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mastectomy

jillybee
Member

Re: mastectomy

Pre meds are not used at all now.I think you are wheeled down,as you need your bed for when you come out of theatre anyway....also,less risk of infection,walking on the hospital corridor,you can imagine what gets picked up on your feet!Also,what do you wear when walking down,as you only have the hospital gown,which opens at the back !!
Tess1950
Member

Re: mastectomy

Hi Maria, I did walk down and put myself on bed ready for surgery.  They do not give pre meds at  my hospital.  Do they wheel you down because you have had a pre med? Ask if you can walk they can only say yes or no.

Thinking of you.

Tess

xxxx

GiulianaB
Member

Re: mastectomy

did you have reconstruction as well?
Maria_B
Member

Re: mastectomy

I'll let you know how I get on. Your last post made me think of the Aliens film, where Ridley says "get away from her you bi*** (not sure if I am allowed to type that?!). I will think of that next week as they wheel me down (why don't they let you walk?)
Tess1950
Member

Re: mastectomy

Hi Maria, yes a positive attitude does help.  I will be thinking of you next week.  I opted for the mastectomy as the Consultant said she would remove the lump on the left breast on left side.  That sounds funny but you will know what I mean.  She also said she was concerned about the nipple as it was inverted and I might have to go back to have that done.  Once was enough for me.  It is strange having one boob but friends call me boobie now. I am determined I will be here for a long time to come so will have chemo, injections and tablets and anything else they throw at me.  I am stronger than this alien that was in my body.  Good luck for next week. Take Care

Tess 

xxxx

Maria_B
Member

Re: mastectomy

My main coping method is to say to myself: "nothing bad is happening right now this minute", also to get my paints out and mess about for a couple of hours, and failing that I come on the forum and get inspired by people getting through it.

I do make a joke about it, but not everyone around me feels comfortable with that. My current joke is because I'm losing my nipple I can have one tattooed on - but why have a nipple tattoo? I could have a pink rose, or my employers logo, or a no entry sign.... this is giving me and my husband, oh, minutes of fun.

I'm having more surgery next week, so crossing everything for clear margins but since you can't actually see the DCIS I think the surgeon is just hoping for the best.

I decided to give the WLE another shot. That was his advice, and reading people's experiences of mastectomy, while many are positive, it is a more major op with more pain and longer recovery If I can avoid it I will

Looking forward to the autumn for once, where one way or another, I will be at the end of this part of the journey
1852
Member

Re: mastectomy

Tess thanks for asking physio said I have really tight and thick scar tissue
He showed me how to massage it cor it bl---y hurt says it will take a lot of
Hard massage to soften it so I will be seeing him weekly plus doing best I can at home
He also thinks I may still have some fluid build up which may disperse along with
Massage so it's back to hospital weekly but if it gets rid of this pain then it will be worth it
Take care and keep excercises and massage and keep scar soft wouldn't wish this on anyone
Den 😋
Tess1950
Member

Re: mastectomy

I didn't want chemo but I know if I don't it will come back. Not everyone has to have it you may not. I will keep everything crossed. Love Tess xxxx
Tess1950
Member

Re: mastectomy

Hi Ali, I found the waiting really hard but you do get through it. My heart does go out to you because I know exactly how you feel.  Normally time goes quick but in this case it doesn't.  You wake up and it is there from that moment.I tried to keep busy that was my way.  I thought the day would never come but it does.  I imagined all sorts of things and then would get angry with myself for being so negative. You have to be positive.  I used to say to myself you will not get the better of me I'm stronger than you.  It sounds silly but it worked for me.  I felt the cancer was an alien and I did not want it in my body so therefore I was going to fight to get it out. The fatigue does get you and I do spend a lot of time standing.  One day I will fall asleep standing. My hubby has taken a can,mug and phone as I fall asleep. I spent ages doing a text as I kept falling asleep only to fall asleep again and my finger was on the back button and I deleted the whole lot. Keep your sense of humour as you need it. I came across as coping very well but wasn't doing as well as everyone thought. I became friends with my exercise teacher whose mother and sister had been through it.  She has been marvellous ringing and texting and she knew how I was feeling.  We are so close now so because of the cancer I have made a very good friend. She has taught me to look for the positive in everything. I will be thinking of you. Write any time you want I will be here.

Love Tess

xxxxx

Ali1962
Member

Re: mastectomy

Hi Tess, 

 

The fatigue is so frustrating isn't it. I went to post a letter today. Walked very slowly for about 20 min and I've been completely wiped out since. How do you feel about your results? I guess it's good that the cancer has gone but would be nice to avoid chemo. That's the thing I really dread. I get my results on the 26th. 

