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liver mets to keep my bone mets company

9 REPLIES 9
roxy12
Member

Re: liver mets to keep my bone mets company

Good luck tomorrow Katherine when you see the onc. Hope you are soon feeling better. Xx

Katherine2701
Member

Re: liver mets to keep my bone mets company

Mrs Blue, your story is really inspirational. The liver mets returning has been like a body blow to me to be honest and I totally understand what you mean by the worst bit of health news you've ever received. At the moment I have an infection and that is making me feel rotten. I'm just hoping I start to feel a bit better soon. Still I get to see the Oncy tomorrow. Fingers crossed she can do something x
nicky08
Community Champion

Re: liver mets to keep my bone mets company

Hi Mimi
Sorry to hear your news of spread to the liver. Like mrsblue and you I had 'only' bone mets for a few years, 5 in my case, and found out I had spread to my liver last February. I have been on Capecitabine since then and it has done a great job of shrinking the liver mets and keeping the bones stable. I'm now due to go onto another chemo regime (which I should have started last year but couldn't for other health reasons) and hope to be like mrsblue and live with this further spread for a good few years yet! Wishing you all the best with your treatment and the new combo you are on does the job.
Nicky x

Newyork
Member

Re: liver mets to keep my bone mets company

Mrs blue yr story is very inspirational!

Katherine I have just finished chemo and had radio to the troublesome part of my spine having a scan in a couple of weeks to see what going on. It's just weird to be completely pain free and then it returns part of me thinks the amtriptyline was doing a lot more than I thought to keep the pain away maybe it takes two weeks to leave the system as this was how long I was off the pain killers and pain free for. Anyhow back on the pain killers now so hoping with time it will kick in hoping u are managing yr pain okay arghhhhhhh! xxx

mrsblue
Member

Re: liver mets to keep my bone mets company

Hi Kimi, just popping in to join your thread.  I was in same situation, bone mets for 3 years - assumed it wouldn't go elsewhere - CT scan and multiple liver mets.  One of the worst pieces of health news I ever had...

Now I hope it'll help you if I explain that my liver mets were found in 2009, and here I am, still posting, had several treatments (hormonal and chemo), and there's been lots of research on new treatments.  Am now on capecitabine (tablet chemo) for the 2nd time.

Hang in there, look for hope (even a small thing each day?) and support, and we're here for you. 

Katherine2701
Member

Re: liver mets to keep my bone mets company

Oh Charlotte I'm sorry to hear you are in pain. I know how you feel totally, it is very depressing and hard to keep upbeat when you have pain going on all the time. It is great to hear from others though and as much as I don't want anyone else to go through what I'm going through it is lovely to hear from a fellow sister who can empathise! I'm hoping to be back on chemo in the next two weeks and hoping that will alleviate some of it. Is there anything else planned for you treatment wise?
Newyork
Member

Re: liver mets to keep my bone mets company

Kimi rubbish news and just wanted to send you a very big hug. Kadalyca is meant to be wonderful drug though so fingers tightly crossed this will work really well for you all you can do is think positive in the meantime.

Katherine feeling for you too. I don't have the same problem as you but I do have the disease growing out of the bone along a nerve root which affects my right arm. My oh my I'm in pain nerve pain is just rotten sorry I don't know how to get rid of it and am still finding my way on how to manage it. Radiotherapy in May just gone made me pain free came off painkillers for two weeks loved it and then it just starts up again so back on pain relief 😞

Charlotte

Homer
Member

Re: liver mets to keep my bone mets company

hi katherine,

 

thanks for your reply

 

i get shoulder pain too but i also have mets in my spine so i am  not sure whats causing mine really!

 

hope your onc gives you a new option that you can start straight away xx

 

kimi x

Katherine2701
Member

Re: liver mets to keep my bone mets company

Hi there, I was diagnosed with lung, bone and liver mets at first diagnosis and had numerous large tumours in my liver including on 7cms in size. I had FEC-T and the ones in my liver disappeared. That was last August. Yesterday I got my scan results and unfortunately it has returned with a vengeance into my liver. I'm going to see my Oncologist next Thursday (earliest appointment available) to find out what treatment options are available for me so can't give you any advice at the moment but just wanted to say you are not alone!

I have rotten pain in my shoulder which is due to my liver pressing on the nerves of my diaphragm. Has anyone else had that at all and how did they get rid of it? Katherine
Homer
Member

liver mets to keep my bone mets company

saw my oncologist on wednesday, he gave me the results of a CT i had back in june,

its the 1st time i have seen him since, as i see the nurse led j-tox in between my onc

 

it wasnt good news the CT showed multiple liver mets,

it knocked me for six, as i have always said i was "happy" that since my bone mets

arrived 2years ago its not spread outside the bone....unfortunatly now it has.

 

myself & my onc are both hoping that the chemo kadcyla he put me on is working,

so far i have had 2 number 3 is next week, so fingers crossed.

he is requesting another CT so see if the chemo is doing its job.

 

kimi x