy was recommended so am currently on week 3 of 5. Can I ask what decision you made in the end? We're one in a million so it's reassuring to know I'm not totally alone xx

[Lizzy_BCC]

Hi Scratchy57,

This is a difficult decision and I am sure some of our users will be offering their support and advice soon.

You may also want to look at and post in a Just Diagnosed thread that you can find here. This has a lot of activity and is very supportive. We also have a surgery  board which has lots of advice on mastectomy's.

In the meantime you can always call our helpline at 0808 800 6000 who will be able to talk to you about the decision and offer a friendly ear.

Best wishes,

Lizzy

Digital Community Assistant 

[scratchy57]

Anyone been one the choice of radiotherapy or mastectomy for high grade malignant phyllodes?