I too am walking like a 90 year old at the moment. Went to the GP yesterday and had blood tests done, have another appointment next Monday. Both my parents have rheumatoid arthritis and I hope I don't have the same but it really seems weird that 4 years of Letrozole and now I get the side effects! She did say it could be a virus or something less sinister, I hope so. As I say, I've only had this really bad knee pain for about 10 days.
hi lucyloo and salsasuzi, i'm in saddleworth ( i started this thread and it didn't even occur to me that people from oldham might not think they are from manchester!), it would be lovely to meet up at some stage tho having just had first fec a a week last thursday, i am now neutrophenic so avoiding people and infections ( hopefully).
isnt it? i shall wave as i go to the swimming pool this morning. ive just come off femara(letrozole) because of the severe side effects. i had my op in dec and rads in jan ive tried arimadex as well and they both have the same SE for me!! as my cancer was tubular(rare) onc has agreed i can come of it after tests for rhumatoid arthritis and a bone scan showed i have not got either yet i walk like a 90 year old!
I've been coming down sideways like a crab, but my sister said come down backwards, yes it is much easier. Have a doctor's appointment tomorrow to see whether it is the Femara or just old age, it feels like arthritis.
Sue, my sister lives in Craig Avenue, small world!
Quick tip for when you are stiff coming downstairs - sounds daft, but if you turn round and come down backwards, it really is easier!
Hi I Live in Bolton but have had some chemo at the Christie. Currently had x4EC,for x4 Tax to start in a few weeks.Don't know if thats any good but it's nice to hear from ladies going through same thing x
My sister lives in Urmston, right near Trafford General, or Park Hospital as I know it!
Do you know, I bet we walk past people in the street all the time with the same problems as us lot, but we don't know it, loads of girls do seem to be from Lymm, Flixton etc.
I'm in Knutsford, nearly five years since diagnosis and have been on Letrozole for about 4 years. Just this last week or so my knees have been absolutely killing me, I can barely get downstairs (upstairs is better). Would this be a side effect after all these years of being on it? I have had aching joints all the way along but nowhere near as bad as this. It's great to come back on this site, not been on for ages because not really had any probs.
just got back and the onc has told me to stop taking the letrozole because of the severe side effects and as recurrance is negligable anyway he will back me on this
mmmm there is a whisper about the high number of people from urmston, partington, lymm, carrington and sale with BC. does anyone know what was on the sites near shell, air products and the power station?
I had my rads at christie as well, again the team were fantastic especially the specialist radiographer. It is a fantastic feeling finishing your chemo!
Good luck with the rads
I'm not quite in Manchester but live south of Knutsford. Have just finished chemo yesterday-yipee, had 3 x FEC, 3 x Tax, which I had at Macclesfield. Will be having rads at Christies in a few weeks.
Would love to keep in touch/meet up with anyone in the area.
Not sure if we've met. RL name is Dinah if that helps. I have met a Jane through this journey but you might not be the same one! She is a nurse.
Yes i was under at christie, they were fantastic al the way through my treatment.They got back to me if I had questions and they treated me as an individual during my treatment. I had most of my chemo on ward 3.
Sandripples have we met? or are you another of the growing number of people have come across in lymm that are on this merry journey
I also live in Lymm! I am having chemo at Halton, and have one more Epirubicin then move onto CMF. Feel free to contact me too if you like.
I finished my chemo in december but i had 6 sessions of FEC. I work in the Manchester area but live in lymm. My chemo is still fresh in my mind!!! so feel free to contact me.
Ps: one down means one less to go!
Anybody from around manchester? Just had my first Fec and would like to know if anyone else is undergoing treatment nearby and may like to help each other through a bit?