 

Take care, Ali

Tess1950
Member

Re: mastectomy

Hi Den, How did you get on at physio?  I have swelling but was not drained but consultant said it's ok as it will go into your body.  It does restrict movement and my friend said you look as though your breast has grown back.  I never had a big breast.They found two types of cancer but cancer free now.  Could be a couple of cells they can't see.  I have to see oncologist on 27th.  I have to have chemo, injections and tablets.  At the moment I just feel so fatigued and if I sit down I fall asleep immediately.  I am now doing everything standing up and that way so far I have stayed awake.  Hope you feel ok soon you have been suffering a long time now.

Take Care

Tess

xxxxx

Tess1950
Member

Re: mastectomy

Hi Ali, when do you get your results? The waiting was very hard as time seemed to stand still.  I am thinking of you.  I have to keep myself busy as every time I sit down I fall asleep.  I had 2 types of cancer but cancer free now.  Could be a couple of cells they can't see. I asked for a copy of my report and am slowly beginning to understand it.  I have to see oncologist on 27th.  I have to have chemo, injections and tablets. I did not have reconstruction did you?  Hope you don't have to wait to long.

Take care

Tess

xxxxx

Tess1950
Member

Re: mastectomy

Hi Rosie,

You have had it really hard, both you and your husband. Hope you are both okay now. It is difficult with a dog but as you know they are part of the family.  Been on beach with her this morning as she doesn't have to be on a lead so don't have to hold her. My husband still can't walk very far as he had his hip repaired not long ago. Most inconsiderate to fall through a roof. He took our dog out a week ago and it messed him up for three days. Results back. Two types of cancer but cancer free now. Could be couple of cells they can't see. Have to have chemo, injections and tablets. Appointment 27th to discuss when it's happening. Have copy of report and trying to understand it slowly. It is certainly a shock to the system but I keep my sense of humour. 

Take care

Tess

xxxx

Tess1950
Member

Re: mastectomy

Hi Jules,

I am joining you on the chemo train. Two types of cancer found. Cancer free now but could be a couple of cells they couldn't see.  Apart from chemo I have to have injections and tablets.  Got copy of my report and trying to understand it slowly.  How did you get on with chemo on thursday? I have been told I will lose my hair will you? I am 64 but have thick long hair and I know it sounds vain but I will certainly miss it.  Really it shouldn't be important but it is.  Everyone says I have lovely hair and you can't see the grey in it so I am lucky. Thinking of you.

Tess

xxxxx

Tess1950
Member

Re: mastectomy

Hi Maria,

Got my results. Two types of cancer one in the lump and one around nipple area. Cancer free but could be a couple of cells they couldn't see.  Have to have chemo, injections and tablets. Got copy of report which I  am trying to decipher slowly.  Have to see oncologist on 27th to discuss when it's happening.  What did you have done and how did you find ways of coping?  I have a good sense of humour but having to look for it sometimes. I am finding I am so fatigued.  I have never felt like this. I sit down and fall asleep.  I am so active I find that hard.  I feel as though I am wasting my time. 

Tess

xxxxxxxxCat Happy

Tess1950
Member

Re: mastectomy

Hi Val, Hope you are okay? Had my results thursday.  Two types of cancer one the lump and the other around the nipple area. Now cancer free but could be a couple of little ones they can't see. I got copy of my results and am trying to understand them.  I made the right decision to have a mastectomy.  I have to have chemo, injections and tablets.  I see oncologist on 27th.  Still trying to get my head round it.  My left breast or non breast is still swollen but consultant said not infected it's ok.  I thought she would drain it. She was pleased with how it has healed.  I am not having reconstruction as I am 64 and one trip to hospital was enough for me.  With a little help of falsie and slight change of clothing no one will know.

Take Care.

Tess

1852
Member

Re: mastectomy

Hi I am from sept 14thread I had mastectomy August 14 I still have a lot of discomfort and swelling had drainage prior to chemo and had 90mls drained couple months ago still do excercises 3day most days Brest nurse thinks it's scar tissue and tight scar am going to physio this aft to see if he can help am I expecting too much too soon I don't feel I am Den X
Ali1962
Member

Re: mastectomy

Good luck with your results today Tess.

 

I had my mastectomy on Monday. Not feeling too bad - but I think I will get worse as results day looms!

rosie14
Member

Re: mastectomy

Hi Tess I had a db mx last July and my husband had a malignant melanoma removed from his back just before my surgery and he had 3 stitches in his back! We too have a dog and it is very difficult coping without help! We live in Cyprus and don't have any family here and our true friends out here don't live here permanently! I paid my cleaner to come in for an hour an day to do the jobs we couldn't do!
It's awful waiting for results as we all assume the worst! I do hope you will hear soon and your mind will be put at rest.
I had a build up.of fluid after mastectomy and had to,have it drained twice a week for several weeks. My stomach became swollen and I looked as if I was expecting. It took about 2 weeks for it to disperse once I was more mobile!
Take each day at a time!
jules_66
Member

Re: mastectomy

Hi Tess.  You are so right about the waiting being so hard, as I'm sure you've read lots of us totally agree with that.  I had a mx on 1st April and am due to start chemo next Thursday, had hoped to get away without chemo but sadly not. I now feel Ijust want to get on with it. I, like you,  am the one who is always in control and have tried to carry on as normal but you do need to be able to let things out and that's where these forums are just brilliant, so much support, no one judges you and no issue is too small or trivial. I hope things settle down for you and that your news is good today. Let us know how you get on, take care Jules xxx

Tess1950
Member

Re: mastectomy

Hi Maria,

Many thanks for the reply. Yes the waiting is the worst and you have to put on a brave face for everyone else. They are at a loss and don't know what to say and I think my hubby is petrified so I am strong for him. I have never known time go so slow.  Will let you know how I get on.

Thanks again,

Tess

xxxx

Maria_B
Member

Re: mastectomy

Hi Tess.  Good luck with your results on Thursday.  The waiting really is the worst.  Please let us know how you get on.

 

Here on the forums you don't need to put on a brave face.  You can say EXACTLY how you are feeling, which is a nice change.

 

Good luck xxx

Tess1950
Member

Re: mastectomy

Hi Val, Thanks for your reply. Why I put Evadne as my name I don't know because I am Tess. Not quite with it at the best of times.  I had to go to doctors today as I have a fluid build up under the scar.  I was put on antibiotics.  I thought if you had a fluid build up that it would be drained. Also on the mastectomy side my ankle is swelling up during the day.  Do you know if this is normal?  I am seeing the specialist of Thursday and usually time goes so quickly but it is dragging. Everyone thinks I am coping really well but you can't go around saying how you really feel.  My hubby walked the dog or hobbled with the dog friday and has really knocked himself up. At the moment I feel as though I am acting a part and this is not really happening then reality kicks in and I know it's real and feel scared and alone even though I have a lot of support. Does that make sense? How are you now? Do you have to have any more treatment?  What helps you cope?  I do have a good sense of humour and that does help.  Take care.

 

Love Tess

xxxx

newey47
Member

Re: mastectomy

Hi Evadne,  I am sorry you are going through all this.  I too had a mastectomy back on March 10th.  I too have a scar of course, it is not as scary as you think and you soon get used to looking at it.  It does get a bit better.  Did you have reconstruction?

 

It is always scary waiting for results, all of us girls on here have been through it, I had all my nodes removed and that has not caused too much of a problem for me either, so if you do have to have this done, dont worry.  Silly saying dont worry because of course you will.

 

Try to stay calm, you will soon have the results.

 

Val xxx

Lucy_BCC
Member

Re: mastectomy

Hi Tess

Welcome to the BCC forums where I am sure you will find the support you are looking for. In addition, please feel free to call our helpliners for further practical and emotional support on 0808 800 6000, lines are open 9-5 weekdays and 10-2 Saturdays

I am posting a link to the 'just diagnosed' area of the site where you will find information and further support ideas which I hope you will find helpful :

https://www.breastcancercare.org.uk/diagnosis

Take care
Lucy BCC

Tess1950
Member

mastectomy

I had a mastectomy on 1st May.  I had a choice but chose a mastectomy as was advised if the lump was removed I might have to go back and have the nipple removed as they were concerned as it was inverted.  I also had 2 or 3 nodes removed.  I go back for my results on 14th May to see if I have to have further surgery on the nodes.  Also I will know if anything else has to be done.  I am so so scared and feel so alone. I have a good support network and a brilliant husband but I am the one that is always in control. On the same day I was diagnosed my husband was waiting to go down for an operation on a broken hip. He fell through a roof. I was diagnosed even before the biopsy had been done. I am putting on a brave face but it is so hard.  Time normally goes fast but waiting for this appointment seems to be forever. Everyone is amazed at how well I am coping.  If only they knew.  I have seen by scar and it is scary and makes me feel sick.  I am not sure by writing this if I am doing the right thing. Please advise? Evadne