inflammatory breast cancer

I am living with inflammatory diease on the skin of back.  I had a mastectomy in 2009 and was not diagnosed with inflammatory disease until a year later.  I have never met anyone who has the same thing… I am absolutely well with no cnacer anywhere in my body except for tumor emboli in my skin which appears as a red rash on my back.  this rash is kept under control with herceptin and arimadex.  every year or so i have a course of chemo.  i work and i walk atb least 4 miles a day.  Anyone had similar experience? 

Hello Katycustard1963

Welcome to the forums, you’ve come to the right place for support as the users of this site have a wealth of experience and knowledge between them.

If you would like to talk to someone in confidence you may like to phone our helpline  where you can talk to a member of staff who are there to support you. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

Best wishes

June, moderator