Hi I'm new to this but was drawn to the lymphovscular invasion heading.
I was diagnosed with ductal invasive carcinoma last November. The ultrasound results indicated 2 tumours one grade 2 and one grde 1. My consultant insisted there was only one tumour.
After my surgery my consultant said he had "found a second tumour " ! - what a surprise!
One tumour is 18mm the other is 15 mm both are of "no special type". The larger one is grade 2 the smaller is grade1(15mm) .
I also have a "strange" area where I was accidentally burnt by the surgeon with a cauterisation tool which looks very indented and red.
Lymphovascular invasion is present.
I had Sentinal lymph node surgery which was clear.
I am ER positive.
Also noted is that the larger tumour is associated with a fibroadenoma.
Should I have been offered chemo therapy?
I am concerned as everything that I have read indicates that I should have had chemotherapy- I had surgery,radiotherapy and endocrine treatment- tamoxifen- even though I am post menopousal as I can't have AI as I already have osteoporosis).
I hope it's good news this time Maggie.
I'm on the merry-go-round again in a way. http://forum.breastcancercare.org.uk/t5/Hormone-therapy/Hyperplasia/m-p/848813#U848813
You were on anastorzole weren't you? And now you're on Tamoxifen? I'm the other way round!
Hi Maggie May you are not going to believe this I was thinking about you today and wondering how you were getting on! I have been in touch with B C N and she spoke to the surgeon they have red flagged me so I will be seen within 2 weeks. Can't believe I'm back on the merry go round again.
I'm sorry to hear that you've got the worry all over again along with the worry of seeing lymphovascular invasion on your path report.
Phone your BCN first thing tomorrow. I got a mild telling off for going to my GP when I had problems instead of getting in touch with the breast team.
Sending you ((hugs))...again!
Hi everyone I am on holiday and have noticed an indentation in my other breast there is a small lump above it, surely it can't be back again I am taking tamoxifen!
Got speaking to my B C N today she is going to see if the new oncologist will see me sooner apparently mine has left! Here's hoping I get things explained. The nurse said most people don't want or need to know what's in their notes.
I was grade 2 no nodes affected had radiotherapy and I'm on tamoxifen now, I wasn't offered chemo they said it would only give me an extra 2%, but if they had told me about the lymphovascular invasion I would have queried that figure! I just think I should have been told.
Thank you for responding
I too understand the shock of finding out you have Lymphovascular Invasion. I knew at least one of my lymph nodes was affected, but even though I opted to have chemo (grade 3 ER+, PR+) I was actually half way through it when I found out I had Vascular Invasion. I was shocked and at the same time relieved that I had decided to have chemo. If I'd had a lower grade cancer, with no lymph nodes affected, I might have felt differently though, as I went on to have Anastrazole. I also met a lovely lady in her late 70s early 80s who has so many health problems she couldn't have surgery or chemo etc. She is on Letrozole, which is shrinking her tumour and hopefully any stray cells there might be.
Yes I do feel you understand thanks for that, hubby thinks I should put it behind me but it was such a shock when I seen it written in my notes. I think if I had been told about it at the time I would have been able to deal with it better.
You sound similar to me mine was grade 2 though. I had my surgery 10 months ago and wouldn't have known about the L v I if I hadn't got my notes for insurance purposes, im upset about this and feel like I did when I was first diagnosed. I feel it's too late for chemo now and I don't see my oncologist for another six months. Thank you for responding to my post x
I'm grappling with this dilema at the moment too, so I'll share my understanding of it so far.
My cancer was grade 1, with no node involvement. However after having my Mx and DIEP, I went to see the onc for my histology report and he said that he was just going to discuss with the registrar whether I'll need chemo!!! This was news to me as chemo had never been mentioned and I'd assumed that because there was no node involvement, I wouldn't need it.
The registrar came back in and said that they had put all of my details into their database and it reported that chemo would be too harsh for the benefits that I would get. This was the first I had heard about my cancer being LVI, so for me it was like being diagnosed for the first time.
He said that when they put my details into their database, my survival rate was 98% - fantastic! Chemo would've only given me an extra 2% survival. The tamoxifen would help as my cancer was hormone receptive.
I have since spoken to my bc nurse and she reiterated what was discussed and said that if the chemo came out as giving me an extra 4%, then they would have prescribed it.
I guess I could push for chemo if I wanted, but I'm trying to take comfort from the 98% survial rate without it, which in itself is a good prognosis.
I suggest to you that you find out the percentages, if they feel that you need the chemo they will give it. Was your cancer hormone receptive? Will you be given tamoxifen?
I hope this helps.
My pathology report said "Vascular invasion". This meant that the tumour had invaded blood vessels so some cancer cells could have got into the bloodstream.
"Lymphovascular invasion" implies that some cancer cells could have got into the blood stream or lymphatic system. So they could lodge elsewhere and start to grow.
My Grade of cancer was grade 2, so middle "speed" of growth.
I decided to opt for chemotherapy to kill off any stray cells which may be floating around...but it wasn't an easy decision.
Make sure you understand ALL of your pathology report because you need to piece together ALL the factors...how big the tumour was, how fast it was growing, whether it is "fed" by hormones etc.
This Breast Cancer Care website is brilliant for helping you understand it all, bit by bit. Their booklets are very clear and you can phone up to speak to a breast care nurse with any questions (as I have done many times!)
It can take time to make decisions, I find this the toughest bit. There seem to be no crystal clear answers. I hope you don't feel too swamped by it...keep asking questions until you come to something you are comfortable with. We're all here to egg each other on